Protocol - Long COVID - Symptoms Due to COVID-19 - Skin and Hair
Description
This protocol helps better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with hair loss and skin problems.
Specific Instructions
None
Availability
Protocol
1a. Do you still have the hair loss (alopecia)?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
1b. Does/did the hair loss (alopecia) affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
1c. When did the hair loss (alopecia) clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Dont know
[ ] Refuse to answer
2a. Do you still have skin problems?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
2b. Does/did the skin problems affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
2c. When did the skin problems clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Dont know
[ ] Refuse to answer
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on hair loss (alopecia); skin problems.
General References
NoneProtocol ID
992014
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992014_Long_COVID_Symptoms_Skin_Hair_Alopecia | ||||
| PX992014010100 | Do you still have the hair loss (alopecia)? | N/A | ||
| PX992014_Long_COVID_Symptoms_Skin_Hair_Alopecia_Clear | ||||
| PX992014010300 | When did the hair loss (alopecia) clear? | N/A | ||
| PX992014_Long_COVID_Symptoms_Skin_Hair_Alopecia_Normal_Activites | ||||
| PX992014010200 | Does/did the hair loss (alopecia) affect more | N/A | ||
| PX992014_Long_COVID_Symptoms_Skin_Hair_Skin_Problems | ||||
| PX992014020100 | Do you still have skin problems? | N/A | ||
| PX992014_Long_COVID_Symptoms_Skin_Hair_Skin_Problems_Clear | ||||
| PX992014020300 | When did the skin problems clear? | N/A | ||
| PX992014_Long_COVID_Symptoms_Skin_Hair_Skin_Problems_Normal_Activites | ||||
| PX992014020200 | Does/did the skin problems affect your more | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, alopecia, skin problems, John Hopkins
Measure Protocols
Publications
There are no publications listed for this protocol.