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Protocol - Long COVID - Symptoms Due to COVID-19 - Pediatric

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Description

A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience in children and young people.

Specific Instructions

None

Availability

Available

Protocol

1. If you have had symptoms of COVID-19, how much do you agree with the following statement?


"I have fully recovered from COVID-19"
[ ] 0
[ ] 1
[ ] 2
[ ] 3
[ ] 4
[ ] 5
[ ] 6
[ ] 7
[ ] 8
[ ] 9
[ ] 10


2. How do you feel right now?
[ ] I feel as healthy as normal
[ ] I am not feeling quite right


3. Do you have a fever?
[ ] Yes
[ ] No


4. Do you feel chills or shivers (feel too cold)?
[ ] Yes
[ ] No


5. If you are able to measure it, what is your temperature?
________


6. Do you have a persistent cough (coughing a lot for more than an hour, or 3 or more coughing episodes in 24 hours)?
[ ] Yes
[ ] No


7. Are you experiencing unusual fatigue/tiredness?
[ ] No
[ ] Mild fatigue
[ ] Severe fatigue - I struggle to get out of bed


8. Are you experiencing problems with your sleep, including getting to sleep, waking in the night or waking early?
[ ] Yes
[ ] No


 8a. If yes, please describe
 ______________________


9. Are you experiencing unusual shortness of breath?
[ ] No
[ ] Yes, mild symptoms - slight shortness of breath during ordinary activity
[ ] Yes, significant symptoms - breathing is comfortable only at rest
[ ] Yes, severe symptoms - breathing is difficult even at rest


10. What are your current symptoms? (Please tick all that apply)
[ ] loss of smell/taste
[ ] unusually hoarse voice
[ ] unusual chest pain or tightness in your chest
[ ] unusual abdominal pain
[ ] diarrhoea
[ ] headache
[ ] confusion, disorientation or drowsiness
[ ] unusual eye-soreness or discomfort (e.g. light sensitivity, excessive tears, or pink/red eye)
[ ] skipping meals
[ ] dizziness or light-headedness
[ ] sore throat
[ ] unusual strong muscle pains
[ ] earache or ringing in your ears (tinnitus)
[ ] raised, red, itchy welts on the skin or sudden swelling of the face or lips
[ ] red/purple sores or blisters on your feet, including your toes
[ ] no symptoms
[ ] other


 10a. Are there other important symptoms you want to share with us?
 ____________


11. Since the start of your COVID-19 symptoms, have you had a period longer than one week with none of the above symptoms at all (where you were back to how you were pre-COVID)
[ ] Yes (I have had a period of one week or more since my test with none of the above symptoms)
[ ] No (My symptoms have been continuous since Covid test)
[ ] Not applicable

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Child, Adolescent

Participants

Children and young adults, aged 11 to 17 years old

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Protocol Name from Source

Long COVID in Children and Young People (The CLoCk Study)

Source

UCL Great Ormond Street Institute of Child Health, Long COVID in Children and Young People (The CLoCk Study), May 9, 2022, Questions from section “About your health at the moment”.

General References
None
Protocol ID

992020

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992020_Long_Covid_Symptoms_Pediatric_Current_Symptoms
PX992020100000 What are your current symptoms? (Please tick more
all that apply) show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_Current_Symptoms_Other
PX992020100100 What are your current symptoms? (Please tick more
all that apply) Are there other important symptoms you want to share with us? show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_Do_You_Have_Chills_Shiver
PX992020040000 Do you feel chills or shivers (feel too cold)? N/A
PX992020_Long_Covid_Symptoms_Pediatric_Do_You_Have_Fever
PX992020030000 Do you have a fever? N/A
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Problems_Sleep
PX992020080000 Are you experiencing problems with your more
sleep, including getting to sleep, waking in the night or waking early? show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Problems_Sleep_Describe
PX992020080100 Are you experiencing problems with your more
sleep, including getting to sleep, waking in the night or waking early? If yes, please describe show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Shortness_Breath
PX992020090000 Are you experiencing unusual shortness of breath? N/A
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Unusual_Fatigue_Tiredness
PX992020070000 Are you experiencing unusual fatigue/tiredness? N/A
PX992020_Long_Covid_Symptoms_Pediatric_How_Feel_Right_Now
PX992020020000 How do you feel right now? N/A
PX992020_Long_Covid_Symptoms_Pediatric_Persistent_Cough
PX992020060000 Do you have a persistent cough (coughing a more
lot for more than an hour, or 3 or more coughing episodes in 24 hours)? show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_Start_Period_Longer_Week_No_Symptom
PX992020110000 Since the start of your COVID-19 symptoms, more
have you had a period longer than one week with none of the above symptoms at all (where you were back to how you were pre-COVID) show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_Symptoms_Covid_How_Much_Agree_Recovered
PX992020010000 If you have had symptoms of COVID-19, how more
much do you agree with the following statement? "I have fully recovered from COVID-19" show less
N/A
PX992020_Long_Covid_Symptoms_Pediatric_What_Your_Temperature
PX992020050000 If you are able to measure it, what is your more
temperature? show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, symptoms, CLoCk, COVID, long COVID, symptoms

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.