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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 70
	Color Vision The Neitz Test of Color Vision Remove
	Contact Biometry University of Southern California, The Los Angeles Latino Eye Study (LALES), 2000-2003 Remove
	Contact Lens Use- Adult National Eye Institute, Herpetic Eye Disease Study II, (HEDS II), Recurrence Factors Study Enrollment Checklist, 12/1/95 Check all Current Age Add to Toolkit Remove
	Dry Eye Syndrome Centre for Vision Research, Blue Mountains Eye Study (BMES-3), 2002-2004 Remove
	Eye Diseases and Treatment in Young Children The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007 Check all Current Age Add to Toolkit Remove
	Eye Drop Use Beaver Dam Eye Study Remove
	Eye Patching The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007 Check all Current Age Add to Toolkit Remove
	Intraocular Pressure University of Southern California, The Los Angeles Latino Eye Study (LALES), 2000-2003 Remove
	Ocular Exposure to Ultraviolet Light National Eye Institute (NEI), Age-Related Eye Disease Study (AREDS), Phase II, Sunlight Exposure Questionnaire, 2/9/1996 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Eye Disease and Treatments University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Strabismus Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008 Remove
	Refractive Error - Adult University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003 Check all Current Age Add to Toolkit Remove
	Refractive Error - Children The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007 Check all Current Age Add to Toolkit Remove
	Retinal Digital Photography National Heart, Lung and Blood Institute (NHLBI), Multi-Ethnic Study of Atherosclerosis (MESA), 2000-2008 Remove
	Use of Eye Glasses- Adult Centre for Vision Research, Blue Mountains Eye Study- 3 (BMES-3), 2002-2004 Check all Current Age Add to Toolkit Remove
	Use of Glasses and/or Contact Lenses as a Child The Centre for Vision Research, Sydney Myopia Study, 2005 Check all Current Age Add to Toolkit Remove
	Visual Acuity National Eye Institute (NEI), Early Treatment Diabetic Retinopathy Study (ETDRS), 1979-1989 Remove
	Visual Function Vision Function Questionnaire (VFQ-25) Remove
	Cardiorespiratory Fitness - Exercise Test Estimate - One Mile Walk Kline, G., et al. Estimation of VO2max from a one-mile track walk, gender, age, and body weight. MED SCI SPORT EXER, 1987 Check all Current Age Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Cardiorespiratory Fitness - Exercise Test Estimate - Treadmill Test Ebbeling, E.B., et al. Development of a single-stage submaximal treadmill walking test. MED SCI SPORT EXER, 1991 Check all Current Age Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Cardiorespiratory Fitness - Non-Exercise Test Estimate Jurca, R.,et al, Assessing cardiorespiratory fitness without performing exercise testing, AM J PREV MED, 2005 Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Grip Strength National Health and Nutrition Examination Survey (NHANES), Muscle Strength Procedures Manual, 2013-2014 Check all Current Age Add to Toolkit Remove
	Integrated Fitness - Adult The Presidents Challenge Adult Fitness Test, 2008 & Fitness Testing and Assessment Manual 4th ed. YMCA, 2000 Check all Current Age Add to Toolkit Remove
	Integrated Fitness - Child FITNESSGRAM®/ACTIVITYGRAM® Test Administration Manual, 2007 Check all Current Age Add to Toolkit Remove
	Integrated Fitness - Older Adult Functional fitness test for community-residing older adults Check all Current Age Add to Toolkit Remove
	Physical Activity Readiness Physical Activity Readiness Questionnaire for Everyone (PAR-Q+) Check all Current Age Add to Toolkit Remove
	Physical Activity Self-Efficacy - Adolescent PACE Questionnaire, 2001 Check all Current Age Add to Toolkit Remove
	Physical Activity Self-Efficacy - Adult McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992 Check all Current Age Add to Toolkit Remove
	Physical Functioning - Objective Short Physical Performance Battery Check all Current Age Add to Toolkit Remove
	Physical Functioning - Subjective National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2017-2018 Check all Current Age Add to Toolkit Remove
	Sitting-Sedentary Behavior - Adolescent Adolescent Sedentary Activity Questionnaire (ASAQ) Check all Current Age Add to Toolkit Remove
	Sitting-Sedentary Behavior - Adult Marshall, A. Leat al, Measuring total and domain-specific sitting: A study of reliability and validity, MED SCI SPORT EXER, 2010 Check all Current Age Add to Toolkit Remove
	Total Physical Activity - Comprehensive - Adolescent Three-Day Physical Activity Recall (3 Day PAR) Check all Current Age Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Total Physical Activity - Comprehensive - Adult Seven-Day Physical Activity Recall (7 Day PAR) Check all Current Age Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Total Physical Activity - Comprehensive - Older Adult CHAMPS Activities Questionnaire for Older Adults Check all Current Age Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Total Physical Activity Screener Stanford Brief Activity Survey Check all Current Age Add to Toolkit Remove
	Total Physical Activity-Objective Measure The Health, Aging and Body Composition (Health ABC) Study, 2009 Check all Current Age Add to Toolkit Remove
	Walking-Ambulation Objective Measure Omron® HJ-112 Instruction Manual Check all Current Age Add to Toolkit Remove
	Activities of Daily Living (ADLs) Gill, T.M., et al. A program to prevent functional decline in physically frail, elderly persons who live at home. NEW ENGL J MED, 2002 Check all Current Age Add to Toolkit Remove
	Auditory Perception and Noise Exposure National Health and Nutrition Examination Survey (NHANES), Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+, 2011 Check all Current Age Add to Toolkit Remove
	Balance Health, Aging and Body Composition (Health ABC) Study, Operations Manual Volume XIII, One Leg Stand, 2007 Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Behavioral Disturbances Neuropsychiatric Inventory-Questionnaire (NPI-Q) Check all Current Age Add to Toolkit Remove
	Cognitive Changes Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) Check all Current Age Add to Toolkit Remove
	Cystatin C Assay for Kidney Function National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Dental Issues and Difficulty Chewing Health, Aging and Body Composition Study (Health ABC), Oral Health and Dental History Questions Remove
	Falls Maintenance of Balance, Independent Living, Intellect, and Zest in the Elderly of Boston (MOBILIZE Boston) Check all Current Age Add to Toolkit Remove
	Family History of Dementia and Longevity National Institute on Aging (NIA), Health and Retirement Study, Family History of Dementia and Longevity, 2016 Check all Current Age Add to Toolkit Remove
	Foot Pain Framingham Foot Assessment Clinical Tool Check all Current Age Add to Toolkit Remove
	Frailty National Institute on Aging (NIA), Study of Osteoporotic Fractures (SOF), Frailty Index Check all Current Age Add to Toolkit Remove
	Involuntary Weight Loss Health, Aging, and Body Composition Study (Health ABC), Weight History, Version 1.1a Check all Current Age Weight Loss/Gain Add to Toolkit Remove
	Knee Injury and Osteoarthritis Knee injury and Osteoarthritis Outcome Score (KOOS) Check all Current Age Add to Toolkit Remove
	Life Space The Life Space Questionnaire Check all Characteristics of Current Residence Current Age Add to Toolkit Remove
	Psychological Resilience Brief Resilience Scale (BRS) Remove
	Smell and Taste National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013 Check all Current Age Current Pregnancy Status - Bioassay Add to Toolkit Remove
	Urinary Incontinence Health, Aging, and Body Composition Study (Health ABC), Urinary History Check all Current Age Add to Toolkit Remove
	Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning Remove
	Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120. Check all Current Age Add to Toolkit Remove
	Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS) Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Clinician Confidence in Returning Genetic Test Results Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire Remove
	Information Sources for Patients after Return of Results Information Seeking V2 from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) Check all Current Age Add to Toolkit Remove
	Organizational Readiness for Change Organizational Readiness for Implementing Change (ORIC) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS) Remove
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR) Remove
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS) Remove
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Regret about Healthcare Decisions Decision Regret Scale Check all Current Age Add to Toolkit Remove
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results Check all Current Age Add to Toolkit Remove
	Understanding Health Implications of Genomics KnowGene Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
Total Protocols in My Toolkit: 70

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 January 28). Color Vision. https://www.phenxtoolkit.org/protocols/view/110201

PhenX Toolkit. (2026 January 28). Contact Biometry. https://www.phenxtoolkit.org/protocols/view/110101

PhenX Toolkit. (2026 January 28). Contact Lens Use- Adult. https://www.phenxtoolkit.org/protocols/view/111301

PhenX Toolkit. (2026 January 28). Dry Eye Syndrome. https://www.phenxtoolkit.org/protocols/view/110301

PhenX Toolkit. (2026 January 28). Eye Diseases and Treatment in Young Children. https://www.phenxtoolkit.org/protocols/view/110401

PhenX Toolkit. (2026 January 28). Eye Drop Use. https://www.phenxtoolkit.org/protocols/view/110501

PhenX Toolkit. (2026 January 28). Eye Patching. https://www.phenxtoolkit.org/protocols/view/110601

PhenX Toolkit. (2026 January 28). Intraocular Pressure. https://www.phenxtoolkit.org/protocols/view/110701

PhenX Toolkit. (2026 January 28). Ocular Exposure to Ultraviolet Light. https://www.phenxtoolkit.org/protocols/view/110801

PhenX Toolkit. (2026 January 28). Personal and Family History of Eye Disease and Treatments. https://www.phenxtoolkit.org/protocols/view/110901

PhenX Toolkit. (2026 January 28). Personal and Family History of Strabismus. https://www.phenxtoolkit.org/protocols/view/111001

PhenX Toolkit. (2026 January 28). Refractive Error - Adult. https://www.phenxtoolkit.org/protocols/view/111401

PhenX Toolkit. (2026 January 28). Refractive Error - Children. https://www.phenxtoolkit.org/protocols/view/111402

PhenX Toolkit. (2026 January 28). Retinal Digital Photography. https://www.phenxtoolkit.org/protocols/view/111501

PhenX Toolkit. (2026 January 28). Use of Eye Glasses- Adult. https://www.phenxtoolkit.org/protocols/view/111303

PhenX Toolkit. (2026 January 28). Use of Glasses and/or Contact Lenses as a Child. https://www.phenxtoolkit.org/protocols/view/111302

PhenX Toolkit. (2026 January 28). Visual Acuity. https://www.phenxtoolkit.org/protocols/view/111101

PhenX Toolkit. (2026 January 28). Visual Function. https://www.phenxtoolkit.org/protocols/view/111201

PhenX Toolkit. (2026 January 28). Cardiorespiratory Fitness - Exercise Test Estimate - One Mile Walk. https://www.phenxtoolkit.org/protocols/view/150101

PhenX Toolkit. (2026 January 28). Cardiorespiratory Fitness - Exercise Test Estimate - Treadmill Test. https://www.phenxtoolkit.org/protocols/view/150102

PhenX Toolkit. (2026 January 28). Cardiorespiratory Fitness - Non-Exercise Test Estimate. https://www.phenxtoolkit.org/protocols/view/151401

PhenX Toolkit. (2026 January 28). Grip Strength. https://www.phenxtoolkit.org/protocols/view/150302

PhenX Toolkit. (2026 January 28). Integrated Fitness - Adult. https://www.phenxtoolkit.org/protocols/view/150201

PhenX Toolkit. (2026 January 28). Integrated Fitness - Child. https://www.phenxtoolkit.org/protocols/view/150203

PhenX Toolkit. (2026 January 28). Integrated Fitness - Older Adult. https://www.phenxtoolkit.org/protocols/view/150202

PhenX Toolkit. (2026 January 28). Physical Activity Readiness. https://www.phenxtoolkit.org/protocols/view/150402

PhenX Toolkit. (2026 January 28). Physical Activity Self-Efficacy - Adolescent. https://www.phenxtoolkit.org/protocols/view/151303

PhenX Toolkit. (2026 January 28). Physical Activity Self-Efficacy - Adult. https://www.phenxtoolkit.org/protocols/view/151302

PhenX Toolkit. (2026 January 28). Physical Functioning - Objective. https://www.phenxtoolkit.org/protocols/view/150501

PhenX Toolkit. (2026 January 28). Physical Functioning - Subjective. https://www.phenxtoolkit.org/protocols/view/151102

PhenX Toolkit. (2026 January 28). Sitting-Sedentary Behavior - Adolescent. https://www.phenxtoolkit.org/protocols/view/150602

PhenX Toolkit. (2026 January 28). Sitting-Sedentary Behavior - Adult. https://www.phenxtoolkit.org/protocols/view/150601

PhenX Toolkit. (2026 January 28). Total Physical Activity - Comprehensive - Adolescent. https://www.phenxtoolkit.org/protocols/view/150701

PhenX Toolkit. (2026 January 28). Total Physical Activity - Comprehensive - Adult. https://www.phenxtoolkit.org/protocols/view/150702

PhenX Toolkit. (2026 January 28). Total Physical Activity - Comprehensive - Older Adult. https://www.phenxtoolkit.org/protocols/view/150703

PhenX Toolkit. (2026 January 28). Total Physical Activity Screener. https://www.phenxtoolkit.org/protocols/view/150901

PhenX Toolkit. (2026 January 28). Total Physical Activity-Objective Measure. https://www.phenxtoolkit.org/protocols/view/150801

PhenX Toolkit. (2026 January 28). Walking-Ambulation Objective Measure. https://www.phenxtoolkit.org/protocols/view/151001

PhenX Toolkit. (2026 January 28). Activities of Daily Living (ADLs). https://www.phenxtoolkit.org/protocols/view/250101

PhenX Toolkit. (2026 January 28). Auditory Perception and Noise Exposure. https://www.phenxtoolkit.org/protocols/view/250201

PhenX Toolkit. (2026 January 28). Balance. https://www.phenxtoolkit.org/protocols/view/170801

PhenX Toolkit. (2026 January 28). Behavioral Disturbances. https://www.phenxtoolkit.org/protocols/view/250301

PhenX Toolkit. (2026 January 28). Cognitive Changes. https://www.phenxtoolkit.org/protocols/view/250501

PhenX Toolkit. (2026 January 28). Cystatin C Assay for Kidney Function. https://www.phenxtoolkit.org/protocols/view/250701

PhenX Toolkit. (2026 January 28). Dental Issues and Difficulty Chewing. https://www.phenxtoolkit.org/protocols/view/251301

PhenX Toolkit. (2026 January 28). Falls. https://www.phenxtoolkit.org/protocols/view/250601

PhenX Toolkit. (2026 January 28). Family History of Dementia and Longevity. https://www.phenxtoolkit.org/protocols/view/250801

PhenX Toolkit. (2026 January 28). Foot Pain. https://www.phenxtoolkit.org/protocols/view/250901

PhenX Toolkit. (2026 January 28). Frailty. https://www.phenxtoolkit.org/protocols/view/251001

PhenX Toolkit. (2026 January 28). Involuntary Weight Loss. https://www.phenxtoolkit.org/protocols/view/251101

PhenX Toolkit. (2026 January 28). Knee Injury and Osteoarthritis. https://www.phenxtoolkit.org/protocols/view/250401

PhenX Toolkit. (2026 January 28). Life Space. https://www.phenxtoolkit.org/protocols/view/251201

PhenX Toolkit. (2026 January 28). Psychological Resilience. https://www.phenxtoolkit.org/protocols/view/251401

PhenX Toolkit. (2026 January 28). Smell and Taste. https://www.phenxtoolkit.org/protocols/view/251501

PhenX Toolkit. (2026 January 28). Urinary Incontinence. https://www.phenxtoolkit.org/protocols/view/251601

PhenX Toolkit. (2026 January 28). Adoption of Genetic Services: Healthcare Settings. https://www.phenxtoolkit.org/protocols/view/310201

PhenX Toolkit. (2026 January 28). Awareness of Pharmacogenomics. https://www.phenxtoolkit.org/protocols/view/310301

PhenX Toolkit. (2026 January 28). Baseline Knowledge of Genomics. https://www.phenxtoolkit.org/protocols/view/310401

PhenX Toolkit. (2026 January 28). Clinician Confidence in Returning Genetic Test Results. https://www.phenxtoolkit.org/protocols/view/310501

PhenX Toolkit. (2026 January 28). Information Sources for Patients after Return of Results. https://www.phenxtoolkit.org/protocols/view/310601

PhenX Toolkit. (2026 January 28). Organizational Readiness for Change. https://www.phenxtoolkit.org/protocols/view/310701

PhenX Toolkit. (2026 January 28). Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS). https://www.phenxtoolkit.org/protocols/view/310801

PhenX Toolkit. (2026 January 28). Patient Response to Genetic Testing. https://www.phenxtoolkit.org/protocols/view/310901

PhenX Toolkit. (2026 January 28). Patient Satisfaction with Genetic Counseling. https://www.phenxtoolkit.org/protocols/view/311001

PhenX Toolkit. (2026 January 28). Perceived Compatibility with Current Clinical Practice. https://www.phenxtoolkit.org/protocols/view/311101

PhenX Toolkit. (2026 January 28). Program Evaluation: Patient Uptake of Genetic Services. https://www.phenxtoolkit.org/protocols/view/311201

PhenX Toolkit. (2026 January 28). Regret about Healthcare Decisions. https://www.phenxtoolkit.org/protocols/view/311301

PhenX Toolkit. (2026 January 28). Relative Advantage of a Genomic Medicine Intervention over Current Practice. https://www.phenxtoolkit.org/protocols/view/311401

PhenX Toolkit. (2026 January 28). Sharing Genomic Information with Relatives. https://www.phenxtoolkit.org/protocols/view/311501

PhenX Toolkit. (2026 January 28). Understanding Health Implications of Genomics. https://www.phenxtoolkit.org/protocols/view/311601

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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