Loading…

Protocol - Quality of Life Enjoyment and Satisfaction - Children

Add to My Toolkit
Description:

The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) is a 15-item self-administered questionnaire for children and adolescents ages 6-17 that captures life satisfaction over the past week. Each question is rated on a 5-point scale from 1 (Very Poor) to 5 (Very Good). Scores from the individual items are added together and reported as percentage maximum possible score.

Specific Instructions:

None

Protocol:

Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)

INSTRUCTIONS: This survey asks for your views about your general health, well-being, and feelings about your life. Please answer EVERY question by circling the number for your response. If you are not sure about how to answer a question, please give the best answer you can. Remember, there are no right or wrong answers.

Over the past week, how have things been with ...

Very Poor

Poor

Fair

Good

Very Good

1) ... your health?

1

2

3

4

5

2) ... your mood or feelings?

1

2

3

4

5

3) ... school or learning?

1

2

3

4

5

4) ... helping out at home?

1

2

3

4

5

5) ... getting along with friends?

1

2

3

4

5

6) ... getting along with your family?

1

2

3

4

5

7) ... play or free time?

1

2

3

4

5

8) ... getting things done?

1

2

3

4

5

9) ... your love or affection?

1

2

3

4

5

10) ... getting or buying things?

1

2

3

4

5

11) ... the place where you live?

1

2

3

4

5

12) ... paying attention?

1

2

3

4

5

13) ... your energy level?

1

2

3

4

5

14) ... feelings about yourself?

1

2

3

4

5

15) ... Overall, how has your life been?

1

2

3

4

5

Scoring:

The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) has 15 items. The first 14 are used to form a Total Score (see below). The fifteenth item is used as a “stand alone” measure.

The first 14 items are summed to form a total score. It can be reported as a Raw Total Score (range 14-84) or as a Percentage Maximum Possible Total Score. The %MAX Total Score is most frequently used.

%MAX= raw total score minus minimum score/maximum score minus minimum score

If items are left blank, the minimum and maximum score must be modified to reflect the number of items scored.

The 1/3 rule is usually used for excluding subjects who have no score for 1/3 or more of the items. Some investigators use different rules for excluding subjects.

Protocol Name from Source:

Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Child, Adolescent

Participants:

Children and adolescents, ages 6 to 17

Selection Rationale

The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) is a well-established and validated self-administered protocol that is easy to administer, score and interpret. Additionally, there is a parallel version for adults.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Pediatric Quality Of Life Enjoyment And Satisfaction Questionnaire Assessment Scale 6132735 CDE Browser
Derived Variables

None

Process and Review

The Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from the ERP included the following:

  • Changed name of measure
  • Added new protocol
  • Created new data dictionary

Source

Endicott, J., Nee, J., Yang, R., Wohlberg, C. (2006). Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q): Reliability and Validity. Journal of the American Academy of Child and Adolescent Psychiatry, 45(4), 401-407.

General References

Endicott, J., Nee, J., Harrison, W., Blumenthal, R. (1993). Quality of Life Enjoyment and Satisfaction Questionnaire: A New Measure. Psychopharmacology Bulletin, 29(2), 321-326.

Kwan B, Rickwood DJ. (2015). A systematic review of mental health outcome measures for young people aged 12 to 25 years. BMC Psychiatry 15:279.

Wright-Hughes A, Graham E, Farrin A, Collinson M, Boston P, Eisler I, Fortune S, Green J, House A, Owens D, Simic M, Tubeuf S, Nixon J, McCabe C, Kerfoot M, Cottrell D. (2015). Self-Harm Intervention: Family Therapy (SHIFT), a study protocol for a randomised controlled trial of family therapy versus treatment as usual for young people seen after a second or subsequent episode of self-harm. Trials, 16:501.

Protocol ID:

180303

Variables:
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Energy_Level
PX180303130000 Over the past week, how have things been more
with your energy level? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Family
PX180303060000 Over the past week, how have things been more
with getting along with your family? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Feelings_Yourself
PX180303140000 Over the past week, how have things been more
with feelings about yourself? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Free_Time
PX180303070000 Over the past week, how have things been more
with play or free time? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Friends
PX180303050000 Over the past week, how have things been more
with getting along with friends? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Getting_Buying_Things
PX180303100000 Over the past week, how have things been more
with getting or buying things? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Getting_Things_Done
PX180303080000 Over the past week, how have things been more
with getting things done? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Health
PX180303010000 Over the past week, how have things been more
with your health? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Helping_Home
PX180303040000 Over the past week, how have things been more
with helping out at home? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Live
PX180303110000 Over the past week, how have things been more
with the place where you live? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Love
PX180303090000 Over the past week, how have things been more
with your love or affection? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Mood
PX180303020000 Over the past week, how have things been more
with your mood or feelings? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Overall
PX180303150000 Overall, how has your life been? N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_Paying_Attention
PX180303120000 Over the past week, how have things been more
with paying attention? show less
N/A
PX180303_Quality_Of_Life_Enjoyment_And_Satisfaction_Children_School
PX180303030000 Over the past week, how have things been more
with school or learning? show less
N/A
Psychosocial
Measure Name:

Current Quality of Life

Release Date:

November 28, 2017

Definition

This is a measure of an individual's perceived general physical and mental health during the past 30 days.

Purpose

Self-perception of current physical and mental health is indicative of a person's current health and future health outcomes. The general assessment of health, in itself, has been shown to be both a solid measure of self-reported health and a powerful predictor of mortality and morbidity.

Keywords

Psychosocial, quality of life, mental health, physical health