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Protocol - Pain Location Body Map - Child

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Description

The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart is a self-administered body map with 21 scored areas that can be completed either in paper or electronic format. Participants color or click on the location(s) that they have felt pain during the preceding 2 weeks. This protocol was validated in individuals up to 18 years of age.

Specific Instructions

Within von Baeyer et al. (2011), it is recommended that the pain chart be used without an adults assistance for children aged 7 years and older. The pain chart may be able to be completed by children younger than 7 years with adult assistance, but the adults influence must be recognized.

Protocol

CARRA Pain Chart

CARRA pain chart

Scoring pain chart

CARRA pain chart colored

Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Child, Adolescent

Participants

Children and Adolescents up to 18 years of age

Selection Rationale

The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart is a single dimensional instrument that can be used across a wide age range (4-18 years) and within a short completion time

Language

English

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) Pain Location Body Map-Child Assessment Text 7997216 CDE Browser
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart

Source

von Baeyer, C. L., Lin, V., Seidman, L. C., Tsao, J. C., & Zeltzer, L. K. (2011). Pain charts (body maps or manikins) in assessment of the location of pediatric pain. Pain Management, 1(1), 61-68.

General References

Evans, S., Djilas, V., Seidman, L. C., Zeltzer, L. K., & Tsao, J. (2017). Sleep quality, affect, pain, and disability in children with chronic pain: Is affect a mediator or moderator?  Journal of Pain, 18(9), 1087-1095.

Luca, N. J., Stinson, J. N., Feldman, B. M., Benseler, S. M., Beaton, D., Campillo, S., LeBlanc, C., van Wyk, M., & Bayoumi, A. M. (2017). Validation of the Standardized Universal Pain Evaluations for Rheumatology Providers for Children and Youth (SUPER-KIDZ). Journal of Orthopaedic & Sports Physical Therapy, 47(10), 731-740.

Stinson, J. N., Connelly, M., Jibb, L. A., Schanberg, L. E., Walco, G., Spiegel, L. R., Tse, S. M., Chalom, E. C., Chira, P., & Rapoff, M. (2012). Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: A Delphi survey and consensus conference process followed by feasibility testing. Pediatric Rheumatology Online Journal, 10(1), 7. 

Protocol ID

860602

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX860602_Sickle_Cell_Pain_Location_Body
PX860602010000 Select all parts of your body where you have more
had pain in the past two weeks. show less
N/A
Pain
Measure Name

Pain Location

Release Date

May 18, 2022

Definition

This measure assesses the number and location of sites on the body where pain symptoms are felt.

Purpose

The number and location of pain sites vary significantly by age, frequency of pain, crisis, and utilization. Pain location can predict important behavioral outcomes, number of days where an individual experiences subjective vaso-occlusive crises, and unplanned utilization of hospitals.

Keywords

Pain, response to pain, sickle cell disease, SCD, location, site of pain, Sickle Cell Disease Pain Diary, PiSCES project

Measure Protocols
Protocol ID Protocol Name
860601 Sickle Cell Disease Pain Location Body Map - Adult
860602 Pain Location Body Map - Child
Publications

There are no publications listed for this protocol.