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My Toolkit

Please cite use of PhenX protocols in your presentations and publications as:
Protocols incorporated in this study were selected from the PhenX Toolkit version September 22, 2021, Ver 40.2 .

DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols


Scale for the Assessment and Rating of Ataxia (SARA)

Tanner and Whitehouse Method (TW2)

Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19)

National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010

Oswestry Disability Index (ODI) ©, version 2.1a 

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 0-24 months

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 12-18 years

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 2-11 years

Newcastle Mitochondrial Disease Adult Scale (NMDAS), 12-18 years

Autonomic Nervous System Questionnaire (ANSQ) & American Thoracic Society (ATS) Statement on CCHS (2010)

British Society of Echocardiography (BSE) Education Committee guidelines for a standard transthoracic echocardiogram (TTE)

My Family Health Portrait (MFHP)

Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile

Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25

Mullen Scales of Early Learning

Adams forward bend test & x-ray with Cobb technique

Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005

LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007
Total Protocols in My Toolkit: 20

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.