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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 46
	Long COVID - Symptoms Due to COVID-19 - Screener Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Memory Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Neurology Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Respiratory Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Allergies Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Skin and Hair Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form) Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form) Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Genitourinary Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Muscle and Joint Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Tooth Pain Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Symptoms Due to COVID-19 - Pediatric Long COVID in Children and Young People (The CLoCk Study) Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Daily Living Sequelae in Adults at 6 Months After COVID-19 Infection Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Physical Functioning Johns Hopkins COVID Long Study Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Current Quality of Life - Child Long COVID in Children and Young People (The CLoCk Study) Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Comorbidities and COVID-19 Impact Online Survey on Recovery from COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Long COVID - Multisystem Inflammatory Syndrome - Child Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases of Multisystem Inflammatory Syndrome (MIS) in Children and Adolescents Temporally Related to COVID-19 Check all COVID-19 Related Health Questions Add to Toolkit Remove
	Access to Health Services National Health Interview Survey (NHIS) Utilization Questionnaire, 2020 Check all Current Address Current Age Ethnicity and Race Health Insurance Coverage Add to Toolkit Remove
	COVID-19 Related Health Questions UK COVID-19 Questionnaire Check all Current Age Current Pregnancy Status - Self-Report Medical History Personal History of Allergies, Infectious Diseases, and Immunizations - Adult Add to Toolkit Remove
	Health Conditions, Medications and Health Care During COVID-19 Pandemic COVID-19 Community Response Survey Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Medical History My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Medication Inventory Multi-Ethnic Study of Arthrosclerosis (MESA), Medications, 2000 Check all Current Age Add to Toolkit Remove
	Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Vulnerability and Exposure to COVID-19 COVID-19 Experiences (COVEX) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	COVID-19 Vaccination - Adult Johns Hopkins COVID Long Study Remove
	COVID-19 Vaccination - Child Long COVID in Children and Young People (The CLoCk Study) Remove
	Alcohol - Treatment for Alcohol Usage National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Add to Toolkit Remove
	Body Mass Index National Health and Nutrition Examination Survey (NHANES), Anthropometrics procedure manual, 2007-2008 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	COVID-19 Knowledge, Attitudes, and Avoidant Behaviors Coronavirus Tracking Survey of the Understanding America Survey (UAS) Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Add to Toolkit Remove
	COVID-19 Related Social Distancing Experiences All of Us COVID-19 Participant Experience Survey (COPE) Check all Household Roster-Relationships Add to Toolkit Remove
	COVID-19 Related Social Interactions Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation Check all Current Age Add to Toolkit Remove
	Injection Drug Use National Health and Nutrition Examination Survey (NHANES), 2007-2008, Drugs Use Questionnaire Remove
	Substances - Lifetime Use National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Current Age Add to Toolkit Remove
	Treatment Availability and Level of Care Treatment Episode Data Set - Admissions (TEDS-A) Check all Current Address Add to Toolkit Remove
	Use of Personal Protective Equipment (PPE) by Healthcare Workers HERO Registry Protective Equipment Survey Check all Current Age Current Employment Status Add to Toolkit Remove
	Use of Tobacco Products Population Assessment of Tobacco and Health (PATH) Study, Wave 7 Adult Survey Instrument Remove
	Substance Use Disorder - Past Year - Drugs National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III) Check all Alcohol - Lifetime Use Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Substances - Lifetime Use Add to Toolkit Remove
Total Protocols in My Toolkit: 46

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Screener. https://www.phenxtoolkit.org/protocols/view/992001

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Memory. https://www.phenxtoolkit.org/protocols/view/992002

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Neurology. https://www.phenxtoolkit.org/protocols/view/992003

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors. https://www.phenxtoolkit.org/protocols/view/992004

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing. https://www.phenxtoolkit.org/protocols/view/992005

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form). https://www.phenxtoolkit.org/protocols/view/992006

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form). https://www.phenxtoolkit.org/protocols/view/992007

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular. https://www.phenxtoolkit.org/protocols/view/992008

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course. https://www.phenxtoolkit.org/protocols/view/992009

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Respiratory. https://www.phenxtoolkit.org/protocols/view/992010

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form). https://www.phenxtoolkit.org/protocols/view/992011

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form). https://www.phenxtoolkit.org/protocols/view/992012

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Allergies. https://www.phenxtoolkit.org/protocols/view/992013

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Skin and Hair. https://www.phenxtoolkit.org/protocols/view/992014

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form). https://www.phenxtoolkit.org/protocols/view/992015

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form). https://www.phenxtoolkit.org/protocols/view/992016

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Genitourinary. https://www.phenxtoolkit.org/protocols/view/992017

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Muscle and Joint. https://www.phenxtoolkit.org/protocols/view/992018

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Tooth Pain. https://www.phenxtoolkit.org/protocols/view/992019

PhenX Toolkit. (2025 December 13). Long COVID - Symptoms Due to COVID-19 - Pediatric. https://www.phenxtoolkit.org/protocols/view/992020

PhenX Toolkit. (2025 December 13). Long COVID - Daily Living. https://www.phenxtoolkit.org/protocols/view/992101

PhenX Toolkit. (2025 December 13). Long COVID - Physical Functioning. https://www.phenxtoolkit.org/protocols/view/992201

PhenX Toolkit. (2025 December 13). Long COVID - Current Quality of Life - Child. https://www.phenxtoolkit.org/protocols/view/992301

PhenX Toolkit. (2025 December 13). Long COVID - Comorbidities and COVID-19 Impact. https://www.phenxtoolkit.org/protocols/view/992401

PhenX Toolkit. (2025 December 13). Long COVID - Multisystem Inflammatory Syndrome - Child. https://www.phenxtoolkit.org/protocols/view/992501

PhenX Toolkit. (2025 December 13). Access to Health Services. https://www.phenxtoolkit.org/protocols/view/270101

PhenX Toolkit. (2025 December 13). COVID-19 Related Health Questions. https://www.phenxtoolkit.org/protocols/view/940101

PhenX Toolkit. (2025 December 13). Health Conditions, Medications and Health Care During COVID-19 Pandemic. https://www.phenxtoolkit.org/protocols/view/940301

PhenX Toolkit. (2025 December 13). Medical History. https://www.phenxtoolkit.org/protocols/view/161301

PhenX Toolkit. (2025 December 13). Medication Inventory. https://www.phenxtoolkit.org/protocols/view/140301

PhenX Toolkit. (2025 December 13). Personal History of Allergies, Infectious Diseases, and Immunizations - Adult. https://www.phenxtoolkit.org/protocols/view/161602

PhenX Toolkit. (2025 December 13). Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child. https://www.phenxtoolkit.org/protocols/view/161601

PhenX Toolkit. (2025 December 13). Vulnerability and Exposure to COVID-19. https://www.phenxtoolkit.org/protocols/view/940201

PhenX Toolkit. (2025 December 13). COVID-19 Vaccination - Adult. https://www.phenxtoolkit.org/protocols/view/940401

PhenX Toolkit. (2025 December 13). COVID-19 Vaccination - Child. https://www.phenxtoolkit.org/protocols/view/940402

PhenX Toolkit. (2025 December 13). Alcohol - Treatment for Alcohol Usage. https://www.phenxtoolkit.org/protocols/view/31501

PhenX Toolkit. (2025 December 13). Body Mass Index. https://www.phenxtoolkit.org/protocols/view/570101

PhenX Toolkit. (2025 December 13). COVID-19 Knowledge, Attitudes, and Avoidant Behaviors. https://www.phenxtoolkit.org/protocols/view/930401

PhenX Toolkit. (2025 December 13). COVID-19 Related Social Distancing Experiences. https://www.phenxtoolkit.org/protocols/view/930101

PhenX Toolkit. (2025 December 13). COVID-19 Related Social Interactions. https://www.phenxtoolkit.org/protocols/view/930201

PhenX Toolkit. (2025 December 13). Injection Drug Use. https://www.phenxtoolkit.org/protocols/view/161101

PhenX Toolkit. (2025 December 13). Substances - Lifetime Use. https://www.phenxtoolkit.org/protocols/view/31102

PhenX Toolkit. (2025 December 13). Treatment Availability and Level of Care. https://www.phenxtoolkit.org/protocols/view/550501

PhenX Toolkit. (2025 December 13). Use of Personal Protective Equipment (PPE) by Healthcare Workers. https://www.phenxtoolkit.org/protocols/view/930301

PhenX Toolkit. (2025 December 13). Use of Tobacco Products. https://www.phenxtoolkit.org/protocols/view/741402

PhenX Toolkit. (2025 December 13). Substance Use Disorder - Past Year - Drugs. https://www.phenxtoolkit.org/protocols/view/511803

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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