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Protocol - Self-report of Human Immunodeficiency Virus (HIV) Testing

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Description:

The National HIV Behavioral Surveillance System (NHBS) survey began in 2003 to determine risk behavior and HIV testing experiences. NHBS is conducted in cities with a high incidence of AIDS with three groups of people: men who have sex with men (MSM), injection drug users (IDU), and heterosexuals at high risk of exposure to HIV infection. The Centers for Disease Control and Prevention (CDC) provides funding to state and local health departments to collect the information. This is an interviewer-administered protocol that gathers sensitive information.

Protocol:

The Substance Abuse and Addiction Scientific Panel (SSP) acknowledges that the following questions may gather sensitive information relating to HIV status. If the information is released, it might be damaging to an individual’s employability, lead to social stigmatization, or lead to other consequences.

SAY: Now I’m going to ask you a few questions about getting tested for HIV. Remember, an HIV test checks whether someone has the virus that causes AIDS.

Q1. Have you ever been tested for HIV?

0 [ ] No

1 [ ] Yes

7 [ ] Refused to answer

9 [ ] Don’t know

If Q1 = 0, skip to Q4.

If Q1 = 1, proceed to Q2.

If Q1 = 7 or 9, end protocol.

Q2. When did you have your most recent HIV test?

__ __/ __ __ __ __

(M M/ Y Y Y Y)

[77/7777 = Refused, 99/9999 = Don’t know]

Q3. What was the result of your most recent HIV test? [DO NOT Read choices, check only ONE.]

[ ] 1 Negative

[ ] 2 Positive

[ ] 3 Never obtained results

[ ] 4 Indeterminate

[ ] 7 Refused to answer

[ ] 9 Don’t know

INTERVIEWER INSTRUCTIONS: Refer to Q2. LAST HIV TEST WAS DONE (Check one):

≤ 12 months ago. . . . . . . . . . . . . . . . . . . . .[ ] End protocol

> 12 months ago. . . . . . . . . . . . . . . . . . . . .[ ] Go to Q4

Date of last test Don’t know/Refused. . . .[ ] End protocol

[PERSONS WHO HAVE NEVER TESTED HIV+ AND HAVE NOT TESTED FOR HIV IN THE PAST 12 MONTHS]

Q4. I’m going to read you a list of reasons why some people have not been tested for HIV. Which of these best describes the most important reason you have not been tested for HIV in the past 12 months? [READ CHOICES. CHOOSE only ONE.]

[ ] 1 You think you are at low risk for HIV infection?

[ ] 2 You were afraid of finding out that you had HIV?

[ ] 3 You didn’t have time?

[ ] 4 Some other reason?

[ ] 5 No particular reason

[ ] 7 Refused to answer

[ ] 9 Don’t know

End protocol.

The SSP has selected specific questions from the original protocol text, which is available in its entirety in the PhenX measure Comprehensive HIV Risk Assessment, found in the Substance Abuse and Addiction Specialty collections. The SSP removed the following questions from the HIV Testing Experiences (HT) section of the protocol: HT-2, HT-3, HT-4a, HT-4b, HT-5, and HT-6a through HT-13. These items were not critical to this brief assessment of HIV testing status. As a result, the remaining questions have been renumbered (Q1-Q4), and some of the skip patterns have been modified to direct the interviewer to the end of the series of questions.

Protocol Name from Source:

This section will be completed when reviewed by an Expert Review Panel.

Availability:

Publicly available

Personnel and Training Required

Interviewer must be trained and found competent to conduct personal interviews with individuals from the general population. The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

The questions are sensitive in nature, and the interviewer should be trained to react appropriately to emotional responses. If a distressed-respondent protocol is adopted, the interviewer should be trained to administer those procedures.

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Adult, Senior, Pregnancy

Participants:

Adults (18+)

Specific Instructions:

The following four questions regarding HIV testing experiences from the National HIV Behavioral Surveillance System (NHBS) survey are also included in the PhenX measure Comprehensive HIV Risk Assessment, which can be found in the Substance Abuse and Addiction Specialty collections. Therefore, selecting these two protocols together will result in duplicated questions.

Selection Rationale

The Centers for Disease Control and Prevention (CDC) is the nation’s source for timely information used to track the HIV/AIDS epidemic.

Language

English, English

Standards
StandardNameIDSource
Common Data Elements (CDE) Person Self-Report Human Immunodeficiency Virus Testing Assessment Description Text 3371698 CDE Browser
Derived Variables

None

Process and Review

This section will be completed when reviewed by an Expert Review Panel.

Source

Centers for Disease Control and Prevention (CDC), National HIV Behavioral Surveillance System (NHBS). (2010). Section on HIV Testing Experiences (HT): HT-1, HT-4, HT-4c, and HT‑6.

General References

Allen, D. R., Finlayson, T., Abdul-Quader, A., & Lansky, A. (2009). The role of formative research in the National HIV Behavioral Surveillance System. Public Health Reports, 124(1), 26-33.

Centers for Disease Control and Prevention (CDC). (2009). HIV-associated behaviors among injecting-drug users-23 Cities, United States, May 2005-February 2006. Morbidity and Mortality Weekly Report, 58(13), 329-332.

Centers for Disease Control and Prevention (CDC). (2009). Erratum: HIV-associated behaviors among injecting-drug users-23 Cities, United States, May 2005-February 2006. Morbidity and Mortality Weekly Report, 58(50), 1416-1417.

Centers for Disease Control and Prevention (CDC). (2011). Characteristics associated with HIV infection among heterosexuals in urban areas with high AIDS prevalence-24 cities, United States, 2006-2007. Morbidity and Mortality Weekly Report, 60(31), 1045-1049.

Gallagher, K. M., Sullivan, P. S., Lansky, A., & Onorato, I. M. (2007). Behavioral surveillance among people at risk for HIV infection in the U.S.: The National HIV Behavioral Surveillance System. Public Health Reports, 122(Suppl. 1), 32-38.

Lansky, A., Abdul-Quader, A. S., Cribbin, M., Hall, T., Finlayson, T. J., Garfein, R. S., Lin, L. S., & Sullivan, P. S. (2007). Developing an HIV behavioral surveillance system for injecting drug users: The National HIV Behavioral Surveillance System. Public Health Reports, 122(Suppl. 1), 48-55.

Protocol ID:

570201

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX570201_Most_Recent_HIV_Test_Month PX570201020100 When did you have your most recent HIV test? Month 4 N/A
PX570201_Most_Recent_HIV_Test_Result PX570201030000 What was the result of your most recent HIV test? 4 N/A
PX570201_Most_Recent_HIV_Test_Year PX570201020200 When did you have your most recent HIV test? Year 4 N/A
PX570201_Reason_Not_Tested_For_HIV PX570201040000 I'm going to read you a list of reasons why some people have not been tested for HIV. Which of these best describes the most important reason you have not been tested for HIV in the past 12 months? 4 N/A
PX570201_Tested_For_HIV PX570201010000 Have you ever been tested for HIV? 4 N/A
Research Domain Information
Measure Name:

Self-report of Human Immunodeficiency Virus (HIV) Testing

Release Date:

February 24, 2012

Definition

Instrument used to collect information on whether a respondent has been tested for Human Immunodeficiency Virus (HIV); the results of the testing; and, if not tested, the reasons for not being tested.

Purpose

The purpose of this measure is to determine a respondent’s HIV self-reported serostatus and testing experiences.

Keywords

AIDS, Acquired immune deficiency syndrome, CDC, Centers for Disease Control and Prevention, HIV, HIV testing, Human immunodeficiency virus, National HIV Behavioral Surveillance System, NHBS, SAA, Substance Abuse and Addiction