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Protocol - Pain Quality Descriptors (Affective) - Children

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Description

The Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a is a self-administered questionnaire for 8- to 17-year-olds, assessing 8 descriptors of affective pain quality, with a recall period of the past 7 days. This protocol was validated in individuals aged 8- to 17-years-old.

Specific Instructions

The PhenX Working Group recommends this PROMIS® protocol. For additional information regarding PROMIS® instruments (including scoring, validity, and interpretation) please visit: www.healthmeasures.net. For specific information about this instrument, please visit: www.healthmeasures.net/index.php?option=com_instruments&view=measure&id=869&Itemid=992

Protocol

PROMIS® Pediatric Short Form v2.0 - Pain Quality - Affective 8a

Please respond to each item by marking one box per row.

In the past 7 days, did your pain feel…

NoYes

miserable?

[ ]
0
[ ]
1

awful?

[ ]
0
[ ]
1

horrible?

[ ]
0
[ ]
1

unbearable?

[ ]
0
[ ]
1

worrying?

[ ]
0
[ ]
1

unending?

[ ]
0
[ ]
1

annoying?

[ ]
0
[ ]
1

unpleasant?

[ ]
0
[ ]
1
Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Child, Adolescent

Participants

Children and Adolescents aged 8- to 17-years-old

Selection Rationale

The Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Pain Quality - Affective 8a item bank is psychometrically sound, validated, well established, has standardized scoring, and is easy to implement and interpret.

Language

English, Spanish

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) Pain Quality Descriptors (Affective)-Children Assessment Text   7997220 CDE Browser
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a

Source

Jacobson, C. J., Jr., Kashikar-Zuck, S., Farrell, J., Barnett, K., Goldschneider, K., Dampier, C., Cunningham, N., Crosby, L., & DeWitt, E. M. (2015). Qualitative evaluation of pediatric pain behavior, quality, and intensity item candidates and the PROMIS pain domain framework in children with chronic pain.  Journal of Pain, 16(12), 1243-1255.

General References

Revicki, D. A., Cook, K. F., Amtmann, D., Harnam, N., Chen, W. H., & Keefe, F. J. (2014). Exploratory and confirmatory factor analysis of the PROMIS pain quality item bank. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(1), 245-255.

Singh, A., DasGupta, M., Simpson, P. M., & Panepinto, J. A. (2019). Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease. Pediatric Blood & Cancer, 66(5), e27633.

Protocol ID

860701

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
Pain
Measure Name

Pain Quality Descriptors

Release Date

May 18, 2022

Definition

A measure used to assess the specific subjective sensations associated with pain.

Purpose

Assessing the nature of pain an individual experiences may assist in indicating whether the pain is primarily nociceptive or neuropathic. This can aid in the selection of appropriate treatment and in evaluating a patient's response to treatment.

Keywords

Pain, affective, sickle cell disease, SCD, pain quality, pain measurement, pain assessment, Patient-Reported Outcomes Measurement Information System, PROMIS®, National Institutes of Health, NIH, type I diabetes, asthma

Measure Protocols
Protocol ID Protocol Name
860701 Pain Quality Descriptors (Affective) - Children
860702 Pain Quality Descriptors (Sensory) - Children
Publications

There are no publications listed for this protocol.