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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 51
	Abdominal Aortic Aneurysm San Diego Population Study (SDPS) & The Multicentre Aneurysm Screening Study (MASS), 2002 Check all Current Age Add to Toolkit Remove
	Angina Cardiovascular Health Study (CHS), Baseline Medical History Questionnaire & Framingham Heart Study (FHS) Check all Current Age Add to Toolkit Remove
	Arrhythmia (Atrial and Ventricular) Framingham Heart Study (FHS), Exams 6 & 29 & Jackson Heart Study (JHS) Check all Current Age Add to Toolkit Remove
	Blood Pressure (Adult/Primary) Coronary Artery Risk Development in Young Adults (CARDIA), Y20 CARDIA VII & Framingham Heart Study (FHS), Generation 3 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Deep Venous Thrombosis Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS) Check all Current Age Add to Toolkit Remove
	Family History of Heart Attack Womens Health Initiative (WHI), Family History Questionnaire, Version 3 Check all Current Age Add to Toolkit Remove
	Heart Valve Function Cardiovascular Health Study (CHS), Baseline Medical History Questionnaire & Framingham Heart Study (FHS) Check all Current Age Add to Toolkit Remove
	High Blood Pressure During Pregnancy Coronary Artery Risk Development in Young Adults (CARDIA), Y20 CARDIA VII, Pregnancy Questionnaire Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Lipid Profile Coronary Artery Risk Development in Young Adults (CARDIA), Y20 CARDIA VII & Framingham Heart Study (FHS), Generation 3 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Myocardial Infarction Cardiovascular Health Study (CHS), Baseline Medical History Questionnaire & Womens Health Initiative (WHI), Medical History Update Check all Current Age Add to Toolkit Remove
	Peripheral Arterial Disease Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Pulmonary Embolism Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS) Check all Current Age Add to Toolkit Remove
	Rheumatic Fever/Rheumatic Heart Disease Health Examination Survey (HES) Check all Current Age Add to Toolkit Remove
	Sudden Cardiac Arrest Atherosclerosis Risk in Communities (ARIC), Physician Questionnaire & Multi-Ethnic Study of Atherosclerosis (MESA), Mortality Review Form Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Annual Household Family Income and Number of People Supported All of Us Research Program, Participant Provided Information (PPI), 2017 and Hispanic Community Health Study / Study of Latinos (HCHS/SOL) Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Birthplace American Community Survey (ACS), 2008 Remove
	Birthplace of Grandparents American Community Survey (ACS), 2008 Check all Birthplace of Parents Add to Toolkit Remove
	Birthplace of Parents American Community Survey (ACS), 2008 Remove
	Current Address National Health and Nutrition Examination Survey (NHANES), Screener Module 1, 2019-2020 Remove
	Current Age National Health and Nutrition Examination Survey (NHANES), 2019-2020 Remove
	Current Employment Status Panel Study of Income Dynamics (PSID), 2007 Check all Current Age Add to Toolkit Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 Remove
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire Remove
	Health Insurance Coverage Health Reform Monitoring Survey, 2015 Check all Current Age Add to Toolkit Remove
	Household Roster-Relationships General Social Survey (GSS), Household Enumeration Form (HEF) Roster, 2014 Check all Current Age Current Marital Status Add to Toolkit Remove
	Sexual Orientation All of Us Research Program, Participant Provided Information (PPI), 2018 Remove
	Years Living in the U.S. National Health Interview Survey (NHIS), Family Questionnaire, 2007 Check all Birthplace Current Age Add to Toolkit Remove
	Audiogram Hearing Test National Health and Nutrition Examination Survey (NHANES), Audiometry Protocol, 2015-2016 Check all Current Age Add to Toolkit Remove
	Auditory-Perceptual Evaluation of Voice Consensus Auditory-Perceptual Evaluation of Voice (CAPE-V) Check all Current Age Add to Toolkit Remove
	Ear Infections (Otitis Media) National Health and Nutrition Examination Survey (NHANES), Audiometry Procedures Manual, 2009-2010 Check all Current Age Add to Toolkit Remove
	Early Childhood Speech and Language Assessment - Ages and Stages Questionnaire Ages & Stages Questionnaires®, Third Edition Check all Current Age Add to Toolkit Remove
	Early Childhood Speech and Language Assessment - Speech and Language Assessment Scale Speech and Language Assessment Scale (SLAS) Check all Current Age Add to Toolkit Remove
	Family History of Speech and Language Impairment Family History Questionnaire Check all Current Age Add to Toolkit Remove
	Grammatical Impairments - Clinical Evaluation of Language Fundamentals Clinical Evaluation of Language Fundamentals® (CELF®-5), Recalling sentences subtest Check all Current Age Add to Toolkit Remove
	Grammatical Impairments - Grammaticality Judgment Task Rice Grammaticality Judgment Task Check all Current Age Add to Toolkit Remove
	Grammatical Impairments - Test of Early Grammatical Impairment Rice/Wexler Test of Early Grammatical Impairment (TEGI) Remove
	Hearing Screener Digits in Noise Test (DIN) Check all Current Age Add to Toolkit Remove
	Oral Mechanism/Cranial Nerve Examination for Young Children Robbins & Klee Test of Oral and Speech Motor Control Check all Current Age Add to Toolkit Remove
	Personal and Family History of Hearing Loss Age-Related Hearing Impairment (ARHI) Questionnaire Check all Current Age Add to Toolkit Remove
	Phonological Awareness Syllable Repetition Task (SRT) Check all Current Age Educational Attainment - Individual Working Memory - Adult Add to Toolkit Remove
	Phonological Inventory Goldman-Fristoe Test of Articulation™, Third Edition (GFTA™-3) Check all Current Age Add to Toolkit Remove
	Reading Comprehension Woodcock-Johnson® Tests of Achievement (WJ IV®) Check all Current Age Educational Attainment - Individual Vocabulary Assessment Word Decoding Add to Toolkit Remove
	Stuttering The Stuttering Severity Instrument-Fourth Edition (SSI-4) Check all Current Age Add to Toolkit Remove
	Tinnitus Tinnitus Handicap Inventory Check all Current Age Add to Toolkit Remove
	Tinnitus - Screener Tinnitus Screener Check all Current Age Add to Toolkit Remove
	Vertigo Dizziness Handicap Inventory (DHI) Check all Blood Pressure (Adult/Primary) Current Age Medication Inventory Add to Toolkit Remove
	Vocabulary Assessment The Peabody Picture Vocabulary Test-Fourth Edition (PPVT™-4) Check all Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Voice Impairments - Adults Voice Handicap Index (VHI), 1997 Check all Current Age Add to Toolkit Remove
	Voice Impairments - Older Adults The Aging Voice Index (AVI) Remove
	Word Decoding The Test of Word Reading Efficiency-Second Edition (TOWRE-2) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 51

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 January 28). Abdominal Aortic Aneurysm. https://www.phenxtoolkit.org/protocols/view/41001

PhenX Toolkit. (2026 January 28). Angina. https://www.phenxtoolkit.org/protocols/view/40601

PhenX Toolkit. (2026 January 28). Arrhythmia (Atrial and Ventricular). https://www.phenxtoolkit.org/protocols/view/41101

PhenX Toolkit. (2026 January 28). Blood Pressure (Adult/Primary). https://www.phenxtoolkit.org/protocols/view/40301

PhenX Toolkit. (2026 January 28). Deep Venous Thrombosis. https://www.phenxtoolkit.org/protocols/view/41201

PhenX Toolkit. (2026 January 28). Family History of Heart Attack. https://www.phenxtoolkit.org/protocols/view/40101

PhenX Toolkit. (2026 January 28). Heart Valve Function. https://www.phenxtoolkit.org/protocols/view/40501

PhenX Toolkit. (2026 January 28). High Blood Pressure During Pregnancy. https://www.phenxtoolkit.org/protocols/view/40401

PhenX Toolkit. (2026 January 28). Lipid Profile. https://www.phenxtoolkit.org/protocols/view/40201

PhenX Toolkit. (2026 January 28). Myocardial Infarction. https://www.phenxtoolkit.org/protocols/view/40801

PhenX Toolkit. (2026 January 28). Peripheral Arterial Disease. https://www.phenxtoolkit.org/protocols/view/40901

PhenX Toolkit. (2026 January 28). Pulmonary Embolism. https://www.phenxtoolkit.org/protocols/view/41301

PhenX Toolkit. (2026 January 28). Rheumatic Fever/Rheumatic Heart Disease. https://www.phenxtoolkit.org/protocols/view/41401

PhenX Toolkit. (2026 January 28). Sudden Cardiac Arrest. https://www.phenxtoolkit.org/protocols/view/40701

PhenX Toolkit. (2026 January 28). Annual Household Family Income and Number of People Supported. https://www.phenxtoolkit.org/protocols/view/12001

PhenX Toolkit. (2026 January 28). Birthplace. https://www.phenxtoolkit.org/protocols/view/10201

PhenX Toolkit. (2026 January 28). Birthplace of Grandparents. https://www.phenxtoolkit.org/protocols/view/10401

PhenX Toolkit. (2026 January 28). Birthplace of Parents. https://www.phenxtoolkit.org/protocols/view/10301

PhenX Toolkit. (2026 January 28). Current Address. https://www.phenxtoolkit.org/protocols/view/10802

PhenX Toolkit. (2026 January 28). Current Age. https://www.phenxtoolkit.org/protocols/view/10102

PhenX Toolkit. (2026 January 28). Current Employment Status. https://www.phenxtoolkit.org/protocols/view/11301

PhenX Toolkit. (2026 January 28). Current Marital Status. https://www.phenxtoolkit.org/protocols/view/10903

PhenX Toolkit. (2026 January 28). Educational Attainment - Individual. https://www.phenxtoolkit.org/protocols/view/11002

PhenX Toolkit. (2026 January 28). Ethnicity and Race. https://www.phenxtoolkit.org/protocols/view/11901

PhenX Toolkit. (2026 January 28). Health Insurance Coverage. https://www.phenxtoolkit.org/protocols/view/11502

PhenX Toolkit. (2026 January 28). Household Roster-Relationships. https://www.phenxtoolkit.org/protocols/view/11402

PhenX Toolkit. (2026 January 28). Sexual Orientation. https://www.phenxtoolkit.org/protocols/view/11701

PhenX Toolkit. (2026 January 28). Years Living in the U.S.. https://www.phenxtoolkit.org/protocols/view/11201

PhenX Toolkit. (2026 January 28). Audiogram Hearing Test. https://www.phenxtoolkit.org/protocols/view/200102

PhenX Toolkit. (2026 January 28). Auditory-Perceptual Evaluation of Voice. https://www.phenxtoolkit.org/protocols/view/201701

PhenX Toolkit. (2026 January 28). Ear Infections (Otitis Media). https://www.phenxtoolkit.org/protocols/view/200201

PhenX Toolkit. (2026 January 28). Early Childhood Speech and Language Assessment - Ages and Stages Questionnaire. https://www.phenxtoolkit.org/protocols/view/200301

PhenX Toolkit. (2026 January 28). Early Childhood Speech and Language Assessment - Speech and Language Assessment Scale. https://www.phenxtoolkit.org/protocols/view/200302

PhenX Toolkit. (2026 January 28). Family History of Speech and Language Impairment. https://www.phenxtoolkit.org/protocols/view/200401

PhenX Toolkit. (2026 January 28). Grammatical Impairments - Clinical Evaluation of Language Fundamentals. https://www.phenxtoolkit.org/protocols/view/200504

PhenX Toolkit. (2026 January 28). Grammatical Impairments - Grammaticality Judgment Task. https://www.phenxtoolkit.org/protocols/view/200502

PhenX Toolkit. (2026 January 28). Grammatical Impairments - Test of Early Grammatical Impairment. https://www.phenxtoolkit.org/protocols/view/200505

PhenX Toolkit. (2026 January 28). Hearing Screener. https://www.phenxtoolkit.org/protocols/view/201801

PhenX Toolkit. (2026 January 28). Oral Mechanism/Cranial Nerve Examination for Young Children. https://www.phenxtoolkit.org/protocols/view/201601

PhenX Toolkit. (2026 January 28). Personal and Family History of Hearing Loss. https://www.phenxtoolkit.org/protocols/view/201501

PhenX Toolkit. (2026 January 28). Phonological Awareness. https://www.phenxtoolkit.org/protocols/view/201901

PhenX Toolkit. (2026 January 28). Phonological Inventory. https://www.phenxtoolkit.org/protocols/view/200701

PhenX Toolkit. (2026 January 28). Reading Comprehension. https://www.phenxtoolkit.org/protocols/view/200802

PhenX Toolkit. (2026 January 28). Stuttering. https://www.phenxtoolkit.org/protocols/view/200901

PhenX Toolkit. (2026 January 28). Tinnitus. https://www.phenxtoolkit.org/protocols/view/201001

PhenX Toolkit. (2026 January 28). Tinnitus - Screener. https://www.phenxtoolkit.org/protocols/view/202001

PhenX Toolkit. (2026 January 28). Vertigo. https://www.phenxtoolkit.org/protocols/view/201101

PhenX Toolkit. (2026 January 28). Vocabulary Assessment. https://www.phenxtoolkit.org/protocols/view/201201

PhenX Toolkit. (2026 January 28). Voice Impairments - Adults. https://www.phenxtoolkit.org/protocols/view/201301

PhenX Toolkit. (2026 January 28). Voice Impairments - Older Adults. https://www.phenxtoolkit.org/protocols/view/201302

PhenX Toolkit. (2026 January 28). Word Decoding. https://www.phenxtoolkit.org/protocols/view/201402

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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