PhenX Toolkit: Toolkit

Essential Protocols

	Adaptive Behavior/Adaptive Function Vineland Adaptive Behavior Scales., 2nd ed. (VINELAND-II) Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), short form Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Aspartate Aminotransferase Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Bilirubin Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Body Temperature - Oral Thermometers Davie, A., et al. Best practice in the measureement of body temperature. NURS STAND, 2010 Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Body Temperature - Tympanic Thermometers Davie, A., et al. Best practice in the measureement of body temperature. NURS STAND, 2010 Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Chest X-ray ACR-SPR, Practice Parameter for the Performance of Chest Radiography, 2014 Check all Current Age Add to Toolkit Remove
	Frequency of Sickle Cell Pain Episodes Per Year Cooperative Study of Sickle Cell Disease (CSSCD), Form 25 - Painful Episodes Check all Current Age Add to Toolkit Remove
	Haptoglobin Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Hemoglobin Characterization Association of Public Health Laboratories (APHL) Check all Complete Blood Count (CBC) Current Age Gender Identity History of Transfusion Medication Inventory Reticulocyte Count Sex Assigned at Birth Add to Toolkit Remove
	History of Transfusion Telen, M.J., et al. Alloimmunization in sickle cell disease: changing antibody specificities and association with chronic pain and decreased survival. TRANSFUSION, 2015 Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 16 to 90 years Wechsler Adult Intelligence Scale, 4th ed., (WAIS-IV) Check all Current Age Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 2 years, 6 months to 7 years, 7 months Wechsler Preschool and Primary Scale of Intelligence, 4th ed. (WPPSI-IV) Check all Current Age Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 6 to 16 years 11 months Wechsler Intelligence Scale for Children, 5th ed., (WISC) Check all Current Age Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - Birth to 3.5 years Bayley Scales of Infant and Toddler Development (BSID) Check all Current Age Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Lactate Dehydrogenase Level National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Lung Function - Diffusion Capacity MacIntyre, N., et al. Standardization of the single-breath determination of carbon monoxide uptake in the lung. EUR RESPIR J, 2005 Check all Current Age Ethnicity and Race Gender Identity Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Sex Assigned at Birth Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Lung Function - Lung Volume Wanger, J. et al. Standardization of the measurement of lung volumes. EUR RESPIR J, 2005 Check all Current Age Ethnicity and Race Gender Identity Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Sex Assigned at Birth Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Marital Status of Primary Caregiver Silent Cerebral Infarct Multi-Center Clinical Trial (SIT), Demographic/Phenotypic Information Check all Current Age Add to Toolkit Remove
	N-terminal Pro-brain Natriuretic Peptide (NT-proBNP) National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	NIH Stroke Scale (NIHSS) National Institutes of Health Stroke Scale (NIHSS) Check all Current Age Add to Toolkit Remove
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS) Check all Current Age Add to Toolkit Remove
	Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire Check all Current Age Add to Toolkit Remove
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module Check all Current Age Add to Toolkit Remove
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire Check all Current Age Add to Toolkit Remove
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ) Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Reticulocyte Count National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011 Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES) Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Serum or Plasma Ferritin National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010 Check all Current Age Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS) Check all Current Age Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography Check all Current Age Add to Toolkit Remove
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography Check all Current Age Add to Toolkit Remove
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 34

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

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