Loading…

Early Psychosis Clinical Services

Select Protocol ID

Brief Adherence Rating Scale (BARS)
#661801

Extrapyramidal Symptom Rating Scale (ESRS)
#661601

Structured Clinical Interview for DSM-5 Disorders - Clinician Version (SCID-5-CV)
#662501

Burden Assessment Scale (BAS)
#662201

Family Questionnaire (FQ)
#662001

Systematic Clinical Outcome Routine Evaluation (SCORE-15) Index of Family Functioning and Change
#662102

National Institute of Mental Health (NIMH), Family Interview for Genetic Studies (FIGS), 1999
#660701

Family Interview for Genetic Studies (FIGS) - Abbreviated Version
#660702

Brief Psychiatric Rating Scale
#122102

Positive and Negative Syndrome Scale (PANSS)
#122101

The CollaboRATE questionnaire
#662401

National Survey on Drug Use and Health (NSDUH), 2014
#662402

Mental Health Statics Improvement Program (MHSIP), Youth Services Survey (YSS)
#661401

Glasgow Antipsychotic Side-effect Scale (GASS)
#661701

Recovery Self-Assessment (RSA) - Administrator Version
#661501

Recovery Self-Assessment (RSA) - Family Member
#661502

Recovery Self-Assessment (RSA)
#661503

Recovery Self-Assessment (RSA) - Provider version
#661504

International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013
#661301

Personal Wellbeing Index-School Children (PWI-SC)
#661302

International Physical Activity Questionnaire (IPAQ-7)
#661901

Modified Cannon-Spoor Premorbid Adjustment Scale (PAS)
#660801

Modified Colorado Symptom Index (CSI)
#660901

Questionnaire about the Process of Recovery (QPR)
#661101

CollaboRATE

#662301

Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007
#661201
Release Date:

January 17, 2017

Scope of Collection
Element Considered Final Measures in Toolkit
Family History of Mental Illness Family History of Mental Illness
Adverse Life Events
Premorbid Functioning Premorbid Adjustment in Psychosis
Medical History
Psychiatric Treatment History (including medication history, previous psychosocial interventions, inpatient treatment episodes, emergency department visits and antipsychotic medications at time of enrollments)
Prodromal Psychosis Symptoms
Age of First Prodromal Symptoms
Age of First Psychotic-Level Symptoms
Duration of Untreated Psychosis
Positive Syndrome Symptoms Clinician-Administered Psychiatric Assessment
Global Psychopathology Rating Scale
Current Physical Health (including medication side effects, smoking and cardio-metabolic risk factors) Physical Activity
Antipsychotic Medication Adherence
Antipsychotic Medication Extrapyramidal Side Effects
Multi-dimensional Assessment of Antipsychotic Medication Side Effects
Social and Role Functioning Social and Role Dysfunction in Psychosis and Schizophrenia
Arrests or Incarceration Incarceration
Family Burden Family Burden of Mental Illness
Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia
Family Functioning
Outpatient Treatments Mental Health Services Satisfaction
Hospitalizations for Psychiatric and Medical Illness (number, duration)
Emergency Department Visits, Crisis Intervention Services
Well-being/Mental Health Recovery Personal Well Being
Quality of Life
Hiring, Training and retention of Coordinated Specialty Care (CSC) staff
Availability of Required CSC Treatment Components
Fidelity Measures Related to Team-based CSC Treatment Model
Quality Measures Related to Provision of CSC Services
Outcome Measures Related to Symptoms, Functioning and Physical Health
CSC Clinic Caseload Size
Measures Related to Initial Engagement (e.g., Client, Family Member, Participation)
Measures Related to Participant Retention/Drop out
Measures of Client and Family Member Satisfaction Mental Health Services Satisfaction
Perception of Recovery Orientation and Care Quality of Mental Health Services
Psychosis Recovery Assessment
Shared Decision Making in Clinical Encounters
Neurocognitive Assessments Auditory Vigilance
Relational Encoding and Retrieval
Context Processing
Global Cognitive Functioning
Electrophysiological Assessments (e.g., ERP)
Eye-Tracking (pre- and Anti-saccade tasks)
Biomarkers and Behavioral Indicators that Predict to Trajectory of Illness C-Reactive Protein in Serum
Functional Brain Imaging Measures Brain Connectivity and Activation
Structural Brain Imaging Measures Brain Anatomical Imaging
Risk and Protective Factors that Span Modalities and Levels of Analysis (e.g., genetic, Brain, Neurobiological, Environmental and Behavioral) and Predict Movement along the illness Trajectory. (Source NIMH Strategic Plan)
Family History of Mental Illness Family History of Mental Illness
Adverse life Events
Premorbid Functioning Premorbid Adjustment in Psychosis
Medical History
Psychiatric Treatment History (including medication history, previous psychosocial interventions, inpatient treatment episodes, emergency department visits and antipsychotic medications at time of enrollments)
Prodromal Psychosis Symptoms
Age of First Prodromal Symptoms
Age of First Psychotic-Level Symptoms
Duration of Untreated Psychosis
Positive Syndrome Symptoms Clinician-Administered Psychiatric Assessment
Global Psychopathology Rating Scale
Current Physical Health (including medication side effects, smoking and cardio-metabolic risk factors) Physical Activity
Antipsychotic Medication Adherence
Antipsychotic Medication Extrapyramidal Side Effects
Multi-dimensional Assessment of Antipsychotic Medication Side Effects
Social and Role Functioning Social and Role Dysfunction in Psychosis and Schizophrenia
Arrests or Incarceration Incarceration
Family Burden Family Burden of Mental Illness
Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia
Family Functioning
Outpatient Treatments Mental Health Services Satisfaction
Hospitalizations for Psychiatric and Medical Illness (number, duration)
Emergency Department Visits, Crisis Intervention Services
Well-being/Mental Health Recovery Personal Well Being
Quality of Life
Hiring, Training and retention of Coordinated Specialty Care (CSC) staff
Availability of Required CSC Treatment Components
Fidelity Measures Related to Team-based CSC Treatment Model
Quality Measures Related to Provision of CSC Services
Outcome Measures Related to Symptoms, Functioning and Physical Health
CSC Clinic Caseload Size
Measures Related to Initial Engagement (e.g., Client, Family Member, Participation)
Measures Related to Participant Retention/Drop out
Measures of Client and Family Member Satisfaction Mental Health Services Satisfaction
Perception of Recovery Orientation and Care Quality of Mental Health Services
Psychosis Recovery Assessment
Shared Decision Making in Clinical Encounters
Neurocognitive Assessments Auditory Vigilance
Relational Encoding and Retrieval
Context Processing
Global Cognitive Functioning
Electrophysiological Assessments (e.g., ERP)
Eye-Tracking (pre- and Anti-saccade tasks)
Biomarkers and Behavioral Indicators that Predict to Trajectory of Illness C-Reactive Protein in Serum
Functional Brain Imaging Measures Brain Connectivity and Activation
Structural Brain Imaging Measures Brain Anatomical Imaging
Risk and Protective Factors that Span Modalities and Levels of Analysis (e.g., genetic, Brain, Neurobiological, Environmental and Behavioral) and Predict Movement along the illness Trajectory. (Source NIMH Strategic Plan)
Working Group Roster:

Clinical Services Panel:

Lisa Dixon, MD, MPH (Co-Chair)
Columbia University Medical Center
New York, NY
Diana Perkins, MD, MPH
University of North Carolina School of Medicine
Chapel Hill, NC
Nev Jones, PhD
Felton Institute
San Francisco, CA
Rachel Loewy, PhD
University of San Francisco School of Medicine
San Francisco, CA
Tamara Sale, MA
Portland State University
Portland, OR

Translational Research Panel:

Dost Öngür, MD, PhD (Co-Chair)
McLean Hospital
Belmont, MA
Cameron S. Carter, MD
University of California, Davis
Sacramento, CA
Raquel Gur, MD, PhD
University of Pennsylvania Perelman School of Medicine
Philadelphia, PA
Akira Sawa, MD, PhD
Johns Hopkins Hospital
Baltimore, MD
Larry J. Seidman, PhD
Harvard Medical School
Boston, MA
Carol Tamminga, MD
University of Texas Southwestern Medical School
Dallas, TX

Mental Health Research Panel Liaison, WG Manager and WG Supervisor:

Violet Devairakkam, WG Manager
RTI International
Rockville, MD
Marcie Rathbun, BS, WG Manager
RTI International
Research Triangle Park, NC
Rebecca Boyles, MS, WG Supervisor
RTI International
Research Triangle Park, NC
Wayne Huggins, PhD, WG Supervisor
RTI International
Research Triangle Park, NC

National Institute of Mental Health Liaison:

Gregory K. Farber, PhD
National Institute of Mental Health (NIMH)
Office of Technology Development and Coordination (Director)
Bethesda, MD
Robert K. Heinssen, PhD
National Institute of Mental Health (NIMH)
Division of Services and Intervention Research (Director)
Bethesda, MD

Substance Abuse and Mental Health Services (SAMHSA) Liaison:

Paolo del Vecchio, MSW
Substance Abuse and Mental Health Services Administration (SAMHSA)
Center for Mental Health Services (Director)
Rockville, MD

National Human Genome Research Institute (NHGRI) Liaison:

Margaret Ginoza
National Human Genome Research Institute (NHGRI)
Scientific Program Analyst
Bethesda, MD
Brenda Iglesias, BA
National Human Genome Research Institute (NHGRI)
Scientific Program Analyst
Bethesda, MD
Erin M. Ramos, PhD, MPH
National Human Genome Research Institute (NHGRI)
Bethesda, MD

Supplemental Information includes protocols that the Working Group or Expert Review Panel considered useful and highly relevant to the domain but do not meet the criteria for inclusion in the Toolkit.

Early Psychosis Collection Supplemental Information includes:
Additional Information:

There is no additional information for this collection.

Measure Protocols Domain/Collection
Antipsychotic Medication Adherence Add to My Toolkit Antipsychotic Medication Adherence Early Psychosis
Antipsychotic Medication Extrapyramidal Side Effects Add to My Toolkit Antipsychotic Medication Extrapyramidal Side Effects Early Psychosis
Clinician-Administered Psychiatric Assessment Add to My Toolkit Clinician-Administered Psychiatric Assessment Early Psychosis
Family Burden of Mental Illness Add to My Toolkit Family Burden of Mental Illness Early Psychosis
Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia Add to My Toolkit Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia Early Psychosis
Family Functioning Add to My Toolkit Family Functioning - Systematic Clinical Outcome Routine Evaluation Early Psychosis
Family History of Mental Illness Add to My Toolkit Family History - Multiple Mental Disorders Early Psychosis
Add to My Toolkit Family History - Psychosis Early Psychosis
General and Psychosis-related Psychopathology Symptoms Add to My Toolkit Global Psychopathology Rating Scale - Clinical Psychiatric
Add to My Toolkit Global Psychopathology Rating Scale - Research Psychiatric
Incarceration Add to My Toolkit Incarceration - Adolescents Early Psychosis
Add to My Toolkit Incarceration - Adult Early Psychosis
Mental Health Services Satisfaction Add to My Toolkit Mental Health Services Satisfaction Early Psychosis
Multi-dimensional Assessment of Antipsychotic Medication Side Effects Add to My Toolkit Multi-dimensional Assessment of Antipsychotic Medication Side Effects Early Psychosis
Perception of Recovery Orientation and Care Quality of Mental Health Services Add to My Toolkit Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Early Psychosis
Add to My Toolkit Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Early Psychosis
Add to My Toolkit Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Early Psychosis
Add to My Toolkit Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Early Psychosis
Personal Well-Being Add to My Toolkit Personal Well-being Index - Adult Early Psychosis
Add to My Toolkit Personal Well-being index - Child Early Psychosis
Physical Activity Add to My Toolkit Physical Activity Early Psychosis
Premorbid Adjustment in Psychosis Add to My Toolkit Premorbid Adjustment in Psychosis Early Psychosis
Psychiatric Symptoms - Frequency Add to My Toolkit Psychiatric Symptoms - Frequency Early Psychosis
Psychosis Recovery Assessment Add to My Toolkit Psychosis Recovery Assessment Early Psychosis
Shared Decision Making in Clinical Encounters Add to My Toolkit Shared Decision Making in Clinical Encounters Early Psychosis
Social and Role Functioning in Psychosis and Schizophrenia Add to My Toolkit Social and Role Dysfunction in Psychosis and Schizophrenia Early Psychosis