My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

Your saved My Toolkit has one or more retired protocols. Please scroll down to see which protocols were retired.

Select All

Basic Report
Detailed Report
Protocol in PDF
Protocol in Español
Protocol in 中文
DCW in Word Format
DCW in Español
DCW in 中文
DD in RTF Format
DD in CSV Format
DD in REDCap Format

Essential Protocols

	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module Remove
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire Remove
	Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), short form Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES) Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 16 to 90 years Wechsler Adult Intelligence Scale, 4th ed., (WAIS-IV) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 2 years, 6 months to 7 years, 7 months Wechsler Preschool and Primary Scale of Intelligence, 4th ed. (WPPSI-IV) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 6 to 16 years 11 months Wechsler Intelligence Scale for Children, 5th ed., (WISC) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - Birth to 3.5 years Bayley Scales of Infant and Toddler Development (BSID) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Adaptive Behavior/Adaptive Function Vineland Adaptive Behavior Scales., 2nd ed. (VINELAND-II) Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS) Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ) Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	NIH Stroke Scale (NIHSS) National Institutes of Health Stroke Scale (NIHSS) Remove
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS) Remove
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography Remove
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography Remove
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™) Remove
	Pain Brief Pain Inventory©(BPI), Short Form Remove This protocol is retired.
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Ethnicity and Race Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Motor and Attentional Impulsivity (Immediate and Delayed Memory Task) Immediate and Delayed Memory Task (IMT/DMT) Remove
	Health Quality Index for Economic Evaluations - Child and Adolescent EuroQol Group - EQ-5D-Y Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Health Quality Index for Economic Evaluations - Adult EQ-5D-3L Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Impairment - Adolescent The Columbia Impairment Scale (CIS) Remove
	Impairment - Adult The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) Remove
	Service Utilization and Cost Global Appraisal of Individual Needs (GAIN) Remove
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months Alcohol Use Disorders Identification Test (AUDIT) Check all Alcohol - Lifetime Use Gender Identity Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adolescents Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD) Check all Alcohol - Lifetime Use Gender Identity Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime Brief Michigan Alcoholism Screening Test (Brief MAST) Check all Alcohol - Lifetime Use Gender Identity Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Drugs Drug Abuse Screening Test (DAST-10) Check all Alcohol - Lifetime Use Gender Identity Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health (NSDUH), 2015 & National Institute on Alcohol Abuse and Alcoholism (NIAAA) National Epidemiologic Survey on Alcohol and Related Conditions, Wave 1 (NESARC - WAVE 1)/Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV) Check all Alcohol - Lifetime Use Add to Toolkit Remove
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015 Check all Substances - Lifetime Use Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Check all Gender Identity Sex Assigned at Birth Add to Toolkit Remove
	Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2) Short-form McGill Pain Questionnaire (SF-MPQ-2) Remove This protocol is retired.
	Adolescent Pediatric Pain Tool (APPT) Adolescent Pediatric Pain Tool (APPT) Remove This protocol is retired.
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Remove
Total Protocols in My Toolkit: 48

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2024 November 09). Quality of Life - Pediatric, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/221301 

PhenX Toolkit. (2024 November 09). Quality of Life - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/221302 

PhenX Toolkit. (2024 November 09). Quality of Care - Adults, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820101 

PhenX Toolkit. (2024 November 09). Quality of Care - Children, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820102 

PhenX Toolkit. (2024 November 09). Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820201 

PhenX Toolkit. (2024 November 09). PedsQL Sickle Cell Disease Module, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820202 

PhenX Toolkit. (2024 November 09). Self-efficacy in Sickle Cell Disease, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820401 

PhenX Toolkit. (2024 November 09). Intelligence Scale - 16 to 90 years, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820501 

PhenX Toolkit. (2024 November 09). Intelligence Scale - 2 years, 6 months to 7 years, 7 months, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820502 

PhenX Toolkit. (2024 November 09). Intelligence Scale - 6 to 16 years 11 months, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820503 

PhenX Toolkit. (2024 November 09). Intelligence Scale - Birth to 3.5 years, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820504 

PhenX Toolkit. (2024 November 09). Adaptive Behavior/Adaptive Function, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820601 

PhenX Toolkit. (2024 November 09). Stroke Impact Scale (SIS) - Adults, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820701 

PhenX Toolkit. (2024 November 09). Recovery and Recurrence Questionnaire (RRQ) - Pediatrics, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820702 

PhenX Toolkit. (2024 November 09). NIH Stroke Scale (NIHSS), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820801 

PhenX Toolkit. (2024 November 09). Pediatric NIH Stroke Scale (PedNIHSS), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/820802 

PhenX Toolkit. (2024 November 09). Stroke Risk in Children with Sickle Cell Disease - TCD, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/821001 

PhenX Toolkit. (2024 November 09). Stroke Risk in Children with Sickle Cell Disease - TCDi, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/821002 

PhenX Toolkit. (2024 November 09). Sustained and Selective Attention, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/821201 

PhenX Toolkit. (2024 November 09). Pain, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/170401 

PhenX Toolkit. (2024 November 09). History of Stroke - Ischemic Infarction and Hemorrhage, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130301 

PhenX Toolkit. (2024 November 09). Executive Function, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/131101 

PhenX Toolkit. (2024 November 09). Executive Function - Child, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/131102 

PhenX Toolkit. (2024 November 09). Migraine - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130501 

PhenX Toolkit. (2024 November 09). Migraine - Children, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130502 

PhenX Toolkit. (2024 November 09). Verbal Memory - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130801 

PhenX Toolkit. (2024 November 09). Verbal Memory - Child, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130802 

PhenX Toolkit. (2024 November 09). Visual Memory - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130901 

PhenX Toolkit. (2024 November 09). Visual Memory - Child, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/130902 

PhenX Toolkit. (2024 November 09). Working Memory - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/131001 

PhenX Toolkit. (2024 November 09). Working Memory - Child, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/131002 

PhenX Toolkit. (2024 November 09). Motor and Attentional Impulsivity (Immediate and Delayed Memory Task), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/530602 

PhenX Toolkit. (2024 November 09). Health Quality Index for Economic Evaluations - Child and Adolescent, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/560402 

PhenX Toolkit. (2024 November 09). Health Quality Index for Economic Evaluations - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/560403 

PhenX Toolkit. (2024 November 09). Impairment - Adolescent, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/610101 

PhenX Toolkit. (2024 November 09). Impairment - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/610102 

PhenX Toolkit. (2024 November 09). Service Utilization and Cost, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/560702 

PhenX Toolkit. (2024 November 09). Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/510201 

PhenX Toolkit. (2024 November 09). Screening and Severity of Substance Use Problems - Adolescents, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/510202 

PhenX Toolkit. (2024 November 09). Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/510203 

PhenX Toolkit. (2024 November 09). Screening and Severity of Substance Use Problems - Adults - Drugs, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/510204 

PhenX Toolkit. (2024 November 09). Alcohol - 30-Day Quantity and Frequency, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/30301 

PhenX Toolkit. (2024 November 09). Substances - 30-Day Frequency, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/31302 

PhenX Toolkit. (2024 November 09). Quality of Life Enjoyment and Satisfaction - Adult, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/180302 

PhenX Toolkit. (2024 November 09). Quality of Life Enjoyment and Satisfaction - Children, PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/180303 

PhenX Toolkit. (2024 November 09). Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/190901 

PhenX Toolkit. (2024 November 09). Adolescent Pediatric Pain Tool (APPT), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/190902 

PhenX Toolkit. (2024 November 09). Physical, Social, and Mental Health Functioning (SF-36V2), PhenX Toolkit. https://www.phenxtoolkit.org/protocols/view/191201

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

Share This Toolkit

Name Toolkit

Enter the name you wish to give the toolkit below.

Customized Email Note

Enter a customized note to send to any new users you share this toolkit with. Users who already have access to this saved toolkit will not receive a new email.

User List

Press add and then enter the email address of anyone you wish to share this toolkit with.