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Collection - Sickle Cell Disease

Select Protocol ID

#820601

#820201

#811201

#810901

#810102

#810101

#810201

#830101

#810801

#830301

#830201

#820501

#820502

#820503

#820504

#811001

#810301

#810401

#840101

#810501

#820801

#820802

#840201

#820202

#820101

#820102

#820702

#810601

#820401

#811301

#820701

#821001

#821002

#821201

The Sickle Cell Disease Working Group added the measures above to the PhenX Toolkit. They also identified additional measures in the PhenX Toolkit that are specifically related to research in this field. Toolkit users are encouraged to open, review and select measures in the Additional Relevant Measures folder.

Release Date:

July 30, 2015

Scope of Domain:

There is no scope information for this domain.

PhenX Sickle Cell Disease Senior Management Team
Carol M. Hamilton, PhD
Principal Investigator
RTI International
Research Triangle Park, NC
Wayne Huggins, PhD
Coordinator and WG Supervisor
RTI International
Research Triangle Park, NC
Tabitha P. Hendershot, BA
Co-Investigator
RTI International
Washington, DC
Deborah Maiese, MPA
Consensus Coordinator
RTI International
Research Triangle Park, NC
Tracey L. Grant, MS
WG Manager
RTI International
Statistics and Epidemiology Division
Research Triangle Park, NC
Amanda Riley, PMP, MBA
Project Manager
RTI International
Research Triangle Park, NC
Erin M. Ramos, PhD, MPH
Project Scientist
National Human Genome Research Institute (NHGRI)
Bethesda, MD
Brenda Iglesias, BA
Scientific Program Analyst
National Human Genome Research Institute (NHGRI)
Scientific Program Analyst
Bethesda, MD
Ellen M. Werner, PhD, MA
Program Director
National Heart, Lung, and Blood Institute (NHLBI)
Blood Diseases Branch
Bethesda, MD
PhenX Sickle Cell Disease Research and Scientific Panel
James R. Eckman, MD, Co-Chair
Emory University
School of Medicine
Atlanta, GA
Kathryn L. Hassell, MD, Co-Chair
University of Colorado, Denver
Denver, CO
Jon A. Detterich, MD
Children's Hospital Los Angeles
Los Angeles, CA
Jeffrey Glassberg, MD
Mount Sinai Medical Center
New York, NY
Zora R. Rogers, MD
University of Texas, Southwestern
Dallas, TX
Kim Smith-Whitley, MD
Children's Hospital of Philadelphia
Philadelphia, PA
John J. Strouse, MD, PhD
Johns Hopkins University
Baltimore, MD
James Taylor, MD
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, MD
Marilyn J. Telen, MD
Duke University
School of Medicine
Durham, NC
Ellen M. Werner, PhD, MA
National Heart, Lung, and Blood Institute (NHLBI)
Blood Diseases Branch
Bethesda, MD
Kenneth I. Ataga, MD
University of North Carolina at Chapel Hill
Chapel Hill, NC
Susan M. Czajkowski, PhD, NIH National Heart, Lung and Blood Institute Liaison
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, MD
Michael M. Engelgau, MD, MS, NIH National Heart, Lung and Blood Institute Liaison
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, MD
Joylene I. John-Sowah, MD, MPH, NIH National Heart, Lung and Blood Institute Liaison
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, MD
Emmanuel K. Peprah, PhD, NIH National Heart, Lung and Blood Institute Liaison
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, MD
Harvey Luksenburg, MD, NIH National Heart, Lung and Blood Institute Liaison
National Heart, Lung, and Blood Institute (NHLBI)
Bethesda, MD
Vence L. Bonham, Jr., JD, National Human Genome Research Institute (NHGRI) Liaison
National Human Genome Research Institute (NHGRI)
Bethesda, MD
Keisha Findley, PhD, National Human Genome Research Institute (NHGRI) Liaison
National Human Genome Research Institute (NHGRI)
Bethesda, MD
Denise Stredrick, PhD, National Cancer Institute (NCI) Liaison
National Cancer Institute (NCI)
Rockville, MD
William P. Tonkins Jr., DrPH, National Institute of Arthritis and Musculoskeletal and Skin Diseases Liaison
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Bethesda, MD
James Witter, Md, PhD, FACR, National Institute of Arthritis and Musculoskeletal and Skin Diseases Liaison
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Bethesda, MD
Tina Urv, PhD, Eunice Kennedy Shriver National Institute of Child Health and Human Development Liaison
Eunice Kennedy Shriver National Institute
of Child Health and Human Development (NICHD)
Rockville, MD
Kevin Abbott, MD, MPH, National Institute of Diabetes and Digestive and Kidney Diseases Liaison
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Bethesda, MD
Bridgett Rahim-Williams, PhD, MPH, MA, National Institute on Minority Health and Health Disparities Liaison
National Institute on Minority Health and Health Disparities (NIMHD)
Bethesda, MD
Joanne C. Odenkirchen, MPH, National Institute of Neurological Disorders and Stroke Liaison
National Institute of Neurological Disorders and Stroke (NINDS)
Rockville, MD
Clement J. McDonald, MD, National Library of Medicine Liaison
National Library of Medicine (NLM)
Bethesda, MD
Edward D. Ivy, MD, MPH, Health Resources & Services Administration Liaison
Health Resources & Services Administration
Rockville, MD
Mike Soucie, PhD, Centers for Disease Control and Prevention Liaison
Centers for Disease Control and Prevention
Atlanta, GA
Carol M. Hamilton, PhD, Principal Investigator
RTI International
Research Triangle Park, NC
Tabitha P. Hendershot, BA, Co-Investigator
RTI International
Washington, DC
Deborah Maiese, MPA, Consensus Coordinator
RTI International
Research Triangle Park, NC
Tracey L. Grant, MS, WG Manager
RTI International
Statistics and Epidemiology Division
Research Triangle Park, NC
Wayne Huggins, PhD, WG Supervisor
RTI International
Research Triangle Park, NC
Amanda Riley, PMP, MBA, Project Manager
RTI International
Research Triangle Park, NC
Jerry Sheehan, MS, BS, National Library of Medicine Liaison
National Library of Medicine (NLM)
Bethesda, MD
Sickle Cell Disease Supplemental Information includes:

There is no supplemental information for this domain.

Additional Information for Sickle Cell Disease Measures:

There is no additional information for this domain.

Protocol Name Status DCW DD DD Mapping