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Protocol - Ethnicity

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Description:

The interviewer asks the respondent if he or she considers himself or herself to be Hispanic, Latino or Spanish and, if so, asks an additional question about his or her specific Hispanic origin is asked. One or more Hispanic origin categories may be selected.

Specific Instructions:

Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.

If the respondent answers "yes" to the first question, then the interviewer should proceed to the next question, which includes the categories of Hispanic origin or ancestry. For the follow-up question, the interviewer should hand the respondent a card with the list of categories and read the categories, if necessary.

Protocol:

1. Do you consider yourself to be Hispanic, Latino, or of Spanish origin?

READ IF NECESSARY: Where do your ancestors come from?

Puerto Rican

Cuban/Cuban American

Dominican Republic

Mexican/Mexican American

Central/South American

Other Latin American

Other Hispanic or Latino

1[ ]YES [ask follow-up question]

2[ ]NO

7[ ]REFUSED

9[ ]DON’T KNOW

HELP SCREEN:

SPANISH, HISPANIC OR LATINO PEOPLE MAY BE OF ANY RACE. LISTED BELOW ARE HISPANIC OR LATINO CATEGORIES/COUNTRIES.

MEXICAN

PUERTO RICAN

CUBAN

DOMINICAN REPUBLIC

CENTRAL AMERICAN:

COSTA RICAN

GUATEMALAN

HONDURAN

NICARAGUAN

PANAMANIAN

SALVADORAN

OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

ARGENTINIAN

BOLIVIAN

CHILEAN

COLUMBIAN

ECUADORIAN

PARAGUAYAN

PERUVIAN

URUGUAYAN

VENEZUELAN

OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

SPANIARD

SPANISH

SPANISH AMERICAN

2. Please give me the number of the group that represents your Hispanic/Latino or Spanish origin or ancestry. Please select 1 or more of these categories.

PROBE: Where do your ancestors come from?

10[ ]MEXICAN

11[ ]PUERTO RICAN

12[ ]CUBAN

13[ ]DOMINICAN REPUBLIC

CENTRAL AMERICAN:

14[ ]COSTA RICAN

15[ ]GUATEMALAN

16[ ]HONDURAN

17[ ]NICARAGUAN

18[ ]PANAMANIAN

19[ ]SALVADORAN

20[ ]OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

21[ ]ARGENTINEAN

22[ ]BOLIVIAN

23[ ]CHILEAN

24[ ]COLOMBIAN

25[ ]ECUADORIAN

26[ ]PARAGUAYAN

27[ ]PERUVIAN

28[ ]URUGUAYAN

29[ ]VENEZUELAN

30[ ]OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

31[ ]FILIPINO

32[ ]SPANIARD

33[ ]SPANISH

34[ ]SPANISH AMERICAN

35[ ]HISPANO/HISPANA

36[ ]HISPANIC/LATINO

40[ ]OTHER HISPANIC/LATINO (SPECIFY)

41[ ]CHICANO

77[ ]REFUSED

99[ ]DON’T KNOW

Protocol Name from Source:

National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.

Availability:

Publicly available

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Life Stage:

Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy

Participants:

An individual aged 18 years or older. May be asked of children via a proxy.

Selection Rationale

The question meets the Office of Management and Budget (OMB) standards for capturing data on ethnicity. An important variable for population stratification distinguishes those who self-identify as Hispanic/Latino. Vetted against other ethnicity questions, the National Health and Nutrition Examination Survey (NHANES) question was selected because it met OMB standards, was used on a major U.S. health study, and provides additional Hispanic/Latino categories.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Centers for Disease Control and Prevention Ethnicity Unique Identifier Codes 2200284 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) PhenX - ethnicity protocol 62299-3 LOINC
Derived Variables

None

Process and Review

The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments, and Environmental Exposures domains.

Guidance from ERP 2 includes:

• Updated protocol

• New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)

Source

National Center for Health Statistics. (N.d.). National Health and Nutrition Examination Survey (NHANES), 2013–2014, Demographics Module. Question numbers DMQ.241 and DMQ.253

General References

Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0.

Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Federal Register Notice (10/30/97, Vol. 62, No. 210).

Protocol ID:

10502

Variables:
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX10502_Ethnicity_Ancestry
PX010502030000 Where do your ancestors come from? N/A
PX10502_Ethnicity_Self_Identification
PX010502010000 Do you consider yourself to be Hispanic, more
Latino, or of Spanish origin? show less
Variable Mapping
PX10502_Ethnicity_Self_Identification_Ancestry
PX010502020000 READ IF NECESSARY: Where do your ancestors more
come from? show less
N/A
Demographics
Measure Name:

Ethnicity

Release Date:

May 11, 2016

Definition

Question asking the respondent to identify whether he or she is of Hispanic, Latino, or Spanish origin. The U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."

Purpose

Ethnicity is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., Dominican). Ethnicity is a social and epidemiological factor, and individuals of some ethnicity are at greater risk for disease. By capturing the ethnicity of respondents, the researcher will be able to identify those who are or are not of Hispanic origin and will be able to stratify the study population accordingly.

Keywords

Demographics, ancestry, Hispanic, Latino, population stratification, Centers for Disease Control and Prevention, CDC, National Health and Nutrition Examination Survey, NHANES