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Protocol - Ethnicity

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Description:

The interviewer asks the respondent if he or she considers himself or herself to be Hispanic, Latino or Spanish and, if so, asks an additional question about his or her specific Hispanic origin is asked. One or more Hispanic origin categories may be selected.

Protocol:

1. Do you consider yourself to be Hispanic, Latino, or of Spanish origin?

READ IF NECESSARY: Where do your ancestors come from?

Puerto Rican

Cuban/Cuban American

Dominican Republic

Mexican/Mexican American

Central/South American

Other Latin American

Other Hispanic or Latino

[ ] 1 YES [ask follow-up question]

[ ] 2 NO

[ ] 7 REFUSED

[ ] 9 DON’T KNOW

HELP SCREEN:

SPANISH, HISPANIC OR LATINO PEOPLE MAY BE OF ANY RACE. LISTED BELOW ARE HISPANIC OR LATINO CATEGORIES/COUNTRIES.

MEXICAN

PUERTO RICAN

CUBAN

DOMINICAN REPUBLIC

CENTRAL AMERICAN:

COSTA RICAN

GUATEMALAN

HONDURAN

NICARAGUAN

PANAMANIAN

SALVADORAN

OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

ARGENTINIAN

BOLIVIAN

CHILEAN

COLUMBIAN

ECUADORIAN

PARAGUAYAN

PERUVIAN

URUGUAYAN

VENEZUELAN

OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

SPANIARD

SPANISH

SPANISH AMERICAN

2. Please give me the number of the group that represents your Hispanic/Latino or Spanish origin or ancestry. Please select 1 or more of these categories.

PROBE: Where do your ancestors come from?

[ ] 10 MEXICAN

[ ] 11 PUERTO RICAN

[ ] 12 CUBAN

[ ] 13 DOMINICAN REPUBLIC

CENTRAL AMERICAN:

[ ] 14 COSTA RICAN

[ ] 15 GUATEMALAN

[ ] 16 HONDURAN

[ ] 17 NICARAGUAN

[ ] 18 PANAMANIAN

[ ] 19 SALVADORAN

[ ] 20 OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

[ ] 21 ARGENTINEAN

[ ] 22 BOLIVIAN

[ ] 23 CHILEAN

[ ] 24 COLOMBIAN

[ ] 25 ECUADORIAN

[ ] 26 PARAGUAYAN

[ ] 27 PERUVIAN

[ ] 28 URUGUAYAN

[ ] 29 VENEZUELAN

[ ] 30 OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

[ ] 31 FILIPINO

[ ] 32 SPANIARD

[ ] 33 SPANISH

[ ] 34 SPANISH AMERICAN

[ ] 35 HISPANO/HISPANA

[ ] 36 HISPANIC/LATINO

[ ] 40 OTHER HISPANIC/LATINO (SPECIFY)

[ ] 41 CHICANO

[ ] 77 REFUSED

[ ] 99 DON’T KNOW

Protocol Name from Source:

National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.

Availability:

Publicly available

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Life Stage:

Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy

Participants:

An individual aged 18 years or older. May be asked of children via a proxy.

Specific Instructions:

Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.

If the respondent answers "yes" to the first question, then the interviewer should proceed to the next question, which includes the categories of Hispanic origin or ancestry. For the follow-up question, the interviewer should hand the respondent a card with the list of categories and read the categories, if necessary.

Selection Rationale

The question meets the Office of Management and Budget (OMB) standards for capturing data on ethnicity. An important variable for population stratification distinguishes those who self-identify as Hispanic/Latino. Vetted against other ethnicity questions, the National Health and Nutrition Examination Survey (NHANES) question was selected because it met OMB standards, was used on a major U.S. health study, and provides additional Hispanic/Latino categories.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Centers for Disease Control and Prevention Ethnicity Unique Identifier Codes 2200284 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) PhenX - ethnicity protocol 62299-3 LOINC
Process and Review

The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments, and Environmental Exposures domains.

Guidance from ERP 2 includes:

• Updated protocol

• New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)

Source

National Center for Health Statistics. (N.d.). National Health and Nutrition Examination Survey (NHANES), 2013–2014, Demographics Module. Question numbers DMQ.241 and DMQ.253

General References

Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0.

Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Federal Register Notice (10/30/97, Vol. 62, No. 210).

Protocol ID:

10502

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX010501_Hispanic_Ethnicity PX010501010000 Do you consider yourself Hispanic/Latino? [Where did your ancestors come from?] 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Central_South PX010501020800 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. CENTRAL OR SOUTH AMERICAN 4 N/A
PX010501_Hispanic_Ethnicity_Type_Chicano PX010501020500 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. CHICANO 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Cuban PX010501020600 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. CUBAN 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Cuban_American PX010501020700 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. CUBAN AMERICAN 4 N/A
PX010501_Hispanic_Ethnicity_Type_Dominican PX010501020200 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. DOMINICAN (REPUBLIC) 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Dont_Know PX010501020000 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. DON'T KNOW 4 N/A
PX010501_Hispanic_Ethnicity_Type_Mexican PX010501020300 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. MEXICAN/MEXICANO 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Mexican_American PX010501020400 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. MEXICAN AMERICAN 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Other_Hispanic PX010501021000 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. OTHER HISPANIC 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Other_Latin PX010501020900 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. OTHER LATIN AMERICAN 4 N/A
PX010501_Hispanic_Ethnicity_Type_Puerto_Rican PX010501020100 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. PUERTO RICAN 4 Variable Mapping
PX010501_Hispanic_Ethnicity_Type_Refused PX010501021100 Please give me the number of the group that represents your Hispanic origin or ancestry. Please select 1 or more of these categories. REFUSED 4 N/A
Research Domain Information
Measure Name:

Ethnicity

Release Date:

May 11, 2016

Definition

Question asking the respondent to identify whether he or she is of Hispanic, Latino, or Spanish origin. The U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."

Purpose

Ethnicity is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., Dominican). Ethnicity is a social and epidemiological factor, and individuals of some ethnicity are at greater risk for disease. By capturing the ethnicity of respondents, the researcher will be able to identify those who are or are not of Hispanic origin and will be able to stratify the study population accordingly.

Keywords

Demographics, ancestry, Hispanic, Latino, population stratification, Centers for Disease Control and Prevention, CDC, National Health and Nutrition Examination Survey, NHANES