Protocol - Ethnicity
Description:
The interviewer asks the respondent if he or she considers himself or herself to be Hispanic, Latino or Spanish and, if so, asks an additional question about his or her specific Hispanic origin is asked. One or more Hispanic origin categories may be selected.
Specific Instructions:
Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.
If the respondent answers "yes" to the first question, then the interviewer should proceed to the next question, which includes the categories of Hispanic origin or ancestry. For the follow-up question, the interviewer should hand the respondent a card with the list of categories and read the categories, if necessary.
Protocol:
1. Do you consider yourself to be Hispanic, Latino, or of Spanish origin?
READ IF NECESSARY: Where do your ancestors come from?
Puerto Rican
Cuban/Cuban American
Dominican Republic
Mexican/Mexican American
Central/South American
Other Latin American
Other Hispanic or Latino
1[ ]YES [ask follow-up question]
2[ ]NO
7[ ]REFUSED
9[ ]DON’T KNOW
HELP SCREEN:
SPANISH, HISPANIC OR LATINO PEOPLE MAY BE OF ANY RACE. LISTED BELOW ARE HISPANIC OR LATINO CATEGORIES/COUNTRIES.
MEXICAN
PUERTO RICAN
CUBAN
DOMINICAN REPUBLIC
CENTRAL AMERICAN:
COSTA RICAN
GUATEMALAN
HONDURAN
NICARAGUAN
PANAMANIAN
SALVADORAN
OTHER CENTRAL AMERICAN
SOUTH AMERICAN:
ARGENTINIAN
BOLIVIAN
CHILEAN
COLUMBIAN
ECUADORIAN
PARAGUAYAN
PERUVIAN
URUGUAYAN
VENEZUELAN
OTHER SOUTH AMERICAN
OTHER HISPANIC OR LATINO:
SPANIARD
SPANISH
SPANISH AMERICAN
2. Please give me the number of the group that represents your Hispanic/Latino or Spanish origin or ancestry. Please select 1 or more of these categories.
PROBE: Where do your ancestors come from?
10[ ]MEXICAN
11[ ]PUERTO RICAN
12[ ]CUBAN
13[ ]DOMINICAN REPUBLIC
CENTRAL AMERICAN:
14[ ]COSTA RICAN
15[ ]GUATEMALAN
16[ ]HONDURAN
17[ ]NICARAGUAN
18[ ]PANAMANIAN
19[ ]SALVADORAN
20[ ]OTHER CENTRAL AMERICAN
SOUTH AMERICAN:
21[ ]ARGENTINEAN
22[ ]BOLIVIAN
23[ ]CHILEAN
24[ ]COLOMBIAN
25[ ]ECUADORIAN
26[ ]PARAGUAYAN
27[ ]PERUVIAN
28[ ]URUGUAYAN
29[ ]VENEZUELAN
30[ ]OTHER SOUTH AMERICAN
OTHER HISPANIC OR LATINO:
31[ ]FILIPINO
32[ ]SPANIARD
33[ ]SPANISH
34[ ]SPANISH AMERICAN
35[ ]HISPANO/HISPANA
36[ ]HISPANIC/LATINO
40[ ]OTHER HISPANIC/LATINO (SPECIFY)
41[ ]CHICANO
77[ ]REFUSED
99[ ]DON’T KNOW
Protocol Name from Source:
National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.
Availability:
Personnel and Training Required
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.
* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).
Equipment Needs
While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Interviewer-administered questionnaire
Life Stage:
Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy
Participants:
An individual aged 18 years or older. May be asked of children via a proxy.
Selection Rationale
The question meets the Office of Management and Budget (OMB) standards for capturing data on ethnicity. An important variable for population stratification distinguishes those who self-identify as Hispanic/Latino. Vetted against other ethnicity questions, the National Health and Nutrition Examination Survey (NHANES) question was selected because it met OMB standards, was used on a major U.S. health study, and provides additional Hispanic/Latino categories.
Language
English, Spanish
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Common Data Elements (CDE) | Centers for Disease Control and Prevention Ethnicity Unique Identifier Codes | 2200284 | CDE Browser |
| Logical Observation Identifiers Names and Codes (LOINC) | PhenX - ethnicity protocol | 62299-3 | LOINC |
Derived Variables
None
Process and Review
The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments, and Environmental Exposures domains.
Guidance from ERP 2 includes:
• Updated protocol
• New Data Dictionary
Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)
Source
National Center for Health Statistics. (N.d.). National Health and Nutrition Examination Survey (NHANES), 2013–2014, Demographics Module. Question numbers DMQ.241 and DMQ.253
General References
Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0.
Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Federal Register Notice (10/30/97, Vol. 62, No. 210).
Protocol ID:
10502
Variables:
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX10502_Ethnicity_Ancestry | ||||
| PX010502030000 | Where do your ancestors come from? | N/A | ||
| PX10502_Ethnicity_Self_Identification | ||||
| PX010502010000 | Do you consider yourself to be Hispanic, more | Variable Mapping | ||
| PX10502_Ethnicity_Self_Identification_Ancestry | ||||
| PX010502020000 | READ IF NECESSARY: Where do your ancestors more | N/A | ||
Measure Name:
Ethnicity
Release Date:
May 11, 2016
Definition
Question asking the respondent to identify whether he or she is of Hispanic, Latino, or Spanish origin. The U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Purpose
Ethnicity is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., Dominican). Ethnicity is a social and epidemiological factor, and individuals of some ethnicity are at greater risk for disease. By capturing the ethnicity of respondents, the researcher will be able to identify those who are or are not of Hispanic origin and will be able to stratify the study population accordingly.
Keywords
Demographics, ancestry, Hispanic, Latino, population stratification, Centers for Disease Control and Prevention, CDC, National Health and Nutrition Examination Survey, NHANES