Protocol - Race
The interviewer asks the respondent what race he or she considers himself or herself to be and hands the respondent a card with a list of race categories. The respondent is asked to pick one or more of the categories on the card. The interviewer enters the code for the race indicated or keys in an entry if the respondent chooses an "other (specify)" option.
Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.
1. What race or races do you consider yourself to be? Please select one or more.
HAND CARD 1
CHECK ALL THAT APPLY.
1[ ]AMERICAN INDIAN OR ALASKA NATIVE
2[ ]ASIAN [GO TO Q2]
3[ ]BLACK OR AFRICAN AMERICAN
4[ ]NATIVE HAWAIIAN OR PACIFIC ISLANDER [GO TO Q3]
99[ ]DON’T KNOW
2. Please give me the number of the group that represents your Asian origin or ancestry. Please select one or more of these categories.
HAND CARD 2
PROBE: Where do your ancestors come from?
10[ ]ASIAN INDIAN
20[ ]EAST INDIAN
26[ ]IWO JIMAN
41[ ]SRI LANKAN
99[ ]DON’T KNOW
3. Please give me the number of the group that represents your Native Hawaiian or Pacific Islander origin or ancestry. Please select one or more of these categories.
HAND CARD 3
PROBE: Where do your ancestors come from?
1[ ]NATIVE HAWAIIAN
2[ ]GUAMANIAN OR CHAMORRO
4[ ]OTHER PACIFIC ISLANDER
9[ ]DON’T KNOW
4. CODE ANSWER TO “OTHER RACE.”
11[ ]PUERTO RICAN
13[ ]DOMINICAN REPUBLIC
14[ ]COSTA RICAN
20[ ]OTHER CENTRAL AMERICAN
30[ ]OTHER SOUTH AMERICAN
OTHER HISPANIC OR LATINO:
34[ ]SPANISH AMERICAN
40[ ]OTHER HISPANIC/LATINO (SPECIFY)
Protocol Name from Source:
National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.
Personnel and Training Required
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.
* There are multiple modes to administer these questions (e.g., paper-and-pencil and computer-assisted interviews).
While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy
Any age. May be asked of children via a proxy.
The questions meet the Office of Management and Budget (OMB) standards for capturing data on race. An important tabulation variable, it captures those who self-identify as belonging to more than one race. Several questions were considered, and the National Health and Nutrition Examination Survey (NHANES) question was selected because it meets OMB standards, was used on a major U.S. health study, and provides multiple racial response categories.
|Common Data Elements (CDE)||Centers for Disease Control and Prevention Race Unique Identifier Code||2200286||CDE Browser|
|Logical Observation Identifiers Names and Codes (LOINC)||Race PhenX||56091-2||LOINC|
Native Hawaiian and Other Pacific Islanders (NHOPIs): Office of Management and Budget (OMB) guidelines combine the two racial categories to provide broader classifications. The U.S. Census and the Centers for Disease Control and Prevention (CDC) also use NHOPI as a race category.
Process and Review
The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments and Environmental Exposures domains.
Guidance from ERP 2 includes:
• Updated protocol
• New Data Dictionary
Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)
National Center for Health Statistics. National Health and Nutrition Examination Survey (NHANES), Demographics Module 2013–2014. Question numbers DMQ.263, DMQ.336, DMQ.350, DMQ.266.
Centers for Disease Control and Prevention (CDC), Office of Minority Health and Health Disparities (OMHD). (2008). Native Hawaiian & Other Pacific Islander (NHOPI) Populations.
Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0. Atlanta: Author. http://www.cdc.gov/phin/resources/vocabulary/documents/cdc-race--ethnicity-background-and-purpose.pdf
Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. 62 Fed. Reg. (October 30, 1997).
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
|PX010602010000||What race or races do you consider yourself more||N/A|
|PX010602020000||Where do your ancestors come from?||N/A|
|PX010602040200||OTHER HISPANIC/LATINO (SPECIFY)||N/A|
|PX010602040100||CODE ANSWER TO OTHER RACE.||N/A|
|PX010602030000||Where do your ancestors come from?||N/A|
May 11, 2016
Question asking the respondent his or her race. U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Race is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., African Americans). Race is a social and epidemiological factor, and individuals of some races are at greater risk for certain diseases.
Demographics, ancestry, ethnicity, population stratification, National Health and Nutrition Examination Survey, NHANES, National Center for Health Statistics, NCHS, Centers for Disease Control and Prevention, CDC