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Protocol - Race

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Description:

The interviewer asks the respondent what race he or she considers himself or herself to be and hands the respondent a card with a list of race categories. The respondent is asked to pick one or more of the categories on the card. The interviewer enters the code for the race indicated or keys in an entry if the respondent chooses an "other (specify)" option.

Specific Instructions:

Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.

Protocol:

1. What race or races do you consider yourself to be? Please select one or more.

HAND CARD 1

CHECK ALL THAT APPLY.

1[ ]AMERICAN INDIAN OR ALASKA NATIVE

2[ ]ASIAN [GO TO Q2]

3[ ]BLACK OR AFRICAN AMERICAN

4[ ]NATIVE HAWAIIAN OR PACIFIC ISLANDER [GO TO Q3]

5[ ]WHITE

6[ ]OTHER

99[ ]DON’T KNOW

77[ ]REFUSED

2. Please give me the number of the group that represents your Asian origin or ancestry. Please select one or more of these categories.

HAND CARD 2

PROBE: Where do your ancestors come from?

10[ ]ASIAN INDIAN

11[ ]BANGLADESHI

12[ ]BENGALESE

13[ ]BHARAT

14[ ]BHUTANESE

15[ ]BURMESE

16[ ]CAMBODIAN

17[ ]CANTONESE

18[ ]CHINESE

19[ ]DRAVIDIAN

20[ ]EAST INDIAN

21[ ]FILIPINO

22[ ]GOANESE

23[ ]HMONG

24[ ]INDOCHINESE

25[ ]INDONESIAN

26[ ]IWO JIMAN

27[ ]JAPANESE

28[ ]KOREAN

29[ ]LAOHMONG

30[ ]LAOTIAN

31[ ]MADAGASCAR/MALAGASY

32[ ]MALAYSIAN

33[ ]MALDIVIAN

34[ ]MONG

35[ ]NEPALESE

36[ ]NIPPONESE

37[ ]OKINAWAN

38[ ]PAKISTANI

39[ ]SIAMESE

40[ ]SINGAPOREAN

41[ ]SRI LANKAN

42[ ]TAIWANESE

43[ ]THAI

44[ ]VIETNAMESE

77[ ]REFUSED

99[ ]DON’T KNOW

3. Please give me the number of the group that represents your Native Hawaiian or Pacific Islander origin or ancestry. Please select one or more of these categories.

HAND CARD 3

PROBE: Where do your ancestors come from?

1[ ]NATIVE HAWAIIAN

2[ ]GUAMANIAN OR CHAMORRO

3[ ]SAMOAN

4[ ]OTHER PACIFIC ISLANDER

7[ ]REFUSED

9[ ]DON’T KNOW

4. CODE ANSWER TO “OTHER RACE.”

10[ ]MEXICAN

11[ ]PUERTO RICAN

12[ ]CUBAN

13[ ]DOMINICAN REPUBLIC

CENTRAL AMERICAN:

14[ ]COSTA RICAN

15[ ]GUATEMALAN

16[ ]HONDURAN

17[ ]NICARAGUAN

18[ ]PANAMANIAN

19[ ]SALVADORAN

20[ ]OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

21[ ]ARGENTINEAN

22[ ]BOLIVIAN

23[ ]CHILEAN

24[ ]COLOMBIAN

25[ ]ECUADORIAN

26[ ]PARAGUAYAN

27[ ]PERUVIAN

28[ ]URUGUAYAN

29[ ]VENEZUELAN

30[ ]OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

31[ ]FILIPINO

32[ ]SPANIARD

33[ ]SPANISH

34[ ]SPANISH AMERICAN

35[ ]HISPANO/HISPANA

36[ ]HISPANIC/LATINO

40[ ]OTHER HISPANIC/LATINO (SPECIFY)

41[ ]CHICANA/CHICANO

REFUSED

DON’T KNOW

Protocol Name from Source:

National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.

Availability:

Publicly available

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

* There are multiple modes to administer these questions (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Life Stage:

Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy

Participants:

Any age. May be asked of children via a proxy.

Selection Rationale

The questions meet the Office of Management and Budget (OMB) standards for capturing data on race. An important tabulation variable, it captures those who self-identify as belonging to more than one race. Several questions were considered, and the National Health and Nutrition Examination Survey (NHANES) question was selected because it meets OMB standards, was used on a major U.S. health study, and provides multiple racial response categories.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Centers for Disease Control and Prevention Race Unique Identifier Code 2200286 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) Race PhenX 56091-2 LOINC
Derived Variables

Native Hawaiian and Other Pacific Islanders (NHOPIs): Office of Management and Budget (OMB) guidelines combine the two racial categories to provide broader classifications. The U.S. Census and the Centers for Disease Control and Prevention (CDC) also use NHOPI as a race category.

Process and Review

The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments and Environmental Exposures domains.

Guidance from ERP 2 includes:

• Updated protocol

• New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)

Source

National Center for Health Statistics. National Health and Nutrition Examination Survey (NHANES), Demographics Module 2013–2014. Question numbers DMQ.263, DMQ.336, DMQ.350, DMQ.266.

General References

Centers for Disease Control and Prevention (CDC), Office of Minority Health and Health Disparities (OMHD). (2008). Native Hawaiian & Other Pacific Islander (NHOPI) Populations.

Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0. Atlanta: Author. http://www.cdc.gov/phin/resources/vocabulary/documents/cdc-race--ethnicity-background-and-purpose.pdf

Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. 62 Fed. Reg. (October 30, 1997).

Protocol ID:

10602

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX010602_Race_Self_Identification PX010602010000 What race or races do you consider yourself more
to be? Please select one or more. show less
N/A
PX010602_Race_Self_Identification_Asian PX010602020000 Where do your ancestors come from? N/A
PX010602_Race_Self_Identification_OtherLatino PX010602040200 OTHER HISPANIC/LATINO (SPECIFY) N/A
PX010602_Race_Self_Identification_OtherRace PX010602040100 CODE ANSWER TO ÔøΠmore
OTHER RACE.ÔøΩ show less
N/A
PX010602_Race_Self_Identification_PacificIslander PX010602030000 Where do your ancestors come from? N/A
Demographics
Measure Name:

Race

Release Date:

May 11, 2016

Definition

Question asking the respondent his or her race. U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."

Purpose

Race is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., African Americans). Race is a social and epidemiological factor, and individuals of some races are at greater risk for certain diseases.

Keywords

Demographics, ancestry, ethnicity, population stratification, National Health and Nutrition Examination Survey, NHANES, National Center for Health Statistics, NCHS, Centers for Disease Control and Prevention, CDC