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Protocols

PhenX Protocol Domain/Collection

Knee injury and Osteoarthritis Outcome Score (KOOS)
Geriatrics

Multicenter Osteoarthritis Study (MOST) Baseline Telephone Screening Interview, Screening visit, 2003, Grant cycles 1 & 2.
Bone and Joint

Substance Abuse and Mental Health Services Administration (SAMHSA), drug cut-off concentrations for workplace testing
Assessment of Substance Use and Substance Use Disorders

Balloon Analogue Risk Task (BART)
Substance Use-related Neurobehavioral and Cognitive Risk Factors

Inventory of Callous-Unemotional Traits (ICU)
Psychiatric

Inventory of Callous-Unemotional Traits (ICU)
Psychiatric

Inventory of Callous-Unemotional Traits (ICU)
Psychiatric

Inventory of Callous-Unemotional Traits (ICU)
Psychiatric

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011
Cardiovascular, Pulmonary, and Renal

Voigt, et al. Definitions for a common standard for 2D speckle tracking echocardiography: Consensus document of the EACVI/ASE/Industry Task Force to standardize deformation imaging. European Heart Journal - Cardiovascular Imaging, 16(1), 1-11.
Curative Therapies

The Beck Lethality Scales
Suicide

Traumatic Life Events Questionnaire (TLEQ)
Social Environments

Adverse Life Events Scale
Social Environments

The Life Space Questionnaire
Geriatrics

Coronary Artery Risk Development in Young Adults (CARDIA), Y20 CARDIA VII & Framingham Heart Study (FHS), Generation 3
Cardiovascular

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory procedures manual, 2007
Gastrointestinal

American Nonsmokers Rights Foundation (ANRF) U.S. Tobacco Control Laws Database ?, 2015
Tobacco Regulatory Research: Environment

Online Survey on Recovery from COVID-19
Long COVID

Long COVID in Children and Young People (The CLoCk Study)
Long COVID

Sequelae in Adults at 6 Months After COVID-19 Infection
Long COVID

Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases of Multisystem Inflammatory Syndrome (MIS) in Children and Adolescents Temporally Related to COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Long COVID in Children and Young People (The CLoCk Study)
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Online Survey on Recovery from COVID-19
Long COVID

Johns Hopkins COVID Long Study
Long COVID

Roland-Morris Disability Questionnaire (RMDQ)
Bone and Joint

MacIntyre, N., et al. Standardization of the single-breath determination of carbon monoxide uptake in the lung. EUR RESPIR J, 2005
Cardiovascular, Pulmonary, and Renal

Wanger, J. et al. Standardization of the measurement of lung volumes. EUR RESPIR J, 2005
Cardiovascular, Pulmonary, and Renal

WHO Laboratory Manual for the Examination and Processing of Human Semen, Fifth Edition, 2010
Reproductive Health

Study For Future Families
Reproductive Health

Study for Future Families & International Index of Erectile Function (IIEF)
Reproductive Health

Baltimore Longitudinal Study on Aging (BLSA), Dental Examination
Oral Health

Silent Cerebral Infarct Multi-Center Clinical Trial (SIT), Demographic/Phenotypic Information
Sickle Cell Disease Core: Tier 2

National Health and Nutrition Examination Survey (NHANES), Weight History Questionnaire, 2007
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Weight History Questionnaire, 2007
Anthropometrics

American Legacy Foundations Connecting Health and Technology Survey, 2014
Information Resources

COVID-19 Experiences (COVEX)
Information Resources

My Personal Health Record (MyPHR), Adult PHR Form, 2006
Infectious Diseases and Immunity

Multi-Ethnic Study of Arthrosclerosis (MESA), Medications, 2000
Diabetes

The California Teachers Study, Follow-Up Survey 4, 2005-2006
Cancer

Nurses? Health Study (NHS), Black Women?s Health Study (BWHS), Study of Women Across the Nation (SWAN)
Reproductive Health

Mental Health Statics Improvement Program (MHSIP), Youth Services Survey (YSS)
Early Psychosis Clinical Services

University of Michigan Metabolomics Biomedical Research Core Facility, Metabolomic studies protocol, v.130913
Obesity

Caraballo RS, et al. Quit Methods Used by US Adult Cigarette Smokers, 2014-2016. Prev Chronic Dis, 2017.
Smoking Cessation, Harm Reduction and Biomarkers

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2007
Anthropometrics

American Migraine Study II, Self-Administered Questionnaire for Migraine
Neurology

The Pediatric Migraine Disability Assessment (PedMIDAS)
Neurology

The Million Veteran Program (MVP)
Post-traumatic Stress Psychopathology (including PTSD)

U.S. Department of Labor, State Minimum Wage Laws, 2022
Structural Social Determinants of Health

Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7
Pregnancy

Extremely Low Gestational Age Newborns (ELGAN) Chart Abstraction Form, 2002
Pregnancy

Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7
Pregnancy

A Randomized Trial of Induction Versus Expectant Management (ARRIVE), 2016
Pregnancy

The Reasons for Quitting (RFQ) Questionnaire
Tobacco Regulatory Research - Host: Social/Cognitive

Turner, L.R., et al. Motivation and reasons to quit: Predictive validity among adolescent smokers. AM J HEALTH BEHAV, 2004
Tobacco Regulatory Research - Host: Social/Cognitive

Drinking Motives Questionnaire Revised (DMQ-R)
Substance-specific Intermediate Phenotypes

Monitoring the Future (MTF), 2015
Substance-specific Intermediate Phenotypes

Brief Wisconsin Inventory of Smoking Dependence Motives (Brief WISDM)
Substance-specific Intermediate Phenotypes

Drinking Motives Questionnaire Revised (DMQ-R)
Substance-specific Intermediate Phenotypes

Immediate and Delayed Memory Task (IMT/DMT)
Neurology, Quality of Life, and Health Services

Glasgow Antipsychotic Side-effect Scale (GASS)
Early Psychosis Clinical Services

The Phinney Scale
Tobacco Regulatory Research - Host: Social/Cognitive

Cardiovascular Health Study (CHS), Baseline Medical History Questionnaire & Womens Health Initiative (WHI), Medical History Update
Cardiovascular

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011
Cardiovascular, Pulmonary, and Renal

Project on Human Development in Chicago Neighborhoods (PHDCN), Community Survey, 1994-1995
Social Environments

U.S. Census Bureau, 1990 and 2000 Decennial Censuses (SF3); and American Community Survey (ACS), 5-year estimates, 2011-2015 to 2016-2020.
Social Environments

Mujahid, M. S., et al, Assessing the measurement properties of neighborhood scales: From psychometrics to ecometrics. AM J EPIDEMIOL, 2007
Social Environments

Microscale Audit of Pedestrian Streetscapes (MAPS-Mini)
Structural Social Determinants of Health

U.S. Census Bureau, Census 2010, Summary File 1, Technical Documentation
Tobacco Regulatory Research: Environment

Finnegan Neonatal Abstinence Score Tool (FNAST) 2019 Final
Pediatric Development

Survey of Autonomic Symptoms (SAS)
Neurology

Charcot-Marie-Tooth Neuropathy Score
Neurology

Tobacco Laboratory, Nicotine (Total and Unprotonated), Version 03
Tobacco Regulatory Research: Agent

National Health and Nutrition Examination Survey (NHANES) Cotinine and Hydroxycotinine Analysis
Smoking Cessation, Harm Reduction and Biomarkers

Night Eating Questionnaire??(NEQ)
Obesity

National Institutes of Health Stroke Scale (NIHSS)
Neurology, Quality of Life, and Health Services

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, NNAL In Urine, 2011-2012
Tobacco Regulatory Research - Host: Biobehavioral

The Self-Injurious Thoughts and Behaviors Interview (SITBI)
Suicide

Raven?s Progressive Matrices
Neurology

Health Professionals Follow-Up Study (HPFS), Infant Feeding Practices Study II (IFPS-II), Postnatal Month 12
Oral Health

National Health and Nutrition Examination Survey (NHANES), 2005-2006
Environmental Exposures

Individual Social Determinants of Health

National Eye Institute (NEI), Age-Related Eye Disease Study (AREDS), Phase II, Sunlight Exposure Questionnaire, 2/9/1996
Ocular

Childhood Cancer Survivor Study (CCSS)
Genitourinary

Substance Abuse and Mental Health Services Administration (SAMHSA), drug cut-off concentrations, multidrug cup
Assessment of Substance Use and Substance Use Disorders

National Health and Nutrition Examination Survey (NHANES), Oral Glucose Tolerance Test (OGTT) Manual, 2007-2008
Diabetes

Baltimore Longitudinal Study on Aging (BLSA), Dental Examination
Oral Health

Robbins & Klee Test of Oral and Speech Motor Control
Speech, Language and Hearing

National Health Interview Survey (NHIS), Orofacial Pain, 1989
Oral Health

Organizational Readiness for Implementing Change (ORIC)
Genomic Medicine Implementation

Overactive Bladder Short Form Questionnaire (OAB-q SF)
Genitourinary

University of Pennsylvania, Cancer Risk Evaluation Program, Health History Questionnaire, 9/2006
Cancer