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Protocols

PhenX Protocol Domain/Collection

Early Adolescent Temperament Questionnaire (EATQ-R)
Psychosocial

Adult Temperament Questionnaire (ATQ)
Psychosocial

Childrens Behavior Questionnaire-Very Short Form (CBQ-VSF)
Psychosocial

Early Childhood Behavior Questionnaire (ECBQ)
Psychosocial

Infant Behavior Questionnaire-Revised (IBQ-R)
Psychosocial

Temperament and Character Inventory (TCI), Harm subscale
Eating Disorders

Melmed, S., et al. Williams textbook of endocrinology, 2008
Reproductive Health

National Health and Nutrition Examination Survey (NHANES) 2011-2012, Total Testosterone
SCD Genitourinary

Three-Dimensional (3D) Magnetization-Prepared RApid Gradient Echo (MP-RAGE)
Early Psychosis Translational Research

Prophylactic Anticoagulation and central Venous access device-related thromboembolism In adult Sickle cell patients (PAVIS)
SCD Pregnancy

Prophylactic Anticoagulation and central Venous access device-related thromboembolism In adult Sickle cell patients (PAVIS)
SCD Pregnancy

Cure Sickle Cell Initiative (CureSCi), F2909 Medical History Core Form, SCD Version 1.0
SCD Pregnancy

Thyroid Stimulating Hormone (TSH), CPT 84443
SCD Curative Therapies

Tinnitus Handicap Inventory
Speech, Language and Hearing

Tinnitus Screener
Speech, Language and Hearing

National Epidemiologic Survey on Alcohol and Related Conditions (NESARC), Wave 1
Oral Health

National Survey on Drug Use and Health (NSDUH), 2014
Alcohol, Tobacco and Other Substances

Tobacco Use Supplement to the Current Population Survey (TUS-CPS), 2010
Alcohol, Tobacco and Other Substances

National Survey on Drug Use and Health (NSDUH), 2008
Alcohol, Tobacco and Other Substances

National Survey on Drug Use and Health (NSDUH), 2015
Alcohol, Tobacco and Other Substances

Tobacco Use Supplement to the Current Population Survey (TUS-CPS), 2006
Alcohol, Tobacco and Other Substances

National Survey on Drug Use and Health (NSDUH), 2021
Tobacco Regulatory Research: Agent

Current Population Survey (CPS), Tobacco Supplement, 2018-2019
Tobacco Regulatory Research: Agent

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research: Agent

Duncan, D., et al. Examination of How Neighborhood Definition Influences Measurements of Youths Access to Tobacco Retailers: A Methodological Note on Spatial Misclassification, Am J Epidemiol, 2014
Tobacco Regulatory Research: Vector

Young-Wolff, K., et al. Tobacco Retailer Proximity and Density and Nicotine Dependence Among Smokers with Serious Mental Illness, Am J Public Health, 2014
Tobacco Regulatory Research: Vector

Luke, D., et al. Family Smoking Prevention and Tobacco Control Act: Banning Outdoor Tobacco Advertising Near Schools and Playgrounds, Am J Prev Med, 2011
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022) & International Tobacco Control 4-Country Survey, 2015
Tobacco Regulatory Research: Agent

National Health Interview Survey (NHIS), Orofacial Pain, 1989
Oral Health

The Toronto Alexithymia Scale (TAS-20)
Eating Disorders

Three-Day Physical Activity Recall (3 Day PAR)
Physical Activity and Physical Fitness

Seven-Day Physical Activity Recall (7 Day PAR)
Physical Activity and Physical Fitness

CHAMPS Activities Questionnaire for Older Adults
Physical Activity and Physical Fitness

Stanford Brief Activity Survey
Physical Activity and Physical Fitness

The Health, Aging and Body Composition (Health ABC) Study, 2009
Physical Activity and Physical Fitness

American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C, 2014
Anthropometrics

Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 5
Anthropometrics

American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C, 2014
Anthropometrics

Silent Cerebral Infarct Transfusion (SIT) Trial, S31r4 Transfusion Form
SCD Pregnancy

The Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)
SCD Curative Therapies

Silent Cerebral Infarct Transfusion (SIT) Trial, S32r0 Transfusion Reaction Form
SCD Pregnancy

The Life Events Checklist (LEC-5)
Post-traumatic Stress Psychopathology (including PTSD)

Deployment Risk and Resilience Inventory-2 (DRRI-2): Difficult Living and Working Environment
Post-traumatic Stress Psychopathology (including PTSD)

Treatment Episode Data Set - Admissions (TEDS-A)
Behaviors and Risks

Trust in Medical Researchers - Long Form - Adult
SCD Psychosocial and Social Determinants of Health

Trust in Medical Researchers - Short Form - Adult
SCD Psychosocial and Social Determinants of Health

Wake Forest Trust in the Medical Professional
SCD Psychosocial and Social Determinants of Health

National Cancer Institute (NCI), Non-Hodgkins Lymphoma Study (NHL), Sun Exposures Module, 2001
Environmental Exposures

KnowGene
Genomic Medicine Implementation

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Substance Use-related Community Factors

Survivor Unmet Needs Survey (SF- SUNS)
Cancer Outcomes and Survivorship

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007
Diabetes

Health, Aging, and Body Composition Study (Health ABC), Urinary History
Geriatrics

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007
Diabetes

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research: Vector

Growing Up Today Study, 2007
Obesity

Centre for Vision Research, Blue Mountains Eye Study- 3 (BMES-3), 2002-2004
Ocular

The Centre for Vision Research, Sydney Myopia Study, 2005
Ocular

HERO Registry Protective Equipment Survey
Behaviors and Risks

Population Assessment of Tobacco and Health (PATH) Study, Wave 7 Adult Survey Instrument
Behaviors and Risks

Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV)
Neurology

Childrens Memory Scale® (CMS), Verbal Memory subscales
Neurology

Vertebral Fracture: Lateral Spine DXA or X-ray
Bone and Joint

Dizziness Handicap Inventory (DHI)
Speech, Language and Hearing

Million Veteran Program (MVP), Lifestyle Survey
Tobacco Regulatory Research Core: Tier 2

Global Appraisal of Individual Needs (GAIN), General Victimization Scale (GVS)
Substance Use-related Co-morbidities and Health-related Outcomes

National Eye Institute (NEI), Early Treatment Diabetic Retinopathy Study (ETDRS), 1979-1989
Ocular

Vision Function Questionnaire (VFQ-25)
Ocular

Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV)
Neurology

Childrens Memory Scale® (CMS), Visual Memory subtest
Neurology

Vitamin D External Quality Assessment Scheme (DEQAS)
Nutrition and Dietary Supplements

The Peabody Picture Vocabulary Test-Fourth Edition (PPVT™-4)
Speech, Language and Hearing

Voice Handicap Index (VHI), 1997
Speech, Language and Hearing

The Aging Voice Index (AVI)
Speech, Language and Hearing

COVID-19 Experiences (COVEX)
History, Treatment and Outcomes

Framingham Heart Study - Offspring Cohort, Exam 5, 1994
Anthropometrics

Irish Universities Nutrition Alliance (lUNA), National Childrens Food Survey, 2003
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023
Anthropometrics

Omron® HJ-112 Instruction Manual
Physical Activity and Physical Fitness

American Housing Survey (AHS), 2019
Structural Social Determinants of Health

The Iowa Study of Environment and Health; National Health and Nutrition Examination Survey, 2005-2006
Environmental Exposures

Panel Study of Income Dynamics (PSID), wealth supplement, 2019
Socioeconomic

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2021-2023
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2019-2020
Anthropometrics

Youth Risk Behavior Survey (YRBS), 2015
Obesity

National Health and Nutrition Examination Survey (NHANES), Weight History Questionnaire, 2019-2020
Anthropometrics

Center for International Blood and Marrow Transplant Research (CIBMTR), Form 2450 (R5.0) Post-Transplant Essential Data, 2020
SCD Curative Therapies

The Minnesota Withdrawal Scale - Revised (MWS-R)
Tobacco Regulatory Research - Host: Biobehavioral

The Test of Word Reading Efficiency-Second Edition (TOWRE-2)
Speech, Language and Hearing

Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV)
Neurology

Childrens Memory Scale® (CMS), Attention and Concentration subtests
Neurology

Nebraska Worksite Wellness Survey, 2016
Tobacco Regulatory Research: Environment

The Yale-Brown-Cornell Eating Disorder Scale (YBC-EDS)
Mental Health Research

National Health Interview Survey (NHIS), Family Questionnaire, 2007
Demographics

Monitoring the Future (MTF), 2022
Tobacco Regulatory Research: Environment