Protocols

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	PhenX Protocol	Domain/Collection
	Abdominal Aortic Aneurysm	Cardiovascular
	Academic Performance and Achievement - Child Report - Grades 4 to 6 Healthy Pathways - Academic Performance Child Self-Report	Pediatric Development
	Academic Performance and Achievement - Parent Report - Grades 4 to 6 Healthy Pathways - Academic Performance Parent or Caregiver Report	Pediatric Development
	Access to Health Services	Social Determinants of Health
	Access to Health Technology Health Information National Trends Survey (HINTS), Annotated Form, Full-Content, Cycle 2, 2018	Social Determinants of Health
	Access to Lethal Means	Mental Health Research
	Activities of Daily Living (ADLs) NA, see source	Geriatrics
	Acute Subjective Response to Substances - Current - General Drug Effects Questionnaire (DEQ)	Substance Abuse and Addiction
	Acute Subjective Response to Substances - Current - Specific - Alcohol Biphasic Alcohol Effects Scale (BAES)	Substance Abuse and Addiction
	Acute Subjective Response to Substances - Current - Specific - Drugs Addiction Research Center Inventory (ARCI)	Substance Abuse and Addiction
	Acute Subjective Response to Substances - Current - Specific - Tobacco Cigarette Evaluation Questionnaire (CEQ)	Substance Abuse and Addiction
	Acute Subjective Responses to Substances - Retrospective - Alcohol Self-Rating of the Effects of Alcohol (SRE)	Substance Abuse and Addiction
	Acute Subjective Responses to Substances - Retrospective - Tobacco Pomerleau et al, 1998	Substance Abuse and Addiction
	Adaptive Behavior/Adaptive Function	Blood Sciences Research
	Addiction Severity Index Addiction Severity Index (ASI)	Substance Abuse and Addiction
	Adequacy of Prenatal Care Kotelchuck Index, also called the Adequacy of Prenatal Care Utilization (APNCU)	Pregnancy
	Adherence to Episodic Clotting Factor Treatment Regimens in Hemophilia Validated Hemophilia Regimen Treatment Adherence Scale - On-Demand (VERITAS-PRN™)	Blood Sciences Research
	Adherence to Prophylactic Clotting Factor Treatment Regimens in Hemophilia Validated Hemophilia Regimen Treatment Adherence Scale - Prophylaxis (VERITAS-Pro™)	Blood Sciences Research
	Adipocytokines	Obesity
	Adolescent Pediatric Pain Tool (APPT)	Gastrointestinal
	Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning	Genomic Medicine Implementation
	Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me)	Blood Sciences Research
	Age of Initiation of First Cigarette Use - Adult Tobacco Use Supplement to the Current Population Survey	Alcohol, Tobacco and Other Substances
	Aggression and Hostility	Mental Health Research
	Aided and Confirmed Awareness of Televised Anti-tobacco Advertisements	Tobacco Regulatory Research
	Air Contaminants in the Home Environment Relationships of Indoor, Outdoor and Personal Air (RIOPA) Study Activity Questionnaire	Environmental Exposures
	Air Quality Index Environmental Protection Agency (EPA), Air Quality Index (AQI)	Social Determinants of Health
	Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health, National Epidemiologic Survey on Alcohol and Related Conditions. Wave 1, Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV)	Alcohol, Tobacco and Other Substances
	Alcohol - Age of First Use 2015 National Survey on Drug Use and Health (NSDUH)	Alcohol, Tobacco and Other Substances
	Alcohol - Lifetime Use	Alcohol, Tobacco and Other Substances
	Alcohol - Lifetime Use Disorder National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Alcohol - Maximum Drinks in 24 Hours National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Alcohol - Treatment for Alcohol Usage National Epidemiologic Survey on Alcohol and Related Conditions - III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Alcohol Breathalyzer Virginia Department of Forensic Science. (2005, September). Breath alcohol section. Breath test operator instructional manual	Substance Abuse and Addiction
	Alkaline Phosphatase	Skin, Bone, Muscle and Joint
	Amount, Type, and Frequency of Recent Cigarette Use	Tobacco Regulatory Research
	Angina	Cardiovascular
	Annual Family Income National Health Interview Survey (NHIS) Family Questionnaire, 2020	Demographics
	Antipsychotic Medication Adherence Brief Adherence Rating Scale (BARS)	Mental Health Research
	Antipsychotic Medication Extrapyramidal Side Effects Extrapyramidal Symptom Rating Scale (ESRS)	Mental Health Research
	Anxiety Disorders Screener - Adult Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0 - Anxiety	Psychiatric
	Anxiety Disorders Symptoms - Adult Symptom Check List 90 (SCL-90)	Psychiatric
	Anxiety Disorders Symptoms - Children - Parent Report The Screen for Child Anxiety Related Emotional Disorders (SCARED) - Parent Report Version	Psychiatric
	Anxiety Disorders Symptoms - Children - Self-Report The Screen for Child Anxiety Related Emotional Disorders (SCARED) - Self-Report Version	Psychiatric
	Arm Span Anthropometric standardization reference manual	Anthropometrics
	Arrhythmia (Atrial and Ventricular)	Cardiovascular
	Arterial Blood Gas (ABG) Blood Gas Analysis and Hemoximetry	Respiratory
	Arthritis/Osteoarthritis	Skin, Bone, Muscle and Joint
	ASA24 Automated Self-administered 24-hour Dietary Recall (ASA24).	Nutrition and Dietary Supplements
	Aspartate Aminotransferase Level	Blood Sciences Research
	Assessment of Functional Gastrointestinal Disorders (Adolescent)	Gastrointestinal
	Assessment of Functional Gastrointestinal Disorders (Adult)	Gastrointestinal
	Assessment of Functional Gastrointestinal Disorders (Child)	Gastrointestinal
	Assessment of Gallbladder Disease and Related Conditions	Gastrointestinal
	Assessment of Pubertal Development - Female Avon Longitudinal Study of Parents and Children (ALSPAC). Growing and Changing (8), Female Teenage Questionnaire	Reproductive Health
	Assessment of Pubertal Development - Male Avon Longitudinal Study of Parents and Children (ALSPAC). Growing and Changing (8), Male Teenager Questionnaire	Reproductive Health
	Ataxia Rating Scale	Rare Genetic Conditions
	Attention	Tobacco Regulatory Research
	Attention-Deficit Hyperactivity Disorder Symptoms - Adult The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1)	Psychiatric
	Attention-Deficit Hyperactivity Disorder Symptoms - Child The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN)	Psychiatric
	Attentional Bias	Mental Health Research
	Audiogram Hearing Test National Health and Nutrition Examination Survey (NHANES) Audiometry Protocol	Speech, Language and Hearing
	Auditory Continuous Performance Test (ACPT) Battery Auditory Continuous Performance Test (ACPT) Battery	Mental Health Research
	Auditory Perception and Noise Exposure National Health and Nutrition Examination Survey Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+	Geriatrics
	Auditory-Perceptual Evaluation of Voice Consensus Auditory-Perceptual Evaluation of Voice (CAPE-V)	Speech, Language and Hearing
	Autoimmune Diseases Related to Type I Diabetes National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Affected Sib-Pair Exam Form	Diabetes
	Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120.	Genomic Medicine Implementation
	AX-Continuous Performance Test (AX-CPT) Modified AX-Continuous Performance Test (AX-CPT)	Mental Health Research
	Balance	Skin, Bone, Muscle and Joint
	Basal Metabolic and Resting Metabolic Rates	Obesity
	Baseline and Trauma Challenge Physiology	Mental Health Research
	Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS)	Genomic Medicine Implementation
	Behavior Economics/Purchase Behavior	Tobacco Regulatory Research
	Behavioral Disturbances Neuropsychiatric Inventory-Questionnaire (NPI-Q)	Geriatrics
	Behavioral Health Screener Global Appraisal of Individual Needs - Short Screener (GAIN-SS)	Substance Abuse and Addiction
	Bilirubin Level	Blood Sciences Research
	Biological Sex Assigned at Birth All of Us Research Program Participant Provided Information (PPI)	Demographics
	Biomarker of exposure to nicotine-containing products - Saliva Saliva cotinine levels as a function of collection method	Respiratory
	Biomarker of exposure to nicotine-containing products - Serum National Health and Nutrition Examination Survey (NHANES) Cotinine Analysis	Respiratory
	Biomarker of exposure to nicotine-containing products - Urine	Respiratory
	Birth Weight - Birth Weight Abstracted from Medical Records Center for Disease Control and Prevention 2005-2006 National Vital Statistics System Birth Certificate Section	Anthropometrics
	Birth Weight - Measured Weight at Birth Global Network for Women’s and Children’s Health Research Manual of Operations	Anthropometrics
	Birth Weight - Proxy Reported Birth Weight 2005-2006 National Health and Nutrition Examination Survey Questionnaire	Anthropometrics
	Birthplace American Community Survey (ACS), 2008	Demographics
	Birthplace of Grandparents American Community Survey (ACS), 2008	Demographics
	Birthplace of Parents American Community Survey (ACS), 2008	Demographics
	Blood Pressure (Adult/Primary)	Cardiovascular
	Blunt Use Population Assessment of Tobacco and Health (PATH) Study: Wave 3	Tobacco Regulatory Research
	Body Composition - Body Composition by Dual-Energy X-Ray Absorptiometry 2011-2012 National Health and Nutrition Examination Survey Body Composition Procedures Manual	Anthropometrics
	Body Composition - Subscapular Skinfold Thickness National Health and Nutrition Examination Survey 2007-2008 Anthropometry Procedures Manual	Anthropometrics
	Body Composition - Suprailiac Skinfold Thickness National Health and Nutrition Examination Survey III, 1988 Anthropometry Procedures Manual	Anthropometrics
	Body Composition - Triceps Skinfold Thickness National Health and Nutrition Examination Survey 2007-2008 Anthropometry Procedures Manual	Anthropometrics
	Body Image Body Figure Perceptions Scales from Collins, Stunkard et al., and Pulvers et al.	Anthropometrics
	Body Mass Index	Substance Abuse and Addiction
	Body Proportions	Rare Genetic Conditions
	Body Temperature - Oral Thermometers	Blood Sciences Research
	Body Temperature - Tympanic Thermometers	Blood Sciences Research
	Bone Age	Rare Genetic Conditions
	Brain Connectivity and Activation Task fMRI	Mental Health Research
	Brain-Body Center Sensory Scales (BBCSS)	Mental Health Research
	Breast or Bottle Feeding Patterns	Oral Health
	Breastfeeding 2005-2006 National Health and Nutrition Examination Survey (NHANES) Diet Behavior and Nutrition Questionnaire	Nutrition and Dietary Supplements
	Broad Psychopathology - Adult	Mental Health Research
	Broad Psychopathology - Child	Mental Health Research
	Bronchodilator Responsiveness (BDR) COPDGene Study Clinical Center Manual of Procedures	Respiratory
	Bullying Olweus Bully-Victim Questionnaire-Revised (OBVQ-R)	Pediatric Development
	Burden of Cancer on Employment Medical Expenditure Panel Survey (MEPS)	Cancer Outcomes and Survivorship
	C-Reactive Protein (CRP) C-Reactive Protein (CRP)	Mental Health Research
	Caffeine Intake Fred Hutchinson Cancer Research Center, Caffeine Questionnaire, 2004	Nutrition and Dietary Supplements
	Calcium Intake - Adults 2005 National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire	Nutrition and Dietary Supplements
	Calcium Intake - Children 2002 Eating and Activity Survey Trial, Calcium Food Frequency Questionnaire	Nutrition and Dietary Supplements
	Cancer Screenings	Cancer
	Cancer Treatments	Cancer
	Cancer: Personal and Family History	Cancer
	Cardiorespiratory Fitness - Exercise Test Estimate - One Mile Walk NA, see source	Physical Activity and Physical Fitness
	Cardiorespiratory Fitness - Exercise Test Estimate - Treadmill Test NA, see source	Physical Activity and Physical Fitness
	Cardiorespiratory Fitness - Non-Exercise Test Estimate Jurca, R., Jackson, A. S., LaMonte, M. J., Morrow J. R., Blair, S. N., Wareham, N. J., . . . Laukkanen, R. (2005). Assessing cardiorespiratory fitness without performing exercise testing. American Journal of Preventive Medicine, 29(3), 185-193.	Physical Activity and Physical Fitness
	Causes and Treatments of Known Infertility - Female National Survey of Family Growth (NSFG)	Reproductive Health
	Causes and Treatments of Known Infertility - Male National Survey of Family Growth (NSFG)	Reproductive Health
	Celiac Sprue - Assay	Gastrointestinal
	Characteristics of Current Residence Multiple protocols	Environmental Exposures
	Chest Computed Tomography (CT) COPDGene Study	Respiratory
	Chest X-ray	Blood Sciences Research
	Child Care Quality - Formal and Informal Child Care - Educational Setting NICHD Study of Early Child Care and Youth Development: Phase II, 1996-1999 [United States]. The NICHD Study of Early Child Care Form 39C-a Revision 06/16/95	Pediatric Development
	Child Care Quality - Formal and Informal Child Care - Younger Child NICHD Study of Early Child Care and YOuth Development, Phase 1, 1991-1995 [United States]	Pediatric Development
	Child Eating Behavior Questionnaire (CEBQ)	Mental Health Research
	Child Head Circumference 2007-2008 National Health and Nutrition Examination Survey (NHANES) Anthropometry Procedures Manual	Anthropometrics
	Child Oral Health Pain	Rare Genetic Conditions
	Child-Reported Parental Education Attainment National Longitudinal Study on Adolescent Health (Add Health), 1995	Social Environments
	Childhood Maltreatment Childhood Trauma Questionnaire (CTQ), 1997	Social Environments
	Childs Lifetime Household Composition Avon Longitudinal Study of Parents and Children - Mother and Home (Section C)	Pediatric Development
	Chlamydia/Gonorrhea - Assay	Infectious Diseases and Immunity
	Chronic Medical Conditions - Self Reported Self-Administered Comorbidity Questionnaire (SCQ)	Cancer Outcomes and Survivorship
	Chronic Stress The Chronic Stress Scale	Psychosocial
	Cigarette Nicotine Dependence Fagerstrom Test for Nicotine Dependence	Alcohol, Tobacco and Other Substances
	Cigarette Smoking Status - Adolescent Population Assessment of Tobacco and Health (PATH) Study Wave 3	Alcohol, Tobacco and Other Substances
	Cigarette Smoking Status - Adult Population Assessment of Tobacco and Health (PATH)	Alcohol, Tobacco and Other Substances
	Classification of Suicidal Ideation and Suicidal Behavior - Adolescent - Current	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adolescent - Epidemiology	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adolescent - Lifetime	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adolescent - Since Last Visit	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adult - Current	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adult - Epidemiology	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adult - Lifetime	Mental Health Research
	Classification of Suicidal Ideation and Suicidal Behavior - Adult - Since Last Visit	Mental Health Research
	Clinician Confidence in Returning Genetic Test Results Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire	Genomic Medicine Implementation
	Clinician-Administered Psychiatric Assessment Structured Clinical Interview for DSM-5 (SCID-5)	Mental Health Research
	Cognitive Changes Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)	Geriatrics
	Cognitive Flexibility (Dimensional Change Card Sort) - Children, Adolescents, and Adults Dimensional Change Card Sort (DCCS) Border Version	Substance Abuse and Addiction
	Cognitive Flexibility (Dimensional Change Card Sort) - Young Children Dimensional Change Card Sort (DCCS) Standard Version	Substance Abuse and Addiction
	Cognitive Function Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a	Cancer Outcomes and Survivorship
	Color Vision	Ocular
	Colorectal Procedures and Outcomes (Medical Record Review)	Gastrointestinal
	Community Risk and Protective Factors Communities That Care Youth Survey	Substance Abuse and Addiction
	Complete Blood Count (CBC)	Rare Genetic Conditions
	Compliance with Cigarette Packaging and Labeling Policies	Tobacco Regulatory Research
	Comprehensive HIV Risk Assessment National HIV Behavioral Surveillance System	Substance Abuse and Addiction
	Computed Tomography (CT) of the Abdominal Organs	Gastrointestinal
	Computerized Neurocognitive Battery (CNB) Computerized Neurocognitive Battery (CNB)	Mental Health Research
	Concentrated Poverty American Community Survey (ACS), 5-year estimates, Concentrated Poverty, 2009-2018	Social Determinants of Health
	Concentrations of Flame Retardants National Health and Nutrition Examination Survey (NHANES), CDC Laboratory Procedure Manual, Polybrominated Diphenyl Ethers (PBDEs)	Pregnancy
	Concentrations of Phenols and Parabens National Health and Nutrition and Examination Survey (NHANES) Laboratory Procedure Manual, Bisphenol A, Other Environmental Phenols, and Parabens in Urine	Pregnancy
	Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides National Health and Nutrition Examination Survey, CDC Laboratory Procedure Manual, PCBs and Persistent Pesticides	Pregnancy
	Concentrations of Trace Metals National Health and Nutrition Examination Survey, CDC Laboratory Procedure Manual for Cadmium, Lead, Manganese, Mercury, and Selenium	Pregnancy
	Conditions Relevant to Immune Response - Screener, Adult	Infectious Diseases and Immunity
	Conditions Relevant to Immune Response - Screener, Child	Infectious Diseases and Immunity
	Consumption of Sweet Beverages	Oral Health
	Contact Biometry	Ocular
	Contact Lens Use- Adult	Ocular
	Coping Styles - Adolescent The Coping Responses Inventory for Youth (CRI-Youth)	Psychosocial
	Coping Styles - Adult Coping Responses Inventory	Psychosocial
	Coping with COVID-19 COVID-19 Experiences (COVEX)	COVID-19 Research
	Coronavirus Anxiety Scale Coronavirus Anxiety Scale (CAS)	COVID-19 Research
	Counts of Acute Bleeds in Hemophilia	Blood Sciences Research
	COVID-19 and Mental Health Impacts COVID-19 Community Response Survey	COVID-19 Research
	COVID-19 Knowledge, Attitudes, and Avoidant Behaviors Coronavirus Tracking Survey of the Understanding America Survey (UAS)	COVID-19 Research
	COVID-19 Related Employment Status COVID-19 Experiences (COVEX)	COVID-19 Research
	COVID-19 Related Health Questions UK COVID-19 Questionnaire	COVID-19 Research
	COVID-19 Related Household Finances RAND American Life Panel Impacts of COVID-19 Survey	COVID-19 Research
	COVID-19 Related Impact on Sleep Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation	COVID-19 Research
	COVID-19 Related Information and Trust in News and Government Institutions RAND 2020 American Life Panel Survey (ALP) on Impacts of COVID-19	COVID-19 Research
	COVID-19 Related Social Distancing Experiences All of Us COVID-19 Participant Experience Survey (COPE)	COVID-19 Research
	COVID-19 Related Social Distancing Experiences (Spanish) All of Us COVID-19 Participant Experience Survey (COPE)	COVID-19 Research
	COVID-19 Related Social Interactions Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation	COVID-19 Research
	Crime and Delinquency - Adolescent	Psychosocial
	Crime and Delinquency - Adult Dunedin Multidisciplinary Health and Development Study	Psychosocial
	Cue Reactions to Tobacco Stimuli	Tobacco Regulatory Research
	Cumulative Lifetime Alcohol Exposure	Cancer
	Cumulative Lifetime Physical Activity	Cancer
	Current Address National Health and Nutrition Examination Survey (NHANES), 2005-2006, Screener Module 1	Demographics
	Current Age National Health and Nutrition Examination Survey (NHANES), 2005-2006	Demographics
	Current Contraception Use - Female National Survey of Family Growth	Reproductive Health
	Current Contraception Use - Male National Survey of Family Growth (NSFG)	Reproductive Health
	Current Employment Status Panel Study of Income Dynamics (PSID), 2007	Demographics
	Current Environmental Tobacco Smoke Exposure National Health and Nutrition Examination Survey (NHANES), 2007-2008 Family Questionnaire	Environmental Exposures
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS) 2018 Core Section 8: Demographics	Demographics
	Current Pregnancy Status - Bioassay National Health and Nutrition Examination Survey (NHANES) Mobile Examination Center (MEC) Laboratory Procedures Manual	Pregnancy
	Current Pregnancy Status - Self-Report National Health and Nutrition Examination Survey (NHANES) Reproductive Health Module	Pregnancy
	Cyberbullying Due to Racial/Ethnic Bias The Coronavirus Racial Bias Scale (CRBS)	COVID-19 Research
	Cystatin C Assay for Kidney Function National Health and Nutrition Examination Survey (NHANES) Questionnaire. Laboratory Procedures Manual	Geriatrics
	Cytokine Panel 12 - Assay	Infectious Diseases and Immunity
	Dairy Food Intake (Daily Servings) 2005 National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire	Nutrition and Dietary Supplements
	Day Care Attendance Mothers Questionnaire	Environmental Exposures
	Decision Making (Iowa Gambling Task) - Adult Iowa Gambling Test™	Substance Abuse and Addiction
	Decision Making (Iowa Gambling Task) - Child Iowa Gambling Testâ„¢ - Child version	Substance Abuse and Addiction
	Deep Venous Thrombosis	Cardiovascular
	Delayed Reward Discounting (Monetary-Choice Questionnaire) Monetary-Choice Questionnaire (MCQ)	Substance Abuse and Addiction
	Dental Caries Experience - Prevalence	Oral Health
	Dental Issues and Difficulty Chewing Health, Aging and Body Composition Study Oral Health and Dental History Questions	Geriatrics
	Depression Screener - Adults Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0 - Depression	Psychiatric
	Depressive Symptoms - Adult The Quick Inventory of Depressive Symptoms (QIDS)	Psychiatric
	Depressive Symptoms - Child Mood and Feelings Questionnaire (MFQ)	Psychiatric
	Depressive Symptoms - Depression in Dementia The Cornell Scale for Depression in Dementia	Psychiatric
	Depressive Symptoms - Geriatric Geriatric Depression Scale - Short Form	Psychiatric
	Determination of Factor IX Inhibitors: Bethesda Assay with Nijmegen Modification Using Chromogenic Substrate Assay	Blood Sciences Research
	Determination of Factor IX Inhibitors: Bethesda Assay with or without Nijmegen Modification Using One-Stage Clotting Factor Assay Bethesda Assay with or without Nijmegen Modification	Blood Sciences Research
	Determination of Factor VIII Inhibitors: Bethesda Assay with Nijmegen Modification Using Chromogenic Substrate Assay	Blood Sciences Research
	Determination of Factor VIII Inhibitors: Bethesda Assay with Nijmegen Modification Using One-Stage Clotting Factor Assay NA; see source.	Blood Sciences Research
	Deterrents to Suicide - Clinical - Adult	Mental Health Research
	Deterrents to Suicide - Clinical - Child	Mental Health Research
	Deterrents to Suicide - Epidemiology	Mental Health Research
	Diabetic Peripheral Neuropathy Feldman, EL, Stevens, MJ, Thomas, PK, Brown, MB, Canal, N & Greene, DA. (1994). A practical two-step quantitative clinical and electrophysiological assessment for the diagnosis and staging of diabetic neuropathy. Diabetes Care, 17(11), 1281-1289.	Diabetes
	Diabetic Retinopathy Los Angeles Latino Eye Study (LALES) Section D: Ocular Disease History	Diabetes
	Dietary Intake National Health and Nutrition Examination Survey Questionnaire - Dietary Screener Questionnaire	Obesity
	Dietary Restraint	Obesity
	Dietary Supplements Use Supplement Frequency Questionnaire (SURE-QX)	Nutrition and Dietary Supplements
	Difficulties in Pregnancy Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b) Difficulties in Pregnancy Visit 1, Form V1E	Pregnancy
	Difficulty Getting Pregnant - Current Duration	Reproductive Health
	Difficulty Getting Pregnant - Prospective Assessment Pregnancy Study Online (PRESTO) Female Screener and Baseline Questionnaire	Reproductive Health
	Difficulty Getting Pregnant - Retrospective Assessment	Reproductive Health
	Disability Due to Mental Health Symptoms	Mental Health Research
	Disability Index	Rare Genetic Conditions
	Disapproval of Substance Use National Institutes of Health, National Institute on Drug Abuse, University of Michigan, Institute for Social Research, Monitoring the Future (MTF), 2015.	Substance Abuse and Addiction
	Discrimination Major Experiences and Everyday Discrimination Scales	Social Environments
	Disease Progression and Regression - 0-24 Months	Rare Genetic Conditions
	Disease Progression and Regression - 12-18 Years	Rare Genetic Conditions
	Disease Progression and Regression - 2-11 Years	Rare Genetic Conditions
	Disease Progression and Regression - Adult	Rare Genetic Conditions
	Disease-specific Health-related Quality of Life in Hemophilia Haem-A-QoL	Blood Sciences Research
	Disinhibiting Behaviors - Impulsivity - Adolescent and Adult UPPS Impulsive Behavior Scale	Psychosocial
	Disinhibiting Behaviors - Impulsivity - Child UPPS-P Impulsive Behavior Scale for Children	Psychosocial
	Disorders of Respiratory Control with Inherent Autonomic Dysregulation	Rare Genetic Conditions
	Disparate Health Care Quality California Health Interview Survey (CHIS), 2017	Social Determinants of Health
	Disruptive Behavior Disruptive Behavior Disorders Rating Scale (DBDRS)	Substance Abuse and Addiction
	Distress Tolerance	Tobacco Regulatory Research
	Dry Eye Syndrome	Ocular
	Dry Mouth	Oral Health
	Duration of Abstinence - Alcohol National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Substance Abuse and Addiction
	Duration of Abstinence - Substance Use National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Substance Abuse and Addiction
	Dust Collection - Vacuum Bag Atrazine Exposure Study, Vacuum Cleaner Dust Collection Protocol, 2001	Environmental Exposures
	Ear Infections (Otitis Media) 2009-2010 National Health and Nutrition Examination Survey (NHANES) Audiometry Procedures Manual	Speech, Language and Hearing
	Early Childhood Speech and Language Assessment - Ages and Stages Questionnaire Ages & Stages Questionnaires®, Third Edition	Speech, Language and Hearing
	Early Childhood Speech and Language Assessment - Speech and Language Assessment Scale Speech and Language Assessment Scale (SLAS)	Speech, Language and Hearing
	Eating Disorder Assessment for DSM-5 (EDA-5)	Mental Health Research
	Eating Disorder Screener for DSM-5 The Eating Disorder Diagnostic Scale for the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition (EDDS-5)	Psychiatric
	Eating Disorder Screener for DSM-IV The Eating Disorder Diagnostic Scale (EDDS) for the Diagnostic and Statistical Manual of Mental Disorders, 4th Edition	Psychiatric
	Eating Disorders Examination - Adult Interview	Obesity
	Eating Disorders Examination - Bariatric Surgery Interview	Obesity
	Eating Disorders Examination - Child Interview	Obesity
	Eating Disorders Examination- Questionnaire	Obesity
	Echocardiography Phenotypes	Rare Genetic Conditions
	Eczema	Skin, Bone, Muscle and Joint
	Educational Attainment - Community American Community Survey (ACS), 5-year estimates, Educational Attainment, 2013-2017	Social Determinants of Health
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020	Demographics
	Educational Impact Due to COVID-19 Coronavirus Tracking Survey of the Understanding America Survey (UAS)	COVID-19 Research
	Effects of COVID-19 Outbreak - Adult ECHO COVID-19 Questionnaire - Adult Primary Version	COVID-19 Research
	Effects of COVID-19 Outbreak - Adult (Spanish) ECHO COVID-19 Questionnaire - Adult Primary Version	COVID-19 Research
	Effects of COVID-19 Outbreak - Child Parent-Report ECHO Impacts of COVID-19 Outbreak on Child Parent-Report	COVID-19 Research
	Effects of COVID-19 Outbreak - Child Parent-Report (Spanish) ECHO Impacts of COVID-19 Outbreak on Child Parent-Report	COVID-19 Research
	Effects of COVID-19 Outbreak - Child Self-Report ECHO Impacts of COVID-19 Outbreak on Child Self-Report	COVID-19 Research
	Effects of COVID-19 Outbreak - Child Self-Report (Spanish) ECHO Impacts of COVID-19 Outbreak on Child Self-Report	COVID-19 Research
	Electronic Nicotine Product Device Type Population Assessment of Tobacco and Health (PATH) Study: Wave 3	Tobacco Regulatory Research
	Emicizumab Therapy: Determination of Factor VIII Inhibitors Using the Bethesda Assay with Nijmegen Modification: Chromogenic Substrate Assay with Bovine Reagents	Blood Sciences Research
	Emicizumab Therapy: Individual Pharmacokinetic Study of Extended Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents	Blood Sciences Research
	Emicizumab Therapy: Individual Pharmacokinetic Study of Standard Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents	Blood Sciences Research
	Emicizumab Therapy: Population-based Pharmacokinetic Study of Extended Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents	Blood Sciences Research
	Emicizumab Therapy: Population-based Pharmacokinetic Study of Standard Half-life Factor VIII Products: Chromogenic Substrate Assay with Bovine Reagents	Blood Sciences Research
	Emotional Distress	Gastrointestinal
	Emotional State - Adult The Positive Affect and Negative Affect Schedule-Expanded Form (PANAS‑X)	Psychosocial
	Emotional State - Child Positive Affect and Negative Affect Schedule-Child Form (PANAS-C)	Psychosocial
	English Proficiency California Health Interview Survey (CHIS), Adult questionnaire, 2018	Social Determinants of Health
	Environmental Justice Environmental Protection Agency (EPA), Environmental Justice Screening and Mapping Tool (EJSCREEN)	Social Determinants of Health
	Epilepsy Screener - Adult Ottman Brief Epilepsy Screener - Self-reported Version	Neurology
	Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener - Proxy-reported Version	Neurology
	Ethnicity and Race U.S. Census Bureau, Census 2020, Questionnaire	Demographics
	Executive Function	Neurology
	Executive Function - Child	Neurology
	Executive Function - Direct Assessment - Adolescent Trail Making Test (TMT) for Older Children	Neurology
	Executive Function - Direct Assessment - Adult The Trail Making Test	Neurology
	Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)	Neurology
	Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®)	Neurology
	Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool	Neurology
	Exercise Capacity/Six-Minute Walk Test Six-Minute Walk Test (6MWT)	Respiratory
	Exercise Dependence Scale	Mental Health Research
	Existence of Cleft Lip or Palate	Oral Health
	Exogenous Female Hormone Use	Cancer
	Expectancies - Alcohol, Cigarette Smoking, and Other Smoking - Alcohol Brief Comprehensive Effects of Alcohol questionnaire (B-CEOA)	Substance Abuse and Addiction
	Expectancies - Alcohol, Cigarette Smoking, and Other Smoking - Illegal Stimulant Drugs Stimulant Effect Expectancy Questionnaire (SEEQ)	Substance Abuse and Addiction
	Expectancies - Alcohol, Cigarette Smoking, and Other Smoking - Marijuana Marijuana Effect Expectancy Questionnaire (MEEQ)	Substance Abuse and Addiction
	Expectancies - Alcohol, Cigarette Smoking, and Other Smoking - Prescription Stimulant Drugs Prescription Stimulant Expectancy Questionnaire (PSEQ)	Substance Abuse and Addiction
	Expectancies - Alcohol, Cigarette Smoking, and Other Smoking - Tobacco The Brief Smoking Consequences Questionnaire-Adult (BSCQ-A)	Substance Abuse and Addiction
	Expired Carbon Monoxide	Tobacco Regulatory Research
	Exposure at Work and in Daily Life Cancer Prevention Study II (CPS-II), Men’s Baseline Questionnaire, 1982	Environmental Exposures
	Exposure to Tobacco Marketing through Internet and Social Media Use	Tobacco Regulatory Research
	Exposures from Hobbies Long Island Breast Cancer Study	Environmental Exposures
	Exposures to Violence, Trauma, and Victimization - Adult Lifetime Traumatic and Victimization History (LTVH)	Psychosocial
	Exposures to Violence, Trauma, and Victimization - Child Lifetime Traumatic and Victimization History (LTVH)	Psychosocial
	Eye Diseases and Treatment in Young Children	Ocular
	Eye Drop Use	Ocular
	Eye Patching	Ocular

Protocols

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Academic Performance and Achievement - Child Report - Grades 4 to 6 Healthy Pathways - Academic Performance Child Self-Report

Academic Performance and Achievement - Parent Report - Grades 4 to 6 Healthy Pathways - Academic Performance Parent or Caregiver Report

Access to Health Technology Health Information National Trends Survey (HINTS), Annotated Form, Full-Content, Cycle 2, 2018

Activities of Daily Living (ADLs) NA, see source

Acute Subjective Response to Substances - Current - General Drug Effects Questionnaire (DEQ)

Acute Subjective Response to Substances - Current - Specific - Alcohol Biphasic Alcohol Effects Scale (BAES)

Acute Subjective Response to Substances - Current - Specific - Drugs Addiction Research Center Inventory (ARCI)

Acute Subjective Response to Substances - Current - Specific - Tobacco Cigarette Evaluation Questionnaire (CEQ)

Acute Subjective Responses to Substances - Retrospective - Alcohol Self-Rating of the Effects of Alcohol (SRE)

Acute Subjective Responses to Substances - Retrospective - Tobacco Pomerleau et al, 1998

Addiction Severity Index Addiction Severity Index (ASI)

Adequacy of Prenatal Care Kotelchuck Index, also called the Adequacy of Prenatal Care Utilization (APNCU)

Adherence to Episodic Clotting Factor Treatment Regimens in Hemophilia Validated Hemophilia Regimen Treatment Adherence Scale - On-Demand (VERITAS-PRN™)

Adherence to Prophylactic Clotting Factor Treatment Regimens in Hemophilia Validated Hemophilia Regimen Treatment Adherence Scale - Prophylaxis (VERITAS-Pro™)

Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning

Age of Initiation of First Cigarette Use - Adult Tobacco Use Supplement to the Current Population Survey

Air Contaminants in the Home Environment Relationships of Indoor, Outdoor and Personal Air (RIOPA) Study Activity Questionnaire

Air Quality Index Environmental Protection Agency (EPA), Air Quality Index (AQI)

Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health, National Epidemiologic Survey on Alcohol and Related Conditions. Wave 1, Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV)

Alcohol - Age of First Use 2015 National Survey on Drug Use and Health (NSDUH)

Alcohol - Lifetime Use Disorder National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Alcohol - Maximum Drinks in 24 Hours National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Alcohol - Treatment for Alcohol Usage National Epidemiologic Survey on Alcohol and Related Conditions - III (NESARC-III)

Alcohol Breathalyzer Virginia Department of Forensic Science. (2005, September). Breath alcohol section. Breath test operator instructional manual

Annual Family Income National Health Interview Survey (NHIS) Family Questionnaire, 2020

Antipsychotic Medication Adherence Brief Adherence Rating Scale (BARS)

Antipsychotic Medication Extrapyramidal Side Effects Extrapyramidal Symptom Rating Scale (ESRS)

Anxiety Disorders Screener - Adult Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0 - Anxiety

Anxiety Disorders Symptoms - Adult Symptom Check List 90 (SCL-90)

Anxiety Disorders Symptoms - Children - Parent Report The Screen for Child Anxiety Related Emotional Disorders (SCARED) - Parent Report Version

Anxiety Disorders Symptoms - Children - Self-Report The Screen for Child Anxiety Related Emotional Disorders (SCARED) - Self-Report Version

Arm Span Anthropometric standardization reference manual

Arterial Blood Gas (ABG) Blood Gas Analysis and Hemoximetry

ASA24 Automated Self-administered 24-hour Dietary Recall (ASA24).

Assessment of Pubertal Development - Female Avon Longitudinal Study of Parents and Children (ALSPAC). Growing and Changing (8), Female Teenage Questionnaire

Assessment of Pubertal Development - Male Avon Longitudinal Study of Parents and Children (ALSPAC). Growing and Changing (8), Male Teenager Questionnaire

Attention-Deficit Hyperactivity Disorder Symptoms - Adult The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1)

Attention-Deficit Hyperactivity Disorder Symptoms - Child The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN)

Audiogram Hearing Test National Health and Nutrition Examination Survey (NHANES) Audiometry Protocol

Auditory Continuous Performance Test (ACPT) Battery Auditory Continuous Performance Test (ACPT) Battery

Auditory Perception and Noise Exposure National Health and Nutrition Examination Survey Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+

Auditory-Perceptual Evaluation of Voice Consensus Auditory-Perceptual Evaluation of Voice (CAPE-V)

Autoimmune Diseases Related to Type I Diabetes National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Affected Sib-Pair Exam Form

Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120.

AX-Continuous Performance Test (AX-CPT) Modified AX-Continuous Performance Test (AX-CPT)

Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS)

Behavioral Disturbances Neuropsychiatric Inventory-Questionnaire (NPI-Q)

Academic Performance and Achievement - Child Report - Grades 4 to 6
Healthy Pathways - Academic Performance Child Self-Report

Academic Performance and Achievement - Parent Report - Grades 4 to 6
Healthy Pathways - Academic Performance Parent or Caregiver Report

Access to Health Technology
Health Information National Trends Survey (HINTS), Annotated Form, Full-Content, Cycle 2, 2018

Activities of Daily Living (ADLs)
NA, see source

Acute Subjective Response to Substances - Current - General

Drug Effects Questionnaire (DEQ)

Acute Subjective Response to Substances - Current - Specific - Alcohol

Biphasic Alcohol Effects Scale (BAES)

Acute Subjective Response to Substances - Current - Specific - Drugs

Addiction Research Center Inventory (ARCI)

Acute Subjective Response to Substances - Current - Specific - Tobacco

Cigarette Evaluation Questionnaire (CEQ)

Acute Subjective Responses to Substances - Retrospective - Alcohol

Self-Rating of the Effects of Alcohol (SRE)

Acute Subjective Responses to Substances - Retrospective - Tobacco

Pomerleau et al, 1998

Addiction Severity Index

Addiction Severity Index (ASI)

Adequacy of Prenatal Care

Kotelchuck Index, also called the Adequacy of Prenatal Care Utilization (APNCU)

Adherence to Episodic Clotting Factor Treatment Regimens in Hemophilia
Validated Hemophilia Regimen Treatment Adherence Scale - On-Demand (VERITAS-PRN™)

Adherence to Prophylactic Clotting Factor Treatment Regimens in Hemophilia
Validated Hemophilia Regimen Treatment Adherence Scale - Prophylaxis (VERITAS-Pro™)

Adoption of Genetic Services: Healthcare Settings
Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning

Age of Initiation of First Cigarette Use - Adult

Tobacco Use Supplement to the Current Population Survey

Air Contaminants in the Home Environment

Relationships of Indoor, Outdoor and Personal Air (RIOPA) Study Activity Questionnaire

Air Quality Index
Environmental Protection Agency (EPA), Air Quality Index (AQI)

Alcohol - 30-Day Quantity and Frequency

National Survey on Drug Use and Health, National Epidemiologic Survey on Alcohol and Related Conditions. Wave 1, Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV)

Alcohol - Age of First Use

2015 National Survey on Drug Use and Health (NSDUH)

Alcohol - Lifetime Use Disorder

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Alcohol - Maximum Drinks in 24 Hours

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Alcohol - Treatment for Alcohol Usage

National Epidemiologic Survey on Alcohol and Related Conditions - III (NESARC-III)

Alcohol Breathalyzer

Virginia Department of Forensic Science. (2005, September). Breath alcohol section. Breath test operator instructional manual

Annual Family Income
National Health Interview Survey (NHIS) Family Questionnaire, 2020

Antipsychotic Medication Adherence

Brief Adherence Rating Scale (BARS)

Antipsychotic Medication Extrapyramidal Side Effects

Extrapyramidal Symptom Rating Scale (ESRS)

Anxiety Disorders Screener - Adult

Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0 - Anxiety

Anxiety Disorders Symptoms - Adult

Symptom Check List 90 (SCL-90)

Anxiety Disorders Symptoms - Children - Parent Report

The Screen for Child Anxiety Related Emotional Disorders (SCARED) - Parent Report Version

Anxiety Disorders Symptoms - Children - Self-Report

The Screen for Child Anxiety Related Emotional Disorders (SCARED) - Self-Report Version

Arm Span

Anthropometric standardization reference manual

Arterial Blood Gas (ABG)

Blood Gas Analysis and Hemoximetry

ASA24

Automated Self-administered 24-hour Dietary Recall (ASA24).

Assessment of Pubertal Development - Female

Avon Longitudinal Study of Parents and Children (ALSPAC). Growing and Changing (8), Female Teenage Questionnaire

Assessment of Pubertal Development - Male

Avon Longitudinal Study of Parents and Children (ALSPAC). Growing and Changing (8), Male Teenager Questionnaire

Attention-Deficit Hyperactivity Disorder Symptoms - Adult

The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1)

Attention-Deficit Hyperactivity Disorder Symptoms - Child

The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN)

Audiogram Hearing Test
National Health and Nutrition Examination Survey (NHANES) Audiometry Protocol

Auditory Continuous Performance Test (ACPT) Battery

Auditory Continuous Performance Test (ACPT) Battery

Auditory Perception and Noise Exposure
National Health and Nutrition Examination Survey Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+

Auditory-Perceptual Evaluation of Voice
Consensus Auditory-Perceptual Evaluation of Voice (CAPE-V)

Autoimmune Diseases Related to Type I Diabetes

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Affected Sib-Pair Exam Form

Awareness of Pharmacogenomics
Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120.

AX-Continuous Performance Test (AX-CPT)

Modified AX-Continuous Performance Test (AX-CPT)

Baseline Knowledge of Genomics
University of North Carolina Genomic Knowledge Scale (UNC-GKS)

Behavioral Disturbances
Neuropsychiatric Inventory-Questionnaire (NPI-Q)