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Protocols

PhenX Protocol Domain/Collection

San Diego Population Study (SDPS) & The Multicentre Aneurysm Screening Study (MASS), 2002
Cardiovascular

Healthy Pathways - Academic Performance Child Self-Report
Pediatric Development

Healthy Pathways - Academic Performance Parent or Caregiver Report
Pediatric Development

National Health Interview Survey (NHIS) Utilization Questionnaire, 2020
History, Treatment and Outcomes

Health Information National Trends Survey (HINTS), Annotated Form, Full-Content, Cycle 2, 2018
Information Resources

Behavioral Risk Factor Surveillance System State (BRFSS) Questionnaire, 2004
Suicide

Gill, T.M., et al. A program to prevent functional decline in physically frail, elderly persons who live at home. NEW ENGL J MED, 2002
Geriatrics

Drug Effects Questionnaire (DEQ)
Substance-specific Intermediate Phenotypes

Biphasic Alcohol Effects Scale (BAES)
Substance-specific Intermediate Phenotypes

Addiction Research Center Inventory (ARCI)
Substance-specific Intermediate Phenotypes

Cigarette Evaluation Questionnaire (CEQ)
Substance-specific Intermediate Phenotypes

Self-Rating of the Effects of Alcohol (SRE)
Substance-specific Intermediate Phenotypes

Pomerleau et al, Early experiences with tobacco among women smokers, ex-smokers, and never-smokers, ADDICTION, 1998
Substance-specific Intermediate Phenotypes

Vineland Adaptive Behavior Scales., 2nd ed. (VINELAND-II)
Neurology, Quality of Life, and Health Services

Addiction Severity Index (ASI)
Assessment of Substance Use and Substance Use Disorders

Kotelchuck Index (Adequacy of Prenatal Care Utilization (APNCU))
Pregnancy

Validated Hemophilia Regimen Treatment Adherence Scale - On-Demand (VERITAS-PRN(TM))
Hemophilia Inhibitor

Adherence to Refills and Medications Scale (ARMS)
Smoking Cessation, Harm Reduction and Biomarkers

Validated Hemophilia Regimen Treatment Adherence Scale - Prophylaxis (VERITAS-Pro(TM))
Hemophilia Inhibitor

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007
Obesity

Adolescent Pediatric Pain Tool (APPT)
Gastrointestinal

Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning
Genomic Medicine Implementation

Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), short form
Neurology, Quality of Life, and Health Services

Co-sponsored Tobacco Use Supplement to the Current Population Survey, 2010
Alcohol, Tobacco and Other Substances

The Buss-Perry Aggression Questionnaire (BPAQ)
Suicide

Sly, D., et al. The Florida "truth" anti-tobacco media evaluation: Design, first-year results, and implications for planning future state media evaluations. TOB CONTROL, 2001
Tobacco Regulatory Research: Environment

Atmospheric and Environmental Research (AER) Inc., Relationships of Indoor, Outdoor and Personal Air (RIOPA) Study Activity Questionnaire, 1999
Environmental Exposures

Environmental Protection Agency (EPA), Air Quality Index (AQI)
Structural Social Determinants of Health

National Survey on Drug Use and Health (NSDUH), 2015 & National Institute on Alcohol Abuse and Alcoholism (NIAAA) National Epidemiologic Survey on Alcohol and Related Conditions, Wave 1 (NESARC - WAVE 1)/Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV)
Alcohol, Tobacco and Other Substances

National Survey on Drug Use and Health (NSDUH), 2015
Alcohol, Tobacco and Other Substances

National Epidemiologic Survey on Alcohol and Related Conditions (NESARC), Wave 1
Alcohol, Tobacco and Other Substances

National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Alcohol, Tobacco and Other Substances

National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Alcohol, Tobacco and Other Substances

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Alcohol, Tobacco and Other Substances

Virginia Department of Forensic Science, Breath test operator instructional manual, 2005
Assessment of Substance Use and Substance Use Disorders

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007
Bone and Joint

The Timeline Followback (TLFB)
Tobacco Regulatory Research - Host: Biobehavioral

Cardiovascular Health Study (CHS), Baseline Medical History Questionnaire & Framingham Heart Study (FHS)
Cardiovascular

National Health Interview Survey (NHIS) Family Questionnaire, 2020
Demographics

Brief Adherence Rating Scale (BARS)
Early Psychosis Clinical Services

Extrapyramidal Symptom Rating Scale (ESRS)
Early Psychosis Clinical Services

Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Anxiety
Psychiatric

Symptom Check List 90 (SCL-90)
Psychiatric

The Screen for Child Anxiety Related Emotional Disorders (SCARED), Parent Report Version
Psychiatric

The Screen for Child Anxiety Related Emotional Disorders (SCARED), Self-Report Version
Psychiatric

Lohman, T. G., et al, Anthropometric standardization reference manual, 1988
Anthropometrics

Framingham Heart Study (FHS), Exams 6 & 29 & Jackson Heart Study (JHS)
Cardiovascular

Davis, M.D., et al. AARC clinical practice guideline: Blood gas analysis and hemoximetry. Respir Care, 2013
Respiratory

A Knee Health Study, The Kellgren-Lawrence Grading Scale, version 2.1, August 2006
Bone and Joint

Automated Self-administered 24-hour Dietary Recall (ASA24)
Nutrition and Dietary Supplements

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011
Cardiovascular, Pulmonary, and Renal

Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII)
Gastrointestinal

Questionnaire for functional gastrointestinal disorders (FGIDs), Rome III, adult questionnaire
Gastrointestinal

Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII)
Gastrointestinal

National Health and Nutrition Examination Survey (NHANES) III, Adult Household Questionnaire
Gastrointestinal

Avon Longitudinal Study of Parents and Children (ALSPAC), Growing and Changing (8), Female Teenage Questionnaire
Reproductive Health

Avon Longitudinal Study of Parents and Children (ALSPAC), Growing and Changing (8), Male Teenage Questionnaire
Reproductive Health

Scale for the Assessment and Rating of Ataxia (SARA)
Rare Genetic Conditions

The Attention Control Scale (ACS)
Tobacco Regulatory Research - Host: Social/Cognitive

The Adult Attention-Deficit Hyperactivity Disorder Self-Report Scale (ASRS-v1.1)
Psychiatric

The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN)
Psychiatric

The Dot Probe Task
Post-traumatic Stress Psychopathology (including PTSD)

National Health and Nutrition Examination Survey (NHANES), Audiometry Protocol, 2015-2016
Speech, Language and Hearing

Auditory Continuous Performance Test (ACPT) Battery
Early Psychosis Translational Research

National Health and Nutrition Examination Survey (NHANES), Questionnaire (SP) AUDIOMETRY - AUQ Target Group: SPs 1+, 2011
Geriatrics

Consensus Auditory-Perceptual Evaluation of Voice (CAPE-V)
Speech, Language and Hearing

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), Affected Sib-Pair Exam Form
Diabetes

Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120.
Genomic Medicine Implementation

Modified AX-Continuous Performance Test (AX-CPT)
Early Psychosis Translational Research

Bath Ankylosing Spondylitis Disease Activity Index (BASDAI)
Bone and Joint

Health, Aging and Body Composition (Health ABC) Study, Operations Manual Volume XIII, One Leg Stand, 2007
Geriatrics

Hispanic Community Health Study (HCHS)/Study of Latinos (SOL), Nutritional and Physical Activity Assessment Study (SOLNAS), 2012
Obesity

The Baseline and Trauma Challenge Psychophysiological Recordings protocol
Post-traumatic Stress Psychopathology (including PTSD)

University of North Carolina Genomic Knowledge Scale (UNC-GKS)
Genomic Medicine Implementation

The Cigarette Purchase Task (CPT)
Tobacco Regulatory Research - Host: Social/Cognitive

Neuropsychiatric Inventory-Questionnaire (NPI-Q)
Geriatrics

Global Appraisal of Individual Needs - Short Screener (GAIN-SS)
Substance Use-related Co-morbidities and Health-related Outcomes

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011
Cardiovascular, Pulmonary, and Renal

All of Us Research Program, Participant Provided Information (PPI), 2018
Demographics

Schneider, NG, et al. Saliva cotinine levels as a function of collection method. Addiction, 1997
Respiratory

National Health and Nutrition Examination Survey (NHANES), Cotinine Analysis, 2011-2012
Respiratory

Man, C. N., et al, Simple, rapid and sensitive assay method for simultaneous quantification of urinary nicotine and cotinine using gas chromatography-mass spectrometry, J CHROMATOGR, 2006
Respiratory

Center for Disease Control and Prevention (CDC), National Vital Statistics System Birth Certificate Section, 2005-2006
Anthropometrics

Krebs, N. F., et al. Complementary feeding: A Global Network cluster randomized controlled trial manual of operations, BMC PEDIATR, 2011
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), 2005-2006
Anthropometrics

American Community Survey (ACS), 2008
Demographics

American Community Survey (ACS), 2008
Demographics

American Community Survey (ACS), 2008
Demographics

Coronary Artery Risk Development in Young Adults (CARDIA), Y20 CARDIA VII & Framingham Heart Study (FHS), Generation 3
Cardiovascular

Population Assessment of Tobacco and Health (PATH) Study, Wave 3
Tobacco Regulatory Research Core: Tier 2

National Health and Nutrition Examination Survey (NHANES), body composition procedures manual, 2011-2012
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2007
Anthropometrics

National Health and Nutrition Examination Survey III (NHANES III), Anthropometry Procedures Manual, 1988
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2007
Anthropometrics

Body Figure Perceptions Scales from Collins, Stunkard et al., and Pulvers et al.
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Anthropometrics procedure manual, 2007-2008
Behaviors and Risks

National Health and Nutrition Examination Survey (NHANES), Anthropometry procedures, 2007-2008
Rare Genetic Conditions

Davie, A., et al. Best practice in the measureement of body temperature. NURS STAND, 2010
Cardiovascular, Pulmonary, and Renal

Davie, A., et al. Best practice in the measureement of body temperature. NURS STAND, 2010
Cardiovascular, Pulmonary, and Renal

Tanner and Whitehouse Method (TW2)
Rare Genetic Conditions

Ragland, J.D., et al. Functional and neuroanatomic specificity of episodic memory dysfunction in schizophrenia: A functional magnetic resonance imaging study of the relational and item-specific encoding task. JAMA Psychiatry, 2015
Early Psychosis Translational Research

The Brain-Body Center Sensory Scales (BBCSS)
Eating Disorders

Infant Feeding Practices Study II (IFPS-II), 2005, Postnatal Month 12
Oral Health

National Health and Nutrition Examination Survey (NHANES) Diet Behavior and Nutrition Questionnaire, 2005-2006
Nutrition and Dietary Supplements

The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5)
Psychosocial and Mental Health

The Strengths and Difficulties Questionnaire (SDQ)
Mental Health Research Core: Tier 1

National Institutes of Health (NIH), COPDGene Study Clinical Center Manual of Procedures, 2009
Respiratory

Olweus Bully-Victim Questionnaire-Revised (OBVQ-R)
Pediatric Development

Medical Expenditure Panel Survey (MEPS)
Cancer Outcomes and Survivorship

National Health and Nutrition Examination Survey (NHANES), C-Reactive Protein (CRP), 2009-2010
Early Psychosis Translational Research

Fred Hutchinson Cancer Research Center, Caffeine Questionnaire, 2004
Nutrition and Dietary Supplements

National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire, 2005
Nutrition and Dietary Supplements

Centers for Disease Control and Prevention (CDC), Eating and Activity Survey Trial, Calcium Food Frequency Questionnaire, 2002
Nutrition and Dietary Supplements

Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Baseline Questionnaire for Male (BQMC) & Female (BQM3), 10/99
Cancer

Abramson Cancer Center, Health History Questionnaire 9/2006
Cancer

The California Teachers Study, Follow Up Survey 4, 2005-2006
Cancer

Kline, G., et al. Estimation of VO2max from a one-mile track walk, gender, age, and body weight. MED SCI SPORT EXER, 1987
Physical Activity and Physical Fitness

Ebbeling, E.B., et al. Development of a single-stage submaximal treadmill walking test. MED SCI SPORT EXER, 1991
Physical Activity and Physical Fitness

Jurca, R.,et al, Assessing cardiorespiratory fitness without performing exercise testing, AM J PREV MED, 2005
Physical Activity and Physical Fitness

National Survey of Family Growth (NFSG), 2013-2015
Reproductive Health

National Survey of Family Growth (NFSG), Male, 2013-2015
Reproductive Health

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010
Gastrointestinal

Shiffman, S., et al. Analyzing milestones in smoking cessation: illustration in a nicotine patch trial in adult smokers. J Consult Clin Psych, 2006.
Smoking Cessation, Harm Reduction and Biomarkers

National Human Exposure Assessment Survey (NHEXAS), 1995
Environmental Exposures

?Genetic Epidemiology of COPD Clinical Center Manual of Procedures, 2014
Respiratory

ACR-SPR, Practice Parameter for the Performance of Chest Radiography, 2014
Cardiovascular, Pulmonary, and Renal

The Child Eating Behavior Questionnaire (CEBQ)
Eating Disorders

National Health and Nutrition Examination Survey (NHANES), Anthropometry Procedures Manual, 2007
Anthropometrics

Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19)
Rare Genetic Conditions

National Longitudinal Study on Adolescent Health (Add Health), 1995
Social Environments

NICHD Study of Early Child Care and YOuth Development, Phase 1, 1991-1995 [United States]
Pediatric Development

NICHD Study of Early Child Care and Youth Development: Phase II, 1996-1999 [United States]. The NICHD Study of Early Child Care Form 39C-a Revision 06/16/95
Pediatric Development

Childhood Trauma Questionnaire (CTQ), 1997
Social Environments

Avon Longitudinal Study of Parents and Children - Mother and Home (Section C)
Pediatric Development

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007
Infectious Diseases and Immunity

Self-Administered Comorbidity Questionnaire (SCQ)
Cancer Outcomes and Survivorship

The Chronic Stress Scale
Psychosocial

Fagerstrom Test for Nicotine Dependence, 1991
Alcohol, Tobacco and Other Substances

Population Assessment of Tobacco and Health (PATH) Study Wave 3
Alcohol, Tobacco and Other Substances

Population Assessment of Tobacco and Health (PATH) Study Wave 1
Alcohol, Tobacco and Other Substances

The Columbia-Suicide Severity Rating Scale (C-SSRS)?
Suicide

Composite International Diagnostic Interview (CIDI), WHO version, the Suicidality module
Suicide

The Columbia-Suicide Severity Rating Scale (C-SSRS)?
Suicide

The Columbia-Suicide Severity Rating Scale (C-SSRS)?
Suicide

The Columbia-Suicide Severity Rating Scale (C-SSRS)?
Suicide

Composite International Diagnostic Interview (CIDI), WHO version, the Suicidality module
Suicide

The Columbia-Suicide Severity Rating Scale (C-SSRS)?
Suicide

The Columbia-Suicide Severity Rating Scale (C-SSRS)?
Suicide

Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire
Genomic Medicine Implementation

Structured Clinical Interview for DSM-5 Disorders - Clinician Version (SCID-5-CV)
Early Psychosis Clinical Services

Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)
Geriatrics

Dimensional Change Card Sort (DCCS), Border Version
Substance Use-related Neurobehavioral and Cognitive Risk Factors

Dimensional Change Card Sort (DCCS), Standard Version
Substance Use-related Neurobehavioral and Cognitive Risk Factors

Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a
Cancer Outcomes and Survivorship

The Neitz Test of Color Vision
Ocular

Prostate, Lung, Colorectal, and Ovarian Cancer Screening Trial (PLCO), Diagnostic Evaluation& Colorectum (DEC3/DCQ3), 07/01
Gastrointestinal

Substance Abuse and Mental Health Services Administration (SAMHSA), Communities That Care (CTC) Youth Survey, 2004
Substance Use-related Psychosocial Risk Factors

National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010
Rare Genetic Conditions

Point of Sale: Pack Analysis Coding Training Manual, 2013
Tobacco Regulatory Research: Environment

National HIV Behavioral Surveillance System, 2010
Substance Use-related Co-morbidities and Health-related Outcomes

Framingham Heart Study
Gastrointestinal

Computerized Neurocognitive Battery (CNB)
Early Psychosis Translational Research

American Community Survey (ACS), 5-year estimates, Concentrated Poverty, 2009-2018
Structural Social Determinants of Health

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006
Pregnancy

National Health and Nutrition Examination Survey (NHANES) Laboratory Procedure Manual, 2011-2012
Pregnancy

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006
Pregnancy

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2003-2004
Pregnancy

Centers for Disease Control and Prevention (CDC) Screening Questionnaire for Adult Immunization, 2009
Infectious Diseases and Immunity

Centers for Disease Control and Prevention (CDC), Screening Questionnaire for Child and Teen Immunization, 2009
Infectious Diseases and Immunity

Head Start Family and Child Experiences Survey (FACES), 2006
Oral Health

University of Southern California, The Los Angeles Latino Eye Study (LALES), 2000-2003
Ocular

National Eye Institute, Herpetic Eye Disease Study II, (HEDS II), Recurrence Factors Study Enrollment Checklist, 12/1/95
Ocular

The Coping Responses Inventory for Youth (CRI-Youth)
Psychosocial

The Coping Responses Inventory for Youth (CRI-Youth)
Psychosocial

COVID-19 Experiences (COVEX)
Psychosocial and Mental Health

Coronavirus Anxiety Scale (CAS)
Psychosocial and Mental Health

American Thrombosis and Hemostasis Network (ATHN) dataset Core Data Elements, Version 2.0
Hemophilia Inhibitor

COVID-19 Community Response Survey
Psychosocial and Mental Health

Coronavirus Tracking Survey of the Understanding America Survey (UAS)
Behaviors and Risks

COVID-19 Experiences (COVEX)
Socioeconomic

UK COVID-19 Questionnaire
History, Treatment and Outcomes

RAND American Life Panel Impacts of COVID-19 Survey
Socioeconomic

Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation
Psychosocial and Mental Health

RAND 2020 American Life Panel Survey (ALP) on Impacts of COVID-19
Information Resources

All of Us COVID-19 Participant Experience Survey (COPE)
Behaviors and Risks

Coping with COVID-19: Impact on technology use, mobility, food security, depression and social isolation
Behaviors and Risks

Huizinga, D., et al, Are there multiple paths to delinquency?, J CRIM LAW CRIM, 1991
Psychosocial

Dunedin Multidisciplinary Health and Development Research Unit (DMHDRU), Dunedin Multidisciplinary Health and Development Study, 1993
Psychosocial

Bidwell, L.C., et al, Effects of abstinence in adolescent tobacco smokers: Withdrawal symptoms, urge, affect, and cue reactivity. NICOTINE TOB RES, 2013
Tobacco Regulatory Research - Host: Biobehavioral

Tri-State Womens Circle of Health Questionnaire, 06/18/07
Cancer

The California Teachers Study, Baseline
Cancer

National Health and Nutrition Examination Survey (NHANES), Screener Module 1, 2005-2006
Demographics

National Health and Nutrition Examination Survey (NHANES), 2005-2006
Demographics

National Survey of Family Growth (NFSG), 2013-2015
Reproductive Health

National Survey of Family Growth (NFSG), Male, 2013-2015
Reproductive Health

Panel Study of Income Dynamics (PSID), 2007
Demographics

National Health and Nutrition Examination Survey (NHANES), Family Questionnaire, 2007-2008
Environmental Exposures

Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018
Demographics

National Health and Nutrition Examination Survey (NHANES) Mobile Examination Center (MEC) Laboratory Procedures Manual, 2013-2014
Pregnancy

National Health and Nutrition Examination Survey (NHANES), Reproductive Health Module, 2007-2008
Pregnancy

The Coronavirus Racial Bias Scale (CRBS)
Ethnicity, Race and Demographics

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007
Geriatrics

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007
Infectious Diseases and Immunity

National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire, 2005
Nutrition and Dietary Supplements

University of North Carolina at Chapel Hill, Mothers Questionnaire
Environmental Exposures

Iowa Gambling Test?
Substance Use-related Neurobehavioral and Cognitive Risk Factors

Iowa Gambling Test? - Child version, 2004
Substance Use-related Neurobehavioral and Cognitive Risk Factors

Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS)
Cardiovascular

Monetary-Choice Questionnaire (MCQ)
Substance Use-related Neurobehavioral and Cognitive Risk Factors

National Health and Nutrition Examination Survey (NHANES), Decayed, Missing, or Filled Tooth Surfaces (DMFS) Index, 2003-2004
Oral Health

Health, Aging and Body Composition Study (Health ABC), Oral Health and Dental History Questions
Geriatrics

Composite International Diagnostic Interview Screening Scales (CIDI-SC) 5.0, Depression
Psychiatric

The Quick Inventory of Depressive Symptoms (QIDS)
Psychiatric

Mood and Feelings Questionnaire (MFQ)
Psychiatric

The Cornell Scale for Depression in Dementia
Psychiatric

Geriatric Depression Scale (GDS)?- Short Form
Psychiatric

Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014
Hemophilia Inhibitor

Lippi, G., et al. Quality standards for sample collection in coagulation testing. Seminars in Thrombosis and Hemostasis, 2012
Hemophilia Inhibitor

Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014
Hemophilia Inhibitor

Blanchette et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost, 2014
Hemophilia Inhibitor

St. Pierre, T. G., et al. Single spin-echo proton transverse relaxometry of iron-loaded liver. NMR Biomedicine, 2004
Curative Therapies

Garbowski, M. W., Carpenter, J.-P., Smith, G., Roughton, M., Alam, M. H., He, T., Pennell, D. J., & Porter, J. B. (2014). Biopsy-based calibration of T2* magnetic resonance for estimation of liver iron concentration and comparison with R2 Ferriscan. Journal of Cardiovascular Magnetic Resonance, 16, 40.
Curative Therapies

The Reasons for Living (RFL) inventory
Suicide

The Reasons for Living for Adolescents (RFL-A) inventory
Suicide

The Attitudes Towards Suicide Scale (ATTS)
Suicide

The Michigan Neuropathy Screening Instrument (MNSI)
Diabetes

University of Southern California (UCLA), Los Angeles Latino Eye Study (LALES), 2000-2003
Diabetes

The National Health and Nutrition Examination Survey (NHANES), Dietary Screener Questionnaire (DSQ), 2009-2010
Obesity

Three Factor Eating Questionnaire (TFEQ-18)
Obesity

Supplement Frequency Questionnaire (SURE-QX), 2009
Nutrition and Dietary Supplements

Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2010
Pregnancy

Slama, R., et al, Feasibility of the Current-Duration Approach to Studying Human Fecundity, EPIDEMIOLOGY, 2006
Reproductive Health

Pregnancy Study Online (PRESTO), Female Screener and Baseline Questionnaire
Reproductive Health

Slama, R., et al, Epidemiologic tools to study the influence of environmental factors on fecundity and pregnancy-related outcomes, EPIDEMIOL REVs, 2014
Reproductive Health

The Sheehan Disability Scale (SDS)
Post-traumatic Stress Psychopathology (including PTSD)

Oswestry Disability Index (ODI) ?, version 2.1a?
Rare Genetic Conditions

Monitoring the Future (MTF), 2015
Substance Use-related Community Factors

Major Experiences and Everyday Discrimination Scales
Social Environments

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 0-24 months
Rare Genetic Conditions

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 12-18 years
Rare Genetic Conditions

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 2-11 years
Rare Genetic Conditions

Newcastle Mitochondrial Disease Adult Scale (NMDAS), 12-18 years
Rare Genetic Conditions

Haem-A-QoL
Hemophilia Inhibitor

UPPS Impulsive Behavior Scale
Psychosocial

UPPS-P Impulsive Behavior Scale for Children
Psychosocial

Autonomic Nervous System Questionnaire (ANSQ)?& American Thoracic Society (ATS) Statement on CCHS (2010)
Rare Genetic Conditions

California Health Interview Survey (CHIS), 2017
Ethnicity, Race and Demographics

Disruptive Behavior Disorders Rating Scale (DBDRS)
Substance Use-related Psychosocial Risk Factors

The Computerized Mirror Tracing Persistence Task (MTPT-C)
Tobacco Regulatory Research - Host: Social/Cognitive

Centre for Vision Research, Blue Mountains Eye Study (BMES-3), 2002-2004
Ocular

Baltimore Longitudinal Study on Aging (BLSA), Dental Examination
Oral Health

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Substance Use-related Co-morbidities and Health-related Outcomes

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Substance Use-related Co-morbidities and Health-related Outcomes

RTI International, Atrazine Exposure Study, Vacuum Cleaner Dust Collection Protocol, 2001
Environmental Exposures

National Health and Nutrition Examination Survey (NHANES), Audiometry Procedures Manual, 2009-2010
Speech, Language and Hearing

Ages & Stages Questionnaires?, Third Edition
Speech, Language and Hearing

Speech and Language Assessment Scale (SLAS)
Speech, Language and Hearing

The Eating Disorder Assessment for DSM-5 (EDA-5)
Eating Disorders

Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) & The Eating Disorder Diagnostic Scale (EDDS-5)
Psychiatric

Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) &?The Eating Disorder Diagnostic Scale (EDDS)
Psychiatric

Eating Disorder Examination ? (EDE), Edition 16.0D
Obesity

Eating Disorder Examination ? (EDE), 14th?edition, version 14.3, Bariatric Surgery Version (EDE-BSV)?
Obesity

Eating Disorder Examination (EDE) ? Interview for Children, Edition 16.0D
Obesity

Eating Disorders Examination Questionnaire ? (EDE-Q)
Obesity

British Society of Echocardiography (BSE) Education Committee guidelines for a standard transthoracic echocardiogram (TTE)
Rare Genetic Conditions

The Eczema Area and Severity Index (EASI)
Skin

American Community Survey (ACS), 5-year estimates, Educational Attainment, 2013-2017
Structural Social Determinants of Health

National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020
Demographics

Coronavirus Tracking Survey of the Understanding America Survey (UAS)
Ethnicity, Race and Demographics

ECHO COVID-19 Questionnaire - Adult Primary Version
Psychosocial and Mental Health

ECHO Impacts of COVID-19 Outbreak on Child Parent-Report
Psychosocial and Mental Health

ECHO Impacts of COVID-19 Outbreak on Child Self-Report
Psychosocial and Mental Health

Population Assessment of Tobacco and Health (PATH) Study, Wave 3
Tobacco Regulatory Research Core: Tier 1

Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017
Hemophilia Inhibitor

Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017
Hemophilia Inhibitor

Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017
Hemophilia Inhibitor

Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017
Hemophilia Inhibitor

Medical and Scientific Advisory Committee (MASAC) of the National Hemophilia Foundation (NHF), 2017
Hemophilia Inhibitor

Child Behavior Checklist for Ages 1 ½ - 5
Pediatric Development

Child Behavior Checklist for Ages 6-18
Pediatric Development

Achenbach System of Empirically Based Assessment (ASEBA) - Adult Self Report (ASR) and Adult Behavior Checklist (ABCL)
Pediatric Development

Patient-Reported Outcomes Measurement Information System? Item Bank, v.1.0
Gastrointestinal

The Positive Affect and Negative Affect Schedule-Expanded Form (PANAS-X)
Psychosocial

Positive Affect and Negative Affect Schedule-Child Form (PANAS-C)
Psychosocial

California Health Interview Survey (CHIS), Adult questionnaire, 2018
Individual Social Determinants of Health

Environmental Protection Agency (EPA), Environmental Justice Screening and Mapping Tool (EJSCREEN)
Structural Social Determinants of Health

Ottman Brief Epilepsy Screener, Self-reported Version
Neurology

Ottman Brief Epilepsy Screener, Proxy-reported Version
Neurology

U.S. Census Bureau, Census 2020, Questionnaire
Demographics

The Trail Making Test - Adult
Neurology

The Behavior Rating Inventory of Executive Function (BRIEF)
Neurology

The Trail Making Test (TMT) for Older Children
Neurology

The Trail Making Test (TMT)
Neurology

Behavior Rating Inventory of Executive Function?-Adult Version (BRIEF?-A)
Neurology

Behavior Rating Inventory of Executive Function? (BRIEF?)
Neurology

The Behavior Rating Inventory of Executive Function? (BRIEF?) - Preschool
Neurology

Six-Minute Walk Test (6MWT)
Respiratory

The Exercise Dependence Scale
Eating Disorders

Oral Facial Cleft Study of Cleft Lip and Palate, Demographics and Medical History
Oral Health

The California Teachers Study, Baseline, Fall 1995
Cancer

?Brief Comprehensive Effects of Alcohol questionnaire (B-CEOA)
Substance-specific Intermediate Phenotypes

Stimulant Effect Expectancy Questionnaire (SEEQ)
Substance-specific Intermediate Phenotypes

Marijuana Effect Expectancy Questionnaire (MEEQ)
Substance-specific Intermediate Phenotypes

Prescription Stimulant Expectancy Questionnaire (PSEQ)
Substance-specific Intermediate Phenotypes

The Brief Smoking Consequences Questionnaire-Adult (BSCQ-A)
Substance-specific Intermediate Phenotypes

Sandberg, A, et al, Assessing recent smoking status by measuring exhaled carbon monoxide levels. PLOS ONE, 2011
Tobacco Regulatory Research - Host: Biobehavioral

American Cancer Society (ACS), Cancer Prevention Study II (CPS-II), Men?s Baseline Questionnaire, 1982
Environmental Exposures

Population Assessment of Tobacco and Health (PATH), Adult Extended Questionnaire, Version 7.5 & National Youth Tobacco Survey (NYTS), 2012
Tobacco Regulatory Research Core: Tier 2

Long Island Breast Cancer Study Project (LIBCSP)
Environmental Exposures

Lifetime Traumatic and Victimization History (LTVH)
Psychosocial

Lifetime Traumatic and Victimization History (LTVH)
Psychosocial

The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007
Ocular

Beaver Dam Eye Study
Ocular

The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007
Ocular