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Protocols

PhenX Protocol Domain/Collection

Skin, Bone, Muscle and Joint

Alabama Parenting Questionnaire (APQ) Child Form
Pediatric Development

Alabama Parenting Questionnaire (APQ) Parent Form
Pediatric Development

Neurology

Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

Neurology

Tobacco Regulatory Research

Cancer

2015 Monitoring the Future (MTF)

Substance Abuse and Addiction

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Substance Abuse and Addiction

Respiratory

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Tobacco Regulatory Research

PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships
Pediatric Development

PROMIS© (Patient-Reported Outcomes Measurement Information System) Pediatric Item Bank v2.0 - Peer Relationships
Pediatric Development

2015 Monitoring the Future (MTF)

Substance Abuse and Addiction

Monitoring the Future (MTF) 2015

Substance Abuse and Addiction

Tobacco Regulatory Research

Substance Abuse and Addiction

Midlife in the United States II (MIDUS II)

Psychosocial

Perceived Stress Scale

Psychosocial

1996 Percentage Energy from Fat short instrument (PFat)

Nutrition and Dietary Supplements

Current Population Survey, Labor Force Items
Social Determinants of Health

Recovery Self-Assessment (RSA) - Administrator Version

Mental Health Research

Recovery Self-Assessment (RSA) - Family Member

Mental Health Research

Recovery Self-Assessment (RSA)

Mental Health Research

Recovery Self-Assessment (RSA) - provider version

Mental Health Research

Oral Health

Cardiovascular

Infectious Diseases and Immunity

Ocular

Age-Related Hearing Impairment (ARHI) Questionnaire
Speech, Language and Hearing

Skin, Bone, Muscle and Joint

American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) and Genetic Epidemiology of COPD Study (COPDGene)

Respiratory

The International Study of Asthma and Allergies in Childhood (ISAAC) Manual

Respiratory

Ocular

Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire

Environmental Exposures

Infectious Diseases and Immunity

Gastrointestinal

Strong Heart Study, Phase IV-Family Study, Medical History Form

Diabetes

2001 Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History

Diabetes

Infectious Diseases and Immunity

Cancer

Personal Wellbeing Index-Adult (PWI-A)

Mental Health Research

Personal Wellbeing Index-School Children (PWI-SC)

Mental Health Research

The Big Five Inventory (BFI)

Psychiatric

Syllable Repetition Task (SRT)
Speech, Language and Hearing

"Sounds-in-Words" and "Sounds-in-Sentences" sections of the Goldman-Fristoe Test of Articulation, Third Edition (GFTA™-3)
Speech, Language and Hearing

International Physical Activity Questionnaire (IPAQ-7)

Mental Health Research

NA, see source
Physical Activity and Physical Fitness

Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)

Physical Activity and Physical Fitness

2001 PACE Questionnaire

Physical Activity and Physical Fitness

NA, see source
Physical Activity and Physical Fitness

Short Physical Performance Battery

Physical Activity and Physical Fitness

2005-2006 National Health and Nutrition Examination Survey (NHANES) Sample Person Questionnaire: Physical Functioning Module

Physical Activity and Physical Fitness

Tobacco Regulatory Research

Tobacco Regulatory Research

Gastrointestinal

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Mental Health Research

Cancer

Tobacco Regulatory Research

Tobacco Regulatory Research

Modified Cannon-Spoor Premorbid Adjustment Scale (PAS)

Mental Health Research

The Edinburgh Postnatal Depression Scale© (EPDS)

Pregnancy

Oral Health

Oral Health

International Prostate Symptom Score (I-PSS)

Reproductive Health

Modified Colorado Symptom Index

Mental Health Research

Brief Resilience Scale (BRS)
Geriatrics

The Child and Youth Resilience Measure (CYRM) Child Version
Pediatric Development

Child Behavior Checklist for Ages 1 ½ - 5
Pediatric Development

Achenbach System of Empirically Based Assessment (ASEBA) - Adult Self Report (ASR) and Adult Behavior Checklist (ABCL)
Pediatric Development

Child Behavior Checklist for Ages 6-18
Pediatric Development

Triarchic Psychopathy Measure (TriPM)

Psychiatric

Questionnaire about the Process of Recovery (QPR)

Mental Health Research

Mental Health Research

Mental Health Research

The University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index) for the Diagnostic and Statistical Manual of Mental Disorders (4th ed.; DSM-IV)

Psychiatric

University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index) for the Diagnostic and Statistical Manual of Mental Disorders (5th ed.; DSM-5)

Psychiatric

Mental Health Research

Psychiatric

Mental Health Research

Psychiatric

Mental Health Research

Mental Health Research

Cardiovascular

Respiratory

World Health Organization (WHO) Pulse Oximetry Training Manual

Respiratory

Blood Sciences Research

Blood Sciences Research

Tobacco Regulatory Research

Rare Genetic Conditions

Rare Genetic Conditions

St. George’s Respiratory Questionnaire (SGRQ)

Respiratory

Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF)

Psychosocial

Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)

Psychosocial

Home Observation for Measurement of the Environment (HOME)-revised edition National Longitudinal Study of Youth Children & Young Adults
Pediatric Development

Mental Health Research

Mental Health Research

American Community Survey (ACS), 5-year estimates

Social Environments

American Community Survey (ACS), 5-year estimates
Social Environments

U.S. Census Bureau, decennial censuses for 1990, 2000, 2010

Social Environments

Woodcock-Johnson® Tests of Achievement (WJ IV®)
Speech, Language and Hearing

Blood Sciences Research

Ocular

Ocular

Relational and Item-Specific Encoding Task (RiSE)

Mental Health Research

National Survey of Family Growth (NSFG)

Reproductive Health

Women’s Interview Study of Health and Pregnancy Risk Assessment Monitoring System (PRAMS)

Reproductive Health

The Longitudinal Investigation of Fertility and the Environment (LIFE) Study

Reproductive Health

Parkinson’s Disease, Environment, and Genes Study (PEG Study), 2001

Environmental Exposures

Respiratory

Respiratory

NA, see source

Respiratory

Go/NoGo task

Substance Abuse and Addiction

Blood Sciences Research

Ocular

Cardiovascular

Rare Genetic Conditions

Work Productivity and Activity Impairment Questionnaire (WPAI): General Health V2.0 (WPAI:GH)
Blood Sciences Research

NA; see source.
Blood Sciences Research

Communities That Care (CTC) & Seattle Social Development Project (SSDP) longitudinal study

Substance Abuse and Addiction

NA

Social Environments

Rare Genetic Conditions

Rare Genetic Conditions

Substance Abuse and Addiction

Brief Michigan Alcoholism Screening Test (Brief MAST)

Substance Abuse and Addiction

Alcohol Use Disorders Identification Test (AUDIT)

Substance Abuse and Addiction

Drug Abuse Screening Test (DAST-10)

Substance Abuse and Addiction

2004 National Center for Environmental Health Laboratory Procedure Manual for Serum Selenium

Nutrition and Dietary Supplements

Blood Sciences Research

The Rosenberg Self-Esteem Scale

Psychosocial

Global Appraisal of Individual Needs (GAIN) Self-Help Involvement Scale (SHIS)

Substance Abuse and Addiction

Substance Abuse and Addiction

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Substance Abuse and Addiction

Alcohol Urge Questionnaire (AUQ)

Substance Abuse and Addiction

Cocaine Craving Questionnaire-Brief (CCQ-Brief)

Substance Abuse and Addiction

Heroin Craving Questionnaire - Short Form 14 (HCQ-SF-14)

Substance Abuse and Addiction

Marijuana Craving Questionnaire - Short Form (MCQ-SF)

Substance Abuse and Addiction

Brief Questionnaire of Smoking Urges (QSU-Brief)

Substance Abuse and Addiction

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

2014 National Health Interview Survey - Family - Family Identification

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Tobacco Regulatory Research

Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ)

Substance Abuse and Addiction

Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale

Substance Abuse and Addiction

Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale - child version

Substance Abuse and Addiction

American Congress of Obstetricians and Gynecologists (ACOG) Antenatal Form B and C

Anthropometrics

American Congress of Obstetricians and Gynecologists (ACOG) Antenatal Form B and C

Anthropometrics

2007 National Health and Nutrition Examination Survey (NHANES) Laboratory Procedures Manual

Diabetes

Blood Sciences Research

Global Appraisal of Individual Needs (GAIN)

Substance Abuse and Addiction

All of Us Research Program Participant Provided Information (PPI)
Demographics

National Health and Nutrition Examination Survey (NHANES) Sexual Behavior Module

Reproductive Health

National Health and Nutrition Examination Survey (NHANES) Sexual Behavior Module

Reproductive Health

CollaboRATE

Mental Health Research

Gastrointestinal

Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale

Neurology

Adolescent Sedentary Activity Questionnaire (ASAQ)

Physical Activity and Physical Fitness

None

Physical Activity and Physical Fitness

Skin, Bone, Muscle and Joint

Berlin Questionnaire

Respiratory

The Pediatric Sleep Questionnaire (PSQ)

Respiratory

Psychiatric

Sleep Disturbances Scale for Children

Psychiatric

National Health and Nutrition Examination Survey (NHANES), Taste and Smell Examination Component Manual, 2013. National Health and Nutrition Examination Survey (NHANES) Chemical Senses - Taste & Smell Questionnaire
Geriatrics

Cancer

Global Functioning: Social and Global Functioning: Role

Mental Health Research

The Position Generator

Psychosocial

UCLA Loneliness Scale

Psychosocial

Indianapolis Network Mental Health Study (INMHS), 1990-1991

Social Environments

Tobacco Regulatory Research

Tobacco Regulatory Research

Mental Health Research

Social Vulnerability Index (SVI)
Social Determinants of Health

NA, see source
Nutrition and Dietary Supplements

Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)

Neurology

Skin, Bone, Muscle and Joint

World Health Organization’s Quality of Life Measure (WHOQOL) Spirituality, Religion and Personal Beliefs (SRPB)
Social Determinants of Health

Spirometry

Respiratory

Pulmonary Function Testing in Preschool and School Age Children

Respiratory

Tobacco Regulatory Research

Tobacco Regulatory Research

Blood Sciences Research

Blood Sciences Research

Blood Sciences Research

Stuttering Severity Instrument
Speech, Language and Hearing

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Substance Abuse and Addiction

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Substance Abuse and Addiction

Substance Abuse and Addiction

Substance Abuse and Addiction

2015 National Survey on Drug Use and Health (NSDUH)

Alcohol, Tobacco and Other Substances

2015 National Survey on Drug Use and Health (NSDUH)

Alcohol, Tobacco and Other Substances

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Alcohol, Tobacco and Other Substances

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Alcohol, Tobacco and Other Substances

Cardiovascular

2005 National Cancer Institute (NCI) Five-Factor Screener 2005

Nutrition and Dietary Supplements

Mental Health Research

National Cancer Institute Measures Guide for Youth Tobacco Research and Population Assessment of Tobacco and Health (PATH) Study

Tobacco Regulatory Research

Blood Sciences Research

Rare Genetic Conditions

The Autism Spectrum Quotient-Adolescent Version

Psychiatric

The Autism Spectrum Quotient-Adult Version

Psychiatric

The Childhood Autism Spectrum Test (CAST)

Psychiatric

The Restless Legs Syndrome Rating Scale

Neurology

Infectious Diseases and Immunity

Skin, Bone, Muscle and Joint