Protocols

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	PhenX Protocol	Domain/Collection
	Pain - Body Map Michigan Body Map (MBM)	Bone and Joint
	Pain Catastrophizing - Adult Pain Catastrophizing Scale	SCD Pain
	Pain Catastrophizing - Child Pain Catastrophizing Scale - Child Version (PCS-C)	SCD Pain
	Pain Catastrophizing - Parent Proxy Pain Catastrophizing Scale - Parent Version (PCS-P)	SCD Pain
	Pain Coping - Adult Coping Strategies Questionnaire	SCD Pain
	Pain Coping - Child Pain Coping Questionnaire - Short Form	SCD Pain
	Pain Intensity - Adolescent and Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a	SCD Pain
	Pain Intensity - Child Faces Pain Scale-Revised (FPS-R)	SCD Pain
	Pain Intensity - Toddler Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool	SCD Pain
	Pain Interference - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Item Bank v1.1 - Pain Interference - Short Form 8a	SCD Pain
	Pain Interference - Child Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a	SCD Pain
	Pain Interference - Parent Proxy Patient-Reported Outcome Measurement Information System (PROMIS^®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a	SCD Pain
	Pain Location Body Map - Child Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart	SCD Pain
	Pain Quality Descriptors (Affective) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a	SCD Pain
	Pain Quality Descriptors (Neuropathic) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Neuropathic Pain Quality 5a	SCD Pain
	Pain Quality Descriptors (Nociceptive) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Nociceptive Pain Quality 5a	SCD Pain
	Pain Quality Descriptors (Sensory) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a	SCD Pain
	Parenting Behavior - Child Alabama Parenting Questionnaire (APQ) Child Form	Pediatric Development
	Parenting Behavior - Parent Alabama Parenting Questionnaire (APQ) Parent Form	Pediatric Development
	Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011	Neurology
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS)	Neurology
	Passive Exposures to Tobacco Products National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2023	Tobacco Regulatory Research: Agent
	Passive Smoke Exposure Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men	Cancer
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)	Cancer Outcomes and Survivorship
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS)	Genomic Medicine Implementation
	Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery	Cancer Outcomes and Survivorship
	Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy	Cancer Outcomes and Survivorship
	Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy	Cancer Outcomes and Survivorship
	Patient Global Impression of Change Patient Global Impression of Change (PGIC)	SCD Pain
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR)	Genomic Medicine Implementation
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS)	Genomic Medicine Implementation
	Patterns of Substance Use - Adolescents Monitoring the Future (MTF), 2015	Assessment of Substance Use and Substance Use Disorders
	Patterns of Substance Use - Adults - Binge-Drinking National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Assessment of Substance Use and Substance Use Disorders
	Peak Expiratory Flow Rate (PEFR) Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005	Respiratory
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS)	SCD Neurology, Quality of Life, and Health Services
	Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire	SCD Core: Tier 2
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module	SCD Neurology, Quality of Life, and Health Services
	Peer and Family Influence on Smoking The International Tobacco Control Policy Evaluation Project (ITC). Youth and Young Adult Tobacco & Vaping Survey, Wave 7 Survey, August 2023	Tobacco Regulatory Research - Host: Social/Cognitive
	Peer Relationships - Proxy Report PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships	Pediatric Development
	Peer Relationships - Self Report PROMIS Pediatric Item Bank v2.0 - Peer Relationships	Pediatric Development
	Peer/Partner Substance Use and Tolerance of Substance Use Monitoring the Future (MTF), 2015	Substance Use-related Psychosocial Risk Factors
	Perceived Availability of Illegal Drugs and Alcohol Monitoring the Future (MTF), 2015	Substance Use-related Community Factors
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey	Genomic Medicine Implementation
	Perceived Effectiveness of Anti-Tobacco Advertising Perceived Effectiveness of Cessation Advertisements study	Tobacco Regulatory Research: Environment
	Perceived Harm of Substance Use The National Survey on Drug Use and Health (NSDUH), 2009-2010	Substance Use-related Community Factors
	Perceived Social Support Conflict Midlife in the United States II (MIDUS II)	Psychosocial
	Perceived Stress Perceived Stress Scale	Psychosocial
	Percent Energy from Fat National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996	Nutrition and Dietary Supplements
	Percent Unionized for Non-Agricultural Labor Force Current Population Survey, Labor Force Items	Structural Social Determinants of Health
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Recovery Self-Assessment (RSA) - Administrator Version	Early Psychosis Clinical Services
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Recovery Self-Assessment (RSA) - Family Member	Early Psychosis Clinical Services
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Recovery Self-Assessment (RSA)	Early Psychosis Clinical Services
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Recovery Self-Assessment (RSA) - Provider version	Early Psychosis Clinical Services
	Perception of Tobacco Product Harm - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Harm - Cigars Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Harm - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Harm - Pipe Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Harm - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018	Smoking Cessation, Harm Reduction and Biomarkers
	Perceptions of Housing Insecurity The Accountable Health Communities (AHC) Health-Related Social Needs (HRSN) Screening Tool	Individual Social Determinants of Health
	Perimenopausal Symptoms The Greene Climacteric Scale	SCD Genitourinary
	Periodontal Disease - Prevalence Hispanic Community Health Study (HCHS), Oral Health Assessment	Oral Health
	Peripheral Arterial Disease Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)	Cardiovascular
	Personal and Family History of Autoimmune and Inflammatory Disorders Lupus Family Registry and Repository (LFRR) Questionnaire, 2007	Infectious Diseases and Immunity
	Personal and Family History of Eye Disease and Treatments University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003	Ocular
	Personal and Family History of Hearing Loss Age-Related Hearing Impairment (ARHI) Questionnaire	Speech, Language and Hearing
	Personal and Family History of Psoriasis Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey	Skin
	Personal and Family History of Respiratory Symptoms/Diseases - Adult American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)	Respiratory
	Personal and Family History of Respiratory Symptoms/Diseases - Child International Study of Asthma and Allergies in Childhood (ISAAC) Manual	Respiratory
	Personal and Family History of Strabismus Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008	Ocular
	Personal Care Products Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire	Environmental Exposures
	Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006	Infectious Diseases and Immunity
	Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008	Gastrointestinal
	Personal History of Kidney Failure Strong Heart Study, Phase IV-Family Study, Medical History Form	Diabetes
	Personal History of Type I and Type II Diabetes Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001	Diabetes
	Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006	Infectious Diseases and Immunity
	Personal Perception and Knowledge of Smoking-related Cancer Risk Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06	Cancer
	Personal Well-being Index - Adult International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013	Early Psychosis Clinical Services
	Personal Well-being index - Child Personal Wellbeing Index-School Children (PWI-SC)	Early Psychosis Clinical Services
	Personality Traits The Big Five Inventory (BFI)	Psychiatric
	Phonological Awareness Syllable Repetition Task (SRT)	Speech, Language and Hearing
	Phonological Inventory Goldman-Fristoe Test of Articulation™, Third Edition (GFTA™-3)	Speech, Language and Hearing
	Physical Activity International Physical Activity Questionnaire (IPAQ-7)	Early Psychosis Clinical Services
	Physical Activity - Neighborhood Environment Physical Activity Neighborhood Environment Survey (PANES)	Individual Social Determinants of Health
	Physical Activity Readiness Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)	Physical Activity and Physical Fitness
	Physical Activity Self-Efficacy - Adolescent PACE Questionnaire, 2001	Physical Activity and Physical Fitness
	Physical Activity Self-Efficacy - Adult McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992	Physical Activity and Physical Fitness
	Physical Functioning - Objective Short Physical Performance Battery	Physical Activity and Physical Fitness
	Physical Functioning - Subjective National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2017-2018	Physical Activity and Physical Fitness
	Physical Mobility - Adult Patient-Reported Outcomes Measurement Information System^® (PROMIS) Item Bank v2.1 - Mobility	SCD Pain
	Physical Mobility - Child Patient-Reported Outcomes Measurement Information System^® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a	SCD Pain
	Physical Mobility - Hospitalized Individuals Youth Acute Pain Functional Ability Questionnaire (YAPFAQ)	SCD Pain
	Physical Properties of Tobacco Products - Cigarettes and Filtered Cigars Massachusetts Benchmark Study (MBS), 1999	Tobacco Regulatory Research: Agent
	Physical Properties of Tobacco Products - Smokeless Tobacco Federal Register Notice, Laboratory measurement, 74 Fed. Reg. 4, Jan. 7, 2009	Tobacco Regulatory Research: Agent
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey	Gastrointestinal
	Point-Prevalence Abstinence from Tobacco Products Program for Lung Cancer Screening and Tobacco Cessation (PLUTO), 2015-2020	Smoking Cessation, Harm Reduction and Biomarkers
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Hemophilia Inhibitor
	Positive and Negative Perfectionism Scale The Positive and Negative Perfectionism Scale (PNPS)	Eating Disorders
	Pre-existing Conditions Associated with Cancer The Nurses Health Study II, 2005	Cancer
	Pre-transfusion Antibody Testing Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)	SCD Curative Therapies
	Pregnancy Status and Tobacco Use Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research - Host: Biobehavioral
	Premorbid Adjustment in Psychosis Modified Cannon-Spoor Premorbid Adjustment Scale (PAS)	Early Psychosis Translational Research
	Prenatal and Postpartum Depression The Edinburgh Postnatal Depression Scale© (EPDS)	Pregnancy
	Presence of Dental Fluorosis National Institute of Dental and Craniofacial Research (NIDCR), Archive of Procedures and Methods Used in Oral Health Surveys, Tooth Surface Index of Fluorosis (TSIF)	Oral Health
	Priapism Impact Priapism Impact Profile (PIP) Questionnaire	SCD Genitourinary
	Professional Dental Care National Health and Nutrition Examination Survey (NHANES), Oral Health Questions, 2019-2020	Oral Health
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning	Genomic Medicine Implementation
	Prolonged Abstinence from Tobacco Products Adjunctive Mood Management for Telephone-based Smoking Cessation in Primary Care, 2016-2019.	Smoking Cessation, Harm Reduction and Biomarkers
	Prolonged Grief Disorder Prolonged Grief Disorder (PG-13-R)	SCD Psychosocial and Social Determinants of Health
	Prophylactic Transfusion during Pregnancy Malinowski AK, et al. Prophylactic transfusion for pregnant women with sickle cell disease: a systematic review and meta-analysis. Blood. 2015 Oakley LL, et al. Serial prophylactic exchange blood transfusion in pregnant women with sickle cell disease (TAPS-2): study protocol for a randomised controlled feasibility trial. Trials. 2020	SCD Pregnancy
	Prostate Symptoms International Prostate Symptom Score (I-PSS)	Reproductive Health
	Prothrombin Time Prothrombin Time (PT), CPT 85610	SCD Curative Therapies
	Psoriatic Arthritis (PsA) - Impact of Disease European Alliance of Associations for Rheumatology (EULAR) Psoriatic Arthritis Impact of Disease: PsAID12 for Clinical Practice	Bone and Joint
	Psoriatic Arthritis (PsA) - Screening Psoriasis Epidemiology Screening Tool (PEST)	Bone and Joint
	Psychiatric Symptoms - Frequency Modified Colorado Symptom Index (CSI)	Early Psychosis Clinical Services
	Psychological Resilience Brief Resilience Scale (BRS)	Geriatrics
	Psychological Resilience - Child The Child and Youth Resilience Measure (CYRM) Child Version	Pediatric Development
	Psychopathy - Adult Triarchic Psychopathy Measure (TriPM)	Psychiatric
	Psychosis Recovery Assessment Questionnaire about the Process of Recovery (QPR)	Early Psychosis Clinical Services
	Psychosocial Assessment of Candidates for Transplantation (PACT) Psychosocial Assessment of Candidates for Transplantation (PACT)	SCD Curative Therapies
	PTSD Screener - DSM 5 The Primary Care-PTSD Screen (PC-PTSD-5)	Post-traumatic Stress Psychopathology (including PTSD)
	PTSD Screener - DSM-IV The Primary Care-PTSD Screen (PC-PTSD-IV)	Post-traumatic Stress Psychopathology (including PTSD)
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-4	Psychiatric
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-5	Psychiatric
	PTSD Symptoms, Self-report - DSM 5 PTSD Checklist for DMS-5 (PCL-5)	Psychiatric
	PTSD Symptoms, Self-report - DSM-IV PTSD Checklist for DSM-4	Psychiatric
	PTSD Symptoms, Severity, and Diagnosis - DSM 5 The Clinician-Administered PTSD Scale (CAPS-5) for The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5)	Post-traumatic Stress Psychopathology (including PTSD)
	PTSD Symptoms, Severity, and Diagnosis - DSM-IV The Clinician-Administered PTSD Scale (CAPS-IV) for The Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV)	Post-traumatic Stress Psychopathology (including PTSD)
	Pulmonary Embolism Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS)	Cardiovascular
	Pulse Oximetry (Exercise) AARC Clinical Practice Guideline: Exercise Testing for Evaluation of Hypoxemia and/or Desaturation: revision & update. Resp Care, 2001	Respiratory
	Pulse Oximetry (Rest) World Health Organization (WHO), Pulse oximetry training manual, 2011	Respiratory
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module	SCD Neurology, Quality of Life, and Health Services
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire	SCD Neurology, Quality of Life, and Health Services
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile	Rare Genetic Conditions
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25	Rare Genetic Conditions
	Quality of Life as Affected by Respiratory Disease St. Georges Respiratory Questionnaire (SGRQ)	Respiratory
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF)	Psychosocial
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)	Psychosocial
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30)	Cancer Outcomes and Survivorship
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV)	Cancer Outcomes and Survivorship
	Quality of the Childs Home Environment Home Observation for Measurement of the Environment (HOME)-revised edition National Longitudinal Study of Youth Children & Young Adults	Pediatric Development
	Questionnaire on Eating and Weight Patterns - Adult The Questionnaire of Eating and Weight Patterns-5 (QEWP-5)©	Eating Disorders
	Questionnaire on Eating and Weight Patterns - Child The Questionnaire on Eating and Weight Patterns (QEWP-C-5)	Eating Disorders
	Race/Ethnic Residential Segregation - American Community Survey American Community Survey (ACS), 5-year estimates	Social Environments
	Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased American Community Survey (ACS), 5-year estimates	Social Environments
	Race/Ethnic Residential Segregation - U.S. Census U.S. Census Bureau, Census, 1990, 2000, 2010	Social Environments
	Racial/Ethnic Discrimination - Recent and Lifetime The General Ethnic Discrimination (GED) Scale	Individual Social Determinants of Health
	Reactions to Loss Reactions to Loss Scale (RTL)	SCD Psychosocial and Social Determinants of Health
	Reading Comprehension Woodcock-Johnson® Tests of Achievement (WJ IV®)	Speech, Language and Hearing
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ)	SCD Neurology, Quality of Life, and Health Services
	Recurrent Priapism Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021	SCD Curative Therapies
	Refractive Error - Adult University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003	Ocular
	Refractive Error - Children The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007	Ocular
	Regret about Healthcare Decisions Decision Regret Scale	Genomic Medicine Implementation
	Relational and Item-Specific Encoding Task (RiSE) Relational and Item-Specific Encoding Task (RiSE)	Early Psychosis Translational Research
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey	Genomic Medicine Implementation
	Religious Behaviors and Congregational Support Brief Multidimensional Measure of Religiousness/Spirituality (BMMRS)	SCD Psychosocial and Social Determinants of Health
	Removal of Female Reproductive Organs National Survey of Family Growth (NSFG), 2011-2013	Reproductive Health
	Reproductive History - Female Womens Interview Study of Health & Pregnancy Risk Assessment Monitoring System (PRAMS), 2009	Reproductive Health
	Reproductive History - Male The Longitudinal Investigation of Fertility & the Environment (LIFE) Study, 2005	Reproductive Health
	Residential Concentrations of Income Index of Concentration at the Extremes (ICE)	Structural Social Determinants of Health
	Residential History Parkinsons Disease, Environment, and Genes Study (PEG Study), 2001	Environmental Exposures
	Resilience Connor-Davidson Resilience Scale (CD-RISC 25)	SCD Psychosocial and Social Determinants of Health
	Respiratory Rate - Adult Potter, P. A., et al. Fundamentals of Nursing, 1985	Respiratory
	Respiratory Rate - Child Wallis, L. A., Healy, et al, Age related reference ranges for respiration rate and heart rate from 4 to 16 years, ARCH DIS CHILD, 2005	Respiratory
	Respiratory Rate - Infant Fleming, S, et al. Normal ranges of heart rate and respiratory rate in children from birth to 18 years of age: A systemic review of observational studies. Lancer, 2011	Respiratory
	Response Inhibition (Go/NoGo Task) Go/NoGo task	Substance Use-related Neurobehavioral and Cognitive Risk Factors
	Reticulocyte Count National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011	SCD Cardiovascular, Pulmonary, and Renal
	Retinal Digital Photography National Heart, Lung and Blood Institute (NHLBI), Multi-Ethnic Study of Atherosclerosis (MESA), 2000-2008	Ocular
	Rheumatic Fever/Rheumatic Heart Disease Health Examination Survey (HES)	Cardiovascular
	Rheumatoid arthritis disease activity Clinical Disease Activity Index (CDAI)	Bone and Joint
	Scale of Developmental Domains of Early Childhood Mullen Scales of Early Learning	Rare Genetic Conditions
	School and Work Attendance - Adult Work Productivity and Activity Impairment Questionnaire (WPAI), General Health (WPAI:GH), V2.0	Hemophilia Inhibitor
	School Attendance - Child National Survey of Childrens Health (NSCH), 2016	Hemophilia Inhibitor
	School Risk and Protective Factors Substance Abuse and Mental Health Services Administration (SAMHSA), Communities That Care (CTC) & Seattle Social Development Project (SSDP) longitudinal study	Substance Use-related Psychosocial Risk Factors
	School Social Environment Aullig, K., et al. School climate: Historical review, instrument development, and school assessment. J. Psychoeduc. Assess, 2010	Social Environments
	Scoliosis - Physical Assessment Adams forward bend test & x-ray with Cobb technique	Rare Genetic Conditions
	Scoliosis - Quality of Life Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005	Rare Genetic Conditions
	Screening and Severity of Substance Use Problems - Adolescents Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD)	SCD Neurology, Quality of Life, and Health Services
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime Brief Michigan Alcoholism Screening Test (Brief MAST)	SCD Neurology, Quality of Life, and Health Services
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months Alcohol Use Disorders Identification Test (AUDIT)	SCD Neurology, Quality of Life, and Health Services
	Screening and Severity of Substance Use Problems - Adults - Drugs Drug Abuse Screening Test (DAST-10)	SCD Neurology, Quality of Life, and Health Services
	Selenium National Center for Environmental Health (NCEH), Laboratory Procedure Manual, 2004	Nutrition and Dietary Supplements
	Self-Efficacy for Not Smoking Smoking Self-Efficacy Questionnaire (SEQ-12)	Smoking Cessation, Harm Reduction and Biomarkers
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES)	SCD Neurology, Quality of Life, and Health Services
	Self-esteem The Rosenberg Self-Esteem Scale	Psychosocial
	Self-Help Involvement Global Appraisal of Individual Needs (GAIN), Self-Help Involvement Scale (SHIS)	Substance Use-related Co-morbidities and Health-related Outcomes
	Self-report of Human Immunodeficiency Virus (HIV) Testing National HIV Behavioral Surveillance System (NHBS), 2010	Substance Abuse and Addiction Core: Tier 1
	Self-reported Craving - General National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Tobacco Regulatory Research Core: Tier 2
	Self-reported Craving - Specific - Alcohol Alcohol Urge Questionnaire (AUQ)	Tobacco Regulatory Research Core: Tier 2
	Self-reported Craving - Specific - Cocaine Cocaine Craving Questionnaire-Brief (CCQ-Brief)	Tobacco Regulatory Research Core: Tier 2
	Self-reported Craving - Specific - Heroin Heroin Craving Questionnaire - Short Form 14 (HCQ-SF-14)	Tobacco Regulatory Research Core: Tier 2
	Self-reported Craving - Specific - Marijuana Marijuana Craving Questionnaire - Short Form (MCQ-SF)	Tobacco Regulatory Research Core: Tier 2
	Self-reported Craving - Specific - Tobacco Brief Questionnaire of Smoking Urges (QSU-Brief)	Tobacco Regulatory Research Core: Tier 2
	Self-reported Exposure to and Use of Price Promotions for Tobacco Products Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview and Final Youth Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Exposure to Tobacco Advertising at Point of Sale Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview and Final Youth Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Exposure to Tobacco Product Advertisements Population Assessment of Tobacco and Health (PATH), Adult Extended Questionnaire, Version 7.5 & International Tobacco Control 4-Country Survey, 2011	Tobacco Regulatory Research: Vector
	Self-reported Exposure to Tobacco Product Sponsorships Global Adult Tobacco Survey (GATS), Core Questionnaire with Optional Questions, 2020	Tobacco Regulatory Research: Vector
	Self-Reported General Health Status National Health Interview Survey (NHIS), Family - Family Identification, 2014	Tobacco Regulatory Research Core: Tier 2
	Self-reported Tobacco Product Price Paid - Cigarettes Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Price Paid - Cigars Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Price Paid - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Price Paid - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Purchase Location - Cigarettes Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Purchase Location - Cigars Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Purchase Location - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Purchase Location - Hookah Tobacco Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Purchase Location - Pipe Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Self-reported Tobacco Product Purchase Location - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research: Vector
	Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ) Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ)	Substance Use-related Psychosocial Risk Factors
	Sensitivity to Reward and Punishment - Adolescent and Adult Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale	Substance Use-related Psychosocial Risk Factors
	Sensitivity to Reward and Punishment - Child Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale - child version	Substance Use-related Psychosocial Risk Factors
	Serial Pregnancy Weight - Weights Abstracted from Prenatal Charts American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C	Anthropometrics
	Serial Pregnancy Weight - Weights Measured During Gestation American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C	Anthropometrics
	Serum Creatinine - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007	Diabetes
	Serum or Plasma Ferritin National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010	SCD Cardiovascular, Pulmonary, and Renal
	Service Utilization and Cost Global Appraisal of Individual Needs (GAIN)	SCD Neurology, Quality of Life, and Health Services
	Sex Assigned at Birth All of Us Research Program, Participant Provided Information (PPI), 2018	Demographics
	Sexual Function and Satisfaction - Female PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Female)	SCD Genitourinary
	Sexual Function and Satisfaction - Male PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male)	SCD Genitourinary
	Sexual Orientation All of Us Research Program, Participant Provided Information (PPI), 2018	Demographics
	Sexual Risk Behavior - Female National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2015-2016	Reproductive Health
	Sexual Risk Behavior - Male National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2015-2016	Reproductive Health
	Shared Decision Making in Clinical Encounters CollaboRATE	Early Psychosis Clinical Services
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results	Genomic Medicine Implementation
	Sickle Cell Disease Health-Related External Stigma - Adolescent and Adult Sickle Cell Disease Health-Related Stigma Scale Short Form (SCD-HRSS-SF)	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Health-Related Internal Stigma - Adolescent and Adult Measure of Sickle Cell Stigma (MoSCS)	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Health-Related Stigma - Child Child Stigma Scale (CSS)	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Pain Associated with Menstruation Sharma et al. Acute vaso-occlusive pain is temporally associated with the onset of menstruation in women with sickle cell disease. J Women’s Health (Larchmt), 2019. Demographic survey.	SCD Genitourinary
	Sickle Cell Disease Pain Associated with Menstruation - Quality of Life Modified version of the Sickle Cell Disease Pain Burden Interview-Youth (SCPBI-Y)	SCD Genitourinary
	Sickle Cell Disease Pain Location Body Map - Adult Sickle Cell Pain Diary	SCD Pain
	Sickle Cell Disease Responses to Stress - Parent Report Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC), Parent Report version	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Responses to Stress - Youth Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC)	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Self-Management - Adolescent Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Teens	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Self-Management - Caregiver Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Caregivers	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Stem Cell Source and Cell Manipulation Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021	SCD Curative Therapies
	Sickle Cell Disease Transition Readiness Assessment Sickle Cell Transition Intervention Program - Readiness for Transition (TIP-RFT)	SCD Psychosocial and Social Determinants of Health
	Sickle Cell Disease Transplant Conditioning Regimen Cure Sickle Cell Initiative (CureSCi) Transplant Conditioning Case Report Form (CRF)	SCD Curative Therapies
	Sickle Cell Pain Burden Interview Sickle Cell Pain Burden Interview (SCPBI)	SCD Pain
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale	Neurology
	Sitting-Sedentary Behavior - Adolescent Adolescent Sedentary Activity Questionnaire (ASAQ)	Physical Activity and Physical Fitness
	Sitting-Sedentary Behavior - Adult Marshall, A. Leat al, Measuring total and domain-specific sitting: A study of reliability and validity, MED SCI SPORT EXER, 2010	Physical Activity and Physical Fitness
	Skin Cancer Quereux, G., et al. Creation and test of a questionnaire for self-assessment of melanoma risk factors. EUR J CANCER PREV, 2010	Skin
	Sleep Apnea - Adult Berlin Questionnaire	Respiratory
	Sleep Apnea - Child The Pediatric Sleep Questionnaire (PSQ), Version 070424	Respiratory
	Sleep Disorders Screener National Institute of Mental Health (NIMH), Sleep Patterns and Problems	Psychiatric
	Sleep Disorders Screener - Children The Sleep Disturbance Scale for Children (SDSC)	Psychiatric
	Smell and Taste National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013	Geriatrics
	Smoking Quit Attempts Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06	Cancer
	Social and Role Dysfunction in Psychosis and Schizophrenia Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007	Early Psychosis Clinical Services
	Social Capital The Position Generator	Psychosocial
	Social Isolation UCLA Loneliness Scale	Psychosocial
	Social Networks Indianapolis Network Mental Health Study (INMHS), 1990-1991	Social Environments
	Social Norms about Tobacco - Adult Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7	Tobacco Regulatory Research: Environment
	Social Norms about Tobacco - Youth Population Assessment of Tobacco and Health (PATH) Study, Wave 7, Youth Survey	Tobacco Regulatory Research: Environment
	Social Support The Medical Outcomes Study (MOS) Social Support Survey	Post-traumatic Stress Psychopathology (including PTSD)
	Social Support for Quitting Smoking Partner Interaction Questionnaire (PIQ-20)	Smoking Cessation, Harm Reduction and Biomarkers
	Social Vulnerability Social Vulnerability Index (SVI)	Structural Social Determinants of Health
	Sodium Pan American Health Organization (PAHO), Regional Expert Group for Cardiovascular Disease Prevention through Population-wide Dietary Salt Reduction, (2010)	Nutrition and Dietary Supplements
	Spatial Reasoning - Adolescents and Adults Wechsler Adult Intelligence Scale®, Block Design Test, Fourth Edition (WAIS®-IV)	Neurology
	Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry Framingham Osteoporosis Study, Generation 3, Musculoskeletal Exam	Bone and Joint
	Spirituality World Health Organization’s Quality of Life Measure (WHOQOL) Spirituality, Religion and Personal Beliefs (SRPB)	Individual Social Determinants of Health
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4))	Cancer Outcomes and Survivorship
	Spirometry - Adult Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005	Respiratory
	Spirometry - Child Beydon, N., et al, An official American Thoracic Society/European Respiratory Society statement: Pulmonary function testing in preschool children, AM J RESP CRIT CARE, 2007	Respiratory
	Standardized Tobacco Assessment for Retail Settings Standardized Tobacco Assessment for Retail Settings (STARS), Version 1.0	Tobacco Regulatory Research: Vector
	Standardized Tobacco Assessment for Retail Settings - Flavored Tobacco Standardized Tobacco Assessment for Retail Settings - Flavored Tobacco (fSTARS) Version 2.0	Tobacco Regulatory Research: Vector
	State Tobacco Control Public Policies State Tobacco Activities Tracking and Evaluation (STATE) System	Tobacco Regulatory Research: Environment
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS)	SCD Neurology, Quality of Life, and Health Services
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography	SCD Neurology, Quality of Life, and Health Services
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography	SCD Neurology, Quality of Life, and Health Services
	Stuttering The Stuttering Severity Instrument-Fourth Edition (SSI-4)	Speech, Language and Hearing
	Substance Abuse and Dependence - Past Year - Alcohol National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Assessment of Substance Use and Substance Use Disorders
	Substance Abuse and Dependence - Past Year - Drugs National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Behaviors and Risks
	Substance Abuse and Dependence - Past Year - Tobacco National Epidemiologic Survey on Alcohol and Related Conditions (NESARC-WAVE 1), AUDADIS-IV	Assessment of Substance Use and Substance Use Disorders
	Substance Abuse Treatment Quality National Committee for Quality Assurance (NCQA) Quality Compass Tool	Substance Use-related Community Factors
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015	Alcohol, Tobacco and Other Substances
	Substances - Age of First Use National Survey on Drug Use and Health (NSDUH), 2015	Alcohol, Tobacco and Other Substances
	Substances - Lifetime Abuse and Dependence National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Substances - Lifetime Use National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Sudden Cardiac Arrest Atherosclerosis Risk in Communities (ARIC), Physician Questionnaire & Multi-Ethnic Study of Atherosclerosis (MESA), Mortality Review Form	Cardiovascular
	Sugar Intake (Added) National Cancer Institute (NCI) Five-Factor Screener, 2005	Nutrition and Dietary Supplements
	Suicidal Intent of Suicide Attempts The Suicide Intent Scale (SIS)	Suicide
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34)	Cancer Outcomes and Survivorship
	Susceptibility to Tobacco Products Population Assessment of Tobacco and Health (PATH) Study: Final Youth Interview, Wave 7 (January 2022 - December 2022)	Tobacco Regulatory Research - Host: Social/Cognitive
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™)	SCD Neurology, Quality of Life, and Health Services
	Sweat Chloride Test LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007	Rare Genetic Conditions
	Symptoms of Autism Spectrum Disorders - Adolescent Symptoms of Autism Spectrum Disorders - Adolescent	Psychiatric
	Symptoms of Autism Spectrum Disorders - Adult The Autism Spectrum Quotient - Adult Version	Psychiatric
	Symptoms of Autism Spectrum Disorders - Child The Childhood Autism Spectrum Test (CAST)	Psychiatric
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale	Neurology
	Syphilis - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007	Infectious Diseases and Immunity
	Systemic Lupus Erythematosus Damage Index for Systemic Lupus Erythematosus Arthritis	Bone and Joint

Protocols

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Pain - Body Map Michigan Body Map (MBM)

Pain Catastrophizing - Adult Pain Catastrophizing Scale

Pain Catastrophizing - Child Pain Catastrophizing Scale - Child Version (PCS-C)

Pain Catastrophizing - Parent Proxy Pain Catastrophizing Scale - Parent Version (PCS-P)

Pain Coping - Adult Coping Strategies Questionnaire

Pain Coping - Child Pain Coping Questionnaire - Short Form

Pain Intensity - Adolescent and Adult Patient-Reported Outcomes Measurement Information System (PROMIS®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a

Pain Intensity - Child Faces Pain Scale-Revised (FPS-R)

Pain Intensity - Toddler Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool

Pain Interference - Adult Patient-Reported Outcomes Measurement Information System (PROMIS®) Item Bank v1.1 - Pain Interference - Short Form 8a

Pain Interference - Child Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a

Pain Interference - Parent Proxy Patient-Reported Outcome Measurement Information System (PROMIS®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a

Pain Location Body Map - Child Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart

Pain Quality Descriptors (Affective) - Children Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a

Pain Quality Descriptors (Neuropathic) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS®) Scale v2.0 - Neuropathic Pain Quality 5a

Pain Quality Descriptors (Nociceptive) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS®) Scale v2.0 - Nociceptive Pain Quality 5a

Pain Quality Descriptors (Sensory) - Children Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a

Parenting Behavior - Child Alabama Parenting Questionnaire (APQ) Child Form

Parenting Behavior - Parent Alabama Parenting Questionnaire (APQ) Parent Form

Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011

Parkinsons Disease Symptoms Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS)

Passive Exposures to Tobacco Products National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2023

Passive Smoke Exposure Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men

Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)

Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS)

Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery

Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy

Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy

Patient Global Impression of Change Patient Global Impression of Change (PGIC)

Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR)

Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS)

Patterns of Substance Use - Adolescents Monitoring the Future (MTF), 2015

Patterns of Substance Use - Adults - Binge-Drinking National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Peak Expiratory Flow Rate (PEFR) Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005

Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS)

Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire

PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module

Peer and Family Influence on Smoking The International Tobacco Control Policy Evaluation Project (ITC). Youth and Young Adult Tobacco & Vaping Survey, Wave 7 Survey, August 2023

Peer Relationships - Proxy Report PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships

Peer Relationships - Self Report PROMIS Pediatric Item Bank v2.0 - Peer Relationships

Peer/Partner Substance Use and Tolerance of Substance Use Monitoring the Future (MTF), 2015

Perceived Availability of Illegal Drugs and Alcohol Monitoring the Future (MTF), 2015

Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey

Perceived Effectiveness of Anti-Tobacco Advertising Perceived Effectiveness of Cessation Advertisements study

Perceived Harm of Substance Use The National Survey on Drug Use and Health (NSDUH), 2009-2010

Perceived Social Support Conflict Midlife in the United States II (MIDUS II)

Perceived Stress Perceived Stress Scale

Percent Energy from Fat National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996

Percent Unionized for Non-Agricultural Labor Force Current Population Survey, Labor Force Items

Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Recovery Self-Assessment (RSA) - Administrator Version

Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Recovery Self-Assessment (RSA) - Family Member

Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Recovery Self-Assessment (RSA)

Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Recovery Self-Assessment (RSA) - Provider version

Perception of Tobacco Product Harm - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018

Perception of Tobacco Product Harm - Cigars Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Perception of Tobacco Product Harm - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Harm - Pipe Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Harm - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Perceptions of Housing Insecurity The Accountable Health Communities (AHC) Health-Related Social Needs (HRSN) Screening Tool

Perimenopausal Symptoms The Greene Climacteric Scale

Periodontal Disease - Prevalence Hispanic Community Health Study (HCHS), Oral Health Assessment

Peripheral Arterial Disease Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)

Personal and Family History of Autoimmune and Inflammatory Disorders Lupus Family Registry and Repository (LFRR) Questionnaire, 2007

Personal and Family History of Eye Disease and Treatments University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003

Personal and Family History of Hearing Loss Age-Related Hearing Impairment (ARHI) Questionnaire

Personal and Family History of Psoriasis Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey

Personal and Family History of Respiratory Symptoms/Diseases - Adult American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)

Personal and Family History of Respiratory Symptoms/Diseases - Child International Study of Asthma and Allergies in Childhood (ISAAC) Manual

Personal and Family History of Strabismus Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008

Personal Care Products Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire

Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006

Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008

Personal History of Kidney Failure Strong Heart Study, Phase IV-Family Study, Medical History Form

Pain - Body Map
Michigan Body Map (MBM)

Pain Catastrophizing - Adult
Pain Catastrophizing Scale

Pain Catastrophizing - Child
Pain Catastrophizing Scale - Child Version (PCS-C)

Pain Catastrophizing - Parent Proxy
Pain Catastrophizing Scale - Parent Version (PCS-P)

Pain Coping - Adult
Coping Strategies Questionnaire

Pain Coping - Child
Pain Coping Questionnaire - Short Form

Pain Intensity - Adolescent and Adult
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a

Pain Intensity - Child
Faces Pain Scale-Revised (FPS-R)

Pain Intensity - Toddler
Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool

Pain Interference - Adult
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Item Bank v1.1 - Pain Interference - Short Form 8a

Pain Interference - Child
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a

Pain Interference - Parent Proxy
Patient-Reported Outcome Measurement Information System (PROMIS^®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a

Pain Location Body Map - Child
Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart

Pain Quality Descriptors (Affective) - Children
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a

Pain Quality Descriptors (Neuropathic) - Adult
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Neuropathic Pain Quality 5a

Pain Quality Descriptors (Nociceptive) - Adult
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Nociceptive Pain Quality 5a

Pain Quality Descriptors (Sensory) - Children
Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a

Parenting Behavior - Child
Alabama Parenting Questionnaire (APQ) Child Form

Parenting Behavior - Parent
Alabama Parenting Questionnaire (APQ) Parent Form

Parkinsons Disease Screener - Questionnaire
National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011

Parkinsons Disease Symptoms
Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS)

Passive Exposures to Tobacco Products
National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2023

Passive Smoke Exposure
Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men

Patient Centered Communication - Cancer
Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)

Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS)
Genomics Outcome Scale (GOS)

Patient Experience with Cancer Care - Cancer Surgery
Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery

Patient Experience with Cancer Care - Drug Therapy
Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy

Patient Experience with Cancer Care - Radiation Therapy
Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy

Patient Global Impression of Change
Patient Global Impression of Change (PGIC)

Patient Response to Genetic Testing
Feelings About genomiC Testing Results (FACToR)

Patient Satisfaction with Genetic Counseling
Genetic Counseling Satisfaction Scale (GCSS)

Patterns of Substance Use - Adolescents
Monitoring the Future (MTF), 2015

Patterns of Substance Use - Adults - Binge-Drinking
National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Peak Expiratory Flow Rate (PEFR)
Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005

Pediatric NIH Stroke Scale (PedNIHSS)
Pediatric National Institutes of Health Stroke Scale (PedNIHSS)

Pediatric School Performance
Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire

PedsQL Sickle Cell Disease Module
The PedsQL Sickle Cell Disease Module

Peer and Family Influence on Smoking
The International Tobacco Control Policy Evaluation Project (ITC). Youth and Young Adult Tobacco & Vaping Survey, Wave 7 Survey, August 2023

Peer Relationships - Proxy Report
PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships

Peer Relationships - Self Report
PROMIS Pediatric Item Bank v2.0 - Peer Relationships

Peer/Partner Substance Use and Tolerance of Substance Use
Monitoring the Future (MTF), 2015

Perceived Availability of Illegal Drugs and Alcohol
Monitoring the Future (MTF), 2015

Perceived Compatibility with Current Clinical Practice
Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey

Perceived Effectiveness of Anti-Tobacco Advertising
Perceived Effectiveness of Cessation Advertisements study

Perceived Harm of Substance Use
The National Survey on Drug Use and Health (NSDUH), 2009-2010

Perceived Social Support Conflict
Midlife in the United States II (MIDUS II)

Perceived Stress
Perceived Stress Scale

Percent Energy from Fat
National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996

Percent Unionized for Non-Agricultural Labor Force
Current Population Survey, Labor Force Items

Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator
Recovery Self-Assessment (RSA) - Administrator Version

Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member
Recovery Self-Assessment (RSA) - Family Member

Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version
Recovery Self-Assessment (RSA)

Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version
Recovery Self-Assessment (RSA) - Provider version

Perception of Tobacco Product Harm - Cigarettes
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018

Perception of Tobacco Product Harm - Cigars
Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Perception of Tobacco Product Harm - E-Cigarettes
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Harm - Pipe Tobacco
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Harm - Smokeless Tobacco
Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Perceptions of Housing Insecurity
The Accountable Health Communities (AHC) Health-Related Social Needs (HRSN) Screening Tool

Perimenopausal Symptoms
The Greene Climacteric Scale

Periodontal Disease - Prevalence
Hispanic Community Health Study (HCHS), Oral Health Assessment

Peripheral Arterial Disease
Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)

Personal and Family History of Autoimmune and Inflammatory Disorders
Lupus Family Registry and Repository (LFRR) Questionnaire, 2007

Personal and Family History of Eye Disease and Treatments
University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003

Personal and Family History of Hearing Loss
Age-Related Hearing Impairment (ARHI) Questionnaire

Personal and Family History of Psoriasis
Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey

Personal and Family History of Respiratory Symptoms/Diseases - Adult
American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)

Personal and Family History of Respiratory Symptoms/Diseases - Child
International Study of Asthma and Allergies in Childhood (ISAAC) Manual

Personal and Family History of Strabismus
Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008

Personal Care Products
Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire

Personal History of Allergies, Infectious Diseases, and Immunizations - Adult
My Personal Health Record (MyPHR), Adult PHR Form, 2006

Personal History of Gastrointestinal Conditions
National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008

Personal History of Kidney Failure
Strong Heart Study, Phase IV-Family Study, Medical History Form