Protocols

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	PhenX Protocol	Domain/Collection
	Pain Brief Pain Inventory©(BPI), Short Form	Skin, Bone, Muscle and Joint
	Parenting Style - Child Alabama Parenting Questionnaire (APQ) Child Form	Pediatric Development
	Parenting Style - Parent Alabama Parenting Questionnaire (APQ) Parent Form	Pediatric Development
	Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011	Neurology
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)	Neurology
	Passive Exposures to Tobacco Products National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2009-2010	Tobacco Regulatory Research
	Passive Smoke Exposure Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men	Cancer
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)	Cancer Outcomes and Survivorship
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS)	Genomic Medicine Implementation
	Patient Experience with Cancer Care - Cancer Surgery CAHPS® Cancer Care Survey, Version: Cancer surgery	Cancer Outcomes and Survivorship
	Patient Experience with Cancer Care - Drug Therapy CAHPS® Cancer Care Survey, Version: Drug Therapy	Cancer Outcomes and Survivorship
	Patient Experience with Cancer Care - Radiation Therapy CAHPS® Cancer Care Survey, Version: Radiation Therapy	Cancer Outcomes and Survivorship
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR)	Genomic Medicine Implementation
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS)	Genomic Medicine Implementation
	Patterns of Substance Use - Adolescents Monitoring the Future (MTF), 2015	Substance Abuse and Addiction
	Patterns of Substance Use - Adults - Binge-Drinking National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Substance Abuse and Addiction
	Peak Expiratory Flow Rate (PEFR) Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005	Respiratory
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS)	Blood Sciences Research
	Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire	Blood Sciences Research
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module	Blood Sciences Research
	Peer and Family Influence on Smoking The Pierce 5-item National Cancer Institute (NCI) measure for Youth Tobacco Research	Tobacco Regulatory Research
	Peer Relationships - Proxy Report PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships	Pediatric Development
	Peer Relationships - Self Report PROMIS© (Patient-Reported Outcomes Measurement Information System) Pediatric Item Bank v2.0 - Peer Relationships	Pediatric Development
	Peer/Partner Substance Use and Tolerance of Substance Use Monitoring the Future (MTF), 2015	Substance Abuse and Addiction
	Perceived Availability of Illegal Drugs and Alcohol Monitoring the Future (MTF), 2015	Substance Abuse and Addiction
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey	Genomic Medicine Implementation
	Perceived Effectiveness of Anti-Tobacco Advertising Perceived Effectiveness of Cessation Advertisements study	Tobacco Regulatory Research
	Perceived Harm of Substance Use The National Survey on Drug Use and Health (NSDUH), 2009-2010	Substance Abuse and Addiction
	Perceived Social Support Conflict Midlife in the United States II (MIDUS II)	Psychosocial
	Perceived Stress Perceived Stress Scale	Psychosocial
	Percent Energy from Fat National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996	Nutrition and Dietary Supplements
	Percent Unionized for Non-Agricultural Labor Force Current Population Survey, Labor Force Items	Social Determinants of Health
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Recovery Self-Assessment (RSA) - Administrator Version	Mental Health Research
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Recovery Self-Assessment (RSA) - Family Member	Mental Health Research
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Recovery Self-Assessment (RSA)	Mental Health Research
	Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Recovery Self-Assessment (RSA) - Provider version	Mental Health Research
	Perception of Tobacco Product Risk - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Risk - Cigars Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Risk - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Risk - Pipe Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016	Smoking Cessation, Harm Reduction and Biomarkers
	Perception of Tobacco Product Risk - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018	Smoking Cessation, Harm Reduction and Biomarkers
	Periodontal Disease - Prevalence Hispanic Community Health Study (HCHS), Oral Health Assessment	Oral Health
	Peripheral Arterial Disease Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)	Cardiovascular
	Personal and Family History of Autoimmune and Inflammatory Disorders Lupus Family Registry and Repository (LFRR) Questionnaire, 2007	Infectious Diseases and Immunity
	Personal and Family History of Eye Disease and Treatments University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003	Ocular
	Personal and Family History of Hearing Loss Age-Related Hearing Impairment (ARHI) Questionnaire	Speech, Language and Hearing
	Personal and Family History of Psoriasis Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey	Skin, Bone, Muscle and Joint
	Personal and Family History of Respiratory Symptoms/Diseases - Adult American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)	Respiratory
	Personal and Family History of Respiratory Symptoms/Diseases - Child International Study of Asthma and Allergies in Childhood (ISAAC) Manual	Respiratory
	Personal and Family History of Strabismus Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008	Ocular
	Personal Care Products Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire	Environmental Exposures
	Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006	Infectious Diseases and Immunity
	Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008	Gastrointestinal
	Personal History of Kidney Failure Strong Heart Study, Phase IV-Family Study, Medical History Form	Diabetes
	Personal History of Type I and Type II Diabetes Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001	Diabetes
	Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006	Infectious Diseases and Immunity
	Personal Perception and Knowledge of Smoking-related Cancer Risk Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06	Cancer
	Personal Well-being Index - Adult International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013	Mental Health Research
	Personal Well-being index - Child Personal Wellbeing Index-School Children (PWI-SC)	Mental Health Research
	Personality Traits The Big Five Inventory (BFI)	Psychiatric
	Phonological Awareness Syllable Repetition Task (SRT)	Speech, Language and Hearing
	Phonological Inventory Goldman-Fristoe Test of Articulation, Third Edition (GFTA™-3)	Speech, Language and Hearing
	Physical Activity International Physical Activity Questionnaire (IPAQ-7)	Mental Health Research
	Physical Activity - Neighborhood Environment Sallis, J.F., Neighborhood environments and physical activity among adults in 11 countries. AM J PREV MED, 2009	Physical Activity and Physical Fitness
	Physical Activity Readiness Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)	Physical Activity and Physical Fitness
	Physical Activity Self-Efficacy - Adolescent PACE Questionnaire, 2001	Physical Activity and Physical Fitness
	Physical Activity Self-Efficacy - Adult McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992	Physical Activity and Physical Fitness
	Physical Functioning - Objective Short Physical Performance Battery	Physical Activity and Physical Fitness
	Physical Functioning - Subjective National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2005-2006	Physical Activity and Physical Fitness
	Physical Properties of Tobacco Products - Cigarettes and Filtered Cigars Massachusetts Benchmark Study (MBS), 1999	Tobacco Regulatory Research
	Physical Properties of Tobacco Products - Smokeless Tobacco Federal Register Notice, Laboratory measurement, 74 Fed. Reg. 4, Jan. 7, 2009	Tobacco Regulatory Research
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey	Gastrointestinal
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Extended Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using Chromogenic Substrate Assay - Standard Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Extended Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor IX Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Population-based Pharmacokinetic Study Using One-stage Clotting Factor Assay - Standard Half-life Factor VIII Products Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017	Blood Sciences Research
	Positive and Negative Perfectionism Scale The Positive and Negative Perfectionism Scale (PNPS)	Mental Health Research
	Pre-existing Conditions Associated with Cancer The Nurses Health Study II, 2005	Cancer
	Pre-transfusion Antibody Testing Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)	Blood Sciences Research
	Pregnancy Status - Mother and Baby Health Pregnancy Risk Assessment Monitoring System (PRAMS), 2009	Tobacco Regulatory Research
	Pregnancy Status and Tobacco Use Population Assessment of Tobacco and Health (PATH) Study, Baseline Adult Extended Interview	Tobacco Regulatory Research
	Premorbid Adjustment in Psychosis Modified Cannon-Spoor Premorbid Adjustment Scale (PAS)	Mental Health Research
	Prenatal and Postpartum Depression The Edinburgh Postnatal Depression Scale© (EPDS)	Pregnancy
	Presence of Dental Fluorosis National Institute of Dental and Craniofacial Research (NIDCR), Archive of Procedures and Methods Used in Oral Health Surveys, Tooth Surface Index of Fluorosis (TSIF)	Oral Health
	Professional Dental Care National Health and Nutrition Examination Survey (NHANES), Oral Health Questions, 2003-2004	Oral Health
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning	Genomic Medicine Implementation
	Prostate Symptoms International Prostate Symptom Score (I-PSS)	Reproductive Health
	Prothrombin Time Prothrombin Time (PT), CPT 85610	Blood Sciences Research
	Psychiatric Symptoms - Frequency Modified Colorado Symptom Index (CSI)	Mental Health Research
	Psychological Resilience Brief Resilience Scale (BRS)	Geriatrics
	Psychological Resilience - Child The Child and Youth Resilience Measure (CYRM) Child Version	Pediatric Development
	Psychological Symptomatology of Children - Ages 1.5 - 5 Child Behavior Checklist for Ages 1 ½ - 5	Pediatric Development
	Psychological Symptomology of Parents/Caregivers Achenbach System of Empirically Based Assessment (ASEBA) - Adult Self Report (ASR) and Adult Behavior Checklist (ABCL)	Pediatric Development
	Psychology Symptomatology of Children - Ages 6-18 (School age) Child Behavior Checklist for Ages 6-18	Pediatric Development
	Psychopathy - Adult Triarchic Psychopathy Measure (TriPM)	Psychiatric
	Psychosis Recovery Assessment Questionnaire about the Process of Recovery (QPR)	Mental Health Research
	Psychosocial Assessment of Candidates for Transplantation (PACT) Psychosocial Assessment of Candidates for Transplantation (PACT)	Blood Sciences Research
	PTSD Screener - DSM 5 The Primary Care-PTSD Screen (PC-PTSD-5)	Mental Health Research
	PTSD Screener - DSM-IV The Primary Care-PTSD Screen (PC-PTSD-IV)	Mental Health Research
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-4 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-4	Psychiatric
	PTSD Symptoms and Diagnosis in Children and Adolescents - DSM-5 University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-5	Psychiatric
	PTSD Symptoms, Self-report - DSM 5 PTSD Checklist for DMS-5 (PCL-5)	Psychiatric
	PTSD Symptoms, Self-report - DSM-IV PTSD Checklist for DSM-4	Psychiatric
	PTSD Symptoms, Severity, and Diagnosis - DSM 5 The Clinician-Administered PTSD Scale (CAPS-5) for The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5)	Mental Health Research
	PTSD Symptoms, Severity, and Diagnosis - DSM-IV The Clinician-Administered PTSD Scale (CAPS-IV) for The Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV)	Mental Health Research
	Pulmonary Embolism Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS)	Cardiovascular
	Pulse Oximetry (Exercise) AARC Clinical Practice Guideline: Exercise Testing for Evaluation of Hypoxemia and/or Desaturation: revision & update. Resp Care, 2001	Respiratory
	Pulse Oximetry (Rest) World Health Organization (WHO), Pulse oximetry training manual, 2011	Respiratory
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module	Blood Sciences Research
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire	Blood Sciences Research
	Quality of Communication about Smoking Hiemstra, M., et al. Smoking-specific parenting and smoking onset in adolescence: The role of genes from the Dopaminergic system (DRD2, DRD4, DAT1 genotypes). PLOS ONE, 2013	Tobacco Regulatory Research
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile	Rare Genetic Conditions
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25	Rare Genetic Conditions
	Quality of Life as Affected by Respiratory Disease St. George’s Respiratory Questionnaire (SGRQ)	Respiratory
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF)	Psychosocial
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)	Psychosocial
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30)	Cancer Outcomes and Survivorship
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV)	Cancer Outcomes and Survivorship
	Quality of the Childs Home Environment Home Observation for Measurement of the Environment (HOME)-revised edition National Longitudinal Study of Youth Children & Young Adults	Pediatric Development
	Questionnaire on Eating and Weight Patterns - Adult The Questionnaire of Eating and Weight Patterns-5 (QEWP-5)	Mental Health Research
	Questionnaire on Eating and Weight Patterns - Child The Questionnaire on Eating and Weight Patterns (QEWP-C-5)	Mental Health Research
	Race/Ethnic Residential Segregation - American Community Survey American Community Survey (ACS), 5-year estimates	Social Environments
	Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased American Community Survey (ACS), 5-year estimates	Social Environments
	Race/Ethnic Residential Segregation - U.S. Census U.S. Census Bureau, Census, 1990, 2000, 2010	Social Environments
	Reading Comprehension Woodcock-Johnson® Tests of Achievement (WJ IV®)	Speech, Language and Hearing
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ)	Blood Sciences Research
	Recurrent Priapism Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021	Blood Sciences Research
	Refractive Error - Adult University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003	Ocular
	Refractive Error - Children The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007	Ocular
	Regret about Healthcare Decisions Decision Regret Scale	Genomic Medicine Implementation
	Relational and Item-Specific Encoding Task (RiSE) Relational and Item-Specific Encoding Task (RiSE)	Mental Health Research
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey	Genomic Medicine Implementation
	Removal of Female Reproductive Organs National Survey of Family Growth (NSFG), 2011-2013	Reproductive Health
	Reproductive History - Female Women’s Interview Study of Health & Pregnancy Risk Assessment Monitoring System (PRAMS), 2009	Reproductive Health
	Reproductive History - Male The Longitudinal Investigation of Fertility & the Environment (LIFE) Study, 2005	Reproductive Health
	Residential History Parkinson’s Disease, Environment, and Genes Study (PEG Study), 2001	Environmental Exposures
	Respiratory Rate - Adult Potter, P. A., et al. Fundamentals of Nursing, 1985	Respiratory
	Respiratory Rate - Child Wallis, L. A., Healy, et al, Age related reference ranges for respiration rate and heart rate from 4 to 16 years, ARCH DIS CHILD, 2005	Respiratory
	Respiratory Rate - Infant Fleming, S, et al. Normal ranges of heart rate and respiratory rate in children from birth to 18 years of age: A systemic review of observational studies. Lancer, 2011	Respiratory
	Response Inhibition (Go/NoGo Task) Go/NoGo task	Substance Abuse and Addiction
	Reticulocyte Count National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011	Blood Sciences Research
	Retinal Digital Photography National Heart, Lung and Blood Institute (NHLBI), Multi-Ethnic Study of Atherosclerosis (MESA), 2000-2008	Ocular
	Rheumatic Fever/Rheumatic Heart Disease Health Examination Survey (HES)	Cardiovascular
	Scale of Developmental Domains of Early Childhood Mullen Scales of Early Learning	Rare Genetic Conditions
	School and Work Attendance - Adult Work Productivity and Activity Impairment Questionnaire (WPAI), General Health (WPAI:GH), V2.0	Blood Sciences Research
	School Attendance - Child National Survey of Childrens Health (NSCH), 2016	Blood Sciences Research
	School Risk and Protective Factors Substance Abuse and Mental Health Services Administration (SAMHSA), Communities That Care (CTC) & Seattle Social Development Project (SSDP) longitudinal study	Substance Abuse and Addiction
	School Social Environment Aullig, K., et al. School climate: Historical review, instrument development, and school assessment. J. Psychoeduc. Assess, 2010	Social Environments
	Scoliosis - Physical Assessment Adams forward bend test & x-ray with Cobb technique	Rare Genetic Conditions
	Scoliosis - Quality of Life Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005	Rare Genetic Conditions
	Screening and Severity of Substance Use Problems - Adolescents Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD)	Substance Abuse and Addiction
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime Brief Michigan Alcoholism Screening Test (Brief MAST)	Substance Abuse and Addiction
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months Alcohol Use Disorders Identification Test (AUDIT)	Substance Abuse and Addiction
	Screening and Severity of Substance Use Problems - Adults - Drugs Drug Abuse Screening Test (DAST-10)	Substance Abuse and Addiction
	Selenium National Center for Environmental Health (NCEH), Laboratory Procedure Manual, 2004	Nutrition and Dietary Supplements
	Self-Efficacy for Not Smoking Smoking Self-Efficacy Questionnaire (SEQ-12)	Smoking Cessation, Harm Reduction and Biomarkers
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES)	Blood Sciences Research
	Self-esteem The Rosenberg Self-Esteem Scale	Psychosocial
	Self-Help Involvement Global Appraisal of Individual Needs (GAIN), Self-Help Involvement Scale (SHIS)	Substance Abuse and Addiction
	Self-report of Human Immunodeficiency Virus (HIV) Testing National HIV Behavioral Surveillance System (NHBS), 2010	Substance Abuse and Addiction
	Self-reported Craving - General National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Substance Abuse and Addiction
	Self-reported Craving - Specific - Alcohol Alcohol Urge Questionnaire (AUQ)	Substance Abuse and Addiction
	Self-reported Craving - Specific - Cocaine Cocaine Craving Questionnaire-Brief (CCQ-Brief)	Substance Abuse and Addiction
	Self-reported Craving - Specific - Heroin Heroin Craving Questionnaire - Short Form 14 (HCQ-SF-14)	Substance Abuse and Addiction
	Self-reported Craving - Specific - Marijuana Marijuana Craving Questionnaire - Short Form (MCQ-SF)	Substance Abuse and Addiction
	Self-reported Craving - Specific - Tobacco Brief Questionnaire of Smoking Urges (QSU-Brief)	Substance Abuse and Addiction
	Self-reported Exposure to and Use of Price Promotions for Tobacco Products Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Youth Extended Interview 7.5 and Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Exposure to Smoking on Television and in the Movies Survey of Teen Opinions about Retail Environments (STORE)	Tobacco Regulatory Research
	Self-reported Exposure to Tobacco Advertising at Point of Sale Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 2, Youth Extended Interview and Wave 1 Adult Extended Interview	Tobacco Regulatory Research
	Self-reported Exposure to Tobacco Product Advertisements Population Assessment of Tobacco and Health (PATH), Adult Extended Questionnaire, Version 7.5 & International Tobacco Control 4-Country Survey, 2011	Tobacco Regulatory Research
	Self-reported Exposure to Tobacco Product Sponsorships International Tobacco Control (ITC) 4-Country Survey	Tobacco Regulatory Research
	Self-Reported General Health Status National Health Interview Survey (NHIS), Family - Family Identification, 2014	Tobacco Regulatory Research
	Self-reported Tobacco Product Price Paid - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Price Paid - Cigars Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Price Paid - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Price Paid - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - Cigars Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - Dissolvable Tobacco Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - Hookah Tobacco Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - Pipe Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Self-reported Tobacco Product Purchase Location - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ) Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ)	Substance Abuse and Addiction
	Sensitivity to Reward and Punishment - Adolescent and Adult Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale	Substance Abuse and Addiction
	Sensitivity to Reward and Punishment - Child Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale - child version	Substance Abuse and Addiction
	Serial Pregnancy Weight - Weights Abstracted from Prenatal Charts American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C	Anthropometrics
	Serial Pregnancy Weight - Weights Measured During Gestation American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C	Anthropometrics
	Serum Creatinine - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007	Diabetes
	Serum or Plasma Ferritin National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010	Blood Sciences Research
	Service Utilization and Cost Global Appraisal of Individual Needs (GAIN)	Substance Abuse and Addiction
	Sexual Orientation All of Us Research Program, Participant Provided Information (PPI), 2018	Demographics
	Sexual Risk Behavior - Female National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2011-2012	Reproductive Health
	Sexual Risk Behavior - Male National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2011-2012	Reproductive Health
	Shared Decision Making in Clinical Encounters CollaboRATE	Mental Health Research
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results	Genomic Medicine Implementation
	Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2) Short-form McGill Pain Questionnaire (SF-MPQ-2)	Gastrointestinal
	Sickle Cell Disease Stem Cell Source and Cell Manipulation Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021	Blood Sciences Research
	Sickle Cell Disease Transplant Conditioning Regimen Cure Sickle Cell Initiative (CureSCi) Transplant Conditioning Case Report Form (CRF)	Blood Sciences Research
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale	Neurology
	Sitting-Sedentary Behavior - Adolescent Adolescent Sedentary Activity Questionnaire (ASAQ)	Physical Activity and Physical Fitness
	Sitting-Sedentary Behavior - Adult Marshall, A. Leat al, Measuring total and domain-specific sitting: A study of reliability and validity, MED SCI SPORT EXER, 2010	Physical Activity and Physical Fitness
	Skin Cancer Quereux, G., et al. Creation and test of a questionnaire for self-assessment of melanoma risk factors. EUR J CANCER PREV, 2010	Skin, Bone, Muscle and Joint
	Sleep Apnea - Adult Berlin Questionnaire	Respiratory
	Sleep Apnea - Child The Pediatric Sleep Questionnaire (PSQ), Version 070424	Respiratory
	Sleep Disorders Screener National Institute of Mental Health (NIMH), Sleep Patterns and Problems	Psychiatric
	Sleep Disorders Screener - Children The Sleep Disturbance Scale for Children (SDSC)	Psychiatric
	Smell and Taste National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013	Geriatrics
	Smoking Quit Attempts Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06	Cancer
	Social and Role Dysfunction in Psychosis and Schizophrenia Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007	Mental Health Research
	Social Capital The Position Generator	Psychosocial
	Social Isolation UCLA Loneliness Scale	Psychosocial
	Social Networks Indianapolis Network Mental Health Study (INMHS), 1990-1991	Social Environments
	Social Norms about Tobacco - Adult Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5	Tobacco Regulatory Research
	Social Norms about Tobacco - Youth Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Youth Extended Interview and Adult Extended Interview 7.5	Tobacco Regulatory Research
	Social Support The Medical Outcomes Study (MOS) Social Support Survey	Mental Health Research
	Social Support for Quitting Smoking Partner Interaction Questionnaire (PIQ-20)	Smoking Cessation, Harm Reduction and Biomarkers
	Social Vulnerability Social Vulnerability Index (SVI)	Social Determinants of Health
	Sodium Pan American Health Organization (PAHO), Regional Expert Group for Cardiovascular Disease Prevention through Population-wide Dietary Salt Reduction, (2010)	Nutrition and Dietary Supplements
	Spatial Reasoning - Adolescents and Adults Wechsler Adult Intelligence Scale®, Block Design Test, Fourth Edition (WAIS®-IV)	Neurology
	Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry Framingham Osteoporosis Study, Generation 3, Musculoskeletal Exam	Skin, Bone, Muscle and Joint
	Spirituality World Health Organization’s Quality of Life Measure (WHOQOL) Spirituality, Religion and Personal Beliefs (SRPB)	Social Determinants of Health
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4))	Cancer Outcomes and Survivorship
	Spirometry - Adult Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005	Respiratory
	Spirometry - Child Beydon, N., et al, An official American Thoracic Society/European Respiratory Society statement: Pulmonary function testing in preschool children, AM J RESP CRIT CARE, 2007	Respiratory
	Standardized Tobacco Assessment for Retail Settings Standardized Tobacco Assessment for Retail Settings (STARS), Version 1.0	Tobacco Regulatory Research
	State Tobacco Control Public Policies State Tobacco Activities Tracking and Evaluation (STATE) System	Tobacco Regulatory Research
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS)	Blood Sciences Research
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography	Blood Sciences Research
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography	Blood Sciences Research
	Stuttering The Stuttering Severity Instrument–Fourth Edition (SSI-4)	Speech, Language and Hearing
	Substance Abuse and Dependence - Past Year - Alcohol National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Substance Abuse and Addiction
	Substance Abuse and Dependence - Past Year - Drugs National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Substance Abuse and Addiction
	Substance Abuse and Dependence - Past Year - Tobacco National Epidemiologic Survey on Alcohol and Related Conditions (NESARC-WAVE 1), AUDADIS-IV	Substance Abuse and Addiction
	Substance Abuse Treatment Quality National Committee for Quality Assurance (NCQA) Quality Compass Tool	Substance Abuse and Addiction
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015	Alcohol, Tobacco and Other Substances
	Substances - Age of First Use National Survey on Drug Use and Health (NSDUH), 2015	Alcohol, Tobacco and Other Substances
	Substances - Lifetime Abuse and Dependence National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Substances - Lifetime Use National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)	Alcohol, Tobacco and Other Substances
	Sudden Cardiac Arrest Atherosclerosis Risk in Communities (ARIC), Physician Questionnaire & Multi-Ethnic Study of Atherosclerosis (MESA), Mortality Review Form	Cardiovascular
	Sugar Intake (Added) National Cancer Institute (NCI) Five-Factor Screener, 2005	Nutrition and Dietary Supplements
	Suicidal Intent of Suicide Attempts The Suicide Intent Scale (SIS)	Mental Health Research
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34)	Cancer Outcomes and Survivorship
	Susceptibility to Tobacco Products Population Assessment of Tobacco and Health (PATH) Study	Tobacco Regulatory Research
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™ )	Blood Sciences Research
	Sweat Chloride Test LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007	Rare Genetic Conditions
	Symptoms of Autism Spectrum Disorders - Adolescent Symptoms of Autism Spectrum Disorders - Adolescent	Psychiatric
	Symptoms of Autism Spectrum Disorders - Adult The Autism Spectrum Quotient - Adult Version	Psychiatric
	Symptoms of Autism Spectrum Disorders - Child The Childhood Autism Spectrum Test (CAST)	Psychiatric
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale	Neurology
	Syphilis - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007	Infectious Diseases and Immunity
	Systemic Lupus Erythematosus Damage Index for Systemic Lupus Erythematosus Arthritis	Skin, Bone, Muscle and Joint

Protocols

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Refine by:

Pain Brief Pain Inventory©(BPI), Short Form

Parenting Style - Child Alabama Parenting Questionnaire (APQ) Child Form

Parenting Style - Parent Alabama Parenting Questionnaire (APQ) Parent Form

Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011

Parkinsons Disease Symptoms Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

Passive Exposures to Tobacco Products National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2009-2010

Passive Smoke Exposure Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men

Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)

Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS)

Patient Experience with Cancer Care - Cancer Surgery CAHPS® Cancer Care Survey, Version: Cancer surgery

Patient Experience with Cancer Care - Drug Therapy CAHPS® Cancer Care Survey, Version: Drug Therapy

Patient Experience with Cancer Care - Radiation Therapy CAHPS® Cancer Care Survey, Version: Radiation Therapy

Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR)

Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS)

Patterns of Substance Use - Adolescents Monitoring the Future (MTF), 2015

Patterns of Substance Use - Adults - Binge-Drinking National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Peak Expiratory Flow Rate (PEFR) Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005

Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS)

Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire

PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module

Peer and Family Influence on Smoking The Pierce 5-item National Cancer Institute (NCI) measure for Youth Tobacco Research

Peer Relationships - Proxy Report PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships

Peer Relationships - Self Report PROMIS© (Patient-Reported Outcomes Measurement Information System) Pediatric Item Bank v2.0 - Peer Relationships

Peer/Partner Substance Use and Tolerance of Substance Use Monitoring the Future (MTF), 2015

Perceived Availability of Illegal Drugs and Alcohol Monitoring the Future (MTF), 2015

Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey

Perceived Effectiveness of Anti-Tobacco Advertising Perceived Effectiveness of Cessation Advertisements study

Perceived Harm of Substance Use The National Survey on Drug Use and Health (NSDUH), 2009-2010

Perceived Social Support Conflict Midlife in the United States II (MIDUS II)

Perceived Stress Perceived Stress Scale

Percent Energy from Fat National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996

Percent Unionized for Non-Agricultural Labor Force Current Population Survey, Labor Force Items

Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator Recovery Self-Assessment (RSA) - Administrator Version

Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member Recovery Self-Assessment (RSA) - Family Member

Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version Recovery Self-Assessment (RSA)

Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version Recovery Self-Assessment (RSA) - Provider version

Perception of Tobacco Product Risk - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018

Perception of Tobacco Product Risk - Cigars Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Perception of Tobacco Product Risk - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Risk - Pipe Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Risk - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Periodontal Disease - Prevalence Hispanic Community Health Study (HCHS), Oral Health Assessment

Peripheral Arterial Disease Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)

Personal and Family History of Autoimmune and Inflammatory Disorders Lupus Family Registry and Repository (LFRR) Questionnaire, 2007

Personal and Family History of Eye Disease and Treatments University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003

Personal and Family History of Hearing Loss Age-Related Hearing Impairment (ARHI) Questionnaire

Personal and Family History of Psoriasis Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey

Personal and Family History of Respiratory Symptoms/Diseases - Adult American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)

Personal and Family History of Respiratory Symptoms/Diseases - Child International Study of Asthma and Allergies in Childhood (ISAAC) Manual

Personal and Family History of Strabismus Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008

Personal Care Products Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire

Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006

Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008

Personal History of Kidney Failure Strong Heart Study, Phase IV-Family Study, Medical History Form

Personal History of Type I and Type II Diabetes Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001

Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006

Personal Perception and Knowledge of Smoking-related Cancer Risk Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06

Personal Well-being Index - Adult International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013

Personal Well-being index - Child Personal Wellbeing Index-School Children (PWI-SC)

Personality Traits The Big Five Inventory (BFI)

Phonological Awareness Syllable Repetition Task (SRT)

Phonological Inventory Goldman-Fristoe Test of Articulation, Third Edition (GFTA™-3)

Physical Activity International Physical Activity Questionnaire (IPAQ-7)

Physical Activity - Neighborhood Environment Sallis, J.F., Neighborhood environments and physical activity among adults in 11 countries. AM J PREV MED, 2009

Physical Activity Readiness Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)

Physical Activity Self-Efficacy - Adolescent PACE Questionnaire, 2001

Physical Activity Self-Efficacy - Adult McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992

Physical Functioning - Objective Short Physical Performance Battery

Physical Functioning - Subjective National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2005-2006

Physical Properties of Tobacco Products - Cigarettes and Filtered Cigars Massachusetts Benchmark Study (MBS), 1999

Physical Properties of Tobacco Products - Smokeless Tobacco Federal Register Notice, Laboratory measurement, 74 Fed. Reg. 4, Jan. 7, 2009

Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey

Pain
Brief Pain Inventory©(BPI), Short Form

Parenting Style - Child
Alabama Parenting Questionnaire (APQ) Child Form

Parenting Style - Parent
Alabama Parenting Questionnaire (APQ) Parent Form

Parkinsons Disease Screener - Questionnaire
National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011

Parkinsons Disease Symptoms
Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

Passive Exposures to Tobacco Products
National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2009-2010

Passive Smoke Exposure
Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men

Patient Centered Communication - Cancer
Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)

Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS)
Genomics Outcome Scale (GOS)

Patient Experience with Cancer Care - Cancer Surgery
CAHPS® Cancer Care Survey, Version: Cancer surgery

Patient Experience with Cancer Care - Drug Therapy
CAHPS® Cancer Care Survey, Version: Drug Therapy

Patient Experience with Cancer Care - Radiation Therapy
CAHPS® Cancer Care Survey, Version: Radiation Therapy

Patient Response to Genetic Testing
Feelings About genomiC Testing Results (FACToR)

Patient Satisfaction with Genetic Counseling
Genetic Counseling Satisfaction Scale (GCSS)

Patterns of Substance Use - Adolescents
Monitoring the Future (MTF), 2015

Patterns of Substance Use - Adults - Binge-Drinking
National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)

Peak Expiratory Flow Rate (PEFR)
Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005

Pediatric NIH Stroke Scale (PedNIHSS)
Pediatric National Institutes of Health Stroke Scale (PedNIHSS)

Pediatric School Performance
Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire

PedsQL Sickle Cell Disease Module
The PedsQL Sickle Cell Disease Module

Peer and Family Influence on Smoking
The Pierce 5-item National Cancer Institute (NCI) measure for Youth Tobacco Research

Peer Relationships - Proxy Report
PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships

Peer Relationships - Self Report
PROMIS© (Patient-Reported Outcomes Measurement Information System) Pediatric Item Bank v2.0 - Peer Relationships

Peer/Partner Substance Use and Tolerance of Substance Use
Monitoring the Future (MTF), 2015

Perceived Availability of Illegal Drugs and Alcohol
Monitoring the Future (MTF), 2015

Perceived Compatibility with Current Clinical Practice
Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey

Perceived Effectiveness of Anti-Tobacco Advertising
Perceived Effectiveness of Cessation Advertisements study

Perceived Harm of Substance Use
The National Survey on Drug Use and Health (NSDUH), 2009-2010

Perceived Social Support Conflict
Midlife in the United States II (MIDUS II)

Perceived Stress
Perceived Stress Scale

Percent Energy from Fat
National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996

Percent Unionized for Non-Agricultural Labor Force
Current Population Survey, Labor Force Items

Perception of Recovery Orientation and Care Quality of Mental Health Services - Administrator
Recovery Self-Assessment (RSA) - Administrator Version

Perception of Recovery Orientation and Care Quality of Mental Health Services - Family Member
Recovery Self-Assessment (RSA) - Family Member

Perception of Recovery Orientation and Care Quality of Mental Health Services - Patient Version
Recovery Self-Assessment (RSA)

Perception of Recovery Orientation and Care Quality of Mental Health Services - Provider Version
Recovery Self-Assessment (RSA) - Provider version

Perception of Tobacco Product Risk - Cigarettes
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018

Perception of Tobacco Product Risk - Cigars
Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Perception of Tobacco Product Risk - E-Cigarettes
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Risk - Pipe Tobacco
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016

Perception of Tobacco Product Risk - Smokeless Tobacco
Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018

Periodontal Disease - Prevalence
Hispanic Community Health Study (HCHS), Oral Health Assessment

Peripheral Arterial Disease
Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)

Personal and Family History of Autoimmune and Inflammatory Disorders
Lupus Family Registry and Repository (LFRR) Questionnaire, 2007

Personal and Family History of Eye Disease and Treatments
University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003

Personal and Family History of Hearing Loss
Age-Related Hearing Impairment (ARHI) Questionnaire

Personal and Family History of Psoriasis
Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey

Personal and Family History of Respiratory Symptoms/Diseases - Adult
American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)

Personal and Family History of Respiratory Symptoms/Diseases - Child
International Study of Asthma and Allergies in Childhood (ISAAC) Manual

Personal and Family History of Strabismus
Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008

Personal Care Products
Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire

Personal History of Allergies, Infectious Diseases, and Immunizations - Adult
My Personal Health Record (MyPHR), Adult PHR Form, 2006

Personal History of Gastrointestinal Conditions
National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008

Personal History of Kidney Failure
Strong Heart Study, Phase IV-Family Study, Medical History Form

Personal History of Type I and Type II Diabetes
Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001

Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child
My Personal Health Record (MyPHR), Child PHR Form, 2006

Personal Perception and Knowledge of Smoking-related Cancer Risk
Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06

Personal Well-being Index - Adult
International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013

Personal Well-being index - Child
Personal Wellbeing Index-School Children (PWI-SC)

Personality Traits
The Big Five Inventory (BFI)

Phonological Awareness
Syllable Repetition Task (SRT)

Phonological Inventory
Goldman-Fristoe Test of Articulation, Third Edition (GFTA™-3)

Physical Activity
International Physical Activity Questionnaire (IPAQ-7)

Physical Activity - Neighborhood Environment
Sallis, J.F., Neighborhood environments and physical activity among adults in 11 countries. AM J PREV MED, 2009

Physical Activity Readiness
Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)

Physical Activity Self-Efficacy - Adolescent
PACE Questionnaire, 2001

Physical Activity Self-Efficacy - Adult
McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992

Physical Functioning - Objective
Short Physical Performance Battery

Physical Functioning - Subjective
National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2005-2006

Physical Properties of Tobacco Products - Cigarettes and Filtered Cigars
Massachusetts Benchmark Study (MBS), 1999

Physical Properties of Tobacco Products - Smokeless Tobacco
Federal Register Notice, Laboratory measurement, 74 Fed. Reg. 4, Jan. 7, 2009

Physical, Social, and Mental Health Functioning (SF-36V2)
SF-36v2 Health Survey