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Protocols

PhenX Protocol Domain/Collection

Michigan Body Map (MBM)
Bone and Joint

Pain Catastrophizing Scale
Pain

Pain Catastrophizing Scale - Child Version (PCS-C)
Pain

Pain Catastrophizing Scale - Parent Version (PCS-P)
Pain

Coping Strategies Questionnaire
Pain

Pain Coping Questionnaire - Short Form
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a
Pain

Faces Pain Scale-Revised (FPS-R)
Pain

Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Item Bank v1.1 - Pain Interference - Short Form 8a
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a
Pain

Patient-Reported Outcome Measurement Information System (PROMIS®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a
Pain

Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Scale v2.0 - Neuropathic Pain Quality 5a
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Scale v2.0 - Nociceptive Pain Quality 5a
Pain

Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a
Pain

Alabama Parenting Questionnaire (APQ) Child Form
Pediatric Development

Alabama Parenting Questionnaire (APQ) Parent Form
Pediatric Development

National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011
Neurology

Movement Disorder Society United Parkinson?s Disease Rating Scale (MDS-UPDRS)
Neurology

National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2009-2010
Tobacco Regulatory Research: Agent

Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men
Cancer

Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)
Cancer Outcomes and Survivorship

Genomics Outcome Scale (GOS)
Genomic Medicine Implementation

Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery
Cancer Outcomes and Survivorship

Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy
Cancer Outcomes and Survivorship

Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy
Cancer Outcomes and Survivorship

Patient Global Impression of Change (PGIC)
Pain

Feelings About genomiC Testing Results (FACToR)
Genomic Medicine Implementation

Genetic Counseling Satisfaction Scale (GCSS)
Genomic Medicine Implementation

Monitoring the Future (MTF), 2015
Assessment of Substance Use and Substance Use Disorders

National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Assessment of Substance Use and Substance Use Disorders

Miller, M. R., et al, Standardization of spirometry. Series ?ATS/ERS task force: Standardization of lung function testing.?, EUR RESPIR J, 2005
Respiratory

Pediatric National Institutes of Health Stroke Scale (PedNIHSS)
Neurology, Quality of Life, and Health Services

Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire
Sickle Cell Disease Core: Tier 2

The PedsQL Sickle Cell Disease Module
Neurology, Quality of Life, and Health Services

The Pierce 5-item National Cancer Institute (NCI) measure for Youth Tobacco Research
Tobacco Regulatory Research - Host: Social/Cognitive

PROMIS© Parent Proxy Item Bank v 2.0 - Peer Relationships
Pediatric Development

PROMIS Pediatric Item Bank v2.0 - Peer Relationships
Pediatric Development

Monitoring the Future (MTF), 2015
Substance Use-related Psychosocial Risk Factors

Monitoring the Future (MTF), 2015
Substance Use-related Community Factors

Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey
Genomic Medicine Implementation

Perceived Effectiveness of Cessation Advertisements study
Tobacco Regulatory Research: Environment

The National Survey on Drug Use and Health (NSDUH), 2009-2010
Substance Use-related Community Factors

Midlife in the United States II (MIDUS II)
Psychosocial

Perceived Stress Scale
Psychosocial

National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996
Nutrition and Dietary Supplements

Current Population Survey, Labor Force Items
Structural Social Determinants of Health

Recovery Self-Assessment (RSA) - Administrator Version
Early Psychosis Clinical Services

Recovery Self-Assessment (RSA) - Family Member
Early Psychosis Clinical Services

Recovery Self-Assessment (RSA)
Early Psychosis Clinical Services

Recovery Self-Assessment (RSA) - Provider version
Early Psychosis Clinical Services

Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018
Smoking Cessation, Harm Reduction and Biomarkers

Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018
Smoking Cessation, Harm Reduction and Biomarkers

Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016
Smoking Cessation, Harm Reduction and Biomarkers

Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016 
Smoking Cessation, Harm Reduction and Biomarkers

Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018
Smoking Cessation, Harm Reduction and Biomarkers

The Accountable Health Communities (AHC) Health-Related Social Needs (HRSN) Screening Tool
Individual Social Determinants of Health

The Greene Climacteric Scale
Genitourinary

Hispanic Community Health Study (HCHS), Oral Health Assessment
Oral Health

Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)
Cardiovascular

Lupus Family Registry and Repository (LFRR) Questionnaire, 2007
Infectious Diseases and Immunity

University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003
Ocular

Age-Related Hearing Impairment (ARHI) Questionnaire
Speech, Language and Hearing

Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey
Skin

American Thoracic Society-Division of Lung Diseases Questionnaire (ATS-DLD 78) & Genetic Epidemiology of COPD Study (COPDGene)
Respiratory

International Study of Asthma and Allergies in Childhood (ISAAC) Manual
Respiratory

Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008
Ocular

Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire
Environmental Exposures

My Personal Health Record (MyPHR), Adult PHR Form, 2006
Infectious Diseases and Immunity

National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008
Gastrointestinal

Strong Heart Study, Phase IV-Family Study, Medical History Form
Diabetes

Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001
Diabetes

My Personal Health Record (MyPHR), Child PHR Form, 2006
Infectious Diseases and Immunity

Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06
Cancer

International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013
Early Psychosis Clinical Services

Personal Wellbeing Index-School Children (PWI-SC)
Early Psychosis Clinical Services

The Big Five Inventory (BFI)
Psychiatric

Syllable Repetition Task (SRT)
Speech, Language and Hearing

Goldman-Fristoe Test of Articulation, Third Edition (GFTA?-3)
Speech, Language and Hearing

International Physical Activity Questionnaire (IPAQ-7)
Early Psychosis Clinical Services

Physical Activity Neighborhood Environment Survey (PANES)
Individual Social Determinants of Health

Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)
Physical Activity and Physical Fitness

PACE Questionnaire, 2001
Physical Activity and Physical Fitness

McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992
Physical Activity and Physical Fitness

Short Physical Performance Battery
Physical Activity and Physical Fitness

National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2005-2006
Physical Activity and Physical Fitness

Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank v2.1 - Mobility
Pain

Patient-Reported Outcomes Measurement Information System® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a
Pain

Youth Acute Pain Functional Ability Questionnaire (YAPFAQ)
Pain

Massachusetts Benchmark Study (MBS), 1999
Tobacco Regulatory Research: Agent

Federal Register Notice, Laboratory measurement, 74 Fed. Reg. 4, Jan. 7, 2009
Tobacco Regulatory Research: Agent

SF-36v2 Health Survey
Gastrointestinal

Program for Lung Cancer Screening and Tobacco Cessation (PLUTO), 2015-2020
Smoking Cessation, Harm Reduction and Biomarkers

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

Iorio et al. Estimating and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: Communication from the SSC of the ISTH. J Thromb Haemost, 2017
Hemophilia Inhibitor

The Positive and Negative Perfectionism Scale (PNPS)
Eating Disorders

The Nurses Health Study II, 2005
Cancer

Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)
Curative Therapies

Pregnancy Risk Assessment Monitoring System (PRAMS), 2009
Tobacco Regulatory Research - Host: Biobehavioral

Population Assessment of Tobacco and Health (PATH) Study, Baseline Adult Extended Interview
Tobacco Regulatory Research - Host: Biobehavioral

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research - Host: Biobehavioral

Modified Cannon-Spoor Premorbid Adjustment Scale (PAS)
Early Psychosis Translational Research

The Edinburgh Postnatal Depression Scale? (EPDS)
Pregnancy

National Institute of Dental and Craniofacial Research (NIDCR), Archive of Procedures and Methods Used in Oral Health Surveys, Tooth Surface Index of Fluorosis (TSIF)
Oral Health

Priapism Impact Profile (PIP) Questionnaire
Genitourinary

National Health and Nutrition Examination Survey (NHANES), Oral Health Questions, 2003-2004
Oral Health

Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning
Genomic Medicine Implementation

Adjunctive Mood Management for Telephone-based Smoking Cessation in Primary Care, 2016-2019.
Smoking Cessation, Harm Reduction and Biomarkers

Prolonged Grief Disorder (PG-13-R)
Psychosocial and Social Determinants of Health

International Prostate Symptom Score (I-PSS)
Reproductive Health

Prothrombin Time (PT), CPT 85610
Curative Therapies

European Alliance of Associations for Rheumatology (EULAR) Psoriatic Arthritis Impact of Disease: PsAID12 for Clinical Practice
Bone and Joint

Psoriasis Epidemiology Screening Tool (PEST)
Bone and Joint

Modified Colorado Symptom Index (CSI)
Early Psychosis Clinical Services

Brief Resilience Scale (BRS)
Geriatrics

The Child and Youth Resilience Measure (CYRM) Child Version
Pediatric Development

Triarchic Psychopathy Measure (TriPM)
Psychiatric

Questionnaire about the Process of Recovery (QPR)
Early Psychosis Clinical Services

Psychosocial Assessment of Candidates for Transplantation (PACT)
Curative Therapies

The Primary Care-PTSD Screen (PC-PTSD-5)
Post-traumatic Stress Psychopathology (including PTSD)

The Primary Care-PTSD Screen (PC-PTSD-IV)
Post-traumatic Stress Psychopathology (including PTSD)

University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-4
Psychiatric

University of California, Los Angeles, Post-traumatic Stress Disorder Reaction Index (UCLA PTSD Index), DSM-5
Psychiatric

PTSD Checklist for DMS-5 (PCL-5)
Psychiatric

PTSD Checklist for DSM-4
Psychiatric

The Clinician-Administered PTSD Scale (CAPS-5) for The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5)
Post-traumatic Stress Psychopathology (including PTSD)

The Clinician-Administered PTSD Scale (CAPS-IV) for The Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV)
Post-traumatic Stress Psychopathology (including PTSD)

Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS)
Cardiovascular

AARC Clinical Practice Guideline: Exercise Testing for Evaluation of Hypoxemia and/or Desaturation: revision & update. Resp Care, 2001
Respiratory

World Health Organization (WHO), Pulse oximetry training manual, 2011
Respiratory

The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module
Neurology, Quality of Life, and Health Services

Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire
Neurology, Quality of Life, and Health Services

Hiemstra, M., et al. Smoking-specific parenting and smoking onset in adolescence: The role of genes from the Dopaminergic system (DRD2, DRD4, DAT1 genotypes). PLOS ONE, 2013
Tobacco Regulatory Research - Host: Social/Cognitive

Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile
Rare Genetic Conditions

Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25
Rare Genetic Conditions

St. George?s Respiratory Questionnaire (SGRQ)
Respiratory

Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF)
Psychosocial

Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)
Psychosocial

Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30)
Cancer Outcomes and Survivorship

Quality of Life Patient/Cancer Survivor Version (QOL-CSV)
Cancer Outcomes and Survivorship

Home Observation for Measurement of the Environment (HOME)-revised edition National Longitudinal Study of Youth Children & Young Adults
Pediatric Development

The Questionnaire of Eating and Weight Patterns-5 (QEWP-5)©
Eating Disorders

The Questionnaire on Eating and Weight Patterns (QEWP-C-5)
Eating Disorders

American Community Survey (ACS), 5-year estimates
Social Environments

American Community Survey (ACS), 5-year estimates
Social Environments

U.S. Census Bureau, Census, 1990, 2000, 2010
Social Environments

The General Ethnic Discrimination (GED) Scale
Individual Social Determinants of Health

Reactions to Loss Scale (RTL)
Psychosocial and Social Determinants of Health

Woodcock-Johnson? Tests of Achievement (WJ IV?)
Speech, Language and Hearing

The Recovery and Recurrence Questionnaire (RRQ)
Neurology, Quality of Life, and Health Services

Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021
Curative Therapies

University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003
Ocular

The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007
Ocular

Decision Regret Scale
Genomic Medicine Implementation

Relational and Item-Specific Encoding Task (RiSE)
Early Psychosis Translational Research

Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey
Genomic Medicine Implementation

Brief Multidimensional Measure of Religiousness/Spirituality (BMMRS)
Psychosocial and Social Determinants of Health

National Survey of Family Growth (NSFG), 2011-2013
Reproductive Health

Women?s Interview Study of Health & Pregnancy Risk Assessment Monitoring System (PRAMS), 2009
Reproductive Health

The Longitudinal Investigation of Fertility & the Environment (LIFE) Study, 2005
Reproductive Health

Index of Concentration at the Extremes (ICE)
Structural Social Determinants of Health

Parkinson?s Disease, Environment, and Genes Study (PEG Study), 2001
Environmental Exposures

Connor-Davidson Resilience Scale (CD-RISC 25)
Psychosocial and Social Determinants of Health

Potter, P. A.,?et al. Fundamentals of Nursing,?1985
Respiratory

Wallis, L. A., Healy, et al, Age related reference ranges for respiration rate and heart rate from 4 to 16 years, ARCH DIS CHILD, 2005
Respiratory

Fleming, S, et al. Normal ranges of heart rate and respiratory rate in children from birth to 18 years of age: A systemic review of observational studies. Lancer, 2011
Respiratory

Go/NoGo task
Substance Use-related Neurobehavioral and Cognitive Risk Factors

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011
Cardiovascular, Pulmonary, and Renal

National Heart, Lung and Blood Institute (NHLBI), Multi-Ethnic Study of Atherosclerosis (MESA), 2000-2008
Ocular

Health Examination Survey (HES)
Cardiovascular

Clinical Disease Activity Index (CDAI)
Bone and Joint

Mullen Scales of Early Learning
Rare Genetic Conditions

Work Productivity and Activity Impairment Questionnaire (WPAI), General Health (WPAI:GH), V2.0
Hemophilia Inhibitor

National Survey of Childrens Health (NSCH), 2016
Hemophilia Inhibitor

Substance Abuse and Mental Health Services Administration (SAMHSA), Communities That Care (CTC) & Seattle Social Development Project (SSDP) longitudinal study
Substance Use-related Psychosocial Risk Factors

Aullig, K., et al. School climate: Historical review, instrument development, and school assessment. J. Psychoeduc. Assess, 2010
Social Environments

Adams forward bend test & x-ray with Cobb technique
Rare Genetic Conditions

Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005
Rare Genetic Conditions

Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD)
Neurology, Quality of Life, and Health Services

Brief Michigan Alcoholism Screening Test (Brief MAST)
Neurology, Quality of Life, and Health Services

Alcohol Use Disorders Identification Test (AUDIT)
Neurology, Quality of Life, and Health Services

Drug Abuse Screening Test (DAST-10)
Neurology, Quality of Life, and Health Services

National Center for Environmental Health (NCEH),?Laboratory Procedure Manual, 2004
Nutrition and Dietary Supplements

Smoking Self-Efficacy Questionnaire (SEQ-12)
Smoking Cessation, Harm Reduction and Biomarkers

The Sickle Cell Disease Self-Efficacy Scale (SCSES)
Neurology, Quality of Life, and Health Services

The Rosenberg Self-Esteem Scale
Psychosocial

Global Appraisal of Individual Needs (GAIN), Self-Help Involvement Scale (SHIS)
Substance Use-related Co-morbidities and Health-related Outcomes

National HIV Behavioral Surveillance System (NHBS), 2010
Substance Abuse and Addiction Core: Tier 1

National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Tobacco Regulatory Research Core: Tier 2

Alcohol Urge Questionnaire (AUQ)
Tobacco Regulatory Research Core: Tier 2

Cocaine Craving Questionnaire-Brief (CCQ-Brief)
Tobacco Regulatory Research Core: Tier 2

Heroin Craving Questionnaire - Short Form 14 (HCQ-SF-14)
Tobacco Regulatory Research Core: Tier 2

Marijuana Craving Questionnaire - Short Form (MCQ-SF)
Tobacco Regulatory Research Core: Tier 2

Brief Questionnaire of Smoking Urges (QSU-Brief)
Tobacco Regulatory Research Core: Tier 2

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview and Final Youth Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research: Vector

Survey of Teen Opinions about Retail Environments (STORE)
Tobacco Regulatory Research: Environment

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview and Final Youth Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH), Adult Extended Questionnaire, Version 7.5 & International Tobacco Control 4-Country Survey, 2011
Tobacco Regulatory Research: Vector

International Tobacco Control (ITC) 4-Country Survey
Tobacco Regulatory Research: Vector

National Health Interview Survey (NHIS), Family - Family Identification, 2014
Tobacco Regulatory Research Core: Tier 2

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 ? December 2022)
Tobacco Regulatory Research: Vector

Sensitivity to Punishment/Sensitivity to Reward Questionnaire (SPSRQ)
Substance Use-related Psychosocial Risk Factors

Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale
Substance Use-related Psychosocial Risk Factors

Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale - child version
Substance Use-related Psychosocial Risk Factors

American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C
Anthropometrics

American Congress of Obstetricians and Gynecologists (ACOG), Antenatal Record Forms B and C
Anthropometrics

National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007
Diabetes

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010
Cardiovascular, Pulmonary, and Renal

Global Appraisal of Individual Needs (GAIN)
Neurology, Quality of Life, and Health Services

All of Us Research Program, Participant Provided Information (PPI), 2018
Demographics

PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Female)
Genitourinary

PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male)
Genitourinary

All of Us Research Program, Participant Provided Information (PPI), 2018
Demographics

National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2011-2012
Reproductive Health

National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2011-2012
Reproductive Health

CollaboRATE

Early Psychosis Clinical Services

Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results
Genomic Medicine Implementation

Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS)
Psychosocial and Social Determinants of Health

Measure of Sickle Cell Stigma (MoSCS)
Psychosocial and Social Determinants of Health

Child Stigma Scale (CSS)
Psychosocial and Social Determinants of Health

Sharma et al. Acute vaso-occlusive pain is temporally associated with the onset of menstruation in women with sickle cell disease. J Women’s Health (Larchmt), 2019. Demographic survey.
Genitourinary

Modified version of the Sickle Cell Disease Pain Burden Interview-Youth (SCPBI-Y)
Genitourinary

Sickle Cell Pain Diary
Pain

Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC), Parent Report version
Psychosocial and Social Determinants of Health

Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC)
Psychosocial and Social Determinants of Health

Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Teens
Psychosocial and Social Determinants of Health

Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Caregivers
Psychosocial and Social Determinants of Health

Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021
Curative Therapies

Sickle Cell Transition Intervention Program - Readiness for Transition (TIP-RFT)
Psychosocial and Social Determinants of Health

Cure Sickle Cell Initiative (CureSCi) Transplant Conditioning Case Report Form (CRF)
Curative Therapies

Sickle Cell Pain Burden Interview (SCPBI)
Pain

Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale
Neurology

Adolescent Sedentary Activity Questionnaire (ASAQ)
Physical Activity and Physical Fitness

Marshall, A. Leat al, Measuring total and domain-specific sitting: A study of reliability and validity, MED SCI SPORT EXER, 2010
Physical Activity and Physical Fitness

Quereux, G., et al. Creation and test of a questionnaire for self-assessment of melanoma risk factors. EUR J CANCER PREV, 2010
Skin

Berlin Questionnaire
Respiratory

The Pediatric Sleep Questionnaire (PSQ), Version 070424
Respiratory

National Institute of Mental Health (NIMH), Sleep Patterns and Problems?
Psychiatric

The Sleep Disturbance Scale for Children (SDSC)
Psychiatric

National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013
Geriatrics

Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06
Cancer

Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007
Early Psychosis Clinical Services

The Position Generator
Psychosocial

UCLA Loneliness Scale
Psychosocial

Indianapolis Network Mental Health Study (INMHS), 1990-1991
Social Environments

Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Adult Extended Interview 7.5
Tobacco Regulatory Research: Environment

Population Assessment of Tobacco and Health (PATH) Study, Wave 1, Youth Extended Interview and Adult Extended Interview 7.5
Tobacco Regulatory Research: Environment

The Medical Outcomes Study (MOS) Social Support Survey
Post-traumatic Stress Psychopathology (including PTSD)

Partner Interaction Questionnaire (PIQ-20)
Smoking Cessation, Harm Reduction and Biomarkers

Social Vulnerability Index (SVI)
Structural Social Determinants of Health

Pan American Health Organization (PAHO), Regional Expert Group for Cardiovascular Disease Prevention through Population-wide Dietary Salt Reduction, (2010)
Nutrition and Dietary Supplements

Wechsler Adult Intelligence Scale?, Block Design Test, Fourth Edition (WAIS?-IV)
Neurology

Framingham Osteoporosis Study, Generation 3, Musculoskeletal Exam
Bone and Joint

World Health Organization’s Quality of Life Measure (WHOQOL) Spirituality, Religion and Personal Beliefs (SRPB)
Individual Social Determinants of Health

Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4))
Cancer Outcomes and Survivorship

Miller, M. R., et al, Standardization of spirometry. Series ?ATS/ERS task force: Standardization of lung function testing.?, EUR RESPIR J, 2005
Respiratory

Beydon, N., et al, An official American Thoracic Society/European Respiratory Society statement: Pulmonary function testing in preschool children, AM J RESP CRIT CARE, 2007
Respiratory

Standardized Tobacco Assessment for Retail Settings (STARS), Version 1.0
Tobacco Regulatory Research: Vector

State Tobacco Activities Tracking and Evaluation (STATE) System
Tobacco Regulatory Research: Environment

The Stroke Impact Scale (SIS)
Neurology, Quality of Life, and Health Services

Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography
Neurology, Quality of Life, and Health Services

Imaging Transcranial Doppler (TCDi) ultrasonography
Neurology, Quality of Life, and Health Services

The Stuttering Severity Instrument?Fourth Edition (SSI-4)
Speech, Language and Hearing

National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Assessment of Substance Use and Substance Use Disorders

National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Behaviors and Risks

National Epidemiologic Survey on Alcohol and Related Conditions (NESARC-WAVE 1), AUDADIS-IV
Assessment of Substance Use and Substance Use Disorders

National Committee for Quality Assurance (NCQA) Quality Compass Tool
Substance Use-related Community Factors

National Survey on Drug Use and Health (NSDUH), 2015
Alcohol, Tobacco and Other Substances

National Survey on Drug Use and Health (NSDUH), 2015
Alcohol, Tobacco and Other Substances

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Alcohol, Tobacco and Other Substances

National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Alcohol, Tobacco and Other Substances

Atherosclerosis Risk in Communities (ARIC), Physician Questionnaire & Multi-Ethnic Study of Atherosclerosis (MESA), Mortality Review Form
Cardiovascular

National Cancer Institute (NCI) Five-Factor Screener, 2005
Nutrition and Dietary Supplements

The Suicide Intent Scale (SIS)
Suicide

Supportive Care Needs Survey -Short Form 34 (SCNS-SF34)
Cancer Outcomes and Survivorship

Population Assessment of Tobacco and Health (PATH) Study: Final Youth Interview, Wave 7 (January 2022 - December 2022)
Tobacco Regulatory Research - Host: Social/Cognitive

The Conners Continuous Performance Test 3 (CPT 3? )
Neurology, Quality of Life, and Health Services

LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007
Rare Genetic Conditions

Symptoms of Autism Spectrum Disorders - Adolescent
Psychiatric

The Autism Spectrum Quotient - Adult Version
Psychiatric

The Childhood Autism Spectrum Test (CAST)
Psychiatric

The Restless Legs Syndrome Rating Scale
Neurology

National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007
Infectious Diseases and Immunity

Damage Index for Systemic Lupus Erythematosus Arthritis
Bone and Joint