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Protocols

PhenX Protocol Domain/Collection

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Maintenance of Balance, Independent Living, Intellect, and Zest in the Elderly of Boston (MOBILIZE Boston)
Geriatrics

Burden Assessment Scale (BAS)

Mental Health Research

Revised Conflict Tactics Scales (CTS 2), 2003.

Social Environments

Conflict Tactics Scales: Parent-Child Version (CTS PC), 2003.

Social Environments

Family Environment Scale (FES), 2009

Social Environments

Family Questionnaire (FQ)

Mental Health Research

Systematic Clinical Outcome Routine Evaluation (SCORE-15) Index of Family Functioning and Change

Mental Health Research

Rare Genetic Conditions

Family Interview for Genetic Studies (FIGS)

Mental Health Research

Family Interview for Genetic Studies (FIGS)-Abbreviated Version

Mental Health Research

Family History of Dementia and Longevity 2016, Section F
Geriatrics

Multi-Ethnic Study of Arthrosclerosis (MESA) Exam 2, Family History

Diabetes

Cardiovascular

Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b) Difficulties in Pregnancy, Maternal Interview Visit 2

Pregnancy

Family History Questionnaire
Speech, Language and Hearing

Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV)

Substance Abuse and Addiction

Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV)

Substance Abuse and Addiction

Family Environment Scale (FES), 2009

Social Environments

Communities That Care Youth Survey

Substance Abuse and Addiction

National Health and Nutrition Examination Survey (NHANES) Laboratory Procedures Manual

Diabetes

2007-2008 National Health and Nutrition Examination Survey (NHANES) Oral Glucose Tolerance Test Manual

Diabetes

2005-06 National Health and Nutrition Examination Survey (NHANES) Oral Glucose Tolerance Test (OGTT) Procedures Manual

Diabetes

2007 National Health and Nutrition Examination Survey (NHANES) Laboratory Procedures Manual

Diabetes

Fetal Growth Standards Based on the Eunice Kennedy Shriver National Institute of Child Health and Human Development Fetal Growth Studies

Pregnancy

2005 National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire

Nutrition and Dietary Supplements

Tobacco Regulatory Research

Tobacco Regulatory Research

Oral Health

Framingham Foot Assessment Clinical Tool
Geriatrics

Skin, Bone, Muscle and Joint

Study of Osteoporotic Fractures (SOF) Frailty Index
Geriatrics

Obesity

Tobacco Regulatory Research

Sickle Cell Disease

2005 National Health Interview Survey (NHIS) Diet and Nutrition Questionnaire

Nutrition and Dietary Supplements

Gastrointestinal

All of Us Research Program Participant Provided Information (PPI)
Demographics

The K6

Psychiatric

Generalized Self-Efficacy Scale

Psychosocial

The Self-Efficacy Questionnaire for Children (SEQ-C)

Psychosocial

Mental Health Research

Extremely Low Gestational Age Newborns (ELGAN) Study, Maternal Interview

Pregnancy

Project Gestational Age

Pregnancy

Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b): CLA Prenatal Labs

Pregnancy

Montreal Cognitive Assessment (MOCA©)

Neurology

The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)

Neurology

Children’s Global Assessment Scale (CGAS)

Neurology

Brief Psychiatric Rating Scale

Psychiatric

Positive and Negative Syndrome Scale

Psychiatric

2007-2008 National Health and Nutrition Examination Survey (NHANES) Oral Glucose Tolerance Test Manual

Diabetes

Recalling Sentences subtest of the Clinical Evaluation of Language Fundamentals®
Speech, Language and Hearing

Grammaticality Judgment Task
Speech, Language and Hearing

Rice/Wexler Test of Early Grammatical Impairment (TEGI)
Speech, Language and Hearing

Gross Motor Function Classification System Family Report Questionnaire (GMFCS)

Neurology

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

Neurology

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

Neurology

Rare Genetic Conditions

Obesity

Edinburgh Handedness Inventory

Anthropometrics

Avon Longitudinal Study of Parents and Children Protocol (ALSPAC)

Anthropometrics

Sickle Cell Disease

Early Life Exposure Assessment Tool (ELEAT)

Pregnancy

Gastrointestinal

Health Reform Monitoring Survey 2015

Demographics

EQ-5D-3L

Substance Abuse and Addiction

Substance Abuse and Addiction

Multi-Ethnic Study of Atherosclerosis (MESA), 2000, Neighborhood Section

Social Environments

Digits in Noise Test (DIN)
Speech, Language and Hearing

Cardiovascular

Tobacco Regulatory Research

1988-1994 NHANES Body Measurements Protocol

Anthropometrics

2007 National Health and Nutrition Examination Survey (NHANES) Anthropometry Procedures Manual

Anthropometrics

2007-2008 National Health and Nutritional Examination Survey (NHANES) Weight History Questionnaire

Anthropometrics

2007 National Health and Nutrition Examination Survey (NHANES) Anthropometry Procedures Manual

Anthropometrics

Sickle Cell Disease

Hemophilia Joint Health Score (HJHS) 2.1
Hemophilia Inhibitor Research

Haemophilia Activities List
Hemophilia Inhibitor Research

Pediatric Haemophilia Activities List (PedHAL)
Hemophilia Inhibitor Research

Infectious Diseases and Immunity

Infectious Diseases and Immunity

Infectious Diseases and Immunity

Cardiovascular

National Health and Nutrition Examination Survey III (NHANES III) Body Measurements

Anthropometrics

Long Island Breast Cancer Study

Environmental Exposures

National Immunization Survey (NIS), 2013

Environmental Exposures

The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)

Neurology

Black Women’s Health Study (BWHS)

Reproductive Health

Study for Future Families (SFF) and National Longitudinal Survey of Youth (NLSY)

Reproductive Health

Jackson Heart Study (JHS)

Neurology

Tobacco Regulatory Research

Sickle Cell Disease

Finnish Environment and Asthma Study, 1997-2000

Environmental Exposures

Mental Health Research

Mental Health Research

Nurses’ Health Study II (NHS II)

Reproductive Health

Tobacco Regulatory Research

General Social Survey (GSS) 2014, Household Enumeration Form (HEF) Roster

Demographics

Infectious Diseases and Immunity

Infectious Diseases and Immunity

Behavioral Risk Factor Surveillance System (BRFSS)

Reproductive Health

Tobacco Regulatory Research

Infectious Diseases and Immunity

Respiratory

Mental Health Research

Mental Health Research

National Survey on Drug Use and Health (NSDUH) 2014 Questionnaire

Mental Health Research

National Survey on Drug Use and Health (NSDUH) 2014 Questionnaire

Mental Health Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

Hemophilia Inhibitor Research

STOP-IT task

Substance Abuse and Addiction

Infectious Diseases and Immunity

Mental Health Research

None

Physical Activity and Physical Fitness

FITNESSGRAM®/ACTIVITYGRAM Test Administration Manual

Physical Activity and Physical Fitness

Rikli, R. E., & Jones, C. J. (1999). Development and validation of a functional fitness test for community-residing older adults. Journal of Aging and Physical Activity, 7, 129-161.

Physical Activity and Physical Fitness

Sickle Cell Disease

Sickle Cell Disease

Sickle Cell Disease

Sickle Cell Disease

Mental Health Research

Mental Health Research

Substance Abuse and Addiction

Infectious Diseases and Immunity

Tobacco Regulatory Research

Mental Health Research

Ocular

Weight History
Geriatrics

2011-12 National Health Examination Survey (NHANES) Lab Procedures Manual

Nutrition and Dietary Supplements

Job Content Questionnaire

Social Environments