New COVID-19 Research Collections, click here.

COVID-19 Protocol Library

The PhenX COVID-19 library provides COVID-19 related measurement protocols (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these protocols rather than developing new ones. The source of each protocol has been verified and contact information is provided in case additional information is needed. In the future, we plan to provide data dictionaries to enhance data interoperability and to support data harmonization. Modules are subsets of full instruments. Full instruments can be found through Sort by Source. Please note, these protocols have not been selected via the standard PhenX consensus process and cannot be considered broadly validated; investigators are encouraged to perform validation studies.

Another important resource is the NIH Public Health Emergency and Disaster Research Response (DR2). The NIH DR2 provides a wide array of data collection tools and resources for use in public health emergencies and disasters, including the COVID-19 pandemic. To visit the NIH DR2, click here.

SEAN is a network of experts in the social, behavioral, and economic sciences poised to assist decision makers at all levels as they respond to COVID-19. To visit SEAN, click here.

View our new Variable Comparison Tool here!

To submit a COVID-19 related data collection tool and study protocols for consideration, please click here

Available COVID-19 Protocols (118)

All India Institute of Medical Sciences (AIIMS) University of Southern California Contact	PhenX Sub-topic(s)
Longitudinal Aging Study in India – Diagnostic Assessment of Dementia (LASI-DAD)
COVID19-related knowledge and behaviors	Social Distancing; Hygiene; Knowledge
COVID19 and Heath care and food security	Health Care; General Symptoms; Food Security
COVID19 and Economic Effects	Economic Impact
COVID19 and Discrimination and (mis) information	Sources of information about COVID-19; Social Impact
COVID19 and Mental Health, coping and wellbeing	General Mental Health; Overall Impact

COVID-19 and Perinatal Experiences Study Contact	PhenX Sub-topic(s)
Coronavirus Perinatal Experiences Impact Survey (COPE-IS)
Prenatal Experiences of COVID-19	Current Pregnancy; Health Care
Perinatal Experiences of COVID-19	Past Pregnancy; Health Care
Exposures and Symptoms	General Symptoms; Diagnosis; General Mental Health
Financial Impacts	Employment; Economic Insecurity
Social Support Impacts	Social Impact
Social Distancing and Restricted Activities	Social Distancing; Home Life
Coping and Adjustment	General Mental Health; Substance Use; Dietary Intake
Emotional Impact	Stress; Sleep Changes; Daily Impact
Health Background, Mental Health, and Substance Use	Health History; Substance Use
Demographics	Locational Demographics; Personal Demographics
COVID-19 - Coronavirus Perinatal Experience - Impact Update
Exposures and Symptoms	General Symptoms; Exposure
Adjustments	Daily Life; Stress; Overall Impact

Center for Dissemination and Implementation Science, University of Illinois at Chicago Contact	PhenX Sub-topic(s)
COVID-19 Experiences among South African Adolescent Girls and their Mothers
Mental Health	General Mental Health
Personal and Family Impacts	Family Impact
Risk-Reduction Behaviors	Substance Use; Sexual Behavior; Housing Security

Center for Economic and Social Research (CESR) CESR Contact	PhenX Sub-topic(s)
Coronavirus Tracking Survey of the Understanding America Survey (UAS)
COVID-19 Symptoms, Status, and Healthcare	General Symptoms; Status; Health Care
COVID-19 Knowledge, Attitudes, and Avoidant Behaviors	Knowledge; Attitudes; Avoidant Behaviors
Mental Health and Substance Use	General Mental Health; Substance Use
Labor Market Outcomes	Labor Market
Economic Insecurity	Economic Insecurity
Educational Impact Due to COVID-19	K-12 Education Impact

Center for Pediatric Traumatic Stress (CPTS) CPTS Contact 1 , CPTS Contact 2	PhenX Sub-topic(s)
COVID-19 Exposure and Family Impact Survey (CEFIS)
Family Exposure items	Overall Impact
Family Impact items	Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult
Family Exposure items - Adolescent/Young Adult	Overall Impact
Family Impact items - Adolescent/Young Adult	Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) (Spanish)
Family Exposure items (Spanish)	Overall Impact
Family Impact items (Spanish)	Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult (Spanish)
Family Exposure items - Adolescent/Young Adult (Spanish)	Overall Impact
Family Impact items - Adolescent/Young Adult (Spanish)	Family Impact

Centers for Disease Control and Prevention (CDC) CDC Contact	PhenX Sub-topic(s)
CDC Novel Coronavirus Case Report Form	General Symptoms; Diagnosis; Foreign Travel

Chronic Obstructive Pulmonary Disease Gene Study (COPDGene) COPDGene Contact 1 , COPDGene Contact 2	PhenX Sub-topic(s)
COPD Gene COVID-19 Survey	General Symptoms; Diagnosis

Complementary and Integrative Research (CAIR) CAIR Contact	PhenX Sub-topic(s)
Complementary and Integrative Research (CAIR) Pandemic Impact Questionnaire (PIQ)
COVID-19 Health and Negative Behavioral Impacts	General Symptoms; Health Care; Economic Insecurity
COVID-19 Mental Health Impacts	General Mental Health; Sleep Changes
COVID-19 Positive Impacts	Positive Impacts

Cornell University Contact	PhenX Sub-topic(s)
Telling our stories in the age of COVID-19 (TOSC)
COVID-19 Situational and Contextual Factors	Employment; Locational Demographics; Personal Demographics
COVID-19 Regional Restriction Status	Government Response
COVID-19 Concerns About Health, Finances, and Overall Impact	Health Care; Economic Insecurity
COVID-19 Health Status	Status; Diagnosis
COVID-19 Impact	Overall Impact

The Coronavirus Anxiety Project Contact	PhenX Sub-topic(s)
Coronavirus Anxiety Scale (CAS)	General Mental Health
Obsession with COVID-19 Scale (OCS)	General Mental Health

Coronavirus Health Impact Survey (CRISIS) CRISIS Contact	PhenX Sub-topic(s)
CRISIS Surveys: Adult Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background	Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Youth Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background	Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background	Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Adult Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Youth Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use

Coronavirus Impact Scale Contact 1 , Contact 2	PhenX Sub-topic(s)
Coronavirus Impact Scale	Overall Impact

Division of Pulmonary and Critical Care Medicine University of California San Francisco San Francisco General Hospital Contact 1 , Contact 2	PhenX Sub-topic(s)
COVID-19 Questionnaire on Impact of and Barriers to Stay at Home, Self-Isolation, and Quarantine for Vulnerable Populations
Demographic	Personal Demographics
Health Literacy	Health Literacy
Perceived Stress Scale (Adult)	Stress
Perceived Stress Scale (Child	Stress
Health Risk Belief	Knowledge; Attitudes
Access To Covid19 Care And Care For Chronic Conditions	Knowledge; Telehealth; Technology Use
Covid19 Impact And Barriers To Self-Isolation	Sources of information about COVID-19; Overall Impact
Determining Economic Burden related to COVID-19 and COVID-19-like symptoms
Socioeconomic Status	Education; Employment; Home Life
Ahcm Screening Tool	Overall Impact; Fear of Violence; Housing Security
Costs associated with care-seeking for COVID19 related symptoms and COVID19 diagnosis	Economic Impact; Health Care
Income Changes	Employment; Economic Insecurity
Costs and Socioeconomic Consequences of Self-isolation and Quarantine for COVID-19 on Vulnerable Populations
Costs Associated with Social Distancing, Quarantine, and “Shelter-in-Place” Orders	Economic Insecurity; Economic Impact
Income Changes because of Social Distancing, Quarantine, or Shelter-in-Place Orders	Economic Impact
Accommodations for Employment	Economic Insecurity; Employment
Changes in Food Security	Food Security

Environmental influences on Child Health Outcomes (ECHO) ECHO Contact	PhenX Sub-topic(s)
COVID-19 Questionnaire - Adult Primary Version
COVID-19 Infection - Adult Primary Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Primary Version	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version	Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version
COVID-19 Infection - Adult Alternate Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Alternate Version	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version	Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version
COVID-19 Infection - Child Parent-Report Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak on the Child Enrolled in ECHO	Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version
COVID-19 Infection - Child Self-Report - Primary Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Primary Version	Social Impact; Past Pregnancy; General Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version
COVID-19 Infection - Child Self-Report - Alternate Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Alternate Version	Social Impact; Past Pregnancy
COVID-19 Questionnaire - Adult Primary Version (Spanish)
COVID-19 Infection - Adult Primary Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Primary Version (Spanish)	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version (Spanish)	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version (Spanish)	Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version (Spanish)
COVID-19 Infection - Adult Alternate Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Alternate Version (Spanish)	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version (Spanish)	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version (Spanish)	Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version (Spanish)
COVID-19 Infection - Child Parent-Report Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak on the Child Enrolled in ECHO (Spanish)	Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version (Spanish)
COVID-19 Infection - Child Self-Report - Primary Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Primary Version (Spanish)	Social Impact; Past Pregnancy; General Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version (Spanish)
COVID-19 Infection - Child Self-Report - Alternate Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Alternate Version (Spanish)	Social Impact; Past Pregnancy

Fordham University's Center for Ethics Education and Applied Developmental Psychology Program Contact 1 , Contact 2	PhenX Sub-topic(s)
Coronavirus Racial Bias Scale (CRBS)	General Mental Health; Racial/Ethnic Disparities; Daily Impact
Coronavirus Victimization Distress Scale (CVDS)	Social Impact; Cyber-harassment

Global Consortium for Chemosensory Research (GCCR) GCCR Contact	PhenX Sub-topic(s)
Global Consortium for Chemosensory Research COVID-19 Survey
COVID-19 Diagnosis as it May Relate to Sense of Smell	Diagnosis; Sense of Smell
COVID-19 Diagnosis as it May Relate to Sense of Taste	Diagnosis; Sense of Taste
COVID-19 Recovery on the Experience of Smell and Taste	Recovery; Sense of Smell; Sense of Taste

HERO Contact	PhenX Sub-topic(s)
HERO Protective Equipment Survey	Personal Protective Equipment
HERO Daily Experience Index	General Mental Health

Harvard T.H. Chan School of Public Health Contact 1 , Contact 2	PhenX Sub-topic(s)
Social Risk Factors for COVID-19 Exposure Questionnaire
Perceptions	Exposure
Demographics	Personal Demographics
Education and Income	Personal Demographics; Health Care
Diagnosis, Status, Treatment, Recovery	Diagnosis; Status
Personal and Family Impacts	Home Life; Family Impact
Risk Reduction Behaviors	Employment; Transportation; Personal Protective Equipment
Work and Employment – Employer Policies, Perceptions, Supports	Employer Policies

Institute for Clinical and Translational Science at University of Iowa Contact	PhenX Sub-topic(s)
COVID-19 Evaluation of Risk in Emergency Departments
Participant Interest Screening Form	Participant Intake
Participant Enrollment/Baseline Form	Participant Enrollment
Facility Baseline Form	Critical Care Facilities
Participant Weekly Survey	Participant Weekly Survey
Facility Weekly Survey	Facility Weekly Survey
Participant Endotracheal Intubation/Cardiac Arrest Event Form	Critical Care Participants
Facility Endotracheal Intubation/Cardiac Arrest Event Form	Critical Care Facilities
Participant Post-Serology Follow-Up Form (Week 4)	Participant Follow-Up
Facility Organizational Factors Post-Serology Form (Week 4)	Facility Follow-Up
Participant 6-Month Follow-Up Form	Participant Follow-Up
Facility 6-Month Follow-Up Form	Facility Follow-Up
Participant Baseline Positive-Test Follow-Up Form	Participant Follow-Up

International Sexual Health And REproductive Health Survey during COVID-19 (I-SHARE) I-SHARE Contact 1 , I-SHARE Contact 2	PhenX Sub-topic(s)
I-SHARE Health Survey during COVID-19
Socio-demographics	Locational Demographics; Personal Demographics
Compliance with social distancing measures	Social Distancing; Economic Impact; Substance Use
Couple and family relationships	Family Impact
Sexual behavior	Sexual Behavior
Access to contraceptives	Pregnancy History; Contraceptives; Health Care
Access to reproductive health care	Current Pregnancy; Health Care
Abortion	Abortion; Health Care
Sexual and gender based violence	Violence; Partner Dynamics
Female genital mutilation/early or forced marriage	Early Marriage; Female Circumcision
HIV/STI	HIV
Mental health	General Mental Health
Nutrition	Food Security

Johns Hopkins University (JHU) JHU Contact	PhenX Sub-topic(s)
COVID-19 Community Response Survey
Knowledge and Attitudes Toward COVID-19	Knowledge; Perceived Threat
COVID-19 Symptoms and Testing Experience	General Symptoms; Diagnosis
Health Conditions, Medications and Health Care During COVID-19 Pandemic	Health Care; Chronic Health Conditions
COVID-19 and Mental Health Impacts	General Mental Health
COVID-19 Impact and Pandemic Stress	Overall Impact
COVID-19 and Social Distancing	Social Distancing; Social Impact
COVID-19 and Violence and Trauma	Violence; Fear of Violence
COVID-19 and Substance Use	Substance Use
COVID-19 and Sexual Behavior	Sexual Behavior

Kennedy Krieger Institute Contact	PhenX Sub-topic(s)
KSADS-COMP PTSD Screen items	Screen for K-SADS-COMP
KSADS-COMP PTSD Screen items - Spanish	Screen for K-SADS-COMP

Massachusetts General Hospital Contact	PhenX Sub-topic(s)
COVID-19 Symptom Tracker Mobile App (CSTM)
COVID-19 Related Exposure And Use of PPE	Exposure
COVID-19 Symptoms	General Symptoms; Diagnosis; Treatment
COVID-19 Use of Personal Protective Equipment (PPE)	Personal Protective Equipment

Michigan State University Contact	PhenX Sub-topic(s)
Coping with COVID through nature: Evidence from breast cancer patients and the output from the intake form
Community Impacts	Physical Activity; Community Access
Environmental Factors	Nature Appreciation
Mental Health	General Mental Health
Cancer Impact	Non-COVID-19 Symptoms and Medicines
Personal Demographics	Personal Demographics; Health Care

Montreal Behavioural Medicine Centre (MBMC) MBMC Contact 1 , MBMC Contact 2	PhenX Sub-topic(s)
COVID-19 International Survey (CIS)
Social Distancing and Hygiene - [COVID Specific]	Social Distancing; Hygiene
Concerns of Infection - [COVID Specific]	Perceived Threat
Sources of information about COVID-19	Sources of information about COVID-19

Multi-Ethnic Study of Atherosclerosis (MESA) MESA Contact	PhenX Sub-topic(s)
MESA COVID-19 Questionnaire
COVID-19 Diagnosis, Symptoms and Recovery	Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines	Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene	Social Distancing; Hygiene
MESA COVID-19 Questionnaire - Chinese
COVID-19 Diagnosis, Symptoms and Recovery - Chinese	Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines - Chinese	Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene - Chinese	Social Distancing; Hygiene
MESA COVID-19 Questionnaire - Spanish
COVID-19 Diagnosis, Symptoms and Recovery - Spanish	Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines - Spanish	Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene - Spanish	Social Distancing; Hygiene
MESA COVID-19 Questionnaire (Annotated)	Full Annotated Questionnaire
MESA COVID-19 Questionnaire Manual of Operations	Manual of Operations

Multicenter Aids Cohort Study Women's Interagency Hiv Study (MACS-WIHS) MACS-WIHS Contact	PhenX Sub-topic(s)
MACS-WIHS Questionnaire
COVID-19 Symptoms, Testing, and Preventive Behaviors	General Symptoms; Status; Health Care
COVID-19 Impact on Daily Life	Daily Life; Health Care
COVID-19 Psychosocial Impact	General Mental Health
MACS-WIHS Questionnaire (Spanish)
COVID-19 Symptoms, Testing, and Preventive Behaviors (Spanish)	General Symptoms; Status; Health Care
COVID-19 Impact on Daily Life (Spanish)	Daily Life; Health Care
COVID-19 Psychosocial Impact (Spanish)	General Mental Health

NIDA-supported data sharing consortium, C3PNO Contact	PhenX Sub-topic(s)
C3PNO COVID-19 Survey
Demographics	Employment; Home Life
COVID-19 Topics	Overall Impact; General Symptoms; Diagnosis
Mental Health	General Mental Health
Healthcare and HIV	Health Care; HIV
Relationships	Sexual Behavior
Substance Use	Substance Use

NORC at the University of Chicago Contact 1 , Contact 2	PhenX Sub-topic(s)
Cyber-Abuse Research Initiative (CARI) COVID19 Impact on Domestic Abuse
Domestic Violence Victimization and Perpetration During COVID-19	Home Life; Conflict; Cyber-harassment
Help-Seeking and Fear of Violence During COVID-19	Help-seeking; Fear of Violence

National Alzheimer's Coordinating Center Contact	PhenX Sub-topic(s)
COVID-19 Impact Survey
COVID-19 Impact Survey - Participant	Diagnosis; General Mental Health; Overall Impact
COVID-19 Impact Survey - Co-participant	General Mental Health; Overall Impact; Health Care
COVID-19 Technology Accessibility Survey	Technology Use

National Institute of Mental Health (NIMH) Intramural Research Program Contact	PhenX Sub-topic(s)
Psychosocial Impact of COVID-19 Survey
Psychological Impact	General Mental Health; Social Impact
Social Distancing	Social Distancing
Hopes and Dreams	General Mental Health; Attitudes
Health Concerns	General Symptoms; Diagnosis
Daily Activities	Daily Life
Daily Functioning	Daily Life

National Institutes of Health (NIH) NIH Contact	PhenX Sub-topic(s)
All of Us Covid 19 Participant Experience Survey (COPE)
COVID-19 Related Social Distancing Experiences	Social Distancing; Hygiene
COVID-19 Related Symptoms	General Symptoms
COVID-19 Related Testing	Diagnosis
COVID-19 Related Treatment	Treatment
COVID-19 Related Impact	Overall Impact; General Mental Health
All of Us Covid 19 Participant Experience Survey (COPE) (Spanish)
COVID-19 Related Social Distancing Experiences (Spanish)	Social Distancing; Hygiene
COVID-19 Related Symptoms (Spanish)	General Symptoms
COVID-19 Related Testing (Spanish)	Diagnosis
COVID-19 Related Treatment (Spanish)	Treatment
COVID-19 Related Impact (Spanish)	Overall Impact; General Mental Health

New York State Psychiatric Institute Columbia University Iriving Medical Center Contact 1 , Contact 2	PhenX Sub-topic(s)
COVID-19 Experiences (COVEX)
COVID-19 Symptoms & Diagnoses	General Symptoms; Diagnosis
Vulnerability and Exposure to COVID-19	Substance Use; Exposure
Changes in Living Situation due to COVID-19	Home Life
COVID-19 Related Employment Status	Employment; Education
Worries, Mental Health Changes due to COVID-19	General Mental Health; Substance Use
Problems and Support during COVID-19 outbreak	Resources; Health Care
Coping with COVID-19	General Mental Health; Positive Impacts
Pregnancy-Related during COVID-19	Current Pregnancy; Past Pregnancy
Media Use During COVID-19	Media Use; Sources of information about COVID-19

Nottingham Trent University (NTU) NTU Contact	PhenX Sub-topic(s)
Fear of COVID-19 Scale	General Mental Health

The Ohio State University Wexner Medical Center Contact	PhenX Sub-topic(s)
Impact of COVID-19 on Behaviors across the Cancer Control Continuum in Ohio
Symptoms, diagnosis, information sources	General Symptoms; Diagnosis; Sources of information about COVID-19
Personal, family, daily life impacts	Employment; Home Life
Stress, anxiety, food or economic insecurity, sleep, mental health	General Mental Health; Economic Insecurity; Diagnosis
Social distancing behaviors	Social Distancing; Social Impact
Health, health care access during pandemic, cancer-specific questions	Health Care; Non-COVID-19 Symptoms and Medicines
Healthful behaviors including physical activity, healthy diet, alcohol and drug use	Physical Activity; Dietary Intake; Substance Use
Demographics	Personal Demographics; Locational Demographics

The Osteoporotic Fractures in Men (MROS) Study Study of Muscle, Mobility, and Aging (SOMMA) (MROS/SOMMA) MROS/SOMMA Contact	PhenX Sub-topic(s)
MROS/SOMMA COVID-19 Social Impact Questionnaire
Symptoms and Diagnosis	General Symptoms; Diagnosis
MROS/SOMMA Social Distancing and Hygiene	Social Distancing; Hygiene

Pandemic Stress Index (PSI) PSI Contact	PhenX Sub-topic(s)
COVID-19 Pandemic Stress Index (PSI)	Overall Impact

Pennington Biomedical Research Center (PBRC) PBRC Contact	PhenX Sub-topic(s)
Pennington Biomedical COVID-19 Survey
Regional Social Distancing COVID-19 Mandates	Social Distancing
Impacts of COVID-19 on Food Security	Food Security
Worry about COVID-19 Infection	Diagnosis; General Mental Health
Impacts of COVID-19 on Employment	Economic Insecurity
Impacts of COVID-19 on Changes to Physical Activity and Sedentary Behaviors	Physical Activity
Impacts of COVID-19 on Dietary Changes	Dietary Intake
Impacts of COVID-19 on Sleep Changes	Sleep Changes
Impacts of COVID-19 on Well-Being	General Mental Health

RAND Corporation Contact	PhenX Sub-topic(s)
RAND American Life Panel Survey: Impacts of COVID-19
Subjective Wellbeing	Attitudes; General Mental Health
Mental Health	General Mental Health
Disruption to routine behaviors	Overall Impact; Daily Impact
Health Care	Health Care; General Mental Health
Experience with COVID-19	Diagnosis
COVID-19 Related Information and Trust in News and Government Institutions	Sources of information about COVID-19; Knowledge; Attitudes
Common ingroup identity	Attitudes
COVID-19 Related Household Finances	Economic Impact; Economic Insecurity
Online shopping and delivery	Resources; Attitudes
Schooling	Education
Employment	Employment
Domestic Conflict	Conflict
Political Affiliation	Personal Demographics

Rare Diseases Clinical Research Network, Data Management and Coordinating Center (RDCRN) RDCRN Contact	PhenX Sub-topic(s)
Impact of COVID-19 on People Living with Rare Disease and their Families
Symptoms and Diagnosis	General Symptoms; Diagnosis; Treatment
Health Care Access and Service Use During the Pandemic	Health Care; Status

Social Psychological Measurements of COVID-19 … Contact	PhenX Sub-topic(s)
Social Psychological Survey of COVID-19: Coronavirus Perceived Threat, Government Response, Impacts, and Experiences Questionnaires
Perceived Coronavirus Threat	Perceived Threat
Federal Governmental Response to Coronavirus	Government Response
State Governmental Response to Coronavirus	Government Response
City Governmental Response to Coronavirus	Government Response
Coronavirus Impacts	Resources; General Mental Health
Coronavirus Experiences	General Symptoms; Diagnosis; Social Distancing
Perceived Coronavirus Threat (Short Form)	Perceived Threat
Governmental Response to Coronavirus (Short Form)	Government Response
Coronavirus Impacts (Short Form)	Resources; General Mental Health
Coronavirus Experiences (Short Form)	General Symptoms; Diagnosis; Social Distancing

South Alabama University Contact	PhenX Sub-topic(s)
Multidimensional Face Mask Perceptions Scale	Attitudes; Personal Protective Equipment

Stanford Health Policy Contact	PhenX Sub-topic(s)
Impact of the novel Coronavirus (COVID-19) on Patients with Cancer
Overall Cancer Care	Health Care; Chronic Health Conditions
Care Delays or Interruptions (due to COVID-19 pandemic)	Health Care
Challenges Due to COVID-19 Pandemic	Overall Impact; Sources of information about COVID-19
Novel Coronavirus Testing	Status; Diagnosis
Demographics	Personal Demographics; Health History

Stanford University Contact	PhenX Sub-topic(s)
Psychological Stress During COVID-19 Crisis
COVID19 related Lifestyle Change	Daily Impact

Trinity College Dublin Contact	PhenX Sub-topic(s)
The Irish Longitudinal Study on Ageing (TILDA) COVID-19 Self-Completion Questionnaire
Activities During Covid-19	Home Life; Social Distancing
Health Behaviors	Social Impact; Substance Use; Physical Activity
Mental Health	General Mental Health
Work	Employment; Economic Impact
State Assistance and Care Giving	Community Assistance; Home Life
Health Care	Health Care
Media	Media Use; Sources of information about COVID-19
Age Discrimination	Attitudes
COVID-19 Impact	General Symptoms; Diagnosis
General Impact	Overall Impact

Tulane University School of Public Health and Tropical Medicine Contact	PhenX Sub-topic(s)
A new approach to controlling chlamydia transmission in young people - sexual behavior in the time of COVID-19
Housing and income due to COVID	Housing Security; Economic Impact
COVID-19 symptom check	General Symptoms; Diagnosis
PPE and COVID	Personal Protective Equipment
COVID-19 risk perceptions	Perceived Threat; Hygiene
COVID-19 related communications	Sources of information about COVID-19
STD/STI testing during COVID	Diagnosis; Non-COVID-19 Symptoms and Medicines
Sexual behaviors during COVID	Sexual Behavior
Substance use during COVID	Substance Use

UPenn in collaboration with CTSAs Contact	PhenX Sub-topic(s)
COVID-19 Patient Survey
COVID Diagnosis and symptoms	Diagnosis; General Symptoms; Foreign Travel
General health questions	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions	Substance Use; Education; Employment
COVID-19 Patient Survey (Chinese)
COVID Diagnosis and symptoms (Chinese)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Chinese)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Chinese)	Substance Use; Education; Employment
COVID-19 Patient Survey (French)
COVID Diagnosis and symptoms (French)	Diagnosis; General Symptoms; Foreign Travel
General health questions (French)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (French)	Substance Use; Education; Employment
COVID-19 Patient Survey (Italian)
COVID Diagnosis and symptoms (Italian)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Italian)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Italian)	Substance Use; Education; Employment
COVID-19 Patient Survey (Japanese)
COVID Diagnosis and symptoms (Japanese)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Japanese)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Japanese)	Substance Use; Education; Employment
COVID-19 Patient Survey (Korean)
COVID Diagnosis and symptoms (Korean)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Korean)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Korean)	Substance Use; Education; Employment
COVID-19 Patient Survey (Polish)
COVID Diagnosis and symptoms (Polish)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Polish)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Polish)	Substance Use; Education; Employment

US Census Contact	PhenX Sub-topic(s)
COVID-19 Household Pulse Questionnaire
COVID-19 and Employment Stability	Employment
COVID-19 and Food Security	Food Security
COVID-19 and Health	General Mental Health; Health Care
COVID-19 and Housing Security	Housing Security
COVID-19 and Education Disruption	K-12 Education Impact
COVID-19 Household Pulse Questionnaire (Spanish)
COVID-19 and Employment (Spanish)	Employment
COVID-19 and Food Security (Spanish)	Food Security
COVID-19 and Health (Spanish)	General Mental Health; Health Care
COVID-19 and Housing Security (Spanish)	Housing Security
COVID-19 and Education Disruption (Spanish)	K-12 Education Impact

University of California Davis Contact	PhenX Sub-topic(s)
Survey for Workers
Covid-19 Infection	General Symptoms; Diagnosis
The Workplace	Employment; Personal Protective Equipment; Health Care
Demographics	Personal Demographics; Chronic Health Conditions
Changes to your life since COVID-19	Overall Impact
Financial situation	Economic Insecurity
Living situation	Personal Demographics; Home Life
Knowledge about COVID-19 protection measures	Attitudes; Knowledge
Pregnancy	Current Pregnancy; Past Pregnancy

University of California Division of Agriculture and Natural Resources (UCANR) UCANR Contact	PhenX Sub-topic(s)
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC
COVID Impacts	Diagnosis; Overall Impact
WIC participation and enrollment	Community Assistance
WIC services	Sources of information about COVID-19
Shopping for WIC foods	Food Security
General food shopping	Food Security; Dietary Intake
Immigration status	Personal Demographics
Mental health	General Mental Health
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC (Spanish)
COVID Impacts (Spanish)	Diagnosis; Overall Impact
WIC participation and enrollment (Spanish)	Community Assistance
WIC services (Spanish)	Sources of information about COVID-19
Shopping for WIC foods (Spanish)	Food Security
General food shopping (Spanish)	Food Security; Dietary Intake
Immigration status (Spanish)	Personal Demographics
Mental health (Spanish)	General Mental Health

University of California San Diego (UCSD) UCSD Contact	PhenX Sub-topic(s)
ABCD COVID-19 Impact Measure - Parent
Family Situation	Economic Insecurity; Avoidant Behaviors
Youth's Schooling	Education
Youth's Routine and Sleep	Physical Activity; Sleep Changes
Relationships	Family Impact; Hygiene; Social Impact
COVID Attitudes & Adherence	Conflict; Attitudes
Mental Health & Stress	General Mental Health; Stress
Substance Use	Substance Use
Screen Use	Media Use
Media Exposure to COVID-19	Sources of information about COVID-19
Physical Health	General Symptoms; Diagnosis; Health Care
ABCD COVID-19 Impact Measure - Youth
School Schedule	Education
Youth's Routine and Sleep	Sleep Changes
Parents/Guardians	Home Life
Relationships	Family Impact; Social Impact
Mental Health & Stress	General Mental Health
Substance Use	Substance Use
Media Exposure to COVID-19	Sources of information about COVID-19
Screen Use	Media Use
Physical Health	Physical Activity

University of Connecticut School of Medicine University of Massachusetts Contact	PhenX Sub-topic(s)
Epidemic - Pandemic Impacts Inventory (EPII)
Impact of COVID-19 on Work and Employment	Employment
Impact of COVID-19 on Education and Training	Education; Training
Impact of COVID-19 on Home Life	Home Life; Conflict
Impact of COVID-19 on Social Activities	Social Impact
Impact of COVID-19 on Economic	Economic Insecurity
Impact of COVID-19 on Emotional Health and Well-Being	General Mental Health; Health Care
Impact of COVID-19 on Physical Health Problems	Health Care; Physical Activity
Impact of COVID-19 on Physical Distancing and Quarantine	Social Distancing; Hygiene
Impact of COVID-19 on Infection History	General Symptoms; Diagnosis
Impact of COVID-19 on Positive Change	Positive Impacts

University of Florida (UFl) UFl Contact	PhenX Sub-topic(s)
Coping with COVID-19: Impact on Technology Use, mobility, food security, depression and social isolation
Mobility Due To COVID-19	Physical Activity
Technology Telehealth Use During COVID-19	Media Use; Telehealth
Life-space Mobility During COVID-19	General Mental Health
COVID-19 Related Impact on Mood and Sleep	General Mental Health; Sleep Changes
COVID-19 Related Social Interactions	Social Impact
Physical Activity During COVID-19	Physical Activity; Daily Life
Other Activities During COVID-19	Overall Impact
Food Access During COVID-19	Food Security
Thoughts and Feelings About COVID-19 (open ended)	Overall Impact

University of Miami (UMiami) UMiami Contact	PhenX Sub-topic(s)
COVID-19 Household Environment Scale (CHES)
Demographics	Locational Demographics; Social Impact; Personal Demographics
Household	Conflict; Daily Life; Household Togetherness
Escala de Ambiente Familiar Durante la Pandemia COVID-19 (Spanish)
Demographics (Spanish)	Locational Demographics; Social Impact; Personal Demographics
Household (Spanish)	Conflict; Daily Life; Household Togetherness
Escala de Ambiente Familiar Durante a Pandemia COVID-19 (Portuguese)
Demographics (Portuguese)	Locational Demographics; Social Impact; Personal Demographics
Household (Portuguese)	Conflict; Daily Life; Household Togetherness
COVID-19 Household Environment Scale (CHES) (Mandarin)
Demographics (Mandarin)	Locational Demographics; Social Impact; Personal Demographics
Household (Mandarin)	Conflict; Daily Life; Household Togetherness

University of Miami School of Nursing and Health Studies (UMiami) UMiami Contact	PhenX Sub-topic(s)
COVID-19 - Cannabis Health Questionnaire (CCHQ)
COVID-19 & Comorbidities	Chronic Health Conditions
COVID-19 & Cannabis Use	Substance Use
Economic Impact of COVID-19	Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing	General Symptoms; Diagnosis
Worry about COVID-19 Infection	Perceived Threat
Coping Strategies COVID-19	General Mental Health
COVID-19 - Cannabis Health Questionnaire (CCHQ) (Spanish)
COVID-19 & Comorbidities (Spanish)	Chronic Health Conditions
COVID-19 & Cannabis Use (Spanish)	Substance Use
Economic Impact of COVID-19 (Spanish)	Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing (Spanish)	General Symptoms; Diagnosis
Worry about COVID-19 Infection (Spanish)	Perceived Threat
Coping Strategies COVID-19 (Spanish)	General Mental Health

University of Miami: Department of Psychology (UMiami) UMiami Contact	PhenX Sub-topic(s)
Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)
COVID-19 Experiences	Diagnosis; General Symptoms; Health Care
COVID-19 Psychosocial and Practical Experiences	General Mental Health; Daily Life; Economic Insecurity
Health Related Quality of Life	Quality of Life

University of Michigan (UMich) UMich Contact	PhenX Sub-topic(s)
Health and Retirement Study: Core Interview COVID-19 Module
Direct Experience of COVID-19	General Symptoms; Diagnosis
Health Care Access (general)	Health Care
Economic Impact Payments	Economic Insecurity
Work and Business	Employment; Economic Impact
Living Arrangements	Housing Security; Home Life
Caregiving	Community Assistance
Health and Retirement Study: Questionnaire on Your Everyday life and Well-being
Mental Health	General Mental Health
Perceptions	Attitudes; Employment
Risk Reduction Behaviors	Social Impact; Daily Life

University of Michigan Center for Disability Health and Wellness (UMich) UMich Contact	PhenX Sub-topic(s)
Coronavirus Disability Survey (COV-DIS)
General health	Health Care
Depressive symptoms	General Mental Health
Social isolation	Social Impact; Daily Impact
Coronavirus infection/exposure	Status; Perceived Threat
Daily activities	Daily Impact; Daily Life
Access to medical care	Health Care
Employment and financial impact	Employment; Economic Insecurity
Transportation and information access	Daily Impact; Sources of information about COVID-19

University of North Carolina (UNC) UNC Contact	PhenX Sub-topic(s)
CTHSUS COVID-19 Survey
Tele mental health services Use	Mental Health Treatment; Telehealth
Tele mental health services Satisfaction	Telehealth; Mental Health Treatment Feedback
Tele mental health services Concerns	Telehealth; Mental Health Communications

University of North Carolina School of Medicine (UNC) UNC Contact 1 , UNC Contact 2	PhenX Sub-topic(s)
AURORA-COVID Impact Survey (AURORA-CIS)
Financial impact of COVID-19	Economic Insecurity
Health impact (self and loved ones) of COVID-19	Diagnosis
Worry about COVID-19	General Mental Health
Employment status due to COVID-19	Employment

University of Oklahoma Contact	PhenX Sub-topic(s)
Windshield Survey – COVID-19 Behaviors - Rural Responses to the COVID-19 Pandemic Rapid Assessment	Social Distancing; Personal Protective Equipment

University of Pittsburgh Medical Center (UMPC) UMPC Contact	PhenX Sub-topic(s)
COVID-19 Adolescent Symptom & Psychological Experience Questionnaire (CASPE)- Self-Report
General experience related to COVID and social distancing	Overall Impact
Emotional experience related to COVID and social distancing	General Mental Health
Cognitive experience related to COVID and social distancing	General Mental Health
Social experience related to COVID and social distancing	Social Impact
COVID-19 Adolescent Symptom & Psychological Experience Questionnaire (CASPE)- Parent
General experience related to COVID and social distancing	Overall Impact
Emotional experience related to COVID and social distancing	General Mental Health
Cognitive experience related to COVID and social distancing	General Mental Health
Social experience related to COVID and social distancing	Social Impact

University of Texas Rio Grande Valley (UTRGV) UTRGV Contact 1 , UTRGV Contact 2	PhenX Sub-topic(s)
COVID19 Impact on Health and Wellbeing Survey (CIHWS)
COVID19 related Depression	General Mental Health
COVID19 related Anxiety/Stress	General Mental Health; Stress
COVID19 related Health literacy	Health Literacy
COVID19 related Trusted sources of information	Sources of information about COVID-19
COVID19 related Compliance	Social Distancing
COVID19 related Financial stress	Economic Insecurity
COVID19 related Physical activity	Physical Activity
COVID19 Impact on Health and Wellbeing Survey (CIHWS) (Spanish)
COVID19 related Depression (Spanish)	General Mental Health
COVID19 related Anxiety/Stress (Spanish)	General Mental Health; Stress
COVID19 related Health literacy (Spanish)	Health Literacy
COVID19 related Trusted sources of information (Spanish)	Sources of information about COVID-19
COVID19 related Compliance (Spanish)	Social Distancing
COVID19 related Financial stress (Spanish)	Economic Insecurity
COVID19 related Physical activity (Spanish)	Physical Activity

University of Utah Department of Psychology Contact	PhenX Sub-topic(s)
University of Utah MIND Lab Measures of COVID-19 Information Trust, Barriers, and Behaviors
Trust and Information COVID-19	Sources of information about COVID-19
Social Distancing	Social Distancing
Diagnosis COVID-19	Diagnosis
Exposure	Exposure
Demographics	Personal Demographics

Vanderbilt University Medical Center (VUMC) VUMC Contact	PhenX Sub-topic(s)
Vanderbilt Child Health COVID-19 Poll: A National Survey of the Wellbeing of Parents and Children During COVID-19	Economic Insecurity; Health Care; Overall Impact

Wellcome Trust Contact	PhenX Sub-topic(s)
UK COVID19 Questionnaire
COVID-19 Related Health Questions	General Symptoms; Status; General Mental Health; Non-COVID-19 Symptoms and Medicines
Behaviour Change and Knowledge Due to COVID-19	Overall Impact; K-12 Education Impact; Knowledge
Economic Impact Due to COVID-19	Economic Insecurity; Employment
Social Impact Due to COVID-19	Social Impact; Home Life
Environmental Changes Due to COVID-19	Housing Security

World Health Organization (WHO) WHO Contact	PhenX Sub-topic(s)
Novel Coronavirus (nCOV) Acute Respiratory Infection Clinical Characterisation Data Tool
Hospital Admission Case Record Form	General Symptoms; Diagnosis; Domestic Travel; Foreign Travel
Daily Case Record Form	General Symptoms; Diagnosis
Treatment and Outcomes Case Record Form	Treatment; Outcomes
Global COVID-19 Clincal Platform Novel Coronavirus (COVID-19) - Rapid Version
Hospital Admission Case Record Form (Rapid Version)	General Symptoms; Diagnosis; Domestic Travel
Daily Case Record Form (Rapid Version)	General Symptoms; Diagnosis
Treatment and Outcomes Case Record Form (Rapid Version)	Treatment; Outcomes
WHO Global COVID-19 Clinical Platform: Pregnancy Case Report Form (CRF)
Hospital Admission Case Record Form	General Symptoms; Diagnosis; Personal Demographics
Daily Case Record Form	General Symptoms; Diagnosis
Treatment and Outcome Case Record Form	Treatment; Outcomes
Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases of Multisystem Inflammatory Syndrome (MIS) in Children and Adolescents Temporally Related to COVID-19
Hospital Admission Case Record Form	General Symptoms; Diagnosis; Personal Demographics
Treatment and Outcome Case Record Form	General Symptoms; Treatment; Outcomes

Yale University Pain Management Collaboratory Coordinating Center Contact	PhenX Sub-topic(s)
Pain Management Collaboratory (PMV) Coronavirus Pandemic (COVID-19) Measures	Overall Impact

Last Updated 2/22/21, 12:00 AM