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COVID-19 Protocol Library

The PhenX COVID-19 library provides COVID-19 related measurement protocols (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these protocols rather than developing new ones. The source of each protocol has been verified and contact information is provided in case additional information is needed. In the future, we plan to provide data dictionaries to enhance data interoperability and to support data harmonization. Modules are subsets of full instruments. Full instruments can be found through Sort by Source. Please note, these protocols have not been selected via the standard PhenX consensus process and cannot be considered broadly validated; investigators are encouraged to perform validation studies.

Another important resource is the NIH Public Health Emergency and Disaster Research Response (DR2). The NIH DR2 provides a wide array of data collection tools and resources for use in public health emergencies and disasters, including the COVID-19 pandemic. To visit the NIH DR2, click here.

SEAN is a network of experts in the social, behavioral, and economic sciences poised to assist decision makers at all levels as they respond to COVID-19. To visit SEAN, click here.

View our new Variable Compare Tool here!

Available COVID-19 Protocols (185)
Academic Network for Sexual and Reproductive Health and Rights Policy (Ghent University)
Contact 1 , Contact 2
PhenX Sub-topic(s)
International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19: Study Protocol for Online National Surveys and Global Comparative Analyses
Avoidant Behaviors; Violence; Sexual Behavior
All India Institute of Medical Sciences (AIIMS)
University of Southern California
Contact
PhenX Sub-topic(s)
Longitudinal Aging Study in India - Diagnostic Assessment of Dementia (LASI-DAD)
COVID19-related knowledge and behaviors
Social Distancing; Hygiene; Knowledge
COVID19 and Heath care and food security
Health Care; General Symptoms; Food Security
COVID19 and Economic Effects
Economic Impact
COVID19 and Discrimination and (mis) information
Sources of information about COVID-19; Social Impact
COVID19 and Mental Health, coping and wellbeing
General Mental Health; Overall Impact
American Society for Health Care Engineering (ASHE)
ASHE Contact
PhenX Sub-topic(s)
COVID Response Tactics Sharing - Healthcare Engineering
Health Care; Critical Care Facilities; Employer Policies
COVID-19 Prevention Netwrok Statistical and Data Management Center (CoVPN)
CoVPN Contact
PhenX Sub-topic(s)
Prospective Study of Acute Immune Responses to SARS COV-2 Infection
Concomitant Medications
Treatment; Health History
COVID-19 Symptoms - Enrollment
General Symptoms; Participant Enrollment
COVID-19 Hospitalization
Critical Care Participants; Health Care; Treatment
Demographics
Personal Demographics; Locational Demographics
Dietary Information
Dietary Intake
Health Contact
General Symptoms; Treatment
Hematology
Diagnosis
Informed Consent
Participant Intake; Participant Enrollment
Interim Visit
Participant Follow-Up
Medical History
Health History; Chronic Health Conditions
Participant Receipt
Community Access
Participant Transfer
Participant Enrollment
Pregnancy Test Results
Participant Enrollment
SARS-CoV-2 Exposure
Current Pregnancy
SARS-CoV-2 Test Results
Exposure
Screening Outcome
Diagnosis
Specimen Collection - Blood
Participant Enrollment
Specimen Collection - Nasal Wash
Diagnosis
Specimen Collection - NP/Nasal Swab
Diagnosis
Specimen Collection - Saliva
Diagnosis
Specimen Collection - Stool
Diagnosis
Study Termination
Diagnosis
COVID-19 and Perinatal Experiences Study
Contact
PhenX Sub-topic(s)
Coronavirus Perinatal Experiences Impact Survey (COPE-IS)
Prenatal Experiences of COVID-19
Current Pregnancy; Health Care
Perinatal Experiences of COVID-19
Past Pregnancy; Health Care
Exposures and Symptoms
General Symptoms; Diagnosis; General Mental Health
Financial Impacts
Employment; Economic Insecurity
Social Support Impacts
Social Impact
Social Distancing and Restricted Activities
Social Distancing; Home Life
Coping and Adjustment
General Mental Health; Substance Use; Dietary Intake
Emotional Impact
Stress; Sleep Changes; Daily Impact
Health Background, Mental Health, and Substance Use
Health History; Substance Use
Demographics
Locational Demographics; Personal Demographics
COVID-19 - Coronavirus Perinatal Experience - Impact Update
Exposures and Symptoms
General Symptoms; Exposure
Adjustments
Daily Life; Stress; Overall Impact
The Center for AIDS Research Network of Integrated Clinical Systems (CFAR-CNIS)
CFAR-CNIS Contact
PhenX Sub-topic(s)
COVID-19 Impacts on HIV Care
Substance Use; Overall Impact; HIV
Center for Dissemination and Implementation Science, University of Illinois at Chicago
Contact
PhenX Sub-topic(s)
COVID-19 Experiences among South African Adolescent Girls and their Mothers
Mental Health
General Mental Health
Personal and Family Impacts
Family Impact
Risk-Reduction Behaviors
Substance Use; Sexual Behavior; Housing Security
Center for Economic and Social Research (CESR)
CESR Contact
PhenX Sub-topic(s)
Coronavirus Tracking Survey of the Understanding America Survey (UAS)
COVID-19 Symptoms, Status, and Healthcare
General Symptoms; Status; Health Care
COVID-19 Knowledge, Attitudes, and Avoidant Behaviors
Knowledge; Attitudes; Avoidant Behaviors
Mental Health and Substance Use
General Mental Health; Substance Use
Labor Market Outcomes
Labor Market
Economic Insecurity
Economic Insecurity
Educational Impact Due to COVID-19
K-12 Education Impact
Center for Pediatric Traumatic Stress (CPTS)
CPTS Contact 1 , CPTS Contact 2
PhenX Sub-topic(s)
COVID-19 Exposure and Family Impact Survey (CEFIS)
Family Exposure items
Overall Impact
Family Impact items
Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult
Family Exposure items - Adolescent/Young Adult
Overall Impact
Family Impact items - Adolescent/Young Adult
Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) (Spanish)
Family Exposure items (Spanish)
Overall Impact
Family Impact items (Spanish)
Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult (Spanish)
Family Exposure items - Adolescent/Young Adult (Spanish)
Overall Impact
Family Impact items - Adolescent/Young Adult (Spanish)
Family Impact
Centers for Disease Control and Prevention (CDC)
CDC Contact
PhenX Sub-topic(s)
CDC Novel Coronavirus Case Report Form
General Symptoms; Diagnosis; Foreign Travel
CDC COVID-19 Community Survey Question Bank (Draft)
Useful Demographic Covariates
Employment; Chronic Health Conditions; Personal Demographics
Epidemiology Questions
General Symptoms; Health Care; Diagnosis
Community Interventions Questions
Attitudes; Avoidant Behaviors; Hygiene
At-Risk Populations questions
Economic Insecurity; Social Distancing; Family Impact
Questions that are useful but are lower priority
Knowledge; Attitudes
COVID-19 Case Report Form
General Symptoms; Diagnosis; Foreign Travel
Chronic Obstructive Pulmonary Disease Gene Study (COPDGene)
COPDGene Contact 1 , COPDGene Contact 2
PhenX Sub-topic(s)
COPD Gene COVID-19 Survey
General Symptoms; Diagnosis
Collaborative Cohort of Cohorts for COVID-19 Research (C4R)
C4R Contact
PhenX Sub-topic(s)
C4R COVID-19 Questionnaire
COVID-19 Health and Exposure Status
Diagnosis; Recovery; Treatment
COVID-19 in Your Community and Social Network
Social Impact
COVID-19 Vaccine Attitudes and Beliefs
Attitudes
COVID-19 Pandemic Impact on Healthcare and Finances
Health Care; Economic Impact
COVID-19 Pandemic Impact on Behavior
Avoidant Behaviors; Substance Use; Sleep Changes
COVID-19 Pandemic Impact on Social Interactions
Social Impact; Personal Demographics
COVID-19 Pandemic Impact on Mood
General Mental Health; Social Impact; Stress
COVID-19 Beliefs and Attitudes
Attitudes
Columbia University Irving Medical Center (CUMC)
CUMC Contact
PhenX Sub-topic(s)
COVID-19 Healthcare Personnel Study (CHPS)
Health Care; Exposure; Personal Demographics
Complementary and Integrative Research (CAIR)
CAIR Contact
PhenX Sub-topic(s)
Complementary and Integrative Research (CAIR)
Pandemic Impact Questionnaire (PIQ)
COVID-19 Health and Negative Behavioral Impacts
General Symptoms; Health Care; Economic Insecurity
COVID-19 Mental Health Impacts
General Mental Health; Sleep Changes
COVID-19 Positive Impacts
Positive Impacts
Cornell University
Contact
PhenX Sub-topic(s)
Telling our stories in the age of COVID-19 (TOSC)
COVID-19 Situational and Contextual Factors
Employment; Locational Demographics; Personal Demographics
COVID-19 Regional Restriction Status
Government Response
COVID-19 Concerns About Health, Finances, and Overall Impact
Health Care; Economic Insecurity
COVID-19 Health Status
Status; Diagnosis
COVID-19 Impact
Overall Impact
The Coronavirus Anxiety Project
Contact
PhenX Sub-topic(s)
Coronavirus Anxiety Scale (CAS)
General Mental Health
Obsession with COVID-19 Scale (OCS)
General Mental Health
Coronavirus Health Impact Survey (CRISIS)
CRISIS Contact
PhenX Sub-topic(s)
CRISIS Surveys: Adult Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background
Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status
General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Youth Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background
Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status
General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background
Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status
General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Adult Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status
General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Youth Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status
General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status
General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
Coronavirus Impact Scale
Contact 1 , Contact 2
PhenX Sub-topic(s)
Coronavirus Impact Scale
Overall Impact
Division of Pulmonary and Critical Care Medicine University of California San Francisco
San Francisco General Hospital
Contact 1 , Contact 2
PhenX Sub-topic(s)
COVID-19 Questionnaire on Impact of and Barriers to Stay at Home,
Self-Isolation, and Quarantine for Vulnerable Populations
Demographic
Personal Demographics
Health Literacy
Health Literacy
Perceived Stress Scale (Adult)
Stress
Perceived Stress Scale (Child
Stress
Health Risk Belief
Knowledge; Attitudes
Access To Covid19 Care And Care For Chronic Conditions
Knowledge; Telehealth; Technology Use
Covid19 Impact And Barriers To Self-Isolation
Sources of information about COVID-19; Overall Impact
Determining Economic Burden related to COVID-19 and COVID-19-like symptoms
Socioeconomic Status
Education; Employment; Home Life
Ahcm Screening Tool
Overall Impact; Fear of Violence; Housing Security
Costs associated with care-seeking for COVID19 related symptoms and COVID19 diagnosis
Economic Impact; Health Care
Income Changes
Employment; Economic Insecurity
Costs and Socioeconomic Consequences of Self-isolation and
Quarantine for COVID-19 on Vulnerable Populations
Costs Associated with Social Distancing, Quarantine,
and “Shelter-in-Place” Orders
Economic Insecurity; Economic Impact
Income Changes because of Social Distancing, Quarantine,
or Shelter-in-Place Orders
Economic Impact
Accommodations for Employment
Economic Insecurity; Employment
Changes in Food Security
Food Security
Duke University
Contact
PhenX Sub-topic(s)
RADx-UP Common Data Elements
First Session
Treatment
Consent
Consent
Second Session
COVID-19 Vaccination
Location
Locational Demographics
Sociodemographics
Current Pregnancy; Education; Personal Demographics
Housing Employment And Insurance
Economic Insecurity; Employment; Insurance
Work Ppe And Distancing
Social Distancing; Hygiene; Personal Protective Equipment
Medical History
Chronic Health Conditions
Health Status
Health History
Vaccine Acceptance
Vaccinations
Testing
Diagnosis
Covid Test
Diagnosis
Symptoms
General Symptoms
Alcohol And Tobacco
Substance Use
Identity
Locational Demographics; Personal Demographics
Tier2 Sociodemographics
Personal Demographics
Tier2 Medical History
Health Care
Tier2 Vaccine Acceptance
Vaccinations
Tier2 Testing
Knowledge; Perceived Threat
Tier2 Medications
Non-COVID-19 Symptoms and Medicines
Tier2 Alcohol And Tobacco
Substance Use
Tier2 Drug Use
Substance Use
Tier2 Disability
General Mental Health; Chronic Health Conditions
Tier2 Food Insecurity
Food Security; Dietary Intake; Economic Impact
Tier2 Housing
Housing Security
Tier2 Trust
Attitudes; Sources of information about COVID-19
Tier2 Ssn And Mrn
Personal Demographics
RADx-UP Common Data Elements (Spanish)
Consent (Spanish)
Consent
Location (Spanish)
Locational Demographics
Sociodemographics (Spanish)
Current Pregnancy; Education; Personal Demographics
Housing Employment And Insurance (Spanish)
Economic Insecurity; Employment; Insurance
Work Ppe And Distancing (Spanish)
Social Distancing; Hygiene; Personal Protective Equipment
Medical History (Spanish)
Chronic Health Conditions
Health Status (Spanish)
Health History
Vaccine Acceptance (Spanish)
Vaccinations
Testing (Spanish)
Diagnosis
Covid Test (Spanish)
Diagnosis
Symptoms (Spanish)
General Symptoms
Alcohol And Tobacco (Spanish)
Substance Use
Identity (Spanish)
Locational Demographics; Personal Demographics
Tier2 Sociodemographics (Spanish)
Personal Demographics
Tier2 Medical History (Spanish)
Health Care
Tier2 Vaccine Acceptance (Spanish)
Vaccinations
Tier2 Testing (Spanish)
Knowledge; Perceived Threat
Tier2 Medications (Spanish)
Non-COVID-19 Symptoms and Medicines
Tier2 Alcohol And Tobacco (Spanish)
Substance Use
Tier2 Drug Use (Spanish)
Substance Use
Tier2 Disability (Spanish)
General Mental Health; Chronic Health Conditions
Tier2 Food Insecurity (Spanish)
Food Security; Dietary Intake; Economic Impact
Tier2 Housing (Spanish)
Housing Security
Tier2 Trust (Spanish)
Attitudes; Sources of information about COVID-19
Tier2 Ssn And Mrn (Spanish)
Personal Demographics
The Earth Institute at Columbia Climate School
Contact
PhenX Sub-topic(s)
COVID-19 and Extreme Heat Survey
Personal Demographics; Housing Security; Locational Demographics
Environmental influences on Child Health Outcomes (ECHO)
ECHO Contact
PhenX Sub-topic(s)
COVID-19 Questionnaire - Adult Primary Version
COVID-19 Infection - Adult Primary Version
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Primary Version
Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version
Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version
Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version
COVID-19 Infection - Adult Alternate Version
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Alternate Version
Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version
Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version
Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version
COVID-19 Infection - Child Parent-Report Version
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak on the Child Enrolled in ECHO
Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version
COVID-19 Infection - Child Self-Report - Primary Version
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Primary Version
Social Impact; Past Pregnancy; General Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version
COVID-19 Infection - Child Self-Report - Alternate Version
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Alternate Version
Social Impact; Past Pregnancy
COVID-19 Questionnaire - Adult Primary Version (Spanish)
COVID-19 Infection - Adult Primary Version (Spanish)
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Primary Version (Spanish)
Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version (Spanish)
Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version (Spanish)
Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version (Spanish)
COVID-19 Infection - Adult Alternate Version (Spanish)
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Alternate Version (Spanish)
Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version (Spanish)
Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version (Spanish)
Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version (Spanish)
COVID-19 Infection - Child Parent-Report Version (Spanish)
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak on the Child Enrolled in ECHO (Spanish)
Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version (Spanish)
COVID-19 Infection - Child Self-Report - Primary Version (Spanish)
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Primary Version (Spanish)
Social Impact; Past Pregnancy; General Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version (Spanish)
COVID-19 Infection - Child Self-Report - Alternate Version (Spanish)
General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Alternate Version (Spanish)
Social Impact; Past Pregnancy
Fordham University's Center for Ethics Education and Applied Developmental Psychology Program
Contact 1 , Contact 2
PhenX Sub-topic(s)
Coronavirus Racial Bias Scale (CRBS)
General Mental Health; Racial/Ethnic Disparities; Daily Impact
Coronavirus Victimization Distress Scale (CVDS)
Social Impact; Cyber-harassment
George Washington University (GWU)
GWU Contact
PhenX Sub-topic(s)
ENhancing Assessment of Common Therapeutic Factors ENACT) Tool
General Mental Health; Social Impact; Daily Life
Global Consortium for Chemosensory Research (GCCR)
GCCR Contact
PhenX Sub-topic(s)
Global Consortium for Chemosensory Research COVID-19 Survey
COVID-19 Diagnosis as it May Relate to Sense of Smell
Diagnosis; Sense of Smell
COVID-19 Diagnosis as it May Relate to Sense of Taste
Diagnosis; Sense of Taste
COVID-19 Recovery on the Experience of Smell and Taste
Recovery; Sense of Smell; Sense of Taste
HERO
Contact
PhenX Sub-topic(s)
HERO Protective Equipment Survey
Personal Protective Equipment
HERO Daily Experience Index
General Mental Health
HIV Vaccine Trial Network Statistical and Data Management Center (HVTN)
HVTN Contact
PhenX Sub-topic(s)
Characterizing SARS-CoV-2 Specific Immunity in Convalescent Individuals
Concomitant Medications
Treatment
COVID-19 Symptoms
General Symptoms
COVID-19 Treatment and Hospitalization
Diagnosis; Treatment
Demographics
Locational Demographics; Personal Demographics
Interim Visit
Participant Follow-Up
Medical History
Health History; Chronic Health Conditions
Nasal Specimen for Antibodies
Diagnosis
Nasal Specimen for SARS-CoV-2 PCR
Diagnosis
Participant Receipt
Participant Intake; Participant Enrollment
Participant Transfer
Participant Intake; Participant Enrollment
SARS-CoV-2 Exposure
Diagnosis; Exposure
SARS-CoV-2 Test Results
Diagnosis
Screening Outcome
Status; Outcomes; Participant Enrollment
Specimen Collection - Blood
Diagnosis
Study Termination
Participant Enrollment
Harvard T.H. Chan School of Public Health
Contact 1 , Contact 2
PhenX Sub-topic(s)
Social Risk Factors for COVID-19 Exposure Questionnaire
Perceptions
Exposure
Demographics
Personal Demographics
Education and Income
Personal Demographics; Health Care
Diagnosis, Status, Treatment, Recovery
Diagnosis; Status
Personal and Family Impacts
Home Life; Family Impact
Risk Reduction Behaviors
Employment; Transportation; Personal Protective Equipment
Work and Employment – Employer Policies, Perceptions, Supports
Employer Policies
Harvard University
Contact
PhenX Sub-topic(s)
HAALSI COVID Survey
Overall Impact; Social Impact; Government Response
Imperial College London
Contact
PhenX Sub-topic(s)
Online Community Involvement in COVID-19 Research and Outbreak Response: Early Insights from a UK Perspective: Report 14
Attitudes; Avoidant Behaviors; Sources of information about COVID-19
Institute for Clinical and Translational Science at University of Iowa
Contact
PhenX Sub-topic(s)
COVID-19 Evaluation of Risk in Emergency Departments
Participant Interest Screening Form
Participant Intake
Participant Enrollment/Baseline Form
Participant Enrollment
Facility Baseline Form
Critical Care Facilities
Participant Weekly Survey
Participant Weekly Survey
Facility Weekly Survey
Facility Weekly Survey
Participant Endotracheal Intubation/Cardiac Arrest Event Form
Critical Care Participants
Facility Endotracheal Intubation/Cardiac Arrest Event Form
Critical Care Facilities
Participant Post-Serology Follow-Up Form (Week 4)
Participant Follow-Up
Facility Organizational Factors Post-Serology Form (Week 4)
Facility Follow-Up
Participant 6-Month Follow-Up Form
Participant Follow-Up
Facility 6-Month Follow-Up Form
Facility Follow-Up
Participant Baseline Positive-Test Follow-Up Form
Participant Follow-Up
International Academies of Emergency Dispatch (IAED)
IAED Contact
PhenX Sub-topic(s)
Emerging Infectious Disease Surveillance Tool (2019-Novel Coronavirus)
General Symptoms; Domestic Travel; Foreign Travel
International Severe Acute Respiratory and emerging Infection Consortium (ISARIC)
ISARIC Contact
PhenX Sub-topic(s)
ISARIC Global COVID-19 Case Report Form (CRF) Survey
Presentation/Admission Case Report Form
General Symptoms; Chronic Health Conditions; Personal Demographics
Case Report Form on Admission, Critical Care, Research Sampling
General Symptoms; Treatment; Critical Care Participants
Outcome Case Report Form
Diagnosis; Treatment; Outcomes
ISARIC Global COVID-19 Follow Up Study Protocol
General Symptoms; Outcomes; Quality of Life
ISARIC/WHO Clinical Characterisation Protocol for Severe Emerging Infections
General Symptoms; Treatment; Outcomes
International Sexual Health And REproductive
Health Survey during COVID-19 (I-SHARE)
I-SHARE Contact 1 , I-SHARE Contact 2
PhenX Sub-topic(s)
I-SHARE Health Survey during COVID-19
Socio-demographics
Locational Demographics; Personal Demographics
Compliance with social distancing measures
Social Distancing; Economic Impact; Substance Use
Couple and family relationships
Family Impact
Sexual behavior
Sexual Behavior
Access to contraceptives
Pregnancy History; Contraceptives; Health Care
Access to reproductive health care
Current Pregnancy; Health Care
Abortion
Abortion; Health Care
Sexual and gender based violence
Violence; Partner Dynamics
Female genital mutilation/early or forced marriage
Early Marriage; Female Circumcision
HIV/STI
HIV
Mental health
General Mental Health
Nutrition
Food Security
Johns Hopkins Bloomberg School of Public Health
Contact
PhenX Sub-topic(s)
Johns Hopkins COVID Long Study
General Symptoms; Treatment; General Mental Health
Johns Hopkins University (JHU)
JHU Contact
PhenX Sub-topic(s)
COVID-19 Community Response Survey
Knowledge and Attitudes Toward COVID-19
Knowledge; Perceived Threat
COVID-19 Symptoms and Testing Experience
General Symptoms; Diagnosis
Health Conditions, Medications and Health Care During COVID-19 Pandemic
Health Care; Chronic Health Conditions
COVID-19 and Mental Health Impacts
General Mental Health
COVID-19 Impact and Pandemic Stress
Overall Impact
COVID-19 and Social Distancing
Social Distancing; Social Impact
COVID-19 and Violence and Trauma
Violence; Fear of Violence
COVID-19 and Substance Use
Substance Use
COVID-19 and Sexual Behavior
Sexual Behavior
Johns Hopkins University, Bloomberg School of Public Health (JHU)
JHU Contact 1 , JHU Contact 2
PhenX Sub-topic(s)
National Health and Aging Trends Study (NHATS) COVID-19 Questionnaires
Participant info
Participant Intake
Symptoms of COVID-19
General Symptoms; Diagnosis
Before and During the Outbreak
Avoidant Behaviors; Social Distancing
Assisted, independent and nursing facilities
Daily Life; Exposure; Critical Care Facilities
Changes in living situation
Home Life; Housing Security
Changes in contact with family and friends
Family Impact; Social Impact
Changes in other activities
Family Impact; Daily Impact; Daily Life
Changes in Health Care
Health Care
Changes in Finance
Economic Insecurity
Changes in Well-being
General Mental Health; Quality of Life
Changes in Daily Activities
Daily Impact; Daily Life; Quality of Life
Kaiser Family Foundation (KFF)
KFF Contact
PhenX Sub-topic(s)
Impact of Coronavirus on Life in America
Voting Influence
Health Care; Attitudes; Government Response
Coronavirus Response
Government Response
Individual Impact
Knowledge
Health Demographics
Female Circumcision
KFF COVID-19 Vaccine Monitor
Participant Demographics
Personal Demographics; Employment; Political Views
Health Care Laws
Health Care; Attitudes; Government Response
COVID Views
Attitudes; Perceived Threat
COVID-19 Vaccine Views
Attitudes; Sources of information about COVID-19; Opinion on vaccines
Health Care
Health Care; Personal impact of COVID-19
KFF/The Undefeated Survey on Race and Health
Trust in Community Services
Perceived Threat; Stress; Community Assistance
Respondent demographics
Personal Demographics
Discrimination and Disparate Health Care
Racial/Ethnic Disparities; Attitudes
COVID-19 Impact
Overall Impact; Economic Insecurity; Food Security
Vaccine Views
Attitudes; Opinion on vaccines
Health Care Treatment
Racial/Ethnic Disparities; Health Care
Treatment of African Americans
Racial/Ethnic Disparities
Kennedy Krieger Institute
Contact
PhenX Sub-topic(s)
KSADS-COMP PTSD Screen items
Screen for K-SADS-COMP
KSADS-COMP PTSD Screen items - Spanish
Screen for K-SADS-COMP
London's Global University (UCL)
UCL Contact
PhenX Sub-topic(s)
Online Survey on Recovery from COVID-19
Demographics
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization
Health Care
COVID-19 Testing
Diagnosis
Antibody Testing
Diagnosis
Symptoms
General Symptoms; Recovery
Post-Exertional Malaise
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning
General Symptoms; Physical Activity; Health History
Mental Health
General Mental Health; Quality of Life; Government Response
Work
Employment
Other Medical Diagnosis
Diagnosis
Diagnostics Blood Tests
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments
Treatment; Recovery
Overall COVID Experience Text Write In
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Arabic
Demographics - Arabic
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Arabic
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Arabic
Health Care
COVID-19 Testing - Arabic
Diagnosis
Antibody Testing - Arabic
Diagnosis
Symptoms - Arabic
General Symptoms; Recovery
Post-Exertional Malaise - Arabic
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Arabic
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Arabic
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Arabic
General Symptoms; Physical Activity; Health History
Mental Health - Arabic
General Mental Health; Quality of Life; Government Response
Work - Arabic
Employment
Other Medical Diagnosis - Arabic
Diagnosis
Diagnostics Blood Tests - Arabic
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Arabic
Treatment; Recovery
Overall COVID Experience Text Write In - Arabic
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Dutch
Demographics - Dutch
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Dutch
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Dutch
Health Care
COVID-19 Testing - Dutch
Diagnosis
Antibody Testing - Dutch
Diagnosis
Symptoms - Dutch
General Symptoms; Recovery
Post-Exertional Malaise - Dutch
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Dutch
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Dutch
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Dutch
General Symptoms; Physical Activity; Health History
Mental Health - Dutch
General Mental Health; Quality of Life; Government Response
Work - Dutch
Employment
Other Medical Diagnosis - Dutch
Diagnosis
Diagnostics Blood Tests - Dutch
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Dutch
Treatment; Recovery
Overall COVID Experience Text Write In - Dutch
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - French
Demographics - French
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - French
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - French
Health Care
COVID-19 Testing - French
Diagnosis
Antibody Testing - French
Diagnosis
Symptoms - French
General Symptoms; Recovery
Post-Exertional Malaise - French
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - French
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - French
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - French
General Symptoms; Physical Activity; Health History
Mental Health - French
General Mental Health; Quality of Life; Government Response
Work - French
Employment
Other Medical Diagnosis - French
Diagnosis
Diagnostics Blood Tests - French
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - French
Treatment; Recovery
Overall COVID Experience Text Write In - French
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Indonesian
Demographics - Indonesian
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Indonesian
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Indonesian
Health Care
COVID-19 Testing - Indonesian
Diagnosis
Antibody Testing - Indonesian
Diagnosis
Symptoms - Indonesian
General Symptoms; Recovery
Post-Exertional Malaise - Indonesian
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Indonesian
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Indonesian
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Indonesian
General Symptoms; Physical Activity; Health History
Mental Health - Indonesian
General Mental Health; Quality of Life; Government Response
Work - Indonesian
Employment
Other Medical Diagnosis - Indonesian
Diagnosis
Diagnostics Blood Tests - Indonesian
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Indonesian
Treatment; Recovery
Overall COVID Experience Text Write In - Indonesian
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Italian
Demographics - Italian
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Italian
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Italian
Health Care
COVID-19 Testing - Italian
Diagnosis
Antibody Testing - Italian
Diagnosis
Symptoms - Italian
General Symptoms; Recovery
Post-Exertional Malaise - Italian
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Italian
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Italian
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Italian
General Symptoms; Physical Activity; Health History
Mental Health - Italian
General Mental Health; Quality of Life; Government Response
Work - Italian
Employment
Other Medical Diagnosis - Italian
Diagnosis
Diagnostics Blood Tests - Italian
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Italian
Treatment; Recovery
Overall COVID Experience Text Write In - Italian
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Portuguese
Demographics - Portuguese
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Portuguese
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Portuguese
Health Care
COVID-19 Testing - Portuguese
Diagnosis
Antibody Testing - Portuguese
Diagnosis
Symptoms - Portuguese
General Symptoms; Recovery
Post-Exertional Malaise - Portuguese
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Portuguese
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Portuguese
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Portuguese
General Symptoms; Physical Activity; Health History
Mental Health - Portuguese
General Mental Health; Quality of Life; Government Response
Work - Portuguese
Employment
Other Medical Diagnosis - Portuguese
Diagnosis
Diagnostics Blood Tests - Portuguese
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Portuguese
Treatment; Recovery
Overall COVID Experience Text Write In - Portuguese
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Russian
Demographics - Russian
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Russian
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Russian
Health Care
COVID-19 Testing - Russian
Diagnosis
Antibody Testing - Russian
Diagnosis
Symptoms - Russian
General Symptoms; Recovery
Post-Exertional Malaise - Russian
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Russian
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Russian
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Russian
General Symptoms; Physical Activity; Health History
Mental Health - Russian
General Mental Health; Quality of Life; Government Response
Work - Russian
Employment
Other Medical Diagnosis - Russian
Diagnosis
Diagnostics Blood Tests - Russian
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Russian
Treatment; Recovery
Overall COVID Experience Text Write In - Russian
General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Spanish
Demographics - Spanish
Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Spanish
General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Spanish
Health Care
COVID-19 Testing - Spanish
Diagnosis
Antibody Testing - Spanish
Diagnosis
Symptoms - Spanish
General Symptoms; Recovery
Post-Exertional Malaise - Spanish
General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Spanish
General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Spanish
General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Spanish
General Symptoms; Physical Activity; Health History
Mental Health - Spanish
General Mental Health; Quality of Life; Government Response
Work - Spanish
Employment
Other Medical Diagnosis - Spanish
Diagnosis
Diagnostics Blood Tests - Spanish
Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Spanish
Treatment; Recovery
Overall COVID Experience Text Write In - Spanish
General Symptoms; Quality of Life; Attitudes
Massachusetts General Hospital
Contact
PhenX Sub-topic(s)
COVID-19 Symptom Tracker Mobile App (CSTM)
COVID-19 Related Exposure And Use of PPE
Exposure
COVID-19 Symptoms
General Symptoms; Diagnosis; Treatment
COVID-19 Use of Personal Protective Equipment (PPE)
Personal Protective Equipment
COVID-19 Real-time Symptom Epidemiology Tracker (CORSET): Protocol
General Symptoms; Health Care; Personal Protective Equipment
Massachusetts Institute of Technology (MIT)
MIT Contact 1 , MIT Contact 2
PhenX Sub-topic(s)
COVID-19 Beliefs, Behaviors & Norms Survey (KAP CoVID Study)
Information Exposure
Sources of information about COVID-19; Exposure
Knowledge and Positive Cases
Knowledge
Vaccine and Healthcare
Health Care
Demographics
Personal Demographics
Information Sources, Trust, and Need
Sources of information about COVID-19
Basic Knowledge
Knowledge
Distancing Familiarity, Importance, and Norms
Social Distancing
Risk Perceptions and Locus of Control
Diagnosis
Prevention Behaviors in Practice
Hygiene
Behavioral Measures Taken, Efficacy, & Norms
Hygiene; Daily Impact; Quality of Life
Employment and Work
Employment
Intentions to Visit Locations
Social Impact
Travel
Domestic Travel; Foreign Travel
Michigan State University
Contact
PhenX Sub-topic(s)
Coping with COVID through nature: Evidence from breast
cancer patients and the output from the intake form
Community Impacts
Physical Activity; Community Access
Environmental Factors
Nature Appreciation
Mental Health
General Mental Health
Cancer Impact
Non-COVID-19 Symptoms and Medicines
Personal Demographics
Personal Demographics; Health Care
Mongan Institute (Massachusetts General Hospital) (MGH)
MGH Contact
PhenX Sub-topic(s)
COVID Symptom Tracker App: COPE (COronavirus Pandemic Epidemiology) Consortium IRB Tool Kit
COPE Consortium IMB Toolkit Page 37 to 38
Health Care
COPE Consortium IMB Toolkit Page 38
Health Care; Personal Protective Equipment
COPE Consortium IMB Toolkit Page 39
Personal Demographics
COPE Consortium IMB Toolkit Page 39 to 42
Health History; Life Changes
COPE Consortium IMB Toolkit Page 42 to 43
General Symptoms
COPE Consortium IMB Toolkit Page 43 to 44
Social Impact
COPE Consortium IMB Toolkit Page 45 to 46
Diagnosis
COPE Consortium IMB Toolkit Page 46 to 47
Opinion on vaccines; COVID-19 Vaccination
COPE Consortium IMB Toolkit Page 47 to 50
General Symptoms
COPE Consortium IMB Toolkit Page 50
Social Impact
Montreal Behavioural Medicine Centre (MBMC)
MBMC Contact 1 , MBMC Contact 2
PhenX Sub-topic(s)
COVID-19 International Survey (CIS)
Social Distancing and Hygiene - [COVID Specific]
Social Distancing; Hygiene
Concerns of Infection - [COVID Specific]
Perceived Threat
Sources of information about COVID-19
Sources of information about COVID-19
Multi-Ethnic Study of Atherosclerosis (MESA)
MESA Contact
PhenX Sub-topic(s)
MESA COVID-19 Questionnaire
COVID-19 Diagnosis, Symptoms and Recovery
Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines
Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene
Social Distancing; Hygiene
MESA COVID-19 Questionnaire - Chinese
COVID-19 Diagnosis, Symptoms and Recovery - Chinese
Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines - Chinese
Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene - Chinese
Social Distancing; Hygiene
MESA COVID-19 Questionnaire - Spanish
COVID-19 Diagnosis, Symptoms and Recovery - Spanish
Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines - Spanish
Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene - Spanish
Social Distancing; Hygiene
MESA COVID-19 Questionnaire (Annotated)
Full Annotated Questionnaire
MESA COVID-19 Questionnaire Manual of Operations
Manual of Operations
Multicenter Aids Cohort Study Women's Interagency Hiv Study (MACS-WIHS)
MACS-WIHS Contact
PhenX Sub-topic(s)
MACS-WIHS Questionnaire
COVID-19 Symptoms, Testing, and Preventive Behaviors
General Symptoms; Status; Health Care
COVID-19 Impact on Daily Life
Daily Life; Health Care
COVID-19 Psychosocial Impact
General Mental Health
MACS-WIHS Questionnaire (Spanish)
COVID-19 Symptoms, Testing, and Preventive Behaviors (Spanish)
General Symptoms; Status; Health Care
COVID-19 Impact on Daily Life (Spanish)
Daily Life; Health Care
COVID-19 Psychosocial Impact (Spanish)
General Mental Health
NIDA-supported data sharing consortium, C3PNO
Contact
PhenX Sub-topic(s)
C3PNO COVID-19 Survey
Demographics
Employment; Home Life
COVID-19 Topics
Overall Impact; General Symptoms; Diagnosis
Mental Health
General Mental Health
Healthcare and HIV
Health Care; HIV
Relationships
Sexual Behavior
Substance Use
Substance Use
Collaborating Consortium of Cohorts Producing NIDA Opportunities (C3PNO) COVID-19 Survey Protocol
Substance Use; Overall Impact; HIV
NORC at the University of Chicago (NORC)
NORC Contact
PhenX Sub-topic(s)
National Social Life, Health, and Aging Project (NSHAP) COVID-19 Study
COVID-19 Experiences
Diagnosis; Outcomes
Health and Health Care
Health Care
Job and Finances
Economic Insecurity; Employment
Tangible and Emotional Support
General Mental Health; Community Access
Marital Status and Relationship Characteristics
Family Impact; Partner Dynamics
Social Activity and Engagement
Social Impact; Family Impact
Living Arrangements
Housing Changes
Household Composition and Size
Home Life
Thoughts and Feelings
General Mental Health
Social Unrest
Social Impact
Health Behaviors
Substance Use; Physical Activity; Positive Impacts
NYU Langone, Division of Environmental Pediatrics
Contact
PhenX Sub-topic(s)
NYU Children's Health and Environment Study - Baseline COVID-19 Stress Questionnaire
Family Impact; Diagnosis
NYU Children's Health and Environment Study - Follow-up Covid-19 Stress Questionnaire
Family Impact; Diagnosis; Participant Follow-Up
National Alzheimer's Coordinating Center
Contact
PhenX Sub-topic(s)
COVID-19 Impact Survey
COVID-19 Impact Survey - Participant
Diagnosis; General Mental Health; Overall Impact
COVID-19 Impact Survey - Co-participant
General Mental Health; Overall Impact; Health Care
COVID-19 Technology Accessibility Survey
Telehealth; Technology Use
National Heart, Lung, and Blood Institute (National Institutes of Health) (NHLBI)
NHLBI Contact
PhenX Sub-topic(s)
NHLBI-CONNECTS Common Data Elements (CDE)
General Symptoms; Diagnosis; Outcomes
National Institute of Child Health and Human Development (NICHD)
NICHD Contact
PhenX Sub-topic(s)
Promoting Data Harmonization to Accelerate COVID-19 Pregnancy Research
Domain: Baseline Maternal/Pregnancy Characteristics
Current Pregnancy; Past Pregnancy; Pregnancy History
Domain: Maternal COVID-19 Treatment
Treatment
Domain: Maternal Outcomes
Birth Outcome
Domain: Obstetric/Pregnancy Outcomes
Current Pregnancy; Past Pregnancy; Pregnancy History
Domain: Neonatal Characteristics
Neonatal
Neonatal COVID-19 Testing
Neonatal
Domain: Neonatal Outcomes
Neonatal
Domain: Socioeconomic Status, Housing, and Emergent Financial Strain
Housing Security; Economic Impact
Domain: Health care access
Health Care
Domain: Impact on Parenting
K-12 Education Impact
Domain: Stressful Life Events
Stress; Daily Impact
Domain: Mental health/stress including resilience factors)
General Mental Health
Domain: Health Related Behaviors
Perceived Threat; Stress
Promoting Data Harmonization to Accelerate COVID-19 Pregnancy Research
Post-Acute Sequelae of SARS-CoV-2 Infection and
Vaccine Attitudes Working Group Addendum
COVID-19 Vaccination History
Health Care; Recovery; Treatment
Vaccine Attitudes
Knowledge; Attitudes
Pregnant/Postpartum
Current Pregnancy
Long COVID
Status
Menses/Menstruation Changes
Menstruation
Family Planning
Family Impact
Biospecimens Recommended Measures
Current Pregnancy
Pregnancy and Postpartum Function
Current Pregnancy; Postpartum
Infant Care Practices
Health Care; Sleep Changes
Childcare and Education
K-12 Education Impact; Household Togetherness
Attribution of Symptoms
General Symptoms; Non-COVID-19 Symptoms and Medicines
Domestic Violence
Fear of Violence; Violence
Access to Care
Current Pregnancy; Postpartum
Promoting Data Harmonization to Accelerate COVID-19 Pediatric Research
Social Impact; Treatment; General Mental Health
National Institute of Mental Health (NIMH) Intramural Research Program
Contact
PhenX Sub-topic(s)
Psychosocial Impact of COVID-19 Survey
Psychological Impact
General Mental Health; Social Impact
Social Distancing
Social Distancing
Hopes and Dreams
General Mental Health; Attitudes
Health Concerns
General Symptoms; Diagnosis
Daily Activities
Daily Life
Daily Functioning
Daily Life
National Institutes of Health (NIH)
NIH Contact
PhenX Sub-topic(s)
All of Us Covid 19 Participant Experience Survey (COPE)
COVID-19 Related Social Distancing Experiences
Social Distancing; Hygiene
COVID-19 Related Symptoms
General Symptoms
COVID-19 Related Testing
Diagnosis
COVID-19 Related Treatment
Treatment
COVID-19 Related Impact
Overall Impact; General Mental Health
All of Us Covid 19 Participant Experience Survey (COPE) (Spanish)
COVID-19 Related Social Distancing Experiences (Spanish)
Social Distancing; Hygiene
COVID-19 Related Symptoms (Spanish)
General Symptoms
COVID-19 Related Testing (Spanish)
Diagnosis
COVID-19 Related Treatment (Spanish)
Treatment
COVID-19 Related Impact (Spanish)
Overall Impact; General Mental Health
Natural Hazards Center (University of Colorado at Boulder)
Contact
PhenX Sub-topic(s)
COVID-19 & Social Determinants of Health Data Collection Instrument Repository
General Mental Health; Social Impact; Food Security
New York State Psychiatric Institute
Columbia University Iriving Medical Center
Contact 1 , Contact 2
PhenX Sub-topic(s)
COVID-19 Experiences (COVEX)
COVID-19 Symptoms & Diagnoses
General Symptoms; Diagnosis
Vulnerability and Exposure to COVID-19
Substance Use; Exposure
Changes in Living Situation due to COVID-19
Home Life
COVID-19 Related Employment Status
Employment; Education
Worries, Mental Health Changes due to COVID-19
General Mental Health; Substance Use
Problems and Support during COVID-19 outbreak
Resources; Health Care
Coping with COVID-19
General Mental Health; Positive Impacts
Pregnancy-Related during COVID-19
Current Pregnancy; Past Pregnancy
Media Use During COVID-19
Media Use; Sources of information about COVID-19
New York University (NYU)
NYU Contact
PhenX Sub-topic(s)
Novel Coronavirus (COVID) Illness
Participant info
Participant Intake; Diagnosis
COVID Testing
Diagnosis; General Symptoms
COVID Timing, Symptoms and Complications
General Symptoms
COVID Ð Becoming Ill
General Symptoms; Health Care
COVID Work Impacts
Employment
COVID Treatments
Treatment
COVID Lasting Effects
Outcomes
COVID Illness experience
Overall Impact
Current Situation
Avoidant Behaviors
Nottingham Trent University (NTU)
NTU Contact
PhenX Sub-topic(s)
Fear of COVID-19 Scale
General Mental Health
The Ohio State University Wexner Medical Center
Contact
PhenX Sub-topic(s)
Impact of COVID-19 on Behaviors across
the Cancer Control Continuum in Ohio
Symptoms, diagnosis, information sources
General Symptoms; Diagnosis; Sources of information about COVID-19
Personal, family, daily life impacts
Employment; Home Life
Stress, anxiety, food or economic insecurity, sleep, mental health
General Mental Health; Economic Insecurity; Diagnosis
Social distancing behaviors
Social Distancing; Social Impact
Health, health care access during pandemic, cancer-specific questions
Health Care; Non-COVID-19 Symptoms and Medicines
Healthful behaviors including physical activity, healthy diet, alcohol and drug use
Physical Activity; Dietary Intake; Substance Use
Demographics
Personal Demographics; Locational Demographics
The Osteoporotic Fractures in Men (MROS) Study
Study of Muscle, Mobility, and Aging (SOMMA) (MROS/SOMMA)
MROS/SOMMA Contact
PhenX Sub-topic(s)
MROS/SOMMA COVID-19 Social Impact Questionnaire
Symptoms and Diagnosis
General Symptoms; Diagnosis
MROS/SOMMA Social Distancing and Hygiene
Social Distancing; Hygiene
Pandemic Stress Index (PSI)
PSI Contact
PhenX Sub-topic(s)
COVID-19 Pandemic Stress Index (PSI)
Overall Impact
Pennington Biomedical Research Center (PBRC)
PBRC Contact
PhenX Sub-topic(s)
Pennington Biomedical COVID-19 Survey
Regional Social Distancing COVID-19 Mandates
Social Distancing
Impacts of COVID-19 on Food Security
Food Security
Worry about COVID-19 Infection
Diagnosis; General Mental Health
Impacts of COVID-19 on Employment
Economic Insecurity
Impacts of COVID-19 on Changes to Physical Activity and Sedentary Behaviors
Physical Activity
Impacts of COVID-19 on Dietary Changes
Dietary Intake
Impacts of COVID-19 on Sleep Changes
Sleep Changes
Impacts of COVID-19 on Well-Being
General Mental Health
RAND Corporation
Contact
PhenX Sub-topic(s)
RAND American Life Panel Survey: Impacts of COVID-19
Subjective Wellbeing
Attitudes; General Mental Health
Mental Health
General Mental Health
Disruption to routine behaviors
Overall Impact; Daily Impact
Health Care
Health Care; General Mental Health
Experience with COVID-19
Diagnosis
COVID-19 Related Information and Trust in News and Government Institutions
Sources of information about COVID-19; Knowledge; Attitudes
Common ingroup identity
Attitudes
COVID-19 Related Household Finances
Economic Impact; Economic Insecurity
Online shopping and delivery
Resources; Attitudes
Schooling
Education
Employment
Employment
Domestic Conflict
Conflict
Political Affiliation
Personal Demographics
Rare Diseases Clinical Research Network (National Center for Advancing Translational Sciences) (RDCRN)
RDCRN Contact
PhenX Sub-topic(s)
Impact of COVID-19 on People Living with Rare Disease and their Families
General Symptoms; Treatment; Chronic Health Conditions
Rare Diseases Clinical Research Network, Data Management and Coordinating Center (RDCRN)
RDCRN Contact
PhenX Sub-topic(s)
Impact of COVID-19 on People Living with Rare Disease and their Families
Symptoms and Diagnosis
General Symptoms; Diagnosis; Treatment
Health Care Access and Service Use During the Pandemic
Health Care; Status
Rice University
Contact
PhenX Sub-topic(s)
COVID-19 Registry
General Symptoms; Exposure; Economic Impact
Save the Children International (SCI)
SCI Contact
PhenX Sub-topic(s)
Hidden Impact of COVID-19 on Children
Parent - Household & Health History
Locational Demographics; Personal Demographics; Daily Impact
Parent - Impact of COVID-19
Diagnosis; Daily Impact; Resources
Parent - Health History
Chronic Health Conditions; Health Care
Parent - Education
K-12 Education Impact; Media Use
Parent - Child Mental Health
General Mental Health; Social Impact
Parent - Neonatal Care
Child Care
Parent - Household Composition and Expenses
Personal Demographics; Economic Impact; Food Security
Parent - Parent Mental Health
General Mental Health; Social Impact
Child - COVID-19 Impact on Education
Personal Demographics; K-12 Education Impact
Child - Behaviors and Mental Health
General Mental Health; Daily Life; Violence
Child - Open Responses
Home Life; General Mental Health
Social Psychological Measurements of COVID-19 …
Contact
PhenX Sub-topic(s)
Social Psychological Survey of COVID-19: Coronavirus Perceived Threat, Government
Response, Impacts, and Experiences Questionnaires
Perceived Coronavirus Threat
Perceived Threat
Federal Governmental Response to Coronavirus
Government Response
State Governmental Response to Coronavirus
Government Response
City Governmental Response to Coronavirus
Government Response
Coronavirus Impacts
Resources; General Mental Health
Coronavirus Experiences
General Symptoms; Diagnosis; Social Distancing
Perceived Coronavirus Threat (Short Form)
Perceived Threat
Governmental Response to Coronavirus (Short Form)
Government Response
Coronavirus Impacts (Short Form)
Resources; General Mental Health
Coronavirus Experiences (Short Form)
General Symptoms; Diagnosis; Social Distancing
South Alabama University
Contact
PhenX Sub-topic(s)
Multidimensional Face Mask Perceptions Scale
Attitudes; Personal Protective Equipment
Stanford Health Policy
Contact
PhenX Sub-topic(s)
Impact of the novel Coronavirus (COVID-19) on Patients with Cancer
Overall Cancer Care
Health Care; Chronic Health Conditions
Care Delays or Interruptions (due to COVID-19 pandemic)
Health Care
Challenges Due to COVID-19 Pandemic
Overall Impact; Sources of information about COVID-19
Novel Coronavirus Testing
Status; Diagnosis
Demographics
Personal Demographics; Health History
Stanford University
Contact
PhenX Sub-topic(s)
Psychological Stress During COVID-19 Crisis
COVID19 related Lifestyle Change
Daily Impact
Trinity College Dublin
Contact
PhenX Sub-topic(s)
The Irish Longitudinal Study on Ageing (TILDA) COVID-19
Self-Completion Questionnaire
Activities During Covid-19
Home Life; Social Distancing
Health Behaviors
Social Impact; Substance Use; Physical Activity
Mental Health
General Mental Health
Work
Employment; Economic Impact
State Assistance and Care Giving
Community Assistance; Home Life
Health Care
Health Care
Media
Media Use; Sources of information about COVID-19
Age Discrimination
Attitudes
COVID-19 Impact
General Symptoms; Diagnosis
General Impact
Overall Impact
Tulane University School of Public Health and Tropical Medicine
Contact
PhenX Sub-topic(s)
A new approach to controlling chlamydia transmission in young people -
sexual behavior in the time of COVID-19
Housing and income due to COVID
Housing Security; Economic Impact
COVID-19 symptom check
General Symptoms; Diagnosis
PPE and COVID
Personal Protective Equipment
COVID-19 risk perceptions
Perceived Threat; Hygiene
COVID-19 related communications
Sources of information about COVID-19
STD/STI testing during COVID
Diagnosis; Non-COVID-19 Symptoms and Medicines
Sexual behaviors during COVID
Sexual Behavior
Substance use during COVID
Substance Use
UCL Great Ormond Street Institute of Child Health
Contact
PhenX Sub-topic(s)
Children & young people with Long Covid (CLoCk) study
Health History; Personal impact of COVID-19
Children & young people with Long Covid (CLoCk) study - Follow-Up Questionnaire
Health History; Personal impact of COVID-19; Participant Follow-Up
UPMC Children's Hospital of Pittsburgh
Contact
PhenX Sub-topic(s)
Characteristics and Outcomes of Kawasaki Disease and
COVID-19 with Cardiac Complications
Diagnosis; Treatment; Personal Demographics
UPenn in collaboration with CTSAs
Contact
PhenX Sub-topic(s)
COVID-19 Patient Survey
COVID Diagnosis and symptoms
Diagnosis; General Symptoms; Foreign Travel
General health questions
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions
Substance Use; Education; Employment
COVID-19 Patient Survey (Chinese)
COVID Diagnosis and symptoms (Chinese)
Diagnosis; General Symptoms; Foreign Travel
General health questions (Chinese)
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Chinese)
Substance Use; Education; Employment
COVID-19 Patient Survey (French)
COVID Diagnosis and symptoms (French)
Diagnosis; General Symptoms; Foreign Travel
General health questions (French)
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (French)
Substance Use; Education; Employment
COVID-19 Patient Survey (Italian)
COVID Diagnosis and symptoms (Italian)
Diagnosis; General Symptoms; Foreign Travel
General health questions (Italian)
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Italian)
Substance Use; Education; Employment
COVID-19 Patient Survey (Japanese)
COVID Diagnosis and symptoms (Japanese)
Diagnosis; General Symptoms; Foreign Travel
General health questions (Japanese)
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Japanese)
Substance Use; Education; Employment
COVID-19 Patient Survey (Korean)
COVID Diagnosis and symptoms (Korean)
Diagnosis; General Symptoms; Foreign Travel
General health questions (Korean)
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Korean)
Substance Use; Education; Employment
COVID-19 Patient Survey (Polish)
COVID Diagnosis and symptoms (Polish)
Diagnosis; General Symptoms; Foreign Travel
General health questions (Polish)
Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Polish)
Substance Use; Education; Employment
US Census
Contact
PhenX Sub-topic(s)
COVID-19 Household Pulse Questionnaire
COVID-19 and Employment Stability
Employment
COVID-19 and Food Security
Food Security
COVID-19 and Health
General Mental Health; Health Care
COVID-19 and Housing Security
Housing Security
COVID-19 and Education Disruption
K-12 Education Impact
COVID-19 Household Pulse Questionnaire (Spanish)
COVID-19 and Employment (Spanish)
Employment
COVID-19 and Food Security (Spanish)
Food Security
COVID-19 and Health (Spanish)
General Mental Health; Health Care
COVID-19 and Housing Security (Spanish)
Housing Security
COVID-19 and Education Disruption (Spanish)
K-12 Education Impact
University of Birmingham
Contact
PhenX Sub-topic(s)
Symptom Burden Questionnaire for Long COVID (SBQ-LC)
General Symptoms; Personal impact of COVID-19
University of California Davis
Contact
PhenX Sub-topic(s)
Survey for Workers
Covid-19 Infection
General Symptoms; Diagnosis
The Workplace
Employment; Personal Protective Equipment; Health Care
Demographics
Personal Demographics; Chronic Health Conditions
Changes to your life since COVID-19
Overall Impact
Financial situation
Economic Insecurity
Living situation
Personal Demographics; Home Life
Knowledge about COVID-19 protection measures
Attitudes; Knowledge
Pregnancy
Current Pregnancy; Past Pregnancy
University of California Division of Agriculture and Natural Resources (UCANR)
UCANR Contact
PhenX Sub-topic(s)
COVID-19 Documenting Challenges Faced by California
Families with Children 0-5 Years Old on WIC
COVID Impacts
Diagnosis; Overall Impact
WIC participation and enrollment
Community Assistance
WIC services
Sources of information about COVID-19
Shopping for WIC foods
Food Security
General food shopping
Food Security; Dietary Intake
Immigration status
Personal Demographics
Mental health
General Mental Health
COVID-19 Documenting Challenges Faced by California
Families with Children 0-5 Years Old on WIC (Spanish)
COVID Impacts (Spanish)
Diagnosis; Overall Impact
WIC participation and enrollment (Spanish)
Community Assistance
WIC services (Spanish)
Sources of information about COVID-19
Shopping for WIC foods (Spanish)
Food Security
General food shopping (Spanish)
Food Security; Dietary Intake
Immigration status (Spanish)
Personal Demographics
Mental health (Spanish)
General Mental Health
University of California San Diego (UCSD)
UCSD Contact
PhenX Sub-topic(s)
ABCD COVID-19 Impact Measure - Parent
Family Situation
Economic Insecurity; Avoidant Behaviors
Youth's Schooling
Education
Youth's Routine and Sleep
Physical Activity; Sleep Changes
Relationships
Family Impact; Hygiene; Social Impact
COVID Attitudes & Adherence
Conflict; Attitudes
Mental Health & Stress
General Mental Health; Stress
Substance Use
Substance Use
Screen Use
Media Use
Media Exposure to COVID-19
Sources of information about COVID-19
Physical Health
General Symptoms; Diagnosis; Health Care
ABCD COVID-19 Impact Measure - Youth
School Schedule
Education
Youth's Routine and Sleep
Sleep Changes
Parents/Guardians
Home Life
Relationships
Family Impact; Social Impact
Mental Health & Stress
General Mental Health
Substance Use
Substance Use
Media Exposure to COVID-19
Sources of information about COVID-19
Screen Use
Media Use
Physical Health
Physical Activity
University of California San Francisco (UCSF)
UCSF Contact
PhenX Sub-topic(s)
PROmotion of COvid-19 VAX)ccination in the Emergency Department PROCOVAXED) study:
NIH NIAID) RO1 AI166967-01 Patient Interview Guides
University of Connecticut School of Medicine
University of Massachusetts
Contact
PhenX Sub-topic(s)
Epidemic - Pandemic Impacts Inventory (EPII)
Impact of COVID-19 on Work and Employment
Employment
Impact of COVID-19 on Education and Training
Education; Training
Impact of COVID-19 on Home Life
Home Life; Conflict
Impact of COVID-19 on Social Activities
Social Impact
Impact of COVID-19 on Economic
Economic Insecurity
Impact of COVID-19 on Emotional Health and Well-Being
General Mental Health; Health Care
Impact of COVID-19 on Physical Health Problems
Health Care; Physical Activity
Impact of COVID-19 on Physical Distancing and Quarantine
Social Distancing; Hygiene
Impact of COVID-19 on Infection History
General Symptoms; Diagnosis
Impact of COVID-19 on Positive Change
Positive Impacts
University of Edinburgh (Edin)
Edin Contact
PhenX Sub-topic(s)
Coronagenes
General Symptoms; Outcomes; Personal Demographics
University of Florida (UFl)
UFl Contact
PhenX Sub-topic(s)
Coping with COVID-19: Impact on Technology Use, mobility, food security, depression and social isolation
Mobility Due To COVID-19
Physical Activity
Technology Telehealth Use During COVID-19
Media Use; Telehealth
Life-space Mobility During COVID-19
General Mental Health
COVID-19 Related Impact on Mood and Sleep
General Mental Health; Sleep Changes
COVID-19 Related Social Interactions
Social Impact
Physical Activity During COVID-19
Physical Activity; Daily Life
Other Activities During COVID-19
Overall Impact
Food Access During COVID-19
Food Security
Thoughts and Feelings About COVID-19 (open ended)
Overall Impact
University of Miami (UMiami)
UMiami Contact
PhenX Sub-topic(s)
COVID-19 Household Environment Scale (CHES)
Demographics
Locational Demographics; Social Impact; Personal Demographics
Household
Conflict; Daily Life; Household Togetherness
Escala de Ambiente Familiar Durante la Pandemia COVID-19 (Spanish)
Demographics (Spanish)
Locational Demographics; Social Impact; Personal Demographics
Household (Spanish)
Conflict; Daily Life; Household Togetherness
Escala de Ambiente Familiar Durante a Pandemia COVID-19 (Portuguese)
Demographics (Portuguese)
Locational Demographics; Social Impact; Personal Demographics
Household (Portuguese)
Conflict; Daily Life; Household Togetherness
COVID-19 Household Environment Scale (CHES) (Mandarin)
Demographics (Mandarin)
Locational Demographics; Social Impact; Personal Demographics
Household (Mandarin)
Conflict; Daily Life; Household Togetherness
University of Miami School of Nursing and Health Studies (UMiami)
UMiami Contact
PhenX Sub-topic(s)
COVID-19 - Cannabis Health Questionnaire (CCHQ)
COVID-19 & Comorbidities
Chronic Health Conditions
COVID-19 & Cannabis Use
Substance Use
Economic Impact of COVID-19
Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing
General Symptoms; Diagnosis
Worry about COVID-19 Infection
Perceived Threat
Coping Strategies COVID-19
General Mental Health
COVID-19 - Cannabis Health Questionnaire (CCHQ) (Spanish)
COVID-19 & Comorbidities (Spanish)
Chronic Health Conditions
COVID-19 & Cannabis Use (Spanish)
Substance Use
Economic Impact of COVID-19 (Spanish)
Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing (Spanish)
General Symptoms; Diagnosis
Worry about COVID-19 Infection (Spanish)
Perceived Threat
Coping Strategies COVID-19 (Spanish)
General Mental Health
University of Miami: Department of Psychology (UMiami)
UMiami Contact
PhenX Sub-topic(s)
Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)
COVID-19 Experiences
Diagnosis; General Symptoms; Health Care
COVID-19 Psychosocial and Practical Experiences
General Mental Health; Daily Life; Economic Insecurity
Health Related Quality of Life
Quality of Life
University of Michigan (UMich)
UMich Contact
PhenX Sub-topic(s)
Health and Retirement Study: Core Interview COVID-19 Module
Direct Experience of COVID-19
General Symptoms; Diagnosis
Health Care Access (general)
Health Care
Economic Impact Payments
Economic Insecurity
Work and Business
Employment; Economic Impact
Living Arrangements
Housing Security; Home Life
Caregiving
Community Assistance
Health and Retirement Study: Questionnaire on Your Everyday life and Well-being
Mental Health
General Mental Health
Perceptions
Attitudes; Employment
Risk Reduction Behaviors
Social Impact; Daily Life
University of Michigan Center for Disability Health and Wellness (UMich)
UMich Contact
PhenX Sub-topic(s)
Coronavirus Disability Survey (COV-DIS)
General health
Health Care
Depressive symptoms
General Mental Health
Social isolation
Social Impact; Daily Impact
Coronavirus infection/exposure
Status; Perceived Threat
Daily activities
Daily Impact; Daily Life
Access to medical care
Health Care
Employment and financial impact
Employment; Economic Insecurity
Transportation and information access
Daily Impact; Sources of information about COVID-19
University of Michigan, Institute for Social Research (UMich)
UMich Contact
PhenX Sub-topic(s)
Panel Study of Income Dynamics Covid-19 Special Questions
Section G COVID-19 Financial Series
Economic Insecurity; Economic Impact
Section G COVID-19 Stimulus Payment
Government Response; Economic Impact
Section G COVID-19 Paycheck Protection Program
Government Response; Economic Impact
Section H COVID-19 Health Series
General Symptoms; General Mental Health; Diagnosis
Section H COVID-19 OFUM Health Series
Diagnosis; Family Impact
Section M COVID-19 Donations Series
Community Assistance
University of North Carolina (UNC)
UNC Contact
PhenX Sub-topic(s)
CTHSUS COVID-19 Survey
Tele mental health services Use
Mental Health Treatment; Telehealth
Tele mental health services Satisfaction
Telehealth; Mental Health Treatment Feedback
Tele mental health services Concerns
Telehealth; Mental Health Communications
University of North Carolina School of Medicine (UNC)
UNC Contact 1 , UNC Contact 2
PhenX Sub-topic(s)
AURORA-COVID Impact Survey (AURORA-CIS)
Financial impact of COVID-19
Economic Insecurity
Health impact (self and loved ones) of COVID-19
Diagnosis
Worry about COVID-19
General Mental Health
Employment status due to COVID-19
Employment
University of Oklahoma
Contact
PhenX Sub-topic(s)
Windshield Survey – COVID-19 Behaviors -
Rural Responses to the COVID-19 Pandemic Rapid Assessment
Social Distancing; Personal Protective Equipment
University of Pittsburgh Medical Center (UMPC)
UMPC Contact
PhenX Sub-topic(s)
COVID-19 Adolescent Symptom & Psychological Experience
Questionnaire (CASPE)- Self-Report
General experience related to COVID and social distancing
Overall Impact
Emotional experience related to COVID and social distancing
General Mental Health
Cognitive experience related to COVID and social distancing
General Mental Health
Social experience related to COVID and social distancing
Social Impact
COVID-19 Adolescent Symptom & Psychological Experience
Questionnaire (CASPE)- Parent
General experience related to COVID and social distancing
Overall Impact
Emotional experience related to COVID and social distancing
General Mental Health
Cognitive experience related to COVID and social distancing
General Mental Health
Social experience related to COVID and social distancing
Social Impact
University of Texas Rio Grande Valley (UTRGV)
UTRGV Contact 1 , UTRGV Contact 2
PhenX Sub-topic(s)
COVID19 Impact on Health and Wellbeing Survey (CIHWS)
COVID19 related Depression
General Mental Health
COVID19 related Anxiety/Stress
General Mental Health; Stress
COVID19 related Health literacy
Health Literacy
COVID19 related Trusted sources of information
Sources of information about COVID-19
COVID19 related Compliance
Social Distancing
COVID19 related Financial stress
Economic Insecurity
COVID19 related Physical activity
Physical Activity
COVID19 Impact on Health and Wellbeing Survey (CIHWS) (Spanish)
COVID19 related Depression (Spanish)
General Mental Health
COVID19 related Anxiety/Stress (Spanish)
General Mental Health; Stress
COVID19 related Health literacy (Spanish)
Health Literacy
COVID19 related Trusted sources of information (Spanish)
Sources of information about COVID-19
COVID19 related Compliance (Spanish)
Social Distancing
COVID19 related Financial stress (Spanish)
Economic Insecurity
COVID19 related Physical activity (Spanish)
Physical Activity
University of Utah Department of Psychology
Contact
PhenX Sub-topic(s)
University of Utah MIND Lab Measures of COVID-19
Information Trust, Barriers, and Behaviors
Trust and Information COVID-19
Sources of information about COVID-19
Social Distancing
Social Distancing
Diagnosis COVID-19
Diagnosis
Exposure
Exposure
Demographics
Personal Demographics
The University of Vermont, Larner College of Medicine (UVm)
UVm Contact
PhenX Sub-topic(s)
COVID-19 measures included in the PACE Vermont Study
COVID-19 concerns
General Mental Health; Overall Impact; Daily Impact
COVID-19/Substance use
Substance Use
COVID-19/School/work
K-12 Education Impact; Employment
COVID-19 Activities
Daily Impact
Policy awareness and support
Substance Use
Respiratory Symptoms
COVID-19 Vaccination
Additional COVID-19 Questions
General Mental Health; Substance Use
University of Washington, Seattle
Contact
PhenX Sub-topic(s)
Participant Information
ID to BMI
Personal Demographics
Symptoms to Care
General Symptoms
Rate to Shortness of Breath
Health History; Quality of Life
Lingering Symptoms
Overall Impact; Health History; Quality of Life
Vanderbilt University Medical Center (VUMC)
VUMC Contact
PhenX Sub-topic(s)
Vanderbilt Child Health COVID-19 Poll: A National Survey of the
Wellbeing of Parents and Children During COVID-19
Economic Insecurity; Health Care; Overall Impact
Wellcome Trust
Contact
PhenX Sub-topic(s)
UK COVID19 Questionnaire
COVID-19 Related Health Questions
General Symptoms; Status; General Mental Health; Non-COVID-19 Symptoms and Medicines
Behaviour Change and Knowledge Due to COVID-19
Overall Impact; K-12 Education Impact; Knowledge
Economic Impact Due to COVID-19
Economic Insecurity; Employment
Social Impact Due to COVID-19
Social Impact; Home Life
Environmental Changes Due to COVID-19
Housing Security
World Health Organization (WHO)
WHO Contact
PhenX Sub-topic(s)
Novel Coronavirus (nCOV) Acute Respiratory Infection Clinical Characterisation Data Tool
Hospital Admission Case Record Form
General Symptoms; Diagnosis; Domestic Travel; Foreign Travel
Daily Case Record Form
General Symptoms; Diagnosis
Treatment and Outcomes Case Record Form
Treatment; Outcomes
Global COVID-19 Clincal Platform Novel Coronavirus (COVID-19) - Rapid Version
Hospital Admission Case Record Form (Rapid Version)
General Symptoms; Diagnosis; Domestic Travel
Daily Case Record Form (Rapid Version)
General Symptoms; Diagnosis
Treatment and Outcomes Case Record Form (Rapid Version)
Treatment; Outcomes
WHO Global COVID-19 Clinical Platform: Pregnancy Case Report Form (CRF)
Hospital Admission Case Record Form
General Symptoms; Diagnosis; Personal Demographics
Daily Case Record Form
General Symptoms; Diagnosis
Treatment and Outcome Case Record Form
Treatment; Outcomes
Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases
of Multisystem Inflammatory Syndrome (MIS) in
Children and Adolescents Temporally Related to COVID-19
Hospital Admission Case Record Form
General Symptoms; Diagnosis; Personal Demographics
Treatment and Outcome Case Record Form
General Symptoms; Treatment; Outcomes
First Few X (FFX) Cases and Contact Investigation Protocol for 2019-Novel Coronavirus (2019-nCoV) Infection, Version 2
Form A0: Minimum data reporting form
General Symptoms; Exposure; Foreign Travel
Household Transmission Investigation Protocol for 2019-Novel Coronavirus (COVID-19) Infection
Form A1: Case initial report form
General Symptoms; Exposure; Health Care
Population-Based Age-Stratified Seroepidemiological Investigation Protocol for COVID-19 Virus Infection
Protocol for Assessment of Potential Risk Factors for 2019-Novel Coronavirus (2019-nCoV) Infection Among Health Care Workers in a Health Care Setting
Form A2: Case follow-up form
General Symptoms; Outcomes; Health Care
Form B1: Contact Initial Reporting Form
Exposure; Employment; General Symptoms
Form B2: Contact Follow-up reporting Form
Exposure; General Symptoms; Outcomes
Contact symptom diary
General Symptoms
Form 1A: Case initial reporting form
Personal Demographics; General Symptoms; Chronic Health Conditions
Form 1B: Contact initial reporting form (Day 1)
General Symptoms; Chronic Health Conditions; Outcomes
Form 2: Follow-up reporting form (Day 7)
Outcomes
Form 3: Follow-up reporting form (Day 14)
Outcomes
Form 4: Follow-up reporting form (Day 28)
Outcomes
Form 5: Lab results reporting form
Diagnosis
Symptom diary for household contacts of confirmed cases
General Symptoms
Report Form
Participant Intake; Personal Demographics; General Symptoms
Laboratory results
Diagnosis
Form 1: Initial reporting form for health worker
Hygiene; General Symptoms; Chronic Health Conditions
Form 2: Follow-up reporting form for health worker
General Symptoms; Diagnosis; Outcomes
Form 3: Symptom diary for health workers
General Symptoms; Non-COVID-19 Symptoms and Medicines
Form 4: Health care facility infection prevention and control assessment
Critical Care Facilities; Personal Protective Equipment; Hygiene
Yale School of Medicine
Contact
PhenX Sub-topic(s)
Yale COVID-19 Recovery Study: Screening Questionnaire
Personal Demographics; Status; Diagnosis
Yale COVID-19 Recovery Study: Survey 1
Personal Demographics; Status; Diagnosis
Yale COVID-19 Recovery Study: Survey 2
General Symptoms; COVID-19 Vaccination
Yale COVID-19 Recovery Study: Survey 3
General Symptoms; COVID-19 Vaccination
Yale COVID-19 Recovery Study: Survey 4
Treatment; General Symptoms; Daily Impact
Yale University Pain Management Collaboratory Coordinating Center
Contact
PhenX Sub-topic(s)
Pain Management Collaboratory (PMV) Coronavirus Pandemic (COVID-19) Measures
Overall Impact

Last Updated 7/12/22, 12:00 AM