COVID-19 Protocol Library
The PhenX COVID-19 library provides COVID-19 related measurement protocols (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these protocols rather than developing new ones. The source of each protocol has been verified and contact information is provided in case additional information is needed. In the future, we plan to provide data dictionaries to enhance data interoperability and to support data harmonization. Modules are subsets of full instruments. Full instrument can be found through View by Source. Please note, these protocols have not been selected via the standard PhenX consensus process and cannot be considered broadly validated; investigators are encouraged to perform validation studies.
Another important resource is the NIH Public Health Emergency and Disaster Research Response (DR2). The NIH DR2 provides a wide array of data collection tools and resources for use in public health emergencies and disasters, including the COVID-19 pandemic. To visit the NIH DR2, click here.
SEAN is a network of experts in the social, behavioral, and economic sciences poised to assist decision makers at all levels as they respond to COVID-19. To visit SEAN, click here.
View our new COVID-19 Variable Compare Tool here!
Available COVID-19 Full Instruments (185)
| Academic Network for Sexual and Reproductive Health and Rights Policy (Ghent University) Contact 1 , Contact 2 |
PhenX Sub-topic(s) |
|---|---|
International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19: Study Protocol for Online National Surveys and Global Comparative Analyses |
Avoidant Behaviors; Violence; Sexual Behavior |
| All India Institute of Medical Sciences (AIIMS) University of Southern California Contact |
PhenX Sub-topic(s) |
|---|---|
Longitudinal Aging Study in India - Diagnostic Assessment of Dementia (LASI-DAD) |
|
COVID19-related knowledge and behaviors |
Social Distancing; Hygiene; Knowledge |
COVID19 and Heath care and food security |
Health Care; General Symptoms; Food Security |
COVID19 and Economic Effects |
Economic Impact |
COVID19 and Discrimination and (mis) information |
Sources of information about COVID-19; Social Impact |
COVID19 and Mental Health, coping and wellbeing |
General Mental Health; Overall Impact |
| American Society for Health Care Engineering (ASHE) ASHE Contact |
PhenX Sub-topic(s) |
|---|---|
COVID Response Tactics Sharing - Healthcare Engineering |
Health Care; Critical Care Facilities; Employer Policies |
| The Center for AIDS Research Network of Integrated Clinical Systems (CFAR-CNIS) CFAR-CNIS Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Impacts on HIV Care |
Substance Use; Overall Impact; HIV |
| Center for Dissemination and Implementation Science, University of Illinois at Chicago Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Experiences among South African Adolescent Girls and their Mothers |
|
Mental Health |
General Mental Health |
Personal and Family Impacts |
Family Impact |
Risk-Reduction Behaviors |
Substance Use; Sexual Behavior; Housing Security |
| Center for Economic and Social Research (CESR) CESR Contact |
PhenX Sub-topic(s) |
|---|---|
Coronavirus Tracking Survey of the Understanding America Survey (UAS) |
|
COVID-19 Symptoms, Status, and Healthcare |
General Symptoms; Status; Health Care |
COVID-19 Knowledge, Attitudes, and Avoidant Behaviors |
Knowledge; Attitudes; Avoidant Behaviors |
Mental Health and Substance Use |
General Mental Health; Substance Use |
Labor Market Outcomes |
Labor Market |
Economic Insecurity |
Economic Insecurity |
Educational Impact Due to COVID-19 |
K-12 Education Impact |
| Center for Pediatric Traumatic Stress (CPTS) CPTS Contact 1 , CPTS Contact 2 |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Exposure and Family Impact Survey (CEFIS) |
|
Family Exposure items |
Overall Impact |
Family Impact items |
Family Impact |
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult |
|
Family Exposure items - Adolescent/Young Adult |
Overall Impact |
Family Impact items - Adolescent/Young Adult |
Family Impact |
COVID-19 Exposure and Family Impact Survey (CEFIS) (Spanish) |
|
Family Exposure items (Spanish) |
Overall Impact |
Family Impact items (Spanish) |
Family Impact |
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult (Spanish) |
|
Family Exposure items - Adolescent/Young Adult (Spanish) |
Overall Impact |
Family Impact items - Adolescent/Young Adult (Spanish) |
Family Impact |
| Centers for Disease Control and Prevention (CDC) CDC Contact |
PhenX Sub-topic(s) |
|---|---|
CDC Novel Coronavirus Case Report Form |
General Symptoms; Diagnosis; Foreign Travel |
CDC COVID-19 Community Survey Question Bank (Draft) |
|
Useful Demographic Covariates |
Employment; Chronic Health Conditions; Personal Demographics |
Epidemiology Questions |
General Symptoms; Health Care; Diagnosis |
Community Interventions Questions |
Attitudes; Avoidant Behaviors; Hygiene |
At-Risk Populations questions |
Economic Insecurity; Social Distancing; Family Impact |
Questions that are useful but are lower priority |
Knowledge; Attitudes |
COVID-19 Case Report Form |
General Symptoms; Diagnosis; Foreign Travel |
| Chronic Obstructive Pulmonary Disease Gene Study (COPDGene) COPDGene Contact 1 , COPDGene Contact 2 |
PhenX Sub-topic(s) |
|---|---|
COPD Gene COVID-19 Survey |
General Symptoms; Diagnosis |
| Collaborative Cohort of Cohorts for COVID-19 Research (C4R) C4R Contact |
PhenX Sub-topic(s) |
|---|---|
C4R COVID-19 Questionnaire |
|
COVID-19 Health and Exposure Status |
Diagnosis; Recovery; Treatment |
COVID-19 in Your Community and Social Network |
Social Impact |
COVID-19 Vaccine Attitudes and Beliefs |
Attitudes |
COVID-19 Pandemic Impact on Healthcare and Finances |
Health Care; Economic Impact |
COVID-19 Pandemic Impact on Behavior |
Avoidant Behaviors; Substance Use; Sleep Changes |
COVID-19 Pandemic Impact on Social Interactions |
Social Impact; Personal Demographics |
COVID-19 Pandemic Impact on Mood |
General Mental Health; Social Impact; Stress |
COVID-19 Beliefs and Attitudes |
Attitudes |
| Columbia University Irving Medical Center (CUMC) CUMC Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Healthcare Personnel Study (CHPS) |
Health Care; Exposure; Personal Demographics |
| Complementary and Integrative Research (CAIR) CAIR Contact |
PhenX Sub-topic(s) |
|---|---|
Complementary and Integrative Research (CAIR) |
|
COVID-19 Health and Negative Behavioral Impacts |
General Symptoms; Health Care; Economic Insecurity |
COVID-19 Mental Health Impacts |
General Mental Health; Sleep Changes |
COVID-19 Positive Impacts |
Positive Impacts |
| Cornell University Contact |
PhenX Sub-topic(s) |
|---|---|
Telling our stories in the age of COVID-19 (TOSC) |
|
COVID-19 Situational and Contextual Factors |
Employment; Locational Demographics; Personal Demographics |
COVID-19 Regional Restriction Status |
Government Response |
COVID-19 Concerns About Health, Finances, and Overall Impact |
Health Care; Economic Insecurity |
COVID-19 Health Status |
Status; Diagnosis |
COVID-19 Impact |
Overall Impact |
| The Coronavirus Anxiety Project Contact |
PhenX Sub-topic(s) |
|---|---|
Coronavirus Anxiety Scale (CAS) |
General Mental Health |
Obsession with COVID-19 Scale (OCS) |
General Mental Health |
| Coronavirus Impact Scale Contact 1 , Contact 2 |
PhenX Sub-topic(s) |
|---|---|
Coronavirus Impact Scale |
Overall Impact |
| COVID-19 and Perinatal Experiences Study Contact |
PhenX Sub-topic(s) |
|---|---|
Coronavirus Perinatal Experiences Impact Survey (COPE-IS) |
|
Prenatal Experiences of COVID-19 |
Current Pregnancy; Health Care |
Perinatal Experiences of COVID-19 |
Past Pregnancy; Health Care |
Exposures and Symptoms |
General Symptoms; Diagnosis; General Mental Health |
Financial Impacts |
Employment; Economic Insecurity |
Social Support Impacts |
Social Impact |
Social Distancing and Restricted Activities |
Social Distancing; Home Life |
Coping and Adjustment |
General Mental Health; Substance Use; Dietary Intake |
Emotional Impact |
Stress; Sleep Changes; Daily Impact |
Health Background, Mental Health, and Substance Use |
Health History; Substance Use |
Demographics |
Locational Demographics; Personal Demographics |
COVID-19 - Coronavirus Perinatal Experience - Impact Update |
|
Exposures and Symptoms |
General Symptoms; Exposure |
Adjustments |
Daily Life; Stress; Overall Impact |
| COVID-19 Prevention Netwrok Statistical and Data Management Center (CoVPN) CoVPN Contact |
PhenX Sub-topic(s) |
|---|---|
Prospective Study of Acute Immune Responses to SARS COV-2 Infection |
|
Concomitant Medications |
Treatment; Health History |
COVID-19 Symptoms - Enrollment |
General Symptoms; Participant Enrollment |
COVID-19 Hospitalization |
Critical Care Participants; Health Care; Treatment |
Demographics |
Personal Demographics; Locational Demographics |
Dietary Information |
Dietary Intake |
Health Contact |
General Symptoms; Treatment |
Hematology |
Diagnosis |
Informed Consent |
Participant Intake; Participant Enrollment |
Interim Visit |
Participant Follow-Up |
Medical History |
Health History; Chronic Health Conditions |
Participant Receipt |
Community Access |
Participant Transfer |
Participant Enrollment |
Pregnancy Test Results |
Participant Enrollment |
SARS-CoV-2 Exposure |
Current Pregnancy |
SARS-CoV-2 Test Results |
Exposure |
Screening Outcome |
Diagnosis |
Specimen Collection - Blood |
Participant Enrollment |
Specimen Collection - Nasal Wash |
Diagnosis |
Specimen Collection - NP/Nasal Swab |
Diagnosis |
Specimen Collection - Saliva |
Diagnosis |
Specimen Collection - Stool |
Diagnosis |
Study Termination |
Diagnosis |
| Duke University Contact |
PhenX Sub-topic(s) |
|---|---|
RADx-UP Common Data Elements |
|
First Session |
Treatment |
Consent |
Consent |
Second Session |
COVID-19 Vaccination |
Location |
Locational Demographics |
Sociodemographics |
Current Pregnancy; Education; Personal Demographics |
Housing Employment And Insurance |
Economic Insecurity; Employment; Insurance |
Work Ppe And Distancing |
Social Distancing; Hygiene; Personal Protective Equipment |
Medical History |
Chronic Health Conditions |
Health Status |
Health History |
Vaccine Acceptance |
Vaccinations |
Testing |
Diagnosis |
Covid Test |
Diagnosis |
Symptoms |
General Symptoms |
Alcohol And Tobacco |
Substance Use |
Identity |
Locational Demographics; Personal Demographics |
Tier2 Sociodemographics |
Personal Demographics |
Tier2 Medical History |
Health Care |
Tier2 Vaccine Acceptance |
Vaccinations |
Tier2 Testing |
Knowledge; Perceived Threat |
Tier2 Medications |
Non-COVID-19 Symptoms and Medicines |
Tier2 Alcohol And Tobacco |
Substance Use |
Tier2 Drug Use |
Substance Use |
Tier2 Disability |
General Mental Health; Chronic Health Conditions |
Tier2 Food Insecurity |
Food Security; Dietary Intake; Economic Impact |
Tier2 Housing |
Housing Security |
Tier2 Trust |
Attitudes; Sources of information about COVID-19 |
Tier2 Ssn And Mrn |
Personal Demographics |
RADx-UP Common Data Elements (Spanish) |
|
Consent (Spanish) |
Consent |
Location (Spanish) |
Locational Demographics |
Sociodemographics (Spanish) |
Current Pregnancy; Education; Personal Demographics |
Housing Employment And Insurance (Spanish) |
Economic Insecurity; Employment; Insurance |
Work Ppe And Distancing (Spanish) |
Social Distancing; Hygiene; Personal Protective Equipment |
Medical History (Spanish) |
Chronic Health Conditions |
Health Status (Spanish) |
Health History |
Vaccine Acceptance (Spanish) |
Vaccinations |
Testing (Spanish) |
Diagnosis |
Covid Test (Spanish) |
Diagnosis |
Symptoms (Spanish) |
General Symptoms |
Alcohol And Tobacco (Spanish) |
Substance Use |
Identity (Spanish) |
Locational Demographics; Personal Demographics |
Tier2 Sociodemographics (Spanish) |
Personal Demographics |
Tier2 Medical History (Spanish) |
Health Care |
Tier2 Vaccine Acceptance (Spanish) |
Vaccinations |
Tier2 Testing (Spanish) |
Knowledge; Perceived Threat |
Tier2 Medications (Spanish) |
Non-COVID-19 Symptoms and Medicines |
Tier2 Alcohol And Tobacco (Spanish) |
Substance Use |
Tier2 Drug Use (Spanish) |
Substance Use |
Tier2 Disability (Spanish) |
General Mental Health; Chronic Health Conditions |
Tier2 Food Insecurity (Spanish) |
Food Security; Dietary Intake; Economic Impact |
Tier2 Housing (Spanish) |
Housing Security |
Tier2 Trust (Spanish) |
Attitudes; Sources of information about COVID-19 |
Tier2 Ssn And Mrn (Spanish) |
Personal Demographics |
| The Earth Institute at Columbia Climate School Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 and Extreme Heat Survey |
Personal Demographics; Housing Security; Locational Demographics |
| Fordham University's Center for Ethics Education and Applied Developmental Psychology Program Contact 1 , Contact 2 |
PhenX Sub-topic(s) |
|---|---|
Coronavirus Racial Bias Scale (CRBS) |
General Mental Health; Racial/Ethnic Disparities; Daily Impact |
Coronavirus Victimization Distress Scale (CVDS) |
Social Impact; Cyber-harassment |
| George Washington University (GWU) GWU Contact |
PhenX Sub-topic(s) |
|---|---|
ENhancing Assessment of Common Therapeutic Factors ENACT) Tool |
General Mental Health; Social Impact; Daily Life |
| Global Consortium for Chemosensory Research (GCCR) GCCR Contact |
PhenX Sub-topic(s) |
|---|---|
Global Consortium for Chemosensory Research COVID-19 Survey |
|
COVID-19 Diagnosis as it May Relate to Sense of Smell |
Diagnosis; Sense of Smell |
COVID-19 Diagnosis as it May Relate to Sense of Taste |
Diagnosis; Sense of Taste |
COVID-19 Recovery on the Experience of Smell and Taste |
Recovery; Sense of Smell; Sense of Taste |
| Harvard T.H. Chan School of Public Health Contact 1 , Contact 2 |
PhenX Sub-topic(s) |
|---|---|
Social Risk Factors for COVID-19 Exposure Questionnaire |
|
Perceptions |
Exposure |
Demographics |
Personal Demographics |
Education and Income |
Personal Demographics; Health Care |
Diagnosis, Status, Treatment, Recovery |
Diagnosis; Status |
Personal and Family Impacts |
Home Life; Family Impact |
Risk Reduction Behaviors |
Employment; Transportation; Personal Protective Equipment |
Work and Employment – Employer Policies, Perceptions, Supports |
Employer Policies |
| Harvard University Contact |
PhenX Sub-topic(s) |
|---|---|
HAALSI COVID Survey |
Overall Impact; Social Impact; Government Response |
| HERO Contact |
PhenX Sub-topic(s) |
|---|---|
HERO Protective Equipment Survey |
Personal Protective Equipment |
HERO Daily Experience Index |
General Mental Health |
| HIV Vaccine Trial Network Statistical and Data Management Center (HVTN) HVTN Contact |
PhenX Sub-topic(s) |
|---|---|
Characterizing SARS-CoV-2 Specific Immunity in Convalescent Individuals |
|
Concomitant Medications |
Treatment |
COVID-19 Symptoms |
General Symptoms |
COVID-19 Treatment and Hospitalization |
Diagnosis; Treatment |
Demographics |
Locational Demographics; Personal Demographics |
Interim Visit |
Participant Follow-Up |
Medical History |
Health History; Chronic Health Conditions |
Nasal Specimen for Antibodies |
Diagnosis |
Nasal Specimen for SARS-CoV-2 PCR |
Diagnosis |
Participant Receipt |
Participant Intake; Participant Enrollment |
Participant Transfer |
Participant Intake; Participant Enrollment |
SARS-CoV-2 Exposure |
Diagnosis; Exposure |
SARS-CoV-2 Test Results |
Diagnosis |
Screening Outcome |
Status; Outcomes; Participant Enrollment |
Specimen Collection - Blood |
Diagnosis |
Study Termination |
Participant Enrollment |
| Imperial College London Contact |
PhenX Sub-topic(s) |
|---|---|
Online Community Involvement in COVID-19 Research and Outbreak Response: Early Insights from a UK Perspective: Report 14 |
Attitudes; Avoidant Behaviors; Sources of information about COVID-19 |
| Institute for Clinical and Translational Science at University of Iowa Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Evaluation of Risk in Emergency Departments |
|
Participant Interest Screening Form |
Participant Intake |
Participant Enrollment/Baseline Form |
Participant Enrollment |
Facility Baseline Form |
Critical Care Facilities |
Participant Weekly Survey |
Participant Weekly Survey |
Facility Weekly Survey |
Facility Weekly Survey |
Participant Endotracheal Intubation/Cardiac Arrest Event Form |
Critical Care Participants |
Facility Endotracheal Intubation/Cardiac Arrest Event Form |
Critical Care Facilities |
Participant Post-Serology Follow-Up Form (Week 4) |
Participant Follow-Up |
Facility Organizational Factors Post-Serology Form (Week 4) |
Facility Follow-Up |
Participant 6-Month Follow-Up Form |
Participant Follow-Up |
Facility 6-Month Follow-Up Form |
Facility Follow-Up |
Participant Baseline Positive-Test Follow-Up Form |
Participant Follow-Up |
| International Academies of Emergency Dispatch (IAED) IAED Contact |
PhenX Sub-topic(s) |
|---|---|
Emerging Infectious Disease Surveillance Tool (2019-Novel Coronavirus) |
General Symptoms; Domestic Travel; Foreign Travel |
| International Severe Acute Respiratory and emerging Infection Consortium (ISARIC) ISARIC Contact |
PhenX Sub-topic(s) |
|---|---|
ISARIC Global COVID-19 Case Report Form (CRF) Survey |
|
Presentation/Admission Case Report Form |
General Symptoms; Chronic Health Conditions; Personal Demographics |
Case Report Form on Admission, Critical Care, Research Sampling |
General Symptoms; Treatment; Critical Care Participants |
Outcome Case Report Form |
Diagnosis; Treatment; Outcomes |
ISARIC Global COVID-19 Follow Up Study Protocol |
General Symptoms; Outcomes; Quality of Life |
ISARIC/WHO Clinical Characterisation Protocol for Severe Emerging Infections |
General Symptoms; Treatment; Outcomes |
| International Sexual Health And REproductive Health Survey during COVID-19 (I-SHARE) I-SHARE Contact 1 , I-SHARE Contact 2 |
PhenX Sub-topic(s) |
|---|---|
I-SHARE Health Survey during COVID-19 |
|
Socio-demographics |
Locational Demographics; Personal Demographics |
Compliance with social distancing measures |
Social Distancing; Economic Impact; Substance Use |
Couple and family relationships |
Family Impact |
Sexual behavior |
Sexual Behavior |
Access to contraceptives |
Pregnancy History; Contraceptives; Health Care |
Access to reproductive health care |
Current Pregnancy; Health Care |
Abortion |
Abortion; Health Care |
Sexual and gender based violence |
Violence; Partner Dynamics |
Female genital mutilation/early or forced marriage |
Early Marriage; Female Circumcision |
HIV/STI |
HIV |
Mental health |
General Mental Health |
Nutrition |
Food Security |
| Johns Hopkins Bloomberg School of Public Health Contact |
PhenX Sub-topic(s) |
|---|---|
Johns Hopkins COVID Long Study |
General Symptoms; Treatment; General Mental Health |
| Johns Hopkins University (JHU) JHU Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Community Response Survey |
|
Knowledge and Attitudes Toward COVID-19 |
Knowledge; Perceived Threat |
COVID-19 Symptoms and Testing Experience |
General Symptoms; Diagnosis |
Health Conditions, Medications and Health Care During COVID-19 Pandemic |
Health Care; Chronic Health Conditions |
COVID-19 and Mental Health Impacts |
General Mental Health |
COVID-19 Impact and Pandemic Stress |
Overall Impact |
COVID-19 and Social Distancing |
Social Distancing; Social Impact |
COVID-19 and Violence and Trauma |
Violence; Fear of Violence |
COVID-19 and Substance Use |
Substance Use |
COVID-19 and Sexual Behavior |
Sexual Behavior |
| Johns Hopkins University, Bloomberg School of Public Health (JHU) JHU Contact 1 , JHU Contact 2 |
PhenX Sub-topic(s) |
|---|---|
National Health and Aging Trends Study (NHATS) COVID-19 Questionnaires |
|
Participant info |
Participant Intake |
Symptoms of COVID-19 |
General Symptoms; Diagnosis |
Before and During the Outbreak |
Avoidant Behaviors; Social Distancing |
Assisted, independent and nursing facilities |
Daily Life; Exposure; Critical Care Facilities |
Changes in living situation |
Home Life; Housing Security |
Changes in contact with family and friends |
Family Impact; Social Impact |
Changes in other activities |
Family Impact; Daily Impact; Daily Life |
Changes in Health Care |
Health Care |
Changes in Finance |
Economic Insecurity |
Changes in Well-being |
General Mental Health; Quality of Life |
Changes in Daily Activities |
Daily Impact; Daily Life; Quality of Life |
| Kaiser Family Foundation (KFF) KFF Contact |
PhenX Sub-topic(s) |
|---|---|
Impact of Coronavirus on Life in America |
|
Voting Influence |
Health Care; Attitudes; Government Response |
Coronavirus Response |
Government Response |
Individual Impact |
Knowledge |
Health Demographics |
Female Circumcision |
KFF COVID-19 Vaccine Monitor |
|
Participant Demographics |
Personal Demographics; Employment; Political Views |
Health Care Laws |
Health Care; Attitudes; Government Response |
COVID Views |
Attitudes; Perceived Threat |
COVID-19 Vaccine Views |
Attitudes; Sources of information about COVID-19; Opinion on vaccines |
Health Care |
Health Care; Personal impact of COVID-19 |
KFF/The Undefeated Survey on Race and Health |
|
Trust in Community Services |
Perceived Threat; Stress; Community Assistance |
Respondent demographics |
Personal Demographics |
Discrimination and Disparate Health Care |
Racial/Ethnic Disparities; Attitudes |
COVID-19 Impact |
Overall Impact; Economic Insecurity; Food Security |
Vaccine Views |
Attitudes; Opinion on vaccines |
Health Care Treatment |
Racial/Ethnic Disparities; Health Care |
Treatment of African Americans |
Racial/Ethnic Disparities |
| Kennedy Krieger Institute Contact |
PhenX Sub-topic(s) |
|---|---|
KSADS-COMP PTSD Screen items |
Screen for K-SADS-COMP |
KSADS-COMP PTSD Screen items - Spanish |
Screen for K-SADS-COMP |
| London's Global University (UCL) UCL Contact |
PhenX Sub-topic(s) |
|---|---|
Online Survey on Recovery from COVID-19 |
|
Demographics |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization |
Health Care |
COVID-19 Testing |
Diagnosis |
Antibody Testing |
Diagnosis |
Symptoms |
General Symptoms; Recovery |
Post-Exertional Malaise |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning |
General Symptoms; Physical Activity; Health History |
Mental Health |
General Mental Health; Quality of Life; Government Response |
Work |
Employment |
Other Medical Diagnosis |
Diagnosis |
Diagnostics Blood Tests |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments |
Treatment; Recovery |
Overall COVID Experience Text Write In |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Arabic |
|
Demographics - Arabic |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Arabic |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Arabic |
Health Care |
COVID-19 Testing - Arabic |
Diagnosis |
Antibody Testing - Arabic |
Diagnosis |
Symptoms - Arabic |
General Symptoms; Recovery |
Post-Exertional Malaise - Arabic |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Arabic |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Arabic |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Arabic |
General Symptoms; Physical Activity; Health History |
Mental Health - Arabic |
General Mental Health; Quality of Life; Government Response |
Work - Arabic |
Employment |
Other Medical Diagnosis - Arabic |
Diagnosis |
Diagnostics Blood Tests - Arabic |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Arabic |
Treatment; Recovery |
Overall COVID Experience Text Write In - Arabic |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Dutch |
|
Demographics - Dutch |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Dutch |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Dutch |
Health Care |
COVID-19 Testing - Dutch |
Diagnosis |
Antibody Testing - Dutch |
Diagnosis |
Symptoms - Dutch |
General Symptoms; Recovery |
Post-Exertional Malaise - Dutch |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Dutch |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Dutch |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Dutch |
General Symptoms; Physical Activity; Health History |
Mental Health - Dutch |
General Mental Health; Quality of Life; Government Response |
Work - Dutch |
Employment |
Other Medical Diagnosis - Dutch |
Diagnosis |
Diagnostics Blood Tests - Dutch |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Dutch |
Treatment; Recovery |
Overall COVID Experience Text Write In - Dutch |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - French |
|
Demographics - French |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - French |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - French |
Health Care |
COVID-19 Testing - French |
Diagnosis |
Antibody Testing - French |
Diagnosis |
Symptoms - French |
General Symptoms; Recovery |
Post-Exertional Malaise - French |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - French |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - French |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - French |
General Symptoms; Physical Activity; Health History |
Mental Health - French |
General Mental Health; Quality of Life; Government Response |
Work - French |
Employment |
Other Medical Diagnosis - French |
Diagnosis |
Diagnostics Blood Tests - French |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - French |
Treatment; Recovery |
Overall COVID Experience Text Write In - French |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Indonesian |
|
Demographics - Indonesian |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Indonesian |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Indonesian |
Health Care |
COVID-19 Testing - Indonesian |
Diagnosis |
Antibody Testing - Indonesian |
Diagnosis |
Symptoms - Indonesian |
General Symptoms; Recovery |
Post-Exertional Malaise - Indonesian |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Indonesian |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Indonesian |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Indonesian |
General Symptoms; Physical Activity; Health History |
Mental Health - Indonesian |
General Mental Health; Quality of Life; Government Response |
Work - Indonesian |
Employment |
Other Medical Diagnosis - Indonesian |
Diagnosis |
Diagnostics Blood Tests - Indonesian |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Indonesian |
Treatment; Recovery |
Overall COVID Experience Text Write In - Indonesian |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Italian |
|
Demographics - Italian |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Italian |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Italian |
Health Care |
COVID-19 Testing - Italian |
Diagnosis |
Antibody Testing - Italian |
Diagnosis |
Symptoms - Italian |
General Symptoms; Recovery |
Post-Exertional Malaise - Italian |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Italian |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Italian |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Italian |
General Symptoms; Physical Activity; Health History |
Mental Health - Italian |
General Mental Health; Quality of Life; Government Response |
Work - Italian |
Employment |
Other Medical Diagnosis - Italian |
Diagnosis |
Diagnostics Blood Tests - Italian |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Italian |
Treatment; Recovery |
Overall COVID Experience Text Write In - Italian |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Portuguese |
|
Demographics - Portuguese |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Portuguese |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Portuguese |
Health Care |
COVID-19 Testing - Portuguese |
Diagnosis |
Antibody Testing - Portuguese |
Diagnosis |
Symptoms - Portuguese |
General Symptoms; Recovery |
Post-Exertional Malaise - Portuguese |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Portuguese |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Portuguese |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Portuguese |
General Symptoms; Physical Activity; Health History |
Mental Health - Portuguese |
General Mental Health; Quality of Life; Government Response |
Work - Portuguese |
Employment |
Other Medical Diagnosis - Portuguese |
Diagnosis |
Diagnostics Blood Tests - Portuguese |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Portuguese |
Treatment; Recovery |
Overall COVID Experience Text Write In - Portuguese |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Russian |
|
Demographics - Russian |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Russian |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Russian |
Health Care |
COVID-19 Testing - Russian |
Diagnosis |
Antibody Testing - Russian |
Diagnosis |
Symptoms - Russian |
General Symptoms; Recovery |
Post-Exertional Malaise - Russian |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Russian |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Russian |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Russian |
General Symptoms; Physical Activity; Health History |
Mental Health - Russian |
General Mental Health; Quality of Life; Government Response |
Work - Russian |
Employment |
Other Medical Diagnosis - Russian |
Diagnosis |
Diagnostics Blood Tests - Russian |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Russian |
Treatment; Recovery |
Overall COVID Experience Text Write In - Russian |
General Symptoms; Quality of Life; Attitudes |
Online Survey on Recovery from COVID-19 - Spanish |
|
Demographics - Spanish |
Current Pregnancy; Locational Demographics; Personal Demographics |
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Spanish |
General Symptoms; Recovery; Chronic Health Conditions |
Hospitalization - Spanish |
Health Care |
COVID-19 Testing - Spanish |
Diagnosis |
Antibody Testing - Spanish |
Diagnosis |
Symptoms - Spanish |
General Symptoms; Recovery |
Post-Exertional Malaise - Spanish |
General Symptoms; Recovery; Physical Activity |
Fatigue Assessment Scale - Spanish |
General Symptoms; Recovery; Sleep Changes |
Changes in Sensitivity to Medication or Other Substances - Spanish |
General Symptoms; Non-COVID-19 Symptoms and Medicines |
General Functioning - Spanish |
General Symptoms; Physical Activity; Health History |
Mental Health - Spanish |
General Mental Health; Quality of Life; Government Response |
Work - Spanish |
Employment |
Other Medical Diagnosis - Spanish |
Diagnosis |
Diagnostics Blood Tests - Spanish |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Treatments - Spanish |
Treatment; Recovery |
Overall COVID Experience Text Write In - Spanish |
General Symptoms; Quality of Life; Attitudes |
| Massachusetts General Hospital Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Symptom Tracker Mobile App (CSTM) |
|
COVID-19 Related Exposure And Use of PPE |
Exposure |
COVID-19 Symptoms |
General Symptoms; Diagnosis; Treatment |
COVID-19 Use of Personal Protective Equipment (PPE) |
Personal Protective Equipment |
COVID-19 Real-time Symptom Epidemiology Tracker (CORSET): Protocol |
General Symptoms; Health Care; Personal Protective Equipment |
| Massachusetts Institute of Technology (MIT) MIT Contact 1 , MIT Contact 2 |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Beliefs, Behaviors & Norms Survey (KAP CoVID Study) |
|
Information Exposure |
Sources of information about COVID-19; Exposure |
Knowledge and Positive Cases |
Knowledge |
Vaccine and Healthcare |
Health Care |
Demographics |
Personal Demographics |
Information Sources, Trust, and Need |
Sources of information about COVID-19 |
Basic Knowledge |
Knowledge |
Distancing Familiarity, Importance, and Norms |
Social Distancing |
Risk Perceptions and Locus of Control |
Diagnosis |
Prevention Behaviors in Practice |
Hygiene |
Behavioral Measures Taken, Efficacy, & Norms |
Hygiene; Daily Impact; Quality of Life |
Employment and Work |
Employment |
Intentions to Visit Locations |
Social Impact |
Travel |
Domestic Travel; Foreign Travel |
| Michigan State University Contact |
PhenX Sub-topic(s) |
|---|---|
Coping with COVID through nature: Evidence from breast |
|
Community Impacts |
Physical Activity; Community Access |
Environmental Factors |
Nature Appreciation |
Mental Health |
General Mental Health |
Cancer Impact |
Non-COVID-19 Symptoms and Medicines |
Personal Demographics |
Personal Demographics; Health Care |
| Mongan Institute (Massachusetts General Hospital) (MGH) MGH Contact |
PhenX Sub-topic(s) |
|---|---|
COVID Symptom Tracker App: COPE (COronavirus Pandemic Epidemiology) Consortium IRB Tool Kit |
|
COPE Consortium IMB Toolkit Page 37 to 38 |
Health Care |
COPE Consortium IMB Toolkit Page 38 |
Health Care; Personal Protective Equipment |
COPE Consortium IMB Toolkit Page 39 |
Personal Demographics |
COPE Consortium IMB Toolkit Page 39 to 42 |
Health History; Life Changes |
COPE Consortium IMB Toolkit Page 42 to 43 |
General Symptoms |
COPE Consortium IMB Toolkit Page 43 to 44 |
Social Impact |
COPE Consortium IMB Toolkit Page 45 to 46 |
Diagnosis |
COPE Consortium IMB Toolkit Page 46 to 47 |
Opinion on vaccines; COVID-19 Vaccination |
COPE Consortium IMB Toolkit Page 47 to 50 |
General Symptoms |
COPE Consortium IMB Toolkit Page 50 |
Social Impact |
| Montreal Behavioural Medicine Centre (MBMC) MBMC Contact 1 , MBMC Contact 2 |
PhenX Sub-topic(s) |
|---|---|
COVID-19 International Survey (CIS) |
|
Social Distancing and Hygiene - [COVID Specific] |
Social Distancing; Hygiene |
Concerns of Infection - [COVID Specific] |
Perceived Threat |
Sources of information about COVID-19 |
Sources of information about COVID-19 |
| Multicenter Aids Cohort Study Women's Interagency Hiv Study (MACS-WIHS) MACS-WIHS Contact |
PhenX Sub-topic(s) |
|---|---|
MACS-WIHS Questionnaire |
|
COVID-19 Symptoms, Testing, and Preventive Behaviors |
General Symptoms; Status; Health Care |
COVID-19 Impact on Daily Life |
Daily Life; Health Care |
COVID-19 Psychosocial Impact |
General Mental Health |
MACS-WIHS Questionnaire (Spanish) |
|
COVID-19 Symptoms, Testing, and Preventive Behaviors (Spanish) |
General Symptoms; Status; Health Care |
COVID-19 Impact on Daily Life (Spanish) |
Daily Life; Health Care |
COVID-19 Psychosocial Impact (Spanish) |
General Mental Health |
| National Alzheimer's Coordinating Center Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Impact Survey |
|
COVID-19 Impact Survey - Participant |
Diagnosis; General Mental Health; Overall Impact |
COVID-19 Impact Survey - Co-participant |
General Mental Health; Overall Impact; Health Care |
COVID-19 Technology Accessibility Survey |
Telehealth; Technology Use |
| National Heart, Lung, and Blood Institute (National Institutes of Health) (NHLBI) NHLBI Contact |
PhenX Sub-topic(s) |
|---|---|
NHLBI-CONNECTS Common Data Elements (CDE) |
General Symptoms; Diagnosis; Outcomes |
| National Institute of Mental Health (NIMH) Intramural Research Program Contact |
PhenX Sub-topic(s) |
|---|---|
Psychosocial Impact of COVID-19 Survey |
|
Psychological Impact |
General Mental Health; Social Impact |
Social Distancing |
Social Distancing |
Hopes and Dreams |
General Mental Health; Attitudes |
Health Concerns |
General Symptoms; Diagnosis |
Daily Activities |
Daily Life |
Daily Functioning |
Daily Life |
| National Institutes of Health (NIH) NIH Contact |
PhenX Sub-topic(s) |
|---|---|
All of Us Covid 19 Participant Experience Survey (COPE) |
|
COVID-19 Related Social Distancing Experiences |
Social Distancing; Hygiene |
COVID-19 Related Symptoms |
General Symptoms |
COVID-19 Related Testing |
Diagnosis |
COVID-19 Related Treatment |
Treatment |
COVID-19 Related Impact |
Overall Impact; General Mental Health |
All of Us Covid 19 Participant Experience Survey (COPE) (Spanish) |
|
COVID-19 Related Social Distancing Experiences (Spanish) |
Social Distancing; Hygiene |
COVID-19 Related Symptoms (Spanish) |
General Symptoms |
COVID-19 Related Testing (Spanish) |
Diagnosis |
COVID-19 Related Treatment (Spanish) |
Treatment |
COVID-19 Related Impact (Spanish) |
Overall Impact; General Mental Health |
| Natural Hazards Center (University of Colorado at Boulder) Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 & Social Determinants of Health Data Collection Instrument Repository |
General Mental Health; Social Impact; Food Security |
| New York State Psychiatric Institute Columbia University Iriving Medical Center Contact 1 , Contact 2 |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Experiences (COVEX) |
|
COVID-19 Symptoms & Diagnoses |
General Symptoms; Diagnosis |
Vulnerability and Exposure to COVID-19 |
Substance Use; Exposure |
Changes in Living Situation due to COVID-19 |
Home Life |
COVID-19 Related Employment Status |
Employment; Education |
Worries, Mental Health Changes due to COVID-19 |
General Mental Health; Substance Use |
Problems and Support during COVID-19 outbreak |
Resources; Health Care |
Coping with COVID-19 |
General Mental Health; Positive Impacts |
Pregnancy-Related during COVID-19 |
Current Pregnancy; Past Pregnancy |
Media Use During COVID-19 |
Media Use; Sources of information about COVID-19 |
| New York University (NYU) NYU Contact |
PhenX Sub-topic(s) |
|---|---|
Novel Coronavirus (COVID) Illness |
|
Participant info |
Participant Intake; Diagnosis |
COVID Testing |
Diagnosis; General Symptoms |
COVID Timing, Symptoms and Complications |
General Symptoms |
COVID Ð Becoming Ill |
General Symptoms; Health Care |
COVID Work Impacts |
Employment |
COVID Treatments |
Treatment |
COVID Lasting Effects |
Outcomes |
COVID Illness experience |
Overall Impact |
Current Situation |
Avoidant Behaviors |
| NIDA-supported data sharing consortium, C3PNO Contact |
PhenX Sub-topic(s) |
|---|---|
C3PNO COVID-19 Survey |
|
Demographics |
Employment; Home Life |
COVID-19 Topics |
Overall Impact; General Symptoms; Diagnosis |
Mental Health |
General Mental Health |
Healthcare and HIV |
Health Care; HIV |
Relationships |
Sexual Behavior |
Substance Use |
Substance Use |
Collaborating Consortium of Cohorts Producing NIDA Opportunities (C3PNO) COVID-19 Survey Protocol |
Substance Use; Overall Impact; HIV |
| NORC at the University of Chicago (NORC) NORC Contact |
PhenX Sub-topic(s) |
|---|---|
National Social Life, Health, and Aging Project (NSHAP) COVID-19 Study |
|
COVID-19 Experiences |
Diagnosis; Outcomes |
Health and Health Care |
Health Care |
Job and Finances |
Economic Insecurity; Employment |
Tangible and Emotional Support |
General Mental Health; Community Access |
Marital Status and Relationship Characteristics |
Family Impact; Partner Dynamics |
Social Activity and Engagement |
Social Impact; Family Impact |
Living Arrangements |
Housing Changes |
Household Composition and Size |
Home Life |
Thoughts and Feelings |
General Mental Health |
Social Unrest |
Social Impact |
Health Behaviors |
Substance Use; Physical Activity; Positive Impacts |
| Nottingham Trent University (NTU) NTU Contact |
PhenX Sub-topic(s) |
|---|---|
Fear of COVID-19 Scale |
General Mental Health |
| NYU Langone, Division of Environmental Pediatrics Contact |
PhenX Sub-topic(s) |
|---|---|
NYU Children's Health and Environment Study - Baseline COVID-19 Stress Questionnaire |
Family Impact; Diagnosis |
NYU Children's Health and Environment Study - Follow-up Covid-19 Stress Questionnaire |
Family Impact; Diagnosis; Participant Follow-Up |
| The Ohio State University Wexner Medical Center Contact |
PhenX Sub-topic(s) |
|---|---|
Impact of COVID-19 on Behaviors across |
|
Symptoms, diagnosis, information sources |
General Symptoms; Diagnosis; Sources of information about COVID-19 |
Personal, family, daily life impacts |
Employment; Home Life |
Stress, anxiety, food or economic insecurity, sleep, mental health |
General Mental Health; Economic Insecurity; Diagnosis |
Social distancing behaviors |
Social Distancing; Social Impact |
Health, health care access during pandemic, cancer-specific questions |
Health Care; Non-COVID-19 Symptoms and Medicines |
Healthful behaviors including physical activity, healthy diet, alcohol and drug use |
Physical Activity; Dietary Intake; Substance Use |
Demographics |
Personal Demographics; Locational Demographics |
| The Osteoporotic Fractures in Men (MROS) Study Study of Muscle, Mobility, and Aging (SOMMA) (MROS/SOMMA) MROS/SOMMA Contact |
PhenX Sub-topic(s) |
|---|---|
MROS/SOMMA COVID-19 Social Impact Questionnaire |
|
Symptoms and Diagnosis |
General Symptoms; Diagnosis |
MROS/SOMMA Social Distancing and Hygiene |
Social Distancing; Hygiene |
| Pandemic Stress Index (PSI) PSI Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Pandemic Stress Index (PSI) |
Overall Impact |
| Pennington Biomedical Research Center (PBRC) PBRC Contact |
PhenX Sub-topic(s) |
|---|---|
Pennington Biomedical COVID-19 Survey |
|
Regional Social Distancing COVID-19 Mandates |
Social Distancing |
Impacts of COVID-19 on Food Security |
Food Security |
Worry about COVID-19 Infection |
Diagnosis; General Mental Health |
Impacts of COVID-19 on Employment |
Economic Insecurity |
Impacts of COVID-19 on Changes to Physical Activity and Sedentary Behaviors |
Physical Activity |
Impacts of COVID-19 on Dietary Changes |
Dietary Intake |
Impacts of COVID-19 on Sleep Changes |
Sleep Changes |
Impacts of COVID-19 on Well-Being |
General Mental Health |
| RAND Corporation Contact |
PhenX Sub-topic(s) |
|---|---|
RAND American Life Panel Survey: Impacts of COVID-19 |
|
Subjective Wellbeing |
Attitudes; General Mental Health |
Mental Health |
General Mental Health |
Disruption to routine behaviors |
Overall Impact; Daily Impact |
Health Care |
Health Care; General Mental Health |
Experience with COVID-19 |
Diagnosis |
COVID-19 Related Information and Trust in News and Government Institutions |
Sources of information about COVID-19; Knowledge; Attitudes |
Common ingroup identity |
Attitudes |
COVID-19 Related Household Finances |
Economic Impact; Economic Insecurity |
Online shopping and delivery |
Resources; Attitudes |
Schooling |
Education |
Employment |
Employment |
Domestic Conflict |
Conflict |
Political Affiliation |
Personal Demographics |
| Rare Diseases Clinical Research Network (National Center for Advancing Translational Sciences) (RDCRN) RDCRN Contact |
PhenX Sub-topic(s) |
|---|---|
Impact of COVID-19 on People Living with Rare Disease and their Families |
General Symptoms; Treatment; Chronic Health Conditions |
| Rare Diseases Clinical Research Network, Data Management and Coordinating Center (RDCRN) RDCRN Contact |
PhenX Sub-topic(s) |
|---|---|
Impact of COVID-19 on People Living with Rare Disease and their Families |
|
Symptoms and Diagnosis |
General Symptoms; Diagnosis; Treatment |
Health Care Access and Service Use During the Pandemic |
Health Care; Status |
| Rice University Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Registry |
General Symptoms; Exposure; Economic Impact |
| Save the Children International (SCI) SCI Contact |
PhenX Sub-topic(s) |
|---|---|
Hidden Impact of COVID-19 on Children |
|
Parent - Household & Health History |
Locational Demographics; Personal Demographics; Daily Impact |
Parent - Impact of COVID-19 |
Diagnosis; Daily Impact; Resources |
Parent - Health History |
Chronic Health Conditions; Health Care |
Parent - Education |
K-12 Education Impact; Media Use |
Parent - Child Mental Health |
General Mental Health; Social Impact |
Parent - Neonatal Care |
Child Care |
Parent - Household Composition and Expenses |
Personal Demographics; Economic Impact; Food Security |
Parent - Parent Mental Health |
General Mental Health; Social Impact |
Child - COVID-19 Impact on Education |
Personal Demographics; K-12 Education Impact |
Child - Behaviors and Mental Health |
General Mental Health; Daily Life; Violence |
Child - Open Responses |
Home Life; General Mental Health |
| Social Psychological Measurements of COVID-19 … Contact |
PhenX Sub-topic(s) |
|---|---|
Social Psychological Survey of COVID-19: Coronavirus Perceived Threat, Government |
|
Perceived Coronavirus Threat |
Perceived Threat |
Federal Governmental Response to Coronavirus |
Government Response |
State Governmental Response to Coronavirus |
Government Response |
City Governmental Response to Coronavirus |
Government Response |
Coronavirus Impacts |
Resources; General Mental Health |
Coronavirus Experiences |
General Symptoms; Diagnosis; Social Distancing |
Perceived Coronavirus Threat (Short Form) |
Perceived Threat |
Governmental Response to Coronavirus (Short Form) |
Government Response |
Coronavirus Impacts (Short Form) |
Resources; General Mental Health |
Coronavirus Experiences (Short Form) |
General Symptoms; Diagnosis; Social Distancing |
| South Alabama University Contact |
PhenX Sub-topic(s) |
|---|---|
Multidimensional Face Mask Perceptions Scale |
Attitudes; Personal Protective Equipment |
| Stanford Health Policy Contact |
PhenX Sub-topic(s) |
|---|---|
Impact of the novel Coronavirus (COVID-19) on Patients with Cancer |
|
Overall Cancer Care |
Health Care; Chronic Health Conditions |
Care Delays or Interruptions (due to COVID-19 pandemic) |
Health Care |
Challenges Due to COVID-19 Pandemic |
Overall Impact; Sources of information about COVID-19 |
Novel Coronavirus Testing |
Status; Diagnosis |
Demographics |
Personal Demographics; Health History |
| Stanford University Contact |
PhenX Sub-topic(s) |
|---|---|
Psychological Stress During COVID-19 Crisis |
|
COVID19 related Lifestyle Change |
Daily Impact |
| Trinity College Dublin Contact |
PhenX Sub-topic(s) |
|---|---|
The Irish Longitudinal Study on Ageing (TILDA) COVID-19 |
|
Activities During Covid-19 |
Home Life; Social Distancing |
Health Behaviors |
Social Impact; Substance Use; Physical Activity |
Mental Health |
General Mental Health |
Work |
Employment; Economic Impact |
State Assistance and Care Giving |
Community Assistance; Home Life |
Health Care |
Health Care |
Media |
Media Use; Sources of information about COVID-19 |
Age Discrimination |
Attitudes |
COVID-19 Impact |
General Symptoms; Diagnosis |
General Impact |
Overall Impact |
| Tulane University School of Public Health and Tropical Medicine Contact |
PhenX Sub-topic(s) |
|---|---|
A new approach to controlling chlamydia transmission in young people - |
|
Housing and income due to COVID |
Housing Security; Economic Impact |
COVID-19 symptom check |
General Symptoms; Diagnosis |
PPE and COVID |
Personal Protective Equipment |
COVID-19 risk perceptions |
Perceived Threat; Hygiene |
COVID-19 related communications |
Sources of information about COVID-19 |
STD/STI testing during COVID |
Diagnosis; Non-COVID-19 Symptoms and Medicines |
Sexual behaviors during COVID |
Sexual Behavior |
Substance use during COVID |
Substance Use |
| UCL Great Ormond Street Institute of Child Health Contact |
PhenX Sub-topic(s) |
|---|---|
Children & young people with Long Covid (CLoCk) study |
Health History; Personal impact of COVID-19 |
Children & young people with Long Covid (CLoCk) study - Follow-Up Questionnaire |
Health History; Personal impact of COVID-19; Participant Follow-Up |
| University of Birmingham Contact |
PhenX Sub-topic(s) |
|---|---|
Symptom Burden Questionnaire for Long COVID (SBQ-LC) |
General Symptoms; Personal impact of COVID-19 |
| University of California Davis Contact |
PhenX Sub-topic(s) |
|---|---|
Survey for Workers |
|
Covid-19 Infection |
General Symptoms; Diagnosis |
The Workplace |
Employment; Personal Protective Equipment; Health Care |
Demographics |
Personal Demographics; Chronic Health Conditions |
Changes to your life since COVID-19 |
Overall Impact |
Financial situation |
Economic Insecurity |
Living situation |
Personal Demographics; Home Life |
Knowledge about COVID-19 protection measures |
Attitudes; Knowledge |
Pregnancy |
Current Pregnancy; Past Pregnancy |
| University of California San Diego (UCSD) UCSD Contact |
PhenX Sub-topic(s) |
|---|---|
ABCD COVID-19 Impact Measure - Parent |
|
Family Situation |
Economic Insecurity; Avoidant Behaviors |
Youth's Schooling |
Education |
Youth's Routine and Sleep |
Physical Activity; Sleep Changes |
Relationships |
Family Impact; Hygiene; Social Impact |
COVID Attitudes & Adherence |
Conflict; Attitudes |
Mental Health & Stress |
General Mental Health; Stress |
Substance Use |
Substance Use |
Screen Use |
Media Use |
Media Exposure to COVID-19 |
Sources of information about COVID-19 |
Physical Health |
General Symptoms; Diagnosis; Health Care |
ABCD COVID-19 Impact Measure - Youth |
|
School Schedule |
Education |
Youth's Routine and Sleep |
Sleep Changes |
Parents/Guardians |
Home Life |
Relationships |
Family Impact; Social Impact |
Mental Health & Stress |
General Mental Health |
Substance Use |
Substance Use |
Media Exposure to COVID-19 |
Sources of information about COVID-19 |
Screen Use |
Media Use |
Physical Health |
Physical Activity |
| University of California San Francisco (UCSF) UCSF Contact |
PhenX Sub-topic(s) |
|---|---|
PROmotion of COvid-19 VAX)ccination in the Emergency Department PROCOVAXED) study: |
| University of Connecticut School of Medicine University of Massachusetts Contact |
PhenX Sub-topic(s) |
|---|---|
Epidemic - Pandemic Impacts Inventory (EPII) |
|
Impact of COVID-19 on Work and Employment |
Employment |
Impact of COVID-19 on Education and Training |
Education; Training |
Impact of COVID-19 on Home Life |
Home Life; Conflict |
Impact of COVID-19 on Social Activities |
Social Impact |
Impact of COVID-19 on Economic |
Economic Insecurity |
Impact of COVID-19 on Emotional Health and Well-Being |
General Mental Health; Health Care |
Impact of COVID-19 on Physical Health Problems |
Health Care; Physical Activity |
Impact of COVID-19 on Physical Distancing and Quarantine |
Social Distancing; Hygiene |
Impact of COVID-19 on Infection History |
General Symptoms; Diagnosis |
Impact of COVID-19 on Positive Change |
Positive Impacts |
| University of Edinburgh (Edin) Edin Contact |
PhenX Sub-topic(s) |
|---|---|
Coronagenes |
General Symptoms; Outcomes; Personal Demographics |
| University of Florida (UFl) UFl Contact |
PhenX Sub-topic(s) |
|---|---|
Coping with COVID-19: Impact on Technology Use, mobility, food security, depression and social isolation |
|
Mobility Due To COVID-19 |
Physical Activity |
Technology Telehealth Use During COVID-19 |
Media Use; Telehealth |
Life-space Mobility During COVID-19 |
General Mental Health |
COVID-19 Related Impact on Mood and Sleep |
General Mental Health; Sleep Changes |
COVID-19 Related Social Interactions |
Social Impact |
Physical Activity During COVID-19 |
Physical Activity; Daily Life |
Other Activities During COVID-19 |
Overall Impact |
Food Access During COVID-19 |
Food Security |
Thoughts and Feelings About COVID-19 (open ended) |
Overall Impact |
| University of Miami (UMiami) UMiami Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Household Environment Scale (CHES) |
|
Demographics |
Locational Demographics; Social Impact; Personal Demographics |
Household |
Conflict; Daily Life; Household Togetherness |
Escala de Ambiente Familiar Durante la Pandemia COVID-19 (Spanish) |
|
Demographics (Spanish) |
Locational Demographics; Social Impact; Personal Demographics |
Household (Spanish) |
Conflict; Daily Life; Household Togetherness |
Escala de Ambiente Familiar Durante a Pandemia COVID-19 (Portuguese) |
|
Demographics (Portuguese) |
Locational Demographics; Social Impact; Personal Demographics |
Household (Portuguese) |
Conflict; Daily Life; Household Togetherness |
COVID-19 Household Environment Scale (CHES) (Mandarin) |
|
Demographics (Mandarin) |
Locational Demographics; Social Impact; Personal Demographics |
Household (Mandarin) |
Conflict; Daily Life; Household Togetherness |
| University of Miami: Department of Psychology (UMiami) UMiami Contact |
PhenX Sub-topic(s) |
|---|---|
Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS) |
|
COVID-19 Experiences |
Diagnosis; General Symptoms; Health Care |
COVID-19 Psychosocial and Practical Experiences |
General Mental Health; Daily Life; Economic Insecurity |
Health Related Quality of Life |
Quality of Life |
| University of Miami School of Nursing and Health Studies (UMiami) UMiami Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 - Cannabis Health Questionnaire (CCHQ) |
|
COVID-19 & Comorbidities |
Chronic Health Conditions |
COVID-19 & Cannabis Use |
Substance Use |
Economic Impact of COVID-19 |
Health Care; Economic Insecurity |
COVID-19 Symptoms, Diagnoses & Testing |
General Symptoms; Diagnosis |
Worry about COVID-19 Infection |
Perceived Threat |
Coping Strategies COVID-19 |
General Mental Health |
COVID-19 - Cannabis Health Questionnaire (CCHQ) (Spanish) |
|
COVID-19 & Comorbidities (Spanish) |
Chronic Health Conditions |
COVID-19 & Cannabis Use (Spanish) |
Substance Use |
Economic Impact of COVID-19 (Spanish) |
Health Care; Economic Insecurity |
COVID-19 Symptoms, Diagnoses & Testing (Spanish) |
General Symptoms; Diagnosis |
Worry about COVID-19 Infection (Spanish) |
Perceived Threat |
Coping Strategies COVID-19 (Spanish) |
General Mental Health |
| University of Michigan (UMich) UMich Contact |
PhenX Sub-topic(s) |
|---|---|
Health and Retirement Study: Core Interview COVID-19 Module |
|
Direct Experience of COVID-19 |
General Symptoms; Diagnosis |
Health Care Access (general) |
Health Care |
Economic Impact Payments |
Economic Insecurity |
Work and Business |
Employment; Economic Impact |
Living Arrangements |
Housing Security; Home Life |
Caregiving |
Community Assistance |
Health and Retirement Study: Questionnaire on Your Everyday life and Well-being |
|
Mental Health |
General Mental Health |
Perceptions |
Attitudes; Employment |
Risk Reduction Behaviors |
Social Impact; Daily Life |
| University of Michigan, Institute for Social Research (UMich) UMich Contact |
PhenX Sub-topic(s) |
|---|---|
Panel Study of Income Dynamics Covid-19 Special Questions |
|
Section G COVID-19 Financial Series |
Economic Insecurity; Economic Impact |
Section G COVID-19 Stimulus Payment |
Government Response; Economic Impact |
Section G COVID-19 Paycheck Protection Program |
Government Response; Economic Impact |
Section H COVID-19 Health Series |
General Symptoms; General Mental Health; Diagnosis |
Section H COVID-19 OFUM Health Series |
Diagnosis; Family Impact |
Section M COVID-19 Donations Series |
Community Assistance |
| University of Michigan Center for Disability Health and Wellness (UMich) UMich Contact |
PhenX Sub-topic(s) |
|---|---|
Coronavirus Disability Survey (COV-DIS) |
|
General health |
Health Care |
Depressive symptoms |
General Mental Health |
Social isolation |
Social Impact; Daily Impact |
Coronavirus infection/exposure |
Status; Perceived Threat |
Daily activities |
Daily Impact; Daily Life |
Access to medical care |
Health Care |
Employment and financial impact |
Employment; Economic Insecurity |
Transportation and information access |
Daily Impact; Sources of information about COVID-19 |
| University of North Carolina (UNC) UNC Contact |
PhenX Sub-topic(s) |
|---|---|
CTHSUS COVID-19 Survey |
|
Tele mental health services Use |
Mental Health Treatment; Telehealth |
Tele mental health services Satisfaction |
Telehealth; Mental Health Treatment Feedback |
Tele mental health services Concerns |
Telehealth; Mental Health Communications |
| University of North Carolina School of Medicine (UNC) UNC Contact 1 , UNC Contact 2 |
PhenX Sub-topic(s) |
|---|---|
AURORA-COVID Impact Survey (AURORA-CIS) |
|
Financial impact of COVID-19 |
Economic Insecurity |
Health impact (self and loved ones) of COVID-19 |
Diagnosis |
Worry about COVID-19 |
General Mental Health |
Employment status due to COVID-19 |
Employment |
| University of Oklahoma Contact |
PhenX Sub-topic(s) |
|---|---|
Windshield Survey – COVID-19 Behaviors - |
Social Distancing; Personal Protective Equipment |
| University of Pittsburgh Medical Center (UMPC) UMPC Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Adolescent Symptom & Psychological Experience |
|
General experience related to COVID and social distancing |
Overall Impact |
Emotional experience related to COVID and social distancing |
General Mental Health |
Cognitive experience related to COVID and social distancing |
General Mental Health |
Social experience related to COVID and social distancing |
Social Impact |
COVID-19 Adolescent Symptom & Psychological Experience |
|
General experience related to COVID and social distancing |
Overall Impact |
Emotional experience related to COVID and social distancing |
General Mental Health |
Cognitive experience related to COVID and social distancing |
General Mental Health |
Social experience related to COVID and social distancing |
Social Impact |
| University of Utah Department of Psychology Contact |
PhenX Sub-topic(s) |
|---|---|
University of Utah MIND Lab Measures of COVID-19 |
|
Trust and Information COVID-19 |
Sources of information about COVID-19 |
Social Distancing |
Social Distancing |
Diagnosis COVID-19 |
Diagnosis |
Exposure |
Exposure |
Demographics |
Personal Demographics |
| The University of Vermont, Larner College of Medicine (UVm) UVm Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 measures included in the PACE Vermont Study |
|
COVID-19 concerns |
General Mental Health; Overall Impact; Daily Impact |
COVID-19/Substance use |
Substance Use |
COVID-19/School/work |
K-12 Education Impact; Employment |
COVID-19 Activities |
Daily Impact |
Policy awareness and support |
Substance Use |
Respiratory Symptoms |
COVID-19 Vaccination |
Additional COVID-19 Questions |
General Mental Health; Substance Use |
| University of Washington, Seattle Contact |
PhenX Sub-topic(s) |
|---|---|
Participant Information |
|
ID to BMI |
Personal Demographics |
Symptoms to Care |
General Symptoms |
Rate to Shortness of Breath |
Health History; Quality of Life |
Lingering Symptoms |
Overall Impact; Health History; Quality of Life |
| UPenn in collaboration with CTSAs Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Patient Survey |
|
COVID Diagnosis and symptoms |
Diagnosis; General Symptoms; Foreign Travel |
General health questions |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions |
Substance Use; Education; Employment |
COVID-19 Patient Survey (Chinese) |
|
COVID Diagnosis and symptoms (Chinese) |
Diagnosis; General Symptoms; Foreign Travel |
General health questions (Chinese) |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions (Chinese) |
Substance Use; Education; Employment |
COVID-19 Patient Survey (French) |
|
COVID Diagnosis and symptoms (French) |
Diagnosis; General Symptoms; Foreign Travel |
General health questions (French) |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions (French) |
Substance Use; Education; Employment |
COVID-19 Patient Survey (Italian) |
|
COVID Diagnosis and symptoms (Italian) |
Diagnosis; General Symptoms; Foreign Travel |
General health questions (Italian) |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions (Italian) |
Substance Use; Education; Employment |
COVID-19 Patient Survey (Japanese) |
|
COVID Diagnosis and symptoms (Japanese) |
Diagnosis; General Symptoms; Foreign Travel |
General health questions (Japanese) |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions (Japanese) |
Substance Use; Education; Employment |
COVID-19 Patient Survey (Korean) |
|
COVID Diagnosis and symptoms (Korean) |
Diagnosis; General Symptoms; Foreign Travel |
General health questions (Korean) |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions (Korean) |
Substance Use; Education; Employment |
COVID-19 Patient Survey (Polish) |
|
COVID Diagnosis and symptoms (Polish) |
Diagnosis; General Symptoms; Foreign Travel |
General health questions (Polish) |
Social Distancing; Chronic Health Conditions; Health History |
Personal lifestyle questions (Polish) |
Substance Use; Education; Employment |
| UPMC Children's Hospital of Pittsburgh Contact |
PhenX Sub-topic(s) |
|---|---|
Characteristics and Outcomes of Kawasaki Disease and |
Diagnosis; Treatment; Personal Demographics |
| US Census Contact |
PhenX Sub-topic(s) |
|---|---|
COVID-19 Household Pulse Questionnaire |
|
COVID-19 and Employment Stability |
Employment |
COVID-19 and Food Security |
Food Security |
COVID-19 and Health |
General Mental Health; Health Care |
COVID-19 and Housing Security |
Housing Security |
COVID-19 and Education Disruption |
K-12 Education Impact |
COVID-19 Household Pulse Questionnaire (Spanish) |
|
COVID-19 and Employment (Spanish) |
Employment |
COVID-19 and Food Security (Spanish) |
Food Security |
COVID-19 and Health (Spanish) |
General Mental Health; Health Care |
COVID-19 and Housing Security (Spanish) |
Housing Security |
COVID-19 and Education Disruption (Spanish) |
K-12 Education Impact |
| Vanderbilt University Medical Center (VUMC) VUMC Contact |
PhenX Sub-topic(s) |
|---|---|
Vanderbilt Child Health COVID-19 Poll: A National Survey of the |
Economic Insecurity; Health Care; Overall Impact |
| Wellcome Trust Contact |
PhenX Sub-topic(s) |
|---|---|
UK COVID19 Questionnaire |
|
COVID-19 Related Health Questions |
General Symptoms; Status; General Mental Health; Non-COVID-19 Symptoms and Medicines |
Behaviour Change and Knowledge Due to COVID-19 |
Overall Impact; K-12 Education Impact; Knowledge |
Economic Impact Due to COVID-19 |
Economic Insecurity; Employment |
Social Impact Due to COVID-19 |
Social Impact; Home Life |
Environmental Changes Due to COVID-19 |
Housing Security |
| Yale School of Medicine Contact |
PhenX Sub-topic(s) |
|---|---|
Yale COVID-19 Recovery Study: Screening Questionnaire |
Personal Demographics; Status; Diagnosis |
Yale COVID-19 Recovery Study: Survey 1 |
Personal Demographics; Status; Diagnosis |
Yale COVID-19 Recovery Study: Survey 2 |
General Symptoms; COVID-19 Vaccination |
Yale COVID-19 Recovery Study: Survey 3 |
General Symptoms; COVID-19 Vaccination |
Yale COVID-19 Recovery Study: Survey 4 |
Treatment; General Symptoms; Daily Impact |
| Yale University Pain Management Collaboratory Coordinating Center Contact |
PhenX Sub-topic(s) |
|---|---|
Pain Management Collaboratory (PMC) Coronavirus Pandemic (COVID-19) Measures |
Overall Impact |
Last Updated 6/21/23, 12:00 AM